Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 , pdw <pdworkman wrote: > > Very interesting. I have a genetic disorder in which defects in a > number of organs are more common. Searching this one and my disorder > turns up tons of hits. Tell me, how did you come to be diagnosed? > >Pam Pam, my sister was diagnosed first, about three years before me. She actually was bleeding internally, and lost a lot of blood through her stool. She had to have a blood transfusion of about 4 pints of blood. When they got her stabilized, her doctor did exploratory surgery to find out what was wrong, as all of the tests they did turned up nothing. When they got in there is when they found her Meckel's Diverticulitis. She was 21 years old. So, when I was having the same symptoms she had, only not quite as severe, and no rectal bleeding for me, I went to the same doctor that she had gone to. They did a proctoscope exam (I think that is what it is called, I know it hurt a LOT! ) That is how they found mine. The surgery I had was not fun, it involved removing 6 feet of intestine plus the diverticulum, I was in the hospital for 9 days, and it took me 12 weeks to recover enough to go back to work. But, I no longer have the pain I used to have whenever I ate something that aggravted the Meckel's My doctor explained that it is something " sort of like an appendix " that everyone has before birth, and in most people it disappears shortly after you are born. In a few people it does not go away on it's own, and can act just like regular diverticuli, which are " pockets " that form on your intestine. Food gets trapped in it, and ferments, which causes the pain, and can eventually lead to it becoming ulcerated, which is what happened to my sister. If it ruptures, it can lead to peritonitis which can kill you. I hope this explains it well enough. Karen in Arizona Quote Link to comment Share on other sites More sharing options...
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