HELP PLEASE

[Guest guest]

Try the Better Business Bearue of the state or city that they are in.

 

" Dr. S Nye " <drsnye wrote:Hallo there

Can any of the American colleagues please assist me? I am trying to find contact

details for the " Nature Cure Institute " of Santa Monica California - and don't

know where to begin to establish the bona fides of training from this

establishment. Any assistance would be much appreciate. Thanks!

 

 

[Guest guest]

Many thanks Stella. I'll do an internet search for the Bureau, as I live in

Africa and do not have access to USA details from here. If you happen to

have such info on hand it would however speed up my search.

Sandi

 

 

-

" Stella " <slg4

 

Monday, May 12, 2003 7:26 AM

Re: help please

 

 

> Try the Better Business Bearue of the state or city that they are in.

>

> " Dr. S Nye " <drsnye wrote:Hallo there

> Can any of the American colleagues please assist me? I am trying to find

contact details for the " Nature Cure Institute " of Santa Monica California -

and don't know where to begin to establish the bona fides of training from

this establishment. Any assistance would be much appreciate. Thanks!

>

>

[Guest guest]

Sandra,

 

It could be whatever the gel caps are made of, it could be there is

something in the oil itself. If you have taken oregano oil before, and KNOW

it's not that, then there is either something in the oil or the caps.

 

You've stopped taking it right??

 

Warm regards,

Janine Phariss

www.BlueSageNaturals.com

Healthy Skin ~ Happy Bodies!

The only limitation of potential is your own perception of your potential.

Paula White 2003

 

 

 

 

[Guest guest]

Yes I`ve quit I`m too afraid to take it I was a scatching fool{:>

I have never taken oregano oil before, I have never been alergic to anything

that I can remember of either. I thought it was the hives but it seems like

everywhere there was a welp I now have a rash is this how the hives do?? I am

not a sick person as a rule and don`t go to drs. so I can use all the help I can

get.

Thank you

Sandra

-

Janine

 

 

Sandra,

 

It could be whatever the gel caps are made of, it could be there is

something in the oil itself. If you have taken oregano oil before, and KNOW

it's not that, then there is either something in the oil or the caps.

 

You've stopped taking it right??

 

Warm regards,

Janine Phariss

 

 

 

 

[Guest guest]

Many of you have written to me asking what I was looking for, so here

is a short list.

 

Neroli Wax

Rose Wax

Rose Concrete

Beeswax Absolute

Jasmine Attar (I am looking for one that is nicely balanced, the one

I currently have is to heavy on the Sandalwood and I can bearly smell

the Jasmine.)

 

A good and reasonably priced Bulgarian Rose Oil (I have plenty of

the Turkish Rose Oil, thanks Butch :-))

 

So those are the items I am looking for, any help in sourcing them

would be greatly appreciated.

 

TIA

Laurie Hoppe

 

 

 

I wrote:

> I have been looking for a couple of ingrediants that I can't find

at either

> To Die For or the Herberie. I did find them at a couple of other

places.

>

> Has anyone used either Eden Botanicals or Essential Wholesale?

>

> How are the quality of their products?

>

> You can reply privately if you wish to layria at comcast.net

>

> TIA

> Laurie Hoppe

[Guest guest]

I use a liquid calcium/magnesium supplement for relief of menstrual cramps.

My mother in-law told me that it was used years ago for relief of muscle

spasms.

Said her mother used it for muscle spasms all of the time.

 

Anyway - works like a charm for what I need it for. Works faster than

ibuprophen.

 

Carrol

 

walkingwithelves wrote:

 

> I was wondering if it is possible to find something that can help

>with the mucle spasims that I get due to ME/CFS. I would rather take

>herbal remidies than drugs. I also have pain in my left hip which

>makes me wake up they want me to use painkillers but I feel like a

>zombie when I take them also I take dizzy spells and fall a lot as

>well as shaking. I have also osteoarthritis and osteopporosis. I had a

>fall today which has left me very shaken and bruised

>Thank you

>

>walkingwithelves aka Liz

>

>

>

>

>

>

>

>

>

>Federal Law requires that we warn you of the following:

>1. Natural methods can sometimes backfire.

>2. If you are pregnant, consult your physician before using any natural remedy.

>3. The Constitution guarantees you the right to be your own physician and to

>prescribe for your own health.

>We are not medical doctors although MDs are welcome to post here as long as

>they behave themselves.

>Any opinions put forth by the list members are exactly that, and any person

>following the advice of anyone posting here does so at their own risk.

>It is up to you to educate yourself. By accepting advice or products from list

members, you are agreeing to

>be fully responsible for your own health, and hold the List Owner and members

free of any liability.

>

>Dr. Ian Shillington

>Doctor of Naturopathy

>Dr.IanShillington

>

[Guest guest]

Hi Liz,

 

Sounds like you are looking for a band-aid. What you really need is the

Total Body Cleanse to actually get rid of the problem, instead of just

trying to manage the symptoms it causes. Would that not be a better idea?

You can find all the details in the files on the TBC.

 

love

Lisa de Haas

Senior Moderator

 

-

" Carrol " <seafish

<herbal remedies >

Saturday, April 08, 2006 6:35 AM

Re: Herbal Remedies - Help please

 

 

>I use a liquid calcium/magnesium supplement for relief of menstrual cramps.

> My mother in-law told me that it was used years ago for relief of muscle

> spasms.

> Said her mother used it for muscle spasms all of the time.

>

> Anyway - works like a charm for what I need it for. Works faster than

> ibuprophen.

>

> Carrol

>

> walkingwithelves wrote:

>

>> I was wondering if it is possible to find something that can help

>>with the mucle spasims that I get due to ME/CFS. I would rather take

>>herbal remidies than drugs. I also have pain in my left hip which

>>makes me wake up they want me to use painkillers but I feel like a

>>zombie when I take them also I take dizzy spells and fall a lot as

>>well as shaking. I have also osteoarthritis and osteopporosis. I had a

>>fall today which has left me very shaken and bruised

>>Thank you

>>

>>walkingwithelves aka Liz

[Guest guest]

I have an herbal suggestion, but I have heard of people with CFS/ME who

have had significant improvment in symptoms by using Aggressive Rest

Therapy. There's an article about it at

 

http://www.geocities.com/mamaterri.geo/ART.html

 

 

herbal remedies , " walkingwithelves "

<ElizabethRussell3 wrote:

>

>

> I was wondering if it is possible to find something that can help

> with the mucle spasims that I get due to ME/CFS. I would rather take

> herbal remidies than drugs. I also have pain in my left hip which

> makes me wake up they want me to use painkillers but I feel like a

> zombie when I take them also I take dizzy spells and fall a lot as

> well as shaking. I have also osteoarthritis and osteopporosis. I had

a

> fall today which has left me very shaken and bruised

> Thank you

>

> walkingwithelves aka Liz

>

[Guest guest]

I was not looking for a band-aid when I found the calcuim/magnesium.

This is just what I found that helped a serious problem along

the way.

I have been looking for the cause of my problem for over 30 years.

 

I have always figured that the cramps I suffered from was from a lack

of some mineral, etc that I needed but figuring out what the cause

is has been quite a challenge. I am now on a detox program,

but I still suffer from the cramps and when I do, I reach for the

Calcium mangesium instead of the ibuprophen.

Carrol

 

Lisa de Haas@Wanadoo wrote:

 

Hi Liz,

Sounds like you are looking for a band-aid. What you really need is the Total Body Cleanse to actually get rid of the problem, instead of just trying to manage the symptoms it causes. Would that not be a better idea?

You can find all the details in the files on the TBC.

love

Lisa de Haas

Senior Moderator

- "Carrol" <seafish

<herbal remedies >

Saturday, April 08, 2006 6:35 AM

Re: Herbal Remedies - Help please

 

 

I use a liquid calcium/magnesium supplement for relief of menstrual cramps.

My mother in-law told me that it was used years ago for relief of muscle

spasms.

Said her mother used it for muscle spasms all of the time.

Anyway - works like a charm for what I need it for. Works faster than

ibuprophen.

Carrol

walkingwithelves wrote:

 

 

I was wondering if it is possible to find something that can help

with the mucle spasims that I get due to ME/CFS. I would rather take

herbal remidies than drugs. I also have pain in my left hip which

makes me wake up they want me to use painkillers but I feel like a

zombie when I take them also I take dizzy spells and fall a lot as

well as shaking. I have also osteoarthritis and osteopporosis. I had a

fall today which has left me very shaken and bruised

Thank you

walkingwithelves aka Liz

 

 

 

Federal Law requires that we warn you of the following: 1. Natural methods can sometimes backfire. 2. If you are pregnant, consult your physician before using any natural remedy. 3. The Constitution guarantees you the right to be your own physician and to

prescribe for your own health. We are not medical doctors although MDs are welcome to post here as long as they behave themselves. Any opinions put forth by the list members are exactly that, and any person following the advice of anyone posting here does so at their own risk. It is up to you to educate yourself. By accepting advice or products from list members, you are agreeing to be fully responsible for your own health, and hold the List Owner and members free of any liability. Dr. Ian Shillington

Doctor of Naturopathy

Dr.IanShillington

[Guest guest]

Check out the files ....Mary Ostrowski / Senior Moderator

 

-

You have to get to know me first

herbal remedies

Saturday, August 26, 2006 10:42 PM

Herbal Remedies - Help please

 

 

I have been d to this group for a long time but just recentlyhave been reading the messages and posts. Please guide me to this fullbody cleanse that everyone is talking about please?

[Guest guest]

About Calcium, Magmesium and vitamin D:

I just came to know that Calcium should be in Citrate

form. Magnesium should be chelated and Oxide is not

good. vitamin D should be D3. Swansonvitamins has

Albion process chelated minerals.

 

Suren

[Guest guest]

Sat nam Dev Saroop

 

I would do KY every day instead of once a week. Garlic can either

raise or lower the BP. There is a BP point on the anterior side

where the arm meets the shoulder. Press this fairy hard and it will

hurt so I am warning you. It is best to have someone else press the

points for you.

 

GB

 

,

" Dev " <devsaroop wrote:

>

> I've been having problems with my blood pressure readings for the

last 3 months, the readings are in and around the 157/87 mark no

matter what time of the day I take it.. my heart beats vary and are

in and around the 57 - 65 beats per min.

> I don't take any supplemental drugs as we speak.. I eat a pretty

healthy diet, mostly fruits and vegies every day, I seldom eat more

than 2 meals a day..I'm 62 years old and I do intensive Kundalini

Yoga at least once a week.. I don't work full time anymore, I drink

LOTS of water every day.. I'm a Caucasian Canadian (white) and single

( never married).. Is there any natural medecine that can help this

high blood pressure? without going the conventional route, I don't

particularly enjoy the idea of taking pharmaceutical drugs.. I've

always been on naturals..any suggestions? please

> humbly

> dev

>

>

[Guest guest]

I don't want to be Pollyanna, but, according to homeopathy, it is

better to have something on the skin than internally. When we try to

supress the rashes etc, whatever is not working goes inside and the

consequences are much worse.

 

Homeopathy says: from inside to outside, from right to left, and from

above to below, so you having something in you foot is good, that is,

it is less bad.

 

Have you done an allergy test?

You can do it yourself.

Remove everything from the diet and every day or so you add something

and fell the reaction in your body.

 

You can also try Pomegranate.

My 92 year old aunt had a terrible rash in her scalp for 2 years. No

medicine helped her. One day, a repaiman went to fix something in her

house and mentioned pomegranate tea. She started applying it locally

and drinking the tea. I just spoke with her; she has no rash. It is

gone!

 

I bet many people here will be able to help you.

Good luck.

Maria

 

 

 

, " Krissi "

<extremefaith333 wrote:

>

> I am new here. My name is Kristin and I am from Wisconsin. I have 2

> kids and a super great husband. I really need some guidance. I am

> hoping someone has some answers for me because both my GP(General

> Practicioner) and Derm told me they have NO ANSWERS and can not

> help

> me. I got bad athletes foot or yeast on my feet over a year and a

> half

> ago. Turned into staph. Was treated with anitbiotics and steroids

> then

> ended up in the hospital on an antibiotic drip for asthma. The

> doctors

> had me on a ton of different meds none of which worked. I broke out

> in

> a horrible rash covering my body and causing blistering and itchy

> hands

> then swollen hands. Along with this a vaginal infection for the

> past 4

> months and I can not even barely walk. I am so sick I have not

> worked

> and am losing my home and have 2 small children. ANY insite would

> be. Also because my money is so tight seeing a nutritionist is out

of

> the question because of the expense. Also my mom said she would buy

> me whatever supplements I need. My poor babies (ages 7 & 9) need me

> HELP!!

> soooooooo appreciated

>

> Thank you

> Kristin

>

[Guest guest]

try oil of oregano  made by north  american herbs and spice. this stuff kills

staff and mrsa when antibiotics won't.call health food stores in your area or go

to thepowerhour.org

                                                                                \

  good luck

                                                                                \

  john

 

 

 

 

 

[Guest guest]

Kristin,

I am presently reading a book by Dr. Bernard Jensen. It is called:

Tissue Cleansing through Bowel Management. In the book it shows

photos of different folks feet... and it speaks of what you have

mentioned. Maybe you can 'google' information on bowel

management/bowel cleansing. One of the avenues that the body will try

to detox itself is thru the skin. Hope this has helped in some way

 

, " Krissi "

<extremefaith333 wrote:

>

> I am new here. My name is Kristin and I am from Wisconsin. I have 2

> kids and a super great husband. I really need some guidance. I am

> hoping someone has some answers for me because both my GP(General

> Practicioner) and Derm told me they have NO ANSWERS and can not

> help

> me. I got bad athletes foot or yeast on my feet over a year and a

> half

> ago. Turned into staph. Was treated with anitbiotics and steroids

> then

> ended up in the hospital on an antibiotic drip for asthma. The

> doctors

> had me on a ton of different meds none of which worked. I broke out

> in

> a horrible rash covering my body and causing blistering and itchy

> hands

> then swollen hands. Along with this a vaginal infection for the

> past 4

> months and I can not even barely walk. I am so sick I have not

> worked

> and am losing my home and have 2 small children. ANY insite would

> be. Also because my money is so tight seeing a nutritionist is out

of

> the question because of the expense. Also my mom said she would buy

> me whatever supplements I need. My poor babies (ages 7 & 9) need me

> HELP!!

> soooooooo appreciated

>

> Thank you

> Kristin

>

[Guest guest]

Kristin,

 

Colloidal silver, ingested and used topically kills staph and other infections

that antibiotics can't wipe out.

 

Two good sources are from www.utopiasilver.com, they are having a sale now - get

their advanced colloidal silver. Meso silver also sells good stuff. They both

have the same scientific processing method.

 

Don't worry you won't turn blue on their products.

You can call Ben Taylor of Utopia for advice. They also sell a home generator.

I don't have any financial connection with any of them. Just a client who is

very pleased with my experience with utopia silver.

 

Melly

[Guest guest]

 

 

For those of you who are interested in your own wellbeing,

 

This is how it goes.

 

One day you are feeling unwell so you go to the doctors he tells you, you

have a disease.

 

So what's going on?

 

Ok you have dis-ease,  your body is not functioning as it did.

 

So your body has a MAL-FUNCTION.

 

So why MALFUNCTION?

 

Well one of your bodys system is not working properly.

 

So a SYSTEM not working to design plan.

 

So why is this?

 

Well SYSTEMS are made up by team work of ORGANS and glands (hormonal system,

endocrine system, Immune System, etc).

 

So your body has an ORGAN deterioration or interference with normal

operational processing.

 

So whys that?

 

ORGANS and glands are made up of cells, individual building bricks of our

whole body.

 

So what's gone wrong with the cell?

 

Main problem CELL TO CELL COMMUNICATION has broken down.

 

So why has this happened?

 

Interruption to the supply of ESSENTIAL NUTRIENT in particular

8 essential carbohydrates,

 

Why has this happened?

 

Your emergency back up system that make up the carbohydrates from the only

two you get in modern diets has deteriorated, if it collapses you will be

dead. You have been running on your emergency back up system meant for only

times of famine when we were hunter gathers.

Remember it took hundreds of thousands of years for us to evolve and

evolution involved our foods. Just in the last 50 years our foods have moved

so far away from our evolutionary foods that the body cannot recognize them

or deal with them, we are starving ourselves.

 

YES, OBESITY is actual starvation. Spooky.

 

Not enough of the correct food that supplies information, is getting to or

into the cell for the cell to know what to do, and self correct.

 

TEMPERATURE CONTROL, the cells are running too hot or too cold.

See this in thyroid malfunction.

Fever control,

 

DETOXIFICATION, has been interrupted or ceased

Clearing out of the refuse and debris.

 

OXIDIZATION, oxygen is being burned (electrons are being used but not been

replenished) (lack of Antioxidants) so more and more cells mutate (cancer).

 

INFECTION, Cells being attack by infectious agents Virus, bacteria, fungi,

Cell unable to identify itself to its own body immune system (auto immune

disease), cell gets destroyed by bodys own immune system, Rheumatoid

arthritis, Hepatitis.

 

So many things not being taken care of, so gradual breakdown of cell,

leading to complete break down of body, then you shaking hands with the grim

reaper too soon.

 

Do you understand, not until you replace the missing nutrients will your

body work correctly?

 

That's the way it was made.

 

It is nutrient deficient, not pharmaceutical deficient,

 

Nutrient deficiency will, lead to surgery and removal of deteriorated parts.

 

When all you need to do is to replace the missing nutrients and let the body

recuperate.

 

You may think you do not have problem. But wait a little while, all those

people in hospital thought like you once.

 

Lack of Essential Nutrients leads to cell breakdown,

cell breakdown leads to

organ breakdown,

organ breakdown leads to

system breakdown,

system breakdown leads to

function breakdown,

function breakdown leads to

lack of wellness,

 

do you see this now?

 

 

Kind regards

Mickr

[Guest guest]

Definately start looking into the probiotics, you have yeast that is out of

control.

 

 You can make Kombucha tea at home, or keifer, which will start taking good

control of the yeast.  Everyone has yeast naturally in their body, but

antibiotics, or too many sweets, can make the yeast proliferate, and become

overbearing.  At the very least, start eating tons of yogurt. 

Look into the Weston A. Price foundation, and Sally Fallon's book Wise

Traditions, for help with recipe/remedies.

God bless,

Gina in ILL>

 

 

 

 

 

[Guest guest]

What nutrients would you suggest replacing for the average American diet?

 

 

 

 

 

 

[Guest guest]

Hi,

 

On another group, LDN, there is talk of extra virgin coconut oil to

rid yourself of candida. It is also good just rubbed on when you have

a fungus infection. I tried 2 tablespoons a day of it,(you have to

work up to that amount) and started coughing up a lot of mucus,

hopefully, it was yeast. You can do a search in google. It is simple,

and just may help.

 

Cindy C.

 

, " Krissi "

<extremefaith333 wrote:

>

> I am new here. My name is Kristin and I am from Wisconsin. I have 2

> kids and a super great husband. I really need some guidance. I am

> hoping someone has some answers for me because both my GP(General

> Practicioner) and Derm told me they have NO ANSWERS and can not

> help

> me. I got bad athletes foot or yeast on my feet over a year and a

> half

> ago. Turned into staph. Was treated with anitbiotics and steroids

> then

> ended up in the hospital on an antibiotic drip for asthma. The

> doctors

> had me on a ton of different meds none of which worked. I broke out

> in

> a horrible rash covering my body and causing blistering and itchy

> hands

> then swollen hands. Along with this a vaginal infection for the

> past 4

> months and I can not even barely walk. I am so sick I have not

> worked

> and am losing my home and have 2 small children. ANY insite would

> be. Also because my money is so tight seeing a nutritionist is out of

> the question because of the expense. Also my mom said she would buy

> me whatever supplements I need. My poor babies (ages 7 & 9) need me

> HELP!!

> soooooooo appreciated

>

> Thank you

> Kristin

>

[Guest guest]

Sometimes, one supplement can cancel out the good benefit of another supplement

so one has to study the supplements one intends to take.

 

Melly

[Guest guest]

Tracy, Doc can help, I'm sure of it!!

But you have to call him!

888-898-9660

 

-"deena.bean" <deenabean"Herbal Remedies" <herbal remedies >Monday, April 6, 2009 10:01:01 PM GMT -08:00 US/Canada Pacific{Herbal Remedies} Help please

 

 

 

Hi my daughter has a blood disorder called ITP and they have tried using steroids and removing her spleen and both of these methods have failed to solve this problem or even keep the levels up at a safe level. For those that don't know what ITP is it means they don't know what causes it, low platelets and bruising. She gets bleeding and exhaustion when the platelet level goes below 50 thousand. A regular persons platelet levels are over 250 thousand. Her count has been as low as 2000. She is only 20 years old. The steroids caused her to gain almost 40 pounds in 3 months she went from size 1 to size 9. She has a huge scar from having her spleen removed since November her life has come to a full stop. On top of that she is challenged because she has had to cope with FAS and ADHD. Since we brought her home at 18 months she has over come many challenges and graduated high school with honors. If there is anything you can suggest that would help boost her immune system and help with her platelet levels we would be very grateful. She is a very determined little lady and she is not ready to check out yet she wants to live a long and happy life but we are very worried. - Tracy Petley

[Guest guest]

Tracey,

 

My nephew, at age 5 had ITP. It showed itself as huge dark bruises that

looked like whip lashes on his back and sides, and within a day were on his

head, making them look like someone had splotched him with grape jelly.

 

I immediately took to the internet and discovered that the only people with

this disease that showed any sign of recovery, or did recover, were those

who took huge doses of Vitamin C and boosted their immune system.

 

The medical care my nephew got was second to none, but I disagreed with

almost all of it, but had to be very careful, as my brother (his dad) is all

about the doctors. When they decided to put him on prednisone, I had to

warn my brother about the side effects and damage it would cause long term,

and he got it, thank goodness! He allowed the steroid for just 2 weeks, as

he saw the changes in his son were not good. He then decided I could add

whatever I thought would help to his regimen.

 

Kids vitamins are crap, this kid doesn't eat fruit or vegatables, juices, or

anything else that is good for him. I had to get him to drink Vitamin C and

tell him it was medicine, the only way I could get it into him, then I put

mushroom extracts in his burgers, and IT WORKED! His counts started to rise

from an all time low of 40 and in a week it was 4K, then 100K, and then by

week 3 it was over 300K --- cured!

 

I'm not saying this is what will happen for your daughter, but a body cannot

repair itself without amunition. I would highly suggest Doc's Total

Nutrition and add some Vitamin C, and look around for a good mushroom

complex.

 

I'll pray for your daughter to get better quickly.

 

Diane

-

" deena.bean " <deenabean

<herbal remedies >

Tuesday, April 07, 2009 1:01 AM

{Herbal Remedies} Help please

 

 

> Hi my daughter has a blood disorder called ITP and they have tried using

steroids and removing her spleen and both of these methods have failed to

solve this problem or even keep the levels up at a safe level. For those

that don't know what ITP is it means they don't know what causes it, low

platelets and bruising. She gets bleeding and exhaustion when the platelet

level goes below 50 thousand. A regular persons platelet levels are over

250 thousand. Her count has been as low as 2000. She is only 20 years old.

The steroids caused her to gain almost 40 pounds in 3 months she went from

size 1 to size 9. She has a huge scar from having her spleen removed since

November her life has come to a full stop. On top of that she is challenged

because she has had to cope with FAS and ADHD. Since we brought her home at

18 months she has over come many challenges and graduated high school with

honors. If there is anything you can suggest that would help boost her

immune system and help with her platelet levels we would be very grateful.

She is a very determined little lady and she is not ready to check out yet

she wants to live a long and happy life but we are very worried. - Tracy

Petley

>

>

>

> ---

>

> Federal Law requires that we warn you of the following:

> 1. Natural methods can sometimes backfire.

> 2. If you are pregnant, consult your physician before using any natural

remedy.

> 3. The Constitution guarantees you the right to be your own physician and

to

> prescribe for your own health.

> We are not medical doctors although MDs are welcome to post here as long

as

> they behave themselves.

> Any opinions put forth by the list members are exactly that, and any

person

> following the advice of anyone posting here does so at their own risk.

> It is up to you to educate yourself. By accepting advice or products from

list members, you are agreeing to

> be fully responsible for your own health, and hold the List Owner and

members free of any liability.

>

> Dr. Ian Shillington

> Doctor of Naturopathy

> Dr.IanShillington! Groups Links

>

>

>

 

 

----------

----

 

 

 

 

Checked by AVG - www.avg.com

Version: 8.5.285 / Virus Database: 270.11.45/2045 - Release 04/07/09

06:41:00

[Guest guest]

My daughter was diagnosed with ITP in October 1990 at the age of 22 1/2 months. She looked like an abused child! She had purple-black bruises everywhere and had black eyes like a raccoon. She was diagnosed with ITP after having to have a bone marrow aspirate. We were told she would probably not have any more problems as only about 2% of kids get ITp and keep it chronically. She ended up having it chronically. She received IVIg every 14-21 days in order for her platelets to come up to normal. She also had to wear a leather helmet for over 2 years as we could not risk her hitting her head when her counts were below 100K; her platelets were often only 20k-40k, which is dangerously low.

We had a permanent port placed in our daughter for ease of needle penetration after she still had this disorder for 6 months as it was often frustrating to have her stuck multiple times when her veins would collapse.

I fed my kids well (she is not my only child), but she ended up having the ITP active for almost 5 years. why did it disappear? I had her anointed with oil and prayed over at a healing service in my church and she went into remission in July 1995 (shortly after the service). I believe strongly in the power of prayer and I give God all the glory for her healing!

In 1997, the Dr. whom we had seen sent a letter to all kids who had or had had ITP and asked for blood samples as she had won a $25,000 grant from the government to do a study of the blood of her ITP kids (Children's Hospital in Columbus, Ohio). The results? Every child who had ITP who donated blood had a mutation on the 6th Y chromosome. The DR. told us this showed that ITP was genetic. If you go to the official ITP site in USA it says that ITP is still considered idiopathic (cause unknown), even though we were sent paperwork that said these findings we participated in showed a genetic cause.

It would b interesting if you could get your nephew's hospital to check the 6Y chromosome of his blood to see if his is also mutated. But I doubt if the insurance would pay for it.

My daughter was 22 1/2 months old when she was diagnosed, she was 7 1/2 when she went into remission, and she is now 20 years old and planning on getting married this August. We had her permanent port removed in 1997 as it became apparent that her ITP was no longer active and I got tired of taking her monthly to be flushed with Heparin.

The doctor's wanted to put her on steroids and I refused because of the side-effects. I am very glad I refused.

I am so glad to hear that this child is in remission and that the alternative therapy worked. I had tried to find an alternative therapy back in 1990 to no avail.

ITP is a very dangerous and scary disorder to have, especially with small children. My daughter often had 2-4 hour nosebleeds! Very, very scary!!! I remember I used to think how scary and awful it must have been for parents to watch their children bleed like this back in earlier times when this disorder was unknown and no treatment was available. I imagine some children must have bled to death and that used to break my heart to think of these things.

I was born in 1959 and there was no treatment for ITP in 1959. In fact, when my daughter was diagnosed, the Dr. told me had I had this disorder that I would have died from it most likely!

Once, my daughter had three very bad nosebleeds over the last weekend of December of 1992 and I was very careful with her as I knew she had lost a lot of blood (she had very dark circles under her eyes and was pale), but I did NOT want to go to Children's Hospital Er as the wait was horrendous, and I really didn't want to have her hospitalized as I had 6 other kids to care for. That Monday morning I called and got her in the clinic and her blood counts were very low. They gave her an IVIg treatment (all day!) and I was told if her counts didn't come up by Friday on their own that she'd have to have a blood transfusion. Her hemoglobin was only 5.5. By Friday it was coming up (though slowly) and she continued to improve.

Those were not fun times! Very scary and very busy as we practically lived at Children's, but I was always believing that god would heal her and he did. I even had the head of the Hematology/Oncology unit tell me when she was only 2 1/2 that she should have her spleen out as it was costing my insurance company thousands of dollars a month!!! You can bet we NEVER allowed him to treat our child again and we made sure we only saw another doctor during that time!!! Can you believe this??? That doctor was more worried about an insurance company's bottom line over the health of a child??? Our child would have cost the insurance company much more money had we had her spleen out as she would have been hospitalized every time she came down with a cold!! I know, as one mom finally did have her son's spleen out (he had ITP severely!) and he ended up in the hospital at least 10 times per year for simple things that we just get and get over like colds.

This is long! Sorry! But it brings back many memories...

 

Lori"I feel ashamed that so many of us cannot imagine a better way to do things than locking children up all day in cells instead of letting them grow up knowing their families, mingling with the world, assuming real obligations, striving to be independent and self-reliant and free." - John Taylor Gatto

 

herbal remedies From: dmackey00Date: Tue, 7 Apr 2009 16:06:16 -0400Re: {Herbal Remedies} Help please

 

 

 

Tracey,My nephew, at age 5 had ITP. It showed itself as huge dark bruises thatlooked like whip lashes on his back and sides, and within a day were on hishead, making them look like someone had splotched him with grape jelly.I immediately took to the internet and discovered that the only people withthis disease that showed any sign of recovery, or did recover, were thosewho took huge doses of Vitamin C and boosted their immune system.The medical care my nephew got was second to none, but I disagreed withalmost all of it, but had to be very careful, as my brother (his dad) is allabout the doctors. When they decided to put him on prednisone, I had towarn my brother about the side effects and damage it would cause long term,and he got it, thank goodness! He allowed the steroid for just 2 weeks, ashe saw the changes in his son were not good. He then decided I could addwhatever I thought would help to his regimen.Kids vitamins are crap, this kid doesn't eat fruit or vegatables, juices, oranything else that is good for him. I had to get him to drink Vitamin C andtell him it was medicine, the only way I could get it into him, then I putmushroom extracts in his burgers, and IT WORKED! His counts started to risefrom an all time low of 40 and in a week it was 4K, then 100K, and then byweek 3 it was over 300K --- cured!I'm not saying this is what will happen for your daughter, but a body cannotrepair itself without amunition. I would highly suggest Doc's TotalNutrition and add some Vitamin C, and look around for a good mushroomcomplex.I'll pray for your daughter to get better quickly.Diane- "deena.bean" <deenabean (AT) citywest (DOT) ca><herbal remedies >Tuesday, April 07, 2009 1:01 AM{Herbal Remedies} Help please> Hi my daughter has a blood disorder called ITP and they have tried usingsteroids and removing her spleen and both of these methods have failed tosolve this problem or even keep the levels up at a safe level. For thosethat don't know what ITP is it means they don't know what causes it, lowplatelets and bruising. She gets bleeding and exhaustion when the plateletlevel goes below 50 thousand. A regular persons platelet levels are over250 thousand. Her count has been as low as 2000. She is only 20 years old.The steroids caused her to gain almost 40 pounds in 3 months she went fromsize 1 to size 9. She has a huge scar from having her spleen removed sinceNovember her life has come to a full stop. On top of that she is challengedbecause she has had to cope with FAS and ADHD. Since we brought her home at18 months she has over come many challenges and graduated high school withhonors. If there is anything you can suggest that would help boost herimmune system and help with her platelet levels we would be very grateful.She is a very determined little lady and she is not ready to check out yetshe wants to live a long and happy life but we are very worried. - TracyPetley>>>> --->> Federal Law requires that we warn you of the following:> 1. Natural methods can sometimes backfire.> 2. If you are pregnant, consult your physician before using any naturalremedy.> 3. The Constitution guarantees you the right to be your own physician andto> prescribe for your own health.> We are not medical doctors although MDs are welcome to post here as longas> they behave themselves.> Any opinions put forth by the list members are exactly that, and anyperson> following the advice of anyone posting here does so at their own risk.> It is up to you to educate yourself. By accepting advice or products fromlist members, you are agreeing to> be fully responsible for your own health, and hold the List Owner andmembers free of any liability.>> Dr. Ian Shillington> Doctor of Naturopathy> Dr.IanShillington (AT) GilaNet (DOT) com

[Guest guest]

Lori,

 

At the time my nephew was dealing with the ITP, I do recall my sis in law

saying that he didn't have the genetic markers for the disease, so they

needed to rule out leukemia as a cause. All of his treatment was at

Children's Hospital in Boston. He was not feeling ill at all and it was

tough to keep a rambunctious five year old from doing things that could hurt

him. Because he had so many marks on his head, we had to be very concerned

with bleeding in the brain. What we went through is nothing compared to

what you and your daughter dealt with. I'm so glad she is cured!

 

 

Diane

A VETERAN

Whether on active duty, retired, national guard or reserve, is someone who,

at one point in his life, wrote a blank check made payable to " The United

States of America, " for an amount of " up to and including my life. "

That is honor, and there are way too many people in this country who no

longer understand it.

Author unknown.

 

-

" Lori Smith " <homeschoolmom42

" Bryan Schillington " <herbal_remedies >

Wednesday, April 08, 2009 6:03 PM

RE: {Herbal Remedies} Help please

 

 

 

My daughter was diagnosed with ITP in October 1990 at the age of 22 1/2

months. She looked like an abused child!