Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Sharon, I wish I could help. I don't have any advice for you but I wanted to let you know that you and your child will be in our prayers. Keep us posted, Tracy > Has your child or anyone on the groups child have the following issues: > My son has had regular bm's for over a year and then memorial day he > had a weird bm with orange oily stuff coming out it looked like BBQ sauce. > Sorry, but that is the only way I can describe it. > I called the pediatrician and they are worthless. I called his > gastro > and they said it could be interceception(not sure of spelling)bowel and > intestine twisted. They did x-rays and he was completely blocked up. They > did two mineral oil and two fleet enemas in two days and very little came > out. > They put him out lactulose which they said had no casein in it, I > found out within 24 hrs it did and took him off of it. They put him on > Miralax a stronger laxative which is not really working. We are at wits > end > since he has been in and out of the local and Childrens Hospital in our > area > since Memorial Day. Nothing is working and his stomach is so swelling. > Somehow he got some gluten. Gluten; wheat, oats, barley all tear his body > up > and the doctors have given us three different diagnosis. We know the > doctor > that gave the Celiac Disease diagnosis is correct since they did a trial > test > and wheat destroys his little system. > Could anyone help me with this. Our next step is to go to John > Hopkins Research Center since I hear they have a great Celiac program. > Sorry so long, I am confused and scared for my son. > Thanks, > Sharon Quote Link to comment Share on other sites More sharing options...
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