Help, need advice on testing

[Guest guest]

Hi!

I don't post often, but I have a question about what anyone's experiences with

diagnosing gluten-intolerance has been.

 

Our son is seven, and we had him tested through Enterolab for gluten antibodies,

which came back positive. This is a stool test which someone from this list

recommended. Ok, that was really good enough info for us, and as we had

suspected. But, going to the pediatrician and telling him our results didn't go

over too well. He said he thinks we are barking up the wrong tree, and doesn't

believe Austin is gluten intolerant. Doesn't trust non-FDA( or whoever oversees

the official labs). labs. So, he did blood work, a whole battery of tests, all

of which came back norlam, negative for gluten. Here is my frustration: Austin

has been on a GF diet, strict since Christmas, and before that GF except for

oats for 4 or so months. So, what antibodies WOULD he have? I asked the nurse

prior to the lab draw about this, and she told me (erroneously, I believe) that

the antibodies will show up if you have ever consumed gluten, if you are

sensitive. I didn't buy that then and I don't now either, because it is

contrary to what I have read. When the labs came back neg, the Dr. Told me

everything is fine. I discussed my above concerns, and he admitted that some

types of the antibodies will clear after being GF, but that he didn't know which

ones did that. He said he could follow-up with a gastroenterologist if I wanted

and he would support us.

 

That is my question, whether to go that route. Austin doesn't have gastro

symptoms. He has ADHD symptoms, and rage/aggression issues, as well as skin

rashes when we have tried to introduce the gluten back in. He gets in a fog

mentally for about a week after he's had gluten. I don't know whether to pursue

this, basically for a diagnosis, to appear more credible in the family and

friends, or just to keep him GF because of what we have seen. We don't really

want to put Austin through a lot of invasive tests, and don't want him or

ourselves to have to suffer through a gluten challenge, but family and friends

think we're off the deep end a bit.

 

What would you do?

 

Laurie