Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 This is a bit of information about the efficacy about vaccines, whooping cough, doctors and dollars. Yesterday evening, my son was admitted to the hosptial for observation for his whooping cough. We went to see our regular family practice doc that we have been going to see ever since we moved to Alabama in 1985 (it will be 20 years with this guy in June 2005). My mother took him in last Monday for his cough - I had a headache and was not really interested in taking him myself - There goes $25 copay and$108 in meds - . She has done this on various occasions because I have 2 other children and depending on what kind of day we are having, depends on who goes and who stays home with the others. Well, first off - HIPAA bullshit happened. His appointment was at 2:30. He was not seen until after 4:30 because I HAD to sign all those damnable forms stating that " it is my right for the government to supercede my right to privacy " my verbal consent was not good enough to have him seen. I was not happy. I then had to drag my other kid with me to the doctor's office to sign all this crap and have it put in all their charts. Okay, got that done with a migraine and not feeling great myself. My ds was diagnosed with a " sinus infection " - I am sure he had this, he had a headache and drew the pattern of it on his head, but he also had other etiology that was overlooked at this visit. So he was given an antibiotic to clear the sinus infection. Okay. The cough was still there. By last Wednesday, he had started rupturing the blood vessels in his eyes and I have been sitting up with him all night every night since last Sunday (the 12th) because he " whoops " when he coughs and cannot breathe. It is quite scary to see. He sounds like he is literally dying. Last Thursday, my mother called the doctor again. By this time I am exhausted (still am for that matter) and sleeping during the day during the morning because I am up literally all night. She tells them we think he has the whooping cough. I get an appointment for Friday morning another - $25 for copay and God knows what for labs -. During all this time, I am doing a bit of research, if you recall my previous post about the whooping cough. The more I read, the more I am convinced that this is the animal we are dealing with, the sinuses are negliglible by this point and he has no drainage or complaints other than paraxomal spasmodic coughing fits lasting more than 60 seconds several times a day (yesterday he had 12 episodes in about 4 hours). So I tell them " I think he has the whooping cough " and I am told point blank " It cannot be pertussis(the other name for the wc) because he has been vaccinated. " I then say " According to a study published in 1997 in the BMJ by age 6 the vaccine is ONLY 56% effective - he is EIGHT. " Our doc rolls his eyes and says okay, lets test him. Fine by me. I want to know what is wrong. Nothing really can be done, but I want to know all the same. We get an order for a lab test. We go to one hospital - to waste an hour to be told " we don't have the medium here to do this, you can come back tomorow or you can go to another affiliated lab " We go to the other lab. Type in about $5 bucks for gas here - Fast forward to yesterday morning. My ds had a coughing fit that lasted 3 minutes and he had marked cyanosis around his lips. At 3:30, I am telling my dh that I don't know what else to do and I think I need a second opinion from a pediatric specialist. Yesterday afternoon found us sitting in the emergency room of Children's Hospital for 10 hours. We were there 4 hours before we were even seen. When we finally were seen, I was speaking with the 2nd in command - that is how bad my ds was. His eyes have every blood vein burst in them. That was a huge concern because of the risk of ruptured pupils and loss of vision. His eyes are fine, just really REALLY bad looking. They said at different points that it certainly looked like pertussis, he had been at it long enough and coughing hard enough, and he was whooping. We get labs (blood work to the nth degree) chest films and cultures - God knows what cost to add here too. Just a run to the ER to get a scrip will run about $1000 plus it wins both an ER deductible for $100 copay, plus the $250 deductible for the hospital. We had a plan before we left the ER when he was admitted private rooms here go for about $3000 per day plus rental on equipment in the room (IV pole, O2 monitor, TV, Phone, EVERYTHING). Erythromycin is the " gold standard " for the treatment of the Bordella Pertussis bacteria. It will not stop the disease or the progression of the disease, but it will inhibit the ability of the pertussis to be spread to others. My ds and I cannot take erythromycin - we have scaling where all the skin peels off our hands and feet (we learned this from strep about 2 years ago.) The second drug of choice is azrithromycin (Zithromax). He has had this antibiotic before. No problems with it either. When we finally get to his room (about midnight) the nurse comes in and says " His bactrum will be here in a minute from the pharmacy " I said " He is getting Zithromax, NOT bactrum " She says " The order says bactrum " I say " Bactrum is a sulfa drug and he has not had it. He will not be getting bactrum tonight either because his respiratory function is already depleted and IF he should have a reaction to it, I do NOT want him further compromised, plus it is NOT the plan of action we had discussed in the ER. " She says " I understand where you are coming from, but you will have to talk to the doctor " I say " Get them up here and get me a PDR. " She says " PDR? You mean THE PDR as in the Physicians Desk Reference? " I say ' YEP, that is exactly what I mean. I want to read where it says bactrum will kill or has been used in the progression of bordella pertussis " Bless her heart, she says " I will get the doctor for you, but I don't think we have the PDR on the floor. " Doc comes in - very much less than happy to see me. This is a resident on the service to which my ds was admitted, not the doc we had in the ER. She says " Bactrum is effective in the treatment of pertussis. " I said " That is not the game plan. He will get Zithromax. NOT bactrum. " She goes on to tell me how " safe " bactrum is and how since he is allergic to erythromycin, I should just let them give him the bactrum. I said " HE HAS NOT HAD THIS DRUG. NOW IS NOT THE TIME TO EXPERIEMENT AND SEE WHAT REACTION HE MAY HAVE TO IT. " She rolls her eyes and relents to my request for the Zithromax, much to her chagrin. Today, I find out that my MIL and my FIL as well as others on my side of the family have SEVERE REACTIONS - cardiac issues, respiratory issues, swelling issues (including airway constriction), etc with bactrum. This goes to show ya'll that 1.) Vaccines are ineffective and do NOT provide life long immunity (this is my ONLY totally vaccinated child remember, and he has 2 partially vaccinated siblings that have NOT come down with the disease so far. I was vaccinated as a child an I am coming down with it myself.) 2.) STAND YOUR GROUND. 3.) Insofar as it is possible DO YOUR RESEARCH from what the medical world would consider to be " realiable " journals. Their trade journals are the best. Much of the BMJ is online and free. Which is great, imho. They could have injured or killed my son had I given in. Sorry for length, thanks for listening! Jill Mc. Alabama Blackkat <blackkat wrote: Drae, I see your point here but the reason doctors are so verworked and stretched too thin is that they try to see TOO many patients in one day. And of course, $$ is the bottom line here. Jazz up your holiday email with celebrity designs. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Jill, although I am just a list member, and there is nothing more I can do than just pray for you ALL, I wish there was more that I could do. So, will keep you and yours in my prayers. Anita in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Dear Jill, Sounds like you have had your hands full. Your son and family are in my prayers. Hugs Nancy Today, I find out that my MIL and my FIL as well as others on my side of the family have SEVERE REACTIONS - cardiac issues, respiratory issues, swelling issues (including airway constriction), etc with bactrum. This goes to show ya'll that 1.) Vaccines are ineffective and do NOT provide life long immunity (this is my ONLY totally vaccinated child remember, and he has 2 partially vaccinated siblings that have NOT come down with the disease so far. I was vaccinated as a child an I am coming down with it myself.) 2.) STAND YOUR GROUND. 3.) Insofar as it is possible DO YOUR RESEARCH from what the medical world would consider to be " realiable " journals. Their trade journals are the best. Much of the BMJ is online and free. Which is great, imho. They could have injured or killed my son had I given in. Sorry for length, thanks for listening! Jill Mc. Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Jill, I am sorry you and your son are going through this ordeal. I helped my sister with her 8 and 5 year old children when they had whooping cough. The doctors weren't sure if it was pneumonia or whooping cough, bacterial or viral, but they treated her in the emergency room and admitted her. It too was a nightmare. The ER doc talked about how serious this illness is and that people die from it, right in front of the child. That made quite an impression on an 8 year old. So much for bedside manner. Her little brother did not require a trip to the hospital. He did take antibiotics. I massaged them both every day and they took colostrum. Since your son is sensitive maybe you could massage his feet using only a base oil like coconut. I diffused Lavender in the room to calm them during those scary attacks. It was frightening to see her clench her throat and gasp for breath. Being there to comfort him is some of the best medicine you can give. Good luck. Kani Jill McDanal <birthmamajill wrote: This is a bit of information about the efficacy about vaccines, whooping cough, doctors and dollars. Yesterday evening, my son was admitted to the hosptial for observation for his whooping cough. We went to see our regular family practice doc that we have been going to see ever since we moved to Alabama in 1985 (it will be 20 years with this guy in June 2005). My mother took him in last Monday for his cough - I had a headache and was not really interested in taking him myself - There goes $25 copay and$108 in meds - . She has done this on various occasions because I have 2 other children and depending on what kind of day we are having, depends on who goes and who stays home with the others. Well, first off - HIPAA bullshit happened. His appointment was at 2:30. He was not seen until after 4:30 because I HAD to sign all those damnable forms stating that " it is my right for the government to supercede my right to privacy " my verbal consent was not good enough to have him seen. I was not happy. I then had to drag my other kid with me to the doctor's office to sign all this crap and have it put in all their charts. Okay, got that done with a migraine and not feeling great myself. My ds was diagnosed with a " sinus infection " - I am sure he had this, he had a headache and drew the pattern of it on his head, but he also had other etiology that was overlooked at this visit. So he was given an antibiotic to clear the sinus infection. Okay. The cough was still there. By last Wednesday, he had started rupturing the blood vessels in his eyes and I have been sitting up with him all night every night since last Sunday (the 12th) because he " whoops " when he coughs and cannot breathe. It is quite scary to see. He sounds like he is literally dying. Last Thursday, my mother called the doctor again. By this time I am exhausted (still am for that matter) and sleeping during the day during the morning because I am up literally all night. She tells them we think he has the whooping cough. I get an appointment for Friday morning another - $25 for copay and God knows what for labs -. During all this time, I am doing a bit of research, if you recall my previous post about the whooping cough. The more I read, the more I am convinced that this is the animal we are dealing with, the sinuses are negliglible by this point and he has no drainage or complaints other than paraxomal spasmodic coughing fits lasting more than 60 seconds several times a day (yesterday he had 12 episodes in about 4 hours). So I tell them " I think he has the whooping cough " and I am told point blank " It cannot be pertussis(the other name for the wc) because he has been vaccinated. " I then say " According to a study published in 1997 in the BMJ by age 6 the vaccine is ONLY 56% effective - he is EIGHT. " Our doc rolls his eyes and says okay, lets test him. Fine by me. I want to know what is wrong. Nothing really can be done, but I want to know all the same. We get an order for a lab test. We go to one hospital - to waste an hour to be told " we don't have the medium here to do this, you can come back tomorow or you can go to another affiliated lab " We go to the other lab. Type in about $5 bucks for gas here - Fast forward to yesterday morning. My ds had a coughing fit that lasted 3 minutes and he had marked cyanosis around his lips. At 3:30, I am telling my dh that I don't know what else to do and I think I need a second opinion from a pediatric specialist. Yesterday afternoon found us sitting in the emergency room of Children's Hospital for 10 hours. We were there 4 hours before we were even seen. When we finally were seen, I was speaking with the 2nd in command - that is how bad my ds was. His eyes have every blood vein burst in them. That was a huge concern because of the risk of ruptured pupils and loss of vision. His eyes are fine, just really REALLY bad looking. They said at different points that it certainly looked like pertussis, he had been at it long enough and coughing hard enough, and he was whooping. We get labs (blood work to the nth degree) chest films and cultures - God knows what cost to add here too. Just a run to the ER to get a scrip will run about $1000 plus it wins both an ER deductible for $100 copay, plus the $250 deductible for the hospital. We had a plan before we left the ER when he was admitted private rooms here go for about $3000 per day plus rental on equipment in the room (IV pole, O2 monitor, TV, Phone, EVERYTHING). Erythromycin is the " gold standard " for the treatment of the Bordella Pertussis bacteria. It will not stop the disease or the progression of the disease, but it will inhibit the ability of the pertussis to be spread to others. My ds and I cannot take erythromycin - we have scaling where all the skin peels off our hands and feet (we learned this from strep about 2 years ago.) The second drug of choice is azrithromycin (Zithromax). He has had this antibiotic before. No problems with it either. When we finally get to his room (about midnight) the nurse comes in and says " His bactrum will be here in a minute from the pharmacy " I said " He is getting Zithromax, NOT bactrum " She says " The order says bactrum " I say " Bactrum is a sulfa drug and he has not had it. He will not be getting bactrum tonight either because his respiratory function is already depleted and IF he should have a reaction to it, I do NOT want him further compromised, plus it is NOT the plan of action we had discussed in the ER. " She says " I understand where you are coming from, but you will have to talk to the doctor " I say " Get them up here and get me a PDR. " She says " PDR? You mean THE PDR as in the Physicians Desk Reference? " I say ' YEP, that is exactly what I mean. I want to read where it says bactrum will kill or has been used in the progression of bordella pertussis " Bless her heart, she says " I will get the doctor for you, but I don't think we have the PDR on the floor. " Doc comes in - very much less than happy to see me. This is a resident on the service to which my ds was admitted, not the doc we had in the ER. She says " Bactrum is effective in the treatment of pertussis. " I said " That is not the game plan. He will get Zithromax. NOT bactrum. " She goes on to tell me how " safe " bactrum is and how since he is allergic to erythromycin, I should just let them give him the bactrum. I said " HE HAS NOT HAD THIS DRUG. NOW IS NOT THE TIME TO EXPERIEMENT AND SEE WHAT REACTION HE MAY HAVE TO IT. " She rolls her eyes and relents to my request for the Zithromax, much to her chagrin. Today, I find out that my MIL and my FIL as well as others on my side of the family have SEVERE REACTIONS - cardiac issues, respiratory issues, swelling issues (including airway constriction), etc with bactrum. This goes to show ya'll that 1.) Vaccines are ineffective and do NOT provide life long immunity (this is my ONLY totally vaccinated child remember, and he has 2 partially vaccinated siblings that have NOT come down with the disease so far. I was vaccinated as a child an I am coming down with it myself.) 2.) STAND YOUR GROUND. 3.) Insofar as it is possible DO YOUR RESEARCH from what the medical world would consider to be " realiable " journals. Their trade journals are the best. Much of the BMJ is online and free. Which is great, imho. They could have injured or killed my son had I given in. Sorry for length, thanks for listening! Jill Mc. Alabama Blackkat <blackkat wrote: Drae, I see your point here but the reason doctors are so verworked and stretched too thin is that they try to see TOO many patients in one day. And of course, $$ is the bottom line here. Jazz up your holiday email with celebrity designs. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 JIll, I am standing up and applaud you !!!!! It took a lot of guts to stand up to the mighty medical profession, but often that's necessary and I am glad you did. Well 'armed' and with good information... Hope you are all recovering by now.. C-M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Jill, All I can say is " You go girl! " . I understand exactly where you are coming from. A couple of years ago, my father went to the hospital, because he was passing blood in his stools, and he was having terrible pains in his lower abdomen. Knowing my dad....he won't go to a doctor, much less a hospital, unless he thinks he's dying.....I knew something was terribly wrong. The doctor came in after several hours, and announced he was sending my dad home, on an antibiotic. The doctor told me that my dad had 'colitis'. The only 'tests' they'd done was an x-ray and some blood tests, that showed his white cell count was high, which could indicate an infection of some sort. The x-ray showed nothing of importance. I told the doctor that there was no way he could know that my father had 'colitis' without doing a colonoscopy....and that they'd not done that, and that my father would not be leaving the hospital without knowing EXACTLY what was wrong with him. (I know this because I've suffered off an on from colitis for years....and dad had no history of colitis, or any other colon problem) I was told at that point, that my father didn't meet 'the criteria' to be admitted to the hospital. Oh I was so angry!!! I told the doctor he'd better make my father 'meet the criteria'. After much back and forth conversation (to say the least!), they admitted my dad, and a GI specialist was brought in the next morning. This doctor sent dad for more tests, and found that over 1 1/2 feet of his colon had DIED! This specialist told my dad that if I hadn't been 'insistent' that he stay....he would have died. They took my dad for his surgery to fix the problem within hours. It's very important that folks take an active role in their (and their family's) health care. This isn't the first problem we've had with the medical establishment, and I am certain it won't be the last. I do my best to read all the medical information I can get my hands on. I always research any medications that are prescribed for myself or my family members. I also research any condition that is 'diagnosed'. I do not take any medical personnel solely at their word any longer. My life is my own....and I do anything and everything to protect it....as no one cares for me like I do. I do the same for my family. Don't get me wrong....some doctors actually care, and do the best they can, with the tools they have. But on the same token, some doctors only care how much money they can make from you. I am so glad you were able to stand your ground, and that you had the information with which to fight. I am sending up lots of prayers that your son gets well soon. Sorry to be so longwinded....however, this is one topic that really gets to me. Take good care, and let me know how your son is doing! Candy in Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 the prob is that most hospitols make money by sending you home or not doing the tests ..where i am if they do not admit you they make money by sending you home,,and most dr have to follow the policy of the hospitol espically in the er or they will be out of a job or lose reisdencice ,,, it is the money /board making members that hurt the people,so not all the drs,,,,, i have worked in the hospitols for years and have seen the crap that the officals are doing ,,,,, so ,,, i would contact the news media and have and investigation,,,,, they like to keep hidden thier durty little secrets of how they make money on the health of others and then tryto pin it on the drs or nurses ,,,,, good luck " C. Lucas " <cdlucas wrote:Jill, All I can say is " You go girl! " . I understand exactly where you are coming from. A couple of years ago, my father went to the hospital, because he was passing blood in his stools, and he was having terrible pains in his lower abdomen. Knowing my dad....he won't go to a doctor, much less a hospital, unless he thinks he's dying.....I knew something was terribly wrong. The doctor came in after several hours, and announced he was sending my dad home, on an antibiotic. The doctor told me that my dad had 'colitis'. The only 'tests' they'd done was an x-ray and some blood tests, that showed his white cell count was high, which could indicate an infection of some sort. The x-ray showed nothing of importance. I told the doctor that there was no way he could know that my father had 'colitis' without doing a colonoscopy....and that they'd not done that, and that my father would not be leaving the hospital without knowing EXACTLY what was wrong with him. (I know this because I've suffered off an on from colitis for years....and dad had no history of colitis, or any other colon problem) I was told at that point, that my father didn't meet 'the criteria' to be admitted to the hospital. Oh I was so angry!!! I told the doctor he'd better make my father 'meet the criteria'. After much back and forth conversation (to say the least!), they admitted my dad, and a GI specialist was brought in the next morning. This doctor sent dad for more tests, and found that over 1 1/2 feet of his colon had DIED! This specialist told my dad that if I hadn't been 'insistent' that he stay....he would have died. They took my dad for his surgery to fix the problem within hours. It's very important that folks take an active role in their (and their family's) health care. This isn't the first problem we've had with the medical establishment, and I am certain it won't be the last. I do my best to read all the medical information I can get my hands on. I always research any medications that are prescribed for myself or my family members. I also research any condition that is 'diagnosed'. I do not take any medical personnel solely at their word any longer. My life is my own....and I do anything and everything to protect it....as no one cares for me like I do. I do the same for my family. Don't get me wrong....some doctors actually care, and do the best they can, with the tools they have. But on the same token, some doctors only care how much money they can make from you. I am so glad you were able to stand your ground, and that you had the information with which to fight. I am sending up lots of prayers that your son gets well soon. Sorry to be so longwinded....however, this is one topic that really gets to me. Take good care, and let me know how your son is doing! Candy in Alabama Step By Step Instructions On Making Rose Petal Preserves: http://www.av-at.com/stuff/rosejam.html To adjust your group settings (i.e. go no mail) see the following link: /join Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 > the prob is that most hospitols make money by sending you home or not > doing the tests ..where i am if they do not admit you they make money by > sending you home,,and most dr have to follow the policy of the hospitol > espically in the er or they will be out of a job or lose reisdencice ,,, > it is the money /board making members that hurt the people,so not all the > drs,,,,, i have worked in the hospitols for years and have seen the crap > that the officals are doing ,,,,, so ,,, i would contact the news media > and have and investigation,,,,, they like to keep hidden thier durty > little secrets of how they make money on the health of others and then > tryto pin it on the drs or nurses ,,,,, good luck <SNIP> I don't doubt this information at all. I just know that I had to threaten to call our family attorney. Within the hour, my father was admitted to the hospital. I know that it isn't always the doctors...however, at some point, they must stand up and do the right thing. If a person is sick, they took an oath to do no harm...if they send the person home to die, when they could save the persons life....then they are breaking the oath they took. The first thing that really got to me, was when the doctor told me my father had colitis...knowing good and well he could not come to that diagnosis with the information he had. At least I KNEW that this was not an accurate diagnosis. It was a POSSIBILITY, but not a certainty. I also know my dad....and the pain he was in, was not indicative of colitis. Colitis is very uncomfortable, but when morphine doesn't take away the pain, something more has to be going on. Anyway, it's been so long ago....an investigation would most likely be a moot point. However, I at least got my father admitted, and he was treated properly, once the GI doc was called in. He has since had another intestinal surgery, which the same doctor performed. He's alive today, because this physician did his job....and he did it very well. So, yes, alot has to do with the officials in the hospitals, but alot is also due to the doctors negligence, or possibly even their ignorance. I just know that if you want to get proper medical care, you need to know what's what before going to see a doctor. That's my two cents. Probably more than anyone ever wanted to know. Please don't get the impression that I am totally down on the medical profession, because I'm not. I just believe people need to find a knowledgable doctor, one that's there to 'help' when you need the help. There are still very good physicians out there. It's very refreshing when you find one that will tell you when they don't know what's wrong, but that they will do whatever it takes to make you well. I've been really lucky with my own physician(OB-GYN)....a wonderful man that I have seen for the last 13 years. He's saved my life twice, and my daughter's life, when I was giving birth. My family practitioner is also a great doctor. I've been seeing him when needed for the last 10 years. There have been times that I have taken 'research' to the doctor's office during follow up visits to ask him questions. There have been times that I brought information to his attention that he didn't know. So, even when you have a great doctor, it pays to be knowledgable yourself. Ok, off my soap box now. Thanks for bringing up the officials in the medical establishment.....It wasn't an angle that I mentioned, but should have. In the end, the best advise for anyone, is know your body, and keep up with medical treatments. Demand proper treatment. If something doesn't seem right, question their authority. Ask to speak to the hospital representative. Do whatever you have to do. It may very well save your life or your loved ones. Take care, and thanks again for sharing the info about the board members/officials. Candy in Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 Thanks to everyone who sent suggestions for how to handle it. I regretfully did not get a chance to try the egg/a.c. vinegar/honey/lemon cure, but if anyone else comes down with it, it will be one of the things I suggest be tried. Upon doing even more research on Whooping Cough ( a friend of mine is in a deep ugly embittered custody fight with her ex husband over her 8 yo dd.) and reading the literature, I am shocked and appalled that the medical estabilshment makes its stock and trade of scaring the hell out of folks to " make " them comply with " recommended vaccine schedules " . Whooping cough is PROVEN more scary than dangerous for the population as a whole for those over 1 year of age. But it is this myth that " whooping cough KILLS " that keeps the vaccine manufacturers in business. Yes, it can kill, but usually it is not from pertussis, it is usually from some scondary infection - like pneumonia. When pertussis is not easily or readily recognized, until it is in the severe stages, like my ds had and even then, I had to go through hell and half of Georgia to get a positive diagnosis, I don't see how the vaccine could improve or help things, unless there is a child under a year old. But then all people should be vaccinated regualrly with that mentality just to keep the very young from getting a disease. Turning into a rant and a ramble again. Apologies, Jill Mc. Alabama All your favorites on one personal page – Try My Quote Link to comment Share on other sites More sharing options...
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