Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Wow, Jae! You really have been through a lot! I'm so glad you finally found help. My son started to have problems just a few weeks after birth, screaming, and green poopies instead of normal breastfeed yellow ones. Thankfully I had read somewhere about gluten issues in babies. I was eating gluten then. I had been off it for 12 months the year before but got lazy during pregnancy and was eating it. I wasn't feeding my son solids. He was reacting to it in my breast milk. He was better almost right away when I stopped eating gluten myself. I'm so glad we learned about his gluten issues early. He is a healthy happy boy now, but he might not have been. I was a depressed, overweight little girl, and lived in a brain fog. I had little energy, couldn't run very far without being exhausted. Doctors couldn't figure anything out wrong with me. Made me really skeptical about doctors. They really don't know much. And now they can't figure out any solution for my mother. Hopefully things get better for her. She is 66 years old and I really think she should have many more happy healthy years of life. This shouldn't be the end for her. I'm so excited she is motivated to try being gluten free. Thanks for sharing, Barbara On May 26, 2008, at 4:48 PM, Jae Jones wrote: > I dealt with a lot of physical and psychological issues throughout > my entire > life. When I was born my mother wasn't able to breastfeed me and > none of the > formulas on the market stayed down. I almost died a few times in my > first > few months of life because of food issues. My grandmother started > cooking > rice everyday and feeding me the water from it. No doctor ever even > suggested I could have had a food allergy or intolerance! When I > started on > solid foods I was vomiting more than I was keeping down, and so my > first > year and a half I lived on rice mostly because that was the one > thing they > where sure of I could eat. Growing up, I was always sick, under > weight, and > diagnosed with behavioral problems. I have dyslexia, which I have > overcome a > lot and have very mild issues with now. I always wondered if my > lack of > nurishment had an effect on brain development and contributed to > dyslexia. > The older I got the more psychological issues I had, and the more > medications they tried, the more symptoms I developed. I started > studying > holistic health and and trying to figure out what was wrong with me > on my > own because I've been to almost every gastroenderologist and many > other > specialist in my are and none of them ever had a clue as to what > all my > problems where. I started a whole wheat diet thinking I needed more > fiber > and whole grains to balance out my digestive problems. Doing so nearly > killed me! Ironically, it was my GYN that first suggested celiac > disease. > After all the gastroenderologist I'd been to, the one doctor that > doesn't > deal with the digestive system at all is the one who comes up with > an answer > and sends me for testing! Since I started the gluten free diet most > all my > symptoms have subsided and the few problems I still have are > extremely mild > in comparison to what they where. If I consume any dairy I with get a > migraine and congested. I developed chronic pancreatitis 8 years > ago, which > causes pain and nutrition problems. It took 7 years to get the > results of > the genetic testing they did, and I got the results from my lawyer, > not the > doctor. I have a mutated CF gene, which is the root cause of the > chronic > pancreatitis and the frequent chest colds, bronchitis, etc. Being > gluten/dairy free relives symptoms a lot and reduces frequency and > severity > of those symptoms. I still get headaches sometimes, but anxiety and > other > psychological symptoms I've had all my life are gone now. > Candidiasis can be > an issue as well. I had to do the yeast free diet for a while and > at times I > still get sick when eating breads that have yeast. There is a > definite link > between nutrition and brain function. I attached the brochoure I > made for my > one class on Candidiasis as it may be helpful to your mother as > well. A lot > of people with gluten problems also suffer from this as well > because of the > damage to the intestinal villi which gives opportunity for the > candidia to > overgrow. I hope this helps your mother. I wish her all the luck in > finding > good health. Feel free to ask any more specific questions that I > may be able > to answer to help her understand better. > > Take care, > Jae > > On Mon, May 26, 2008 at 4:11 PM, Barbara Frohne < > barbara.frohne wrote: > > > I am gluten intolerant. I've thought that my mother also has issues, > > but it wasn't something she could accept in the past. She is > > developing some difficult to deal with brain issues such as tremors, > > anxiety, nervousness and more that doctors haven't been able to > > diagnose, and psych drugs haven't helped. Today I got the brainstorm > > to google gluten intolerance and the brain, and was surprised to > find > > out that there is a connection. After showing my findings to my mom, > > she is finally willing to do some experimenting with being gluten > > free to see if it might help her. I'm curious if any of the rest of > > you have had experience or know someone who has, with brain/ > > neurological issues connected to gluten intolerance/celiac? It > > might be a real help to my mom to know your story. > > > > I printed out some of my favorite recipes, some of them from this > > list, and made a cookbook for her to take home today, along with > some > > gluten free flours to get started. And the good news is that dad is > > willing to do this with her. > > > > Barbara > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 I'm glad you where able to figure out your son's gluten problem right away and he is health. Your mother is still young and I hope she does have many more years, in good health! I had read something a while back that had talked about wheat shortages during the wars and they had used sweet potato flour instead for making breads. It's believed that during those shortages, the DNA changed to adapt to the foods that where readily available and a lot of the children and grandchildren of those people also have that changed DNA, which simplistically is celiac disease. It's not really a disease though, it's more so a natural evolutionary adaptation to our environment. Our DNA just didn't realize it was a temporary situation! Good luck and good health to your family! Take care, Jae On Tue, May 27, 2008 at 11:01 AM, Barbara Frohne < barbara.frohne wrote: > Wow, Jae! You really have been through a lot! I'm so glad you > finally found help. My son started to have problems just a few weeks > after birth, screaming, and green poopies instead of normal > breastfeed yellow ones. Thankfully I had read somewhere about gluten > issues in babies. I was eating gluten then. I had been off it for > 12 months the year before but got lazy during pregnancy and was > eating it. I wasn't feeding my son solids. He was reacting to it in > my breast milk. He was better almost right away when I stopped > eating gluten myself. I'm so glad we learned about his gluten issues > early. He is a healthy happy boy now, but he might not have been. > > I was a depressed, overweight little girl, and lived in a brain fog. > I had little energy, couldn't run very far without being exhausted. > Doctors couldn't figure anything out wrong with me. Made me really > skeptical about doctors. They really don't know much. And now they > can't figure out any solution for my mother. > > Hopefully things get better for her. She is 66 years old and I > really think she should have many more happy healthy years of life. > This shouldn't be the end for her. I'm so excited she is motivated > to try being gluten free. > > Thanks for sharing, > Barbara > > On May 26, 2008, at 4:48 PM, Jae Jones wrote: > > > I dealt with a lot of physical and psychological issues throughout > > my entire > > life. When I was born my mother wasn't able to breastfeed me and > > none of the > > formulas on the market stayed down. I almost died a few times in my > > first > > few months of life because of food issues. My grandmother started > > cooking > > rice everyday and feeding me the water from it. No doctor ever even > > suggested I could have had a food allergy or intolerance! When I > > started on > > solid foods I was vomiting more than I was keeping down, and so my > > first > > year and a half I lived on rice mostly because that was the one > > thing they > > where sure of I could eat. Growing up, I was always sick, under > > weight, and > > diagnosed with behavioral problems. I have dyslexia, which I have > > overcome a > > lot and have very mild issues with now. I always wondered if my > > lack of > > nurishment had an effect on brain development and contributed to > > dyslexia. > > The older I got the more psychological issues I had, and the more > > medications they tried, the more symptoms I developed. I started > > studying > > holistic health and and trying to figure out what was wrong with me > > on my > > own because I've been to almost every gastroenderologist and many > > other > > specialist in my are and none of them ever had a clue as to what > > all my > > problems where. I started a whole wheat diet thinking I needed more > > fiber > > and whole grains to balance out my digestive problems. Doing so nearly > > killed me! Ironically, it was my GYN that first suggested celiac > > disease. > > After all the gastroenderologist I'd been to, the one doctor that > > doesn't > > deal with the digestive system at all is the one who comes up with > > an answer > > and sends me for testing! Since I started the gluten free diet most > > all my > > symptoms have subsided and the few problems I still have are > > extremely mild > > in comparison to what they where. If I consume any dairy I with get a > > migraine and congested. I developed chronic pancreatitis 8 years > > ago, which > > causes pain and nutrition problems. It took 7 years to get the > > results of > > the genetic testing they did, and I got the results from my lawyer, > > not the > > doctor. I have a mutated CF gene, which is the root cause of the > > chronic > > pancreatitis and the frequent chest colds, bronchitis, etc. Being > > gluten/dairy free relives symptoms a lot and reduces frequency and > > severity > > of those symptoms. I still get headaches sometimes, but anxiety and > > other > > psychological symptoms I've had all my life are gone now. > > Candidiasis can be > > an issue as well. I had to do the yeast free diet for a while and > > at times I > > still get sick when eating breads that have yeast. There is a > > definite link > > between nutrition and brain function. I attached the brochoure I > > made for my > > one class on Candidiasis as it may be helpful to your mother as > > well. A lot > > of people with gluten problems also suffer from this as well > > because of the > > damage to the intestinal villi which gives opportunity for the > > candidia to > > overgrow. I hope this helps your mother. I wish her all the luck in > > finding > > good health. Feel free to ask any more specific questions that I > > may be able > > to answer to help her understand better. > > > > Take care, > > Jae > > > > On Mon, May 26, 2008 at 4:11 PM, Barbara Frohne < > > barbara.frohne <barbara.frohne%40wallawalla.edu>> wrote: > > > > > I am gluten intolerant. I've thought that my mother also has issues, > > > but it wasn't something she could accept in the past. She is > > > developing some difficult to deal with brain issues such as tremors, > > > anxiety, nervousness and more that doctors haven't been able to > > > diagnose, and psych drugs haven't helped. Today I got the brainstorm > > > to google gluten intolerance and the brain, and was surprised to > > find > > > out that there is a connection. After showing my findings to my mom, > > > she is finally willing to do some experimenting with being gluten > > > free to see if it might help her. I'm curious if any of the rest of > > > you have had experience or know someone who has, with brain/ > > > neurological issues connected to gluten intolerance/celiac? It > > > might be a real help to my mom to know your story. > > > > > > I printed out some of my favorite recipes, some of them from this > > > list, and made a cookbook for her to take home today, along with > > some > > > gluten free flours to get started. And the good news is that dad is > > > willing to do this with her. > > > > > > Barbara > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.