Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 Sharon, I am on a list called Health4UandMe . I shared your sons problem with that list and asked for assistance. This is the first reply I have received. The moderator is inviting you to join that list and she is seeking answers. You can read below and then decide if you wish to join or not. I will forward the information she said she is putting together. ><> LaDonna PS: The message I sent is below and her response is next. - " Beverley deGourville " <witness4him <Health4UandMe > Thursday, June 21, 2001 1:01 PM Re: [[Health4UandMe] Intestinal Blockage] > Hi La Donna > This is in keeping with the purpose of this group, which by the way you can > share with this lady. We are here to learn from each other and help and > encourage each other and those who concern us. So please to every one send all > your responses to the group. We learn from each other. It does not mean we > know the answer or we are to be right. We share and the person takes or leaves > the info as they deem fit. We are not doctors but in sharing what little we > have learnt it helps others. > > It is difficult to say what your friend should do, because insufficient info > is given. If she wishes to join us herself maybe pertinent questions can be > ascertained. > > In the meantime I will type out this info I have on Mechanical Obstruction of > the Intestine from " The Merck Man of medical info " This is just to help her > understand a little about the diagnosis she has been given. Before I share > that, I will say this. I have had intestinal obstruction and it was not > diagnosed easily. I suffered for a few weeks in hospital with nasogastric tube > inserted for one of those weeks, to drain my intestines. That was bad enough. > Everytime I tried to eat after that I would have this awful pain. They did > all the test and could not find mechanically anything wrong. Prior to > hospitalization, I was like 8 months preg packed up. It was not until many > people prayed for me at 12 md one Friday that the doctor determined that I > needed to go to surgery my bowel loops were stuck toghether. He thought they > would have to give me a colostomy but alas, that was not necessary. The point > is, there was no other way but surgery at the time that I could see. I still > don't know if there was anything else I could have done naturally, but at the > time I did not know things I now know. > > So as not tomake this post too long I will send the info on the next post. > > bev > > bmlehman wrote: > Hi, > > I am forwarding a message from a mom on a list I moderate who is > desperate for help with her sick son. Does anyone have advice and > suggestions for her? Her message is below. You can send responses > to the forum (if Bev and Curt don't mind) or to me personally at > bmlehman. > > Thank you SO much. My heart goes out to this woman. Please pray for > this sick little boy. > > Sincerely, > LaDonna > > , treeli wrote: > Has your child or anyone on the groups child have the following > issues: > > My son has had regular bm's for over a year and then memorial day he > had a weird bm with orange oily stuff coming out it looked like BBQ > sauce. Sorry, but that is the only way I can describe it. > I called the pediatrician and they are worthless. I called his > gastro and they said it could be interceception(not sure of spelling) > bowel and intestine twisted. They did x-rays and he was completely > blocked up. They did two mineral oil and two fleet enemas in two > days and very little came out. > > They put him out lactulose which they said had no casein in it, I > found out within 24 hrs it did and took him off of it. They put him > on Miralax a stronger laxative which is not really working. We are > at wits end since he has been in and out of the local and Childrens > Hospital in our area since Memorial Day. Nothing is working and his > stomach is so swelling. Somehow he got some gluten. Gluten; wheat, > oats, barley all tear his body up and the doctors have given us three > different diagnosis. We know the doctor > that gave the Celiac Disease diagnosis is correct since they did a > trial test and wheat destroys his little system. > > Could anyone help me with this. Our next step is to go to John > Hopkins Research Center since I hear they have a great Celiac program. > Sorry so long, I am confused and scared for my son. > Thanks, > Sharon > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 Thank you for all of your support and willingness to help my son. I just don't want to see him suffer any more. I am going to join the Health4UandMe group. Sharon Quote Link to comment Share on other sites More sharing options...
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