Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 If you happen to hear of a MALE who suffers from FMS, CFS, ME, then this would be part of his story..... and YES we women who suffer can realate absolutely. Please read and forward where applicable. Thanks. Clare in Tassie A letter from the Knights of Fibromyalgia written by Brady, aka PizzaMan242 http://www.menwithfibro.com/html/the_knights.html Suddenly, in the middle of doing some small task, sharp shooting pains begin in your chest that start traveling down your arm and it is very hard to breathe. Your first thought is a heart attack. You go to the ER and they say you are fine, it is nothing. The next day or a week later it happens again. Again they say you are fine but this time they give you a referral to a psychiatrist. Now they think you are imagining the pain, yet you know it is very real. What do you do? There is always a psychological aspect to the experience of pain, but this does not necessarily mean that the source of the pain is rooted in the psyche.What I have just described is a very common Fibromyalgia flare up. Yet they only look at you as if you have a screw loose. They do not even check to see if it is Fibromyalgia. They look at your heart and other physical problems that could cause this pain but find nothing. They could perform a simple pressure test to eliminate or confirm Fibromyalgia but you must first navigate a maze of other tests. Doctors and others in the professional fields label us as depressive personalities and prescribe anti depressants, then are confused when they do not have the desired effect. Probably because at the root we are not depressed, yet. You begin to doubt the doctors and yourself. They say they cannot cure it, and they can only treat some of the symptoms with a limited degree of success. Your chest still hurts, you can hardly breathe, your shoulders hurt and the pain is traveling down your arms to your hands. Your hands are slightly swollen and discolored, your fingers are numb, your legs are killing you and there is a burning sensation in them. The abdomen is sore to touch, the bowels are churning, and it feels as if you have been shot through the middle with a rocket. Then when we ask for something for the pain, because by now it has become a constant pain gnawing at your very being. Then they label you a drug addict and believe you are faking the pain to get drugs. Now they think we are just in it for the drugs and if they do give you something for the pain. Then the DEA starts watching your doctor's prescriptions, making the doctor afraid to prescribe more potent medications. What do we do then? We try to describe it for our doctors and they in turn tell us we are not active enough, we are depressed, so exercise and a mood change should straighten you out. You follow the doctor's and therapist's directions completely, yet when all these things are done you are still in pain only it has gotten worse. You are now almost begging for something to kill the pain. Instead you are given massage therapy, heat therapy and maybe if your lucky pool therapy. None of these will work. Only the pool therapy will give you temporary relief, with it's blood warm waters and gentle exercises. Yet even this fails, you find yourself going into a flair as soon as your body cools down. At each different therapy you are greeted with the following. Oh no problem I have seen people come in here in wheelchairs and walk out on their own two feet. Wow, you think this must be the one. They have such high success rate, But sadly with each one we see an escalation of the pain. No matter how good the treatments feel, the effects are only temporary and your back in the same old routine of pain and exhaustion.A simple pressure test on the back and shoulders will confirm the presence of an invisible serious illness called Fibromyalgia. Still, most sufferers go to many doctors and go for years without a diagnosis. Why?We have to pay thousands of dollars we cannot afford for tests to eliminate other possibilities. Why does it take so long, everyone knows the test? Why can't they confirm it? Are they afraid of us because they cannot cure us? Well are they?For the medical community this disease is a mystery. No one knows what triggers it or where it is in the body, they have their theories but nothing conclusive. Many doctors refuse to believe that it exists since it lacks that evidence. Others believe but do not want to treat it because there is no clear answer. Yet they are the ones we must turn to and put our trust in, only to leave us just hanging. Why? Again it is because they do not know the why, how, or where to begin. They only know that we are in pain and we tend not to exercise because it causes even greater pain. Nevertheless, we must exercise. So we do so we can still stand and walk, We know we must do that much, yet they want more so we try, why? Because that is what they tell us to do. Some even believe that the more we exercise the better the chance is to be cured. The only thing they have right is that we do need to exercise although it hurts, we just have to learn to pace at our own individual level. There is no cure or even hope of major relief.Searching for someone we can get to help us turns into a full time job. Hundreds of dollars are spent on prescribed drugs and therapies that do not help. Sometimes they are damaging, causing side effects that build until we become intolerant of most drugs and even just over stretching a little one time, can set someone back for months.No money is being spent to research a cure, and no panel has been formed to study the effects of fibromyalgia. It is almost as if we are Lepers, banned to living a nightmare existence from which there is no escape.The pain wakes you every two hours through the night and the days are spent in a barely functional fog. You do not feel safe to drive and even the short ride to the doctor with a friend driving increases the pain. Then only when the overwhelming tiredness consumes you. It is the same as always, 3:00 o'clock in the morning. Only to sleep for 2-4 hours, more if your very lucky.Fibromyalgia remains a very devastating but invisible disease. It is debilitating because when we try to do anything we are in fact hurting ourselves because our muscles cannot heal themselves. Instead we are risking triggering a flare up that could last a day or even a month. Some are bedridden by the effects of this disease. Unable to do the simplest of tasks. Some take the antidepressants and after years of taking them suddenly start thinking that suicide is in fact a really good option, and sadly some have taken that course. May their souls find peace. Everyone says that you look fine. Your employer, if you are still able to work at all, questions why you can barely do anything and then implies that you are slacking on the duties you once could do without a problem.How can something that cannot be seen or found in a x-ray or a blood test be so devastating? We do not know. We just know that we are in pain and no one wants to help. Those who are willing to try to help are few and far between. Even then we are forced to weed through the charlatans selling their Snake Oil Cures. That is how rare it is to find a doctor who really wants to try to understand and help you. Yet even he cannot cure you or even lessen your pain.We who suffer from this disease wonder when somebody will take notice that there is not a few of us but millions. Yes, I said millions. They can treat some of us with a couple of Advil but there are those among us who take Morphine and it does not stop the pain. The medical community only sees the ones who are getting by taking Advil and walking for 30 minutes or more per day. Some of us cannot walk for 10 minutes without a break. Some are even worse.You stand to lose your wife, husband, family, career and your home, because this disease does not allow you to function enough to take care of all these things, to protect them as you always did before.Your friends do not want to be around someone who is constantly sick and cannot go out to do things. No single person could imagine the multitude of sordid symptoms, let alone millions of people from all over the country and world with identical symptoms. Surely no one would choose to live like this.We call on you to help us draw attention to this. We are tired of being ignored, and watching those among us who we call friends deteriorate further and die, but not from Fibromyalgia. No, that is not the killer, it just makes you wish you were dead. No the drugs that we take have a cumulative effect so that we get diabetes, hypertension, kidney disease, all caused by taking the wrong drugs but they cannot tell us what the correct drugs are. Nor will they admit that the drugs you have been taking are the root cause to your more mundane problems.Please do not let another one of us fall by the wayside because we are not a majority and Fibromyalgia is a little known disease that is "all in their head" until the devastating effects strike you personally."Acute pain protects life, Chronic pain destroys it." Always remember this. ======================================= Read stories of Men with Fibromyalgia: www.fms-help.com/men.htm. ======================================= II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God." Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Both my husband and I have had these symptoms and have found it can be treated by herbs. Butchers broom and saw palmetto help us to sleep thru the night. Pain pills usually cause more trouble than they help. I only use them in extreme situations since they hurt my stomach every time. I never go for prescription drugs, just motrim or asprin.Vit. E and calcium with Vit. C will help a bit too, but butchers broom helps us the most. Exercise and just sitting in the sun will after a time ease but not immediately. IMO this is caused by improper circulation. --- On Mon, 2/23/09, Clare@GOOGLE MAIL <theclaremcharris wrote: Clare@GOOGLE MAIL <theclaremcharris The Knights of Fibromyalgia Undisclosed-Recipient Monday, February 23, 2009, 9:55 PM If you happen to hear of a MALE who suffers from FMS, CFS, ME, then this would be part of his story..... and YES we women who suffer can realate absolutely. Please read and forward where applicable. Thanks. Clare in Tassie    A letter from the Knights of Fibromyalgia  written by Brady, aka PizzaMan242 http://www.menwithf ibro.com/ html/the_ knights.html  Suddenly, in the middle of doing some small task, sharp shooting pains begin in your chest that start traveling down your arm and it is very hard to breathe. Your first thought is a heart attack. You go to the ER and they say you are fine, it is nothing. The next day or a week later it happens again. Again they say you are fine but this time they give you a referral to a psychiatrist. Now they think you are imagining the pain, yet you know it is very real. What do you do? There is always a psychological aspect to the experience of pain, but this does not necessarily mean that the source of the pain is rooted in the psyche. What I have just described is a very common Fibromyalgia flare up. Yet they only look at you as if you have a screw loose. They do not even check to see if it is Fibromyalgia. They look at your heart and other physical problems that could cause this pain but find nothing. They could perform a simple pressure test to eliminate or confirm Fibromyalgia but you must first navigate a maze of other tests.  Doctors and others in the professional fields label us as depressive personalities and prescribe anti depressants, then are confused when they do not have the desired effect. Probably because at the root we are not depressed, yet. You begin to doubt the doctors and yourself. They say they cannot cure it, and they can only treat some of the symptoms with a limited degree of success.  Your chest still hurts, you can hardly breathe, your shoulders hurt and the pain is traveling down your arms to your hands. Your hands are slightly swollen and discolored, your fingers are numb, your legs are killing you and there is a burning sensation in them. The abdomen is sore to touch, the bowels are churning, and it feels as if you have been shot through the middle with a rocket. Then when we ask for something for the pain, because by now it has become a constant pain gnawing at your very being. Then they label you a drug addict and believe you are faking the pain to get drugs. Now they think we are just in it for the drugs and if they do give you something for the pain. Then the DEA starts watching your doctor's prescriptions, making the doctor afraid to prescribe more potent medications.  What do we do then? We try to describe it for our doctors and they in turn tell us we are not active enough, we are depressed, so exercise and a mood change should straighten you out. You follow the doctor's and therapist's directions completely, yet when all these things are done you are still in pain only it has gotten worse. You are now almost begging for something to kill the pain. Instead you are given massage therapy, heat therapy and maybe if your lucky pool therapy. None of these will work. Only the pool therapy will give you temporary relief, with it's blood warm waters and gentle exercises. Yet even this fails, you find yourself going into a flair as soon as your body cools down. At each different therapy you are greeted with the following. Oh no problem I have seen people come in here in wheelchairs and walk out on their own two feet. Wow, you think this must be the one. They have such high success rate, But sadly with each one we see an escalation of the pain. No matter how good the treatments feel, the effects are only temporary and your back in the same old routine of pain and exhaustion. A simple pressure test on the back and shoulders will confirm the presence of an invisible serious illness called Fibromyalgia. Still, most sufferers go to many doctors and go for years without a diagnosis. Why? We have to pay thousands of dollars we cannot afford for tests to eliminate other possibilities. Why does it take so long, everyone knows the test? Why can't they confirm it? Are they afraid of us because they cannot cure us? Well are they? For the medical community this disease is a mystery. No one knows what triggers it or where it is in the body, they have their theories but nothing conclusive. Many doctors refuse to believe that it exists since it lacks that evidence. Others believe but do not want to treat it because there is no clear answer. Yet they are the ones we must turn to and put our trust in, only to leave us just hanging. Why?  Again it is because they do not know the why, how, or where to begin. They only know that we are in pain and we tend not to exercise because it causes even greater pain. Nevertheless, we must exercise. So we do so we can still stand and walk, We know we must do that much, yet they want more so we try, why? Because that is what they tell us to do. Some even believe that the more we exercise the better the chance is to be cured. The only thing they have right is that we do need to exercise although it hurts, we just have to learn to pace at our own individual level. There is no cure or even hope of major relief. Searching for someone we can get to help us turns into a full time job. Hundreds of dollars are spent on prescribed drugs and therapies that do not help. Sometimes they are damaging, causing side effects that build until we become intolerant of most drugs and even just over stretching a little one time, can set someone back for months. No money is being spent to research a cure, and no panel has been formed to study the effects of fibromyalgia. It is almost as if we are Lepers, banned to living a nightmare existence from which there is no escape. The pain wakes you every two hours through the night and the days are spent in a barely functional fog. You do not feel safe to drive and even the short ride to the doctor with a friend driving increases the pain. Then only when the overwhelming tiredness consumes you. It is the same as always, 3:00 o'clock in the morning. Only to sleep for 2-4 hours, more if your very lucky. Fibromyalgia remains a very devastating but invisible disease. It is debilitating because when we try to do anything we are in fact hurting ourselves because our muscles cannot heal themselves. Instead we are risking triggering a flare up that could last a day or even a month. Some are bedridden by the effects of this disease. Unable to do the simplest of tasks.. Some take the antidepressants and after years of taking them suddenly start thinking that suicide is in fact a really good option, and sadly some have taken that course. May their souls find peace.  Everyone says that you look fine. Your employer, if you are still able to work at all, questions why you can barely do anything and then implies that you are slacking on the duties you once could do without a problem. How can something that cannot be seen or found in a x-ray or a blood test be so devastating? We do not know. We just know that we are in pain and no one wants to help. Those who are willing to try to help are few and far between. Even then we are forced to weed through the charlatans selling their Snake Oil Cures. That is how rare it is to find a doctor who really wants to try to understand and help you. Yet even he cannot cure you or even lessen your pain. We who suffer from this disease wonder when somebody will take notice that there is not a few of us but millions. Yes, I said millions. They can treat some of us with a couple of Advil but there are those among us who take Morphine and it does not stop the pain. The medical community only sees the ones who are getting by taking Advil and walking for 30 minutes or more per day. Some of us cannot walk for 10 minutes without a break. Some are even worse. You stand to lose your wife, husband, family, career and your home, because this disease does not allow you to function enough to take care of all these things, to protect them as you always did before. Your friends do not want to be around someone who is constantly sick and cannot go out to do things. No single person could imagine the multitude of sordid symptoms, let alone millions of people from all over the country and world with identical symptoms. Surely no one would choose to live like this.. We call on you to help us draw attention to this. We are tired of being ignored, and watching those among us who we call friends deteriorate further and die, but not from Fibromyalgia. No, that is not the killer, it just makes you wish you were dead. No the drugs that we take have a cumulative effect so that we get diabetes, hypertension, kidney disease, all caused by taking the wrong drugs but they cannot tell us what the correct drugs are. Nor will they admit that the drugs you have been taking are the root cause to your more mundane problems. Please do not let another one of us fall by the wayside because we are not a majority and Fibromyalgia is a little known disease that is " all in their head " until the devastating effects strike you personally. " Acute pain protects life, Chronic pain destroys it. " Always remember this.  ============ ========= ========= ========= Read stories of Men with Fibromyalgia: www.fms-help. com/men.htm. ============ ========= ========= ========= II Corinthians 1: 4 - " Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. "  Visit Dominie's FMS/CFIDS Homepage at www.fms-help. com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.      Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Yes, but what causes the improper circulation? Usually chronic conditions can be traced to a pathogen or pathogens. There is always something causing these symptoms. Lyme disease and/or its co-infections are worth checking into. Susan Siegel On Feb 24, 2009, at 3:15 PM, jean white wrote: > Both my husband and I have had these symptoms and have found it can > be treated by herbs. Butchers broom and saw palmetto help us to > sleep thru the night. Pain pills usually cause more trouble than > they help. I only use them in extreme situations since they hurt my > stomach every time. I never go for prescription drugs, just motrim > or asprin.Vit. E and calcium with Vit. C will help a bit too, but > butchers broom helps us the most. Exercise and just sitting in the > sun will after a time ease but not immediately. IMO this is caused > by improper circulation. > --- On Mon, 2/23/09, Clare@GOOGLE MAIL <theclaremcharris > wrote: > > > Clare@GOOGLE MAIL <theclaremcharris > The Knights of Fibromyalgia > Undisclosed-Recipient > Monday, February 23, 2009, 9:55 PM > > If you happen to hear of a MALE who suffers from FMS, CFS, ME, then > this would be part of his story..... and YES we women who suffer can > realate absolutely. Please read and forward where applicable. > Thanks. Clare in Tassie >  >  >  > A letter from the Knights of Fibromyalgia >  written by Brady, aka PizzaMan242 > http://www.menwithf ibro.com/ html/the_ knights.html  > > Suddenly, in the middle of doing some small task, sharp shooting > pains begin in your chest that start traveling down your arm and it > is very hard to breathe. Your first thought is a heart attack. You > go to the ER and they say you are fine, it is nothing. The next day > or a week later it happens again. Again they say you are fine but > this time they give you a referral to a psychiatrist. Now they > think you are imagining the pain, yet you know it is very real. What > do you do? There is always a psychological aspect to the > experience of pain, but this does not necessarily mean that the > source of the pain is rooted in the psyche. > > What I have just described is a very common Fibromyalgia flare up. > Yet they only look at you as if you have a screw loose. They do not > even check to see if it is Fibromyalgia. They look at your heart and > other physical problems that could cause this pain but find > nothing. They could perform a simple pressure test to eliminate or > confirm Fibromyalgia but you must first navigate a maze of other > tests. >  > Doctors and others in the professional fields label us as depressive > personalities and prescribe anti depressants, then are confused when > they do not have the desired effect. Probably because at the root > we are not depressed, yet. You begin to doubt the doctors and > yourself. They say they cannot cure it, and they can only treat > some of the symptoms with a limited degree of success. >  > Your chest still hurts, you can hardly breathe, your shoulders hurt > and the pain is traveling down your arms to your hands. Your hands > are slightly swollen and discolored, your fingers are numb, your > legs are killing you and there is a burning sensation in them. The > abdomen is sore to touch, the bowels are churning, and it feels as > if you have been shot through the middle with a rocket. Then when we > ask for something for the pain, because by now it has become a > constant pain gnawing at your very being. Then they label you a > drug addict and believe you are faking the pain to get drugs. Now > they think we are just in it for the drugs and if they do give you > something for the pain. Then the DEA starts watching your doctor's > prescriptions, making the doctor afraid to prescribe more potent > medications. >  > What do we do then? We try to describe it for our doctors and they > in turn tell us we are not active enough, we are depressed, so > exercise and a mood change should straighten you out. You follow > the doctor's and therapist's directions completely, yet when all > these things are done you are still in pain only it has gotten > worse. You are now almost begging for something to kill the pain. > Instead you are given massage therapy, heat therapy and maybe if > your lucky pool therapy. None of these will work. Only the pool > therapy will give you temporary relief, with it's blood warm > waters and gentle exercises. Yet even this fails, you find > yourself going into a flair as soon as your body cools down. At > each different therapy you are greeted with the following. Oh no > problem I have seen people come in here in wheelchairs and walk > out on their own two feet. Wow, you think this must be the one. They > have such high success rate, But sadly with each > one we see an escalation of the pain. No matter how good the > treatments feel, the effects are only temporary and your back in > the same old routine of pain and exhaustion. > > A simple pressure test on the back and shoulders will confirm the > presence of an invisible serious illness called Fibromyalgia. Still, > most sufferers go to many doctors and go for years without a > diagnosis. Why? > > We have to pay thousands of dollars we cannot afford for tests to > eliminate other possibilities. Why does it take so long, everyone > knows the test? Why can't they confirm it? Are they afraid of us > because they cannot cure us? Well are they? > > For the medical community this disease is a mystery. No one knows > what triggers it or where it is in the body, they have their > theories but nothing conclusive. Many doctors refuse to believe that > it exists since it lacks that evidence. Others believe but do not > want to treat it because there is no clear answer. Yet they are > the ones we must turn to and put our trust in, only to leave us > just hanging. Why? >  > Again it is because they do not know the why, how, or where to > begin. They only know that we are in pain and we tend not to > exercise because it causes even greater pain. Nevertheless, we > must exercise. So we do so we can still stand and walk, We know we > must do that much, yet they want more so we try, why? Because > that is what they tell us to do. Some even believe that the more > we exercise the better the chance is to be cured. The only thing > they have right is that we do need to exercise although it hurts, we > just have to learn to pace at our own individual level. There is no > cure or even hope of major relief. > > Searching for someone we can get to help us turns into a full time > job. Hundreds of dollars are spent on prescribed drugs and > therapies that do not help. Sometimes they are damaging, causing > side effects that build until we become intolerant of most drugs and > even just over stretching a little one time, can set someone back > for months. > > No money is being spent to research a cure, and no panel has been > formed to study the effects of fibromyalgia. It is almost as if we > are Lepers, banned to living a nightmare existence from which > there is no escape. > > The pain wakes you every two hours through the night and the days > are spent in a barely functional fog. You do not feel safe to drive > and even the short ride to the doctor with a friend driving > increases the pain. Then only when the overwhelming tiredness > consumes you. It is the same as always, 3:00 o'clock in the morning. > Only to sleep for 2-4 hours, more if your very lucky. > > Fibromyalgia remains a very devastating but invisible disease. It > is debilitating because when we try to do anything we are in fact > hurting ourselves because our muscles cannot heal themselves. > Instead we are risking triggering a flare up that could last a day > or even a month. Some are bedridden by the effects of this disease. > Unable to do the simplest of tasks.. Some take the antidepressants > and after years of taking them suddenly start thinking that suicide > is in fact a really good option, and sadly some have taken that > course. May their souls find peace. >  > Everyone says that you look fine. Your employer, if you are still > able to work at all, questions why you can barely do anything and > then implies that you are slacking on the duties you once could do > without a problem. > > How can something that cannot be seen or found in a x-ray or a blood > test be so devastating? We do not know. We just know that we are in > pain and no one wants to help. Those who are willing to try to > help are few and far between. Even then we are forced to weed > through the charlatans selling their Snake Oil Cures. That is how > rare it is to find a doctor who really wants to try to understand > and help you. Yet even he cannot cure you or even lessen your pain. > > We who suffer from this disease wonder when somebody will take > notice that there is not a few of us but millions. Yes, I said > millions. They can treat some of us with a couple of Advil but > there are those among us who take Morphine and it does not stop the > pain. The medical community only sees the ones who are getting by > taking Advil and walking for 30 minutes or more per day. Some of us > cannot walk for 10 minutes without a break. Some are even worse. > > You stand to lose your wife, husband, family, career and your home, > because this disease does not allow you to function enough to take > care of all these things, to protect them as you always did before. > > Your friends do not want to be around someone who is constantly sick > and cannot go out to do things. No single person could imagine the > multitude of sordid symptoms, let alone millions of people from all > over the country and world with identical symptoms. Surely no one > would choose to live like this.. > > We call on you to help us draw attention to this. We are tired of > being ignored, and watching those among us who we call friends > deteriorate further and die, but not from Fibromyalgia. No, that is > not the killer, it just makes you wish you were dead. No the drugs > that we take have a cumulative effect so that we get diabetes, > hypertension, kidney disease, all caused by taking the wrong drugs > but they cannot tell us what the correct drugs are. Nor will they > admit that the drugs you have been taking are the root cause to your > more mundane problems. > > Please do not let another one of us fall by the wayside because we > are not a majority and Fibromyalgia is a little known disease that > is " all in their head " until the devastating effects strike you > personally. > > " Acute pain protects life, Chronic pain destroys it. " Always > remember this. >  > ============ ========= ========= ========= > > Read stories of Men with Fibromyalgia: www.fms-help. com/men.htm. > ============ ========= ========= ========= > II Corinthians 1: 4 - " Who comforteth us in all our tribulation, > that we may be able to comfort them which are in any trouble, by the > comfort wherewith we ourselves are comforted of God. "  Visit > Dominie's FMS/CFIDS Homepage at www.fms-help. com for Fibromyalgia > and Chronic Fatigue Syndrome sufferers and their families. >  >  >  >  >  > > > > > > > > > > > > > --- > > «¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤«¤»¥«¤»§«¤»¥«¤»§«¤» > > § - PULSE ON 21st CENTURY ALTERNATIVE MEDICINE! § > > > Subscribe send email to: - > > «¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤«¤»¥«¤»§«¤»¥«¤»§«¤» > > GREAT VACATION RENTAL ON THE LAKE: www.vacationhomerentals.com/39833 > > DISCLOSURE: > Any information here in is for educational purpose only; it may be > news related, purely speculation or SOMEONE’S OPINION. Always > consult with a qualified Medical Doctor before deciding on any > course of treatment, especially for serious or life-threatening > illnesses. > > > SUBMISSION POLICY & CONDITION OF MEMBERSHIP: > By becoming a member of this group you AGREE to hold this group its > members, list owners, moderators & affiliates harmless of any > liability for any direct, consequential, incidental, damage incurred. > > If you post a piece to the list. We reserve the right to attach your > name and email address to the piece, as well as to keep them on > record. > You should NOT post copyrighted material unless proper attributions > to the source of the material. Submissions are gladly accepted. > Please feel free to post material that you think are worthy. > > YOU AGREE; to accept responsibility and liability for your own > actions and to contact a licensed Medical Doctor before deciding on > any course of treatment, especially for serious or life-threatening > illnesses. > > IF YOU DO NOT AGREE; you must : > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Lyme disease could have been a factor for my husband, but I think being anemic all my life with my extremities always cold, the aging process and lack of exercise were major factors for me. Also, both my husband and I are about 40 pounds overweight and have had more pain since we gained all that about 10 years ago. --- On Tue, 2/24/09, Susan Siegel <ssiegel5 wrote: Susan Siegel <ssiegel5 Re: The Knights of Fibromyalgia Tuesday, February 24, 2009, 4:13 PM Yes, but what causes the improper circulation? Usually chronic conditions can be traced to a pathogen or pathogens. There is always something causing these symptoms. Lyme disease and/or its co-infections are worth checking into. Susan Siegel On Feb 24, 2009, at 3:15 PM, jean white wrote: > Both my husband and I have had these symptoms and have found it can be treated by herbs. Butchers broom and saw palmetto help us to sleep thru the night. Pain pills usually cause more trouble than they help. I only use them in extreme situations since they hurt my stomach every time. I never go for prescription drugs, just motrim or asprin.Vit. E and calcium with Vit. C will help a bit too, but butchers broom helps us the most. Exercise and just sitting in the sun will after a time ease but not immediately. IMO this is caused by improper circulation. > --- On Mon, 2/23/09, Clare@GOOGLE MAIL <theclaremcharris wrote: > > > Clare@GOOGLE MAIL <theclaremcharris > The Knights of Fibromyalgia > Undisclosed-Recipient > Monday, February 23, 2009, 9:55 PM > > If you happen to hear of a MALE who suffers from FMS, CFS, ME, then this would be part of his story..... and YES we women who suffer can realate absolutely. Please read and forward where applicable. Thanks. Clare in Tassie >  >  >  > A letter from the Knights of Fibromyalgia >  written by Brady, aka PizzaMan242 > http://www.menwithf ibro.com/ html/the_ knights.html  > > Suddenly, in the middle of doing some small task, sharp shooting pains begin in your chest that start traveling down your arm and it is very hard to breathe. Your first thought is a heart attack. You go to the ER and they say you are fine, it is nothing. The next day or a week later it happens again. Again they say you are fine but this time they give you a referral to a psychiatrist. Now they think you are imagining the pain, yet you know it is very real. What do you do? There is always a psychological aspect to the experience of pain, but this does not necessarily mean that the source of the pain is rooted in the psyche. > > What I have just described is a very common Fibromyalgia flare up. Yet they only look at you as if you have a screw loose. They do not even check to see if it is Fibromyalgia. They look at your heart and other physical problems that could cause this pain but find nothing. They could perform a simple pressure test to eliminate or confirm Fibromyalgia but you must first navigate a maze of other tests. >  > Doctors and others in the professional fields label us as depressive personalities and prescribe anti depressants, then are confused when they do not have the desired effect. Probably because at the root we are not depressed, yet. You begin to doubt the doctors and yourself. They say they cannot cure it, and they can only treat some of the symptoms with a limited degree of success. >  > Your chest still hurts, you can hardly breathe, your shoulders hurt and the pain is traveling down your arms to your hands. Your hands are slightly swollen and discolored, your fingers are numb, your legs are killing you and there is a burning sensation in them. The abdomen is sore to touch, the bowels are churning, and it feels as if you have been shot through the middle with a rocket. Then when we ask for something for the pain, because by now it has become a constant pain gnawing at your very being. Then they label you a drug addict and believe you are faking the pain to get drugs. Now they think we are just in it for the drugs and if they do give you something for the pain. Then the DEA starts watching your doctor's prescriptions, making the doctor afraid to prescribe more potent medications. >  > What do we do then? We try to describe it for our doctors and they in turn tell us we are not active enough, we are depressed, so exercise and a mood change should straighten you out. You follow the doctor's and therapist's directions completely, yet when all these things are done you are still in pain only it has gotten worse. You are now almost begging for something to kill the pain. Instead you are given massage therapy, heat therapy and maybe if your lucky pool therapy. None of these will work. Only the pool therapy will give you temporary relief, with it's blood warm waters and gentle exercises. Yet even this fails, you find yourself going into a flair as soon as your body cools down. At each different therapy you are greeted with the following. Oh no problem I have seen people come in here in wheelchairs and walk out on their own two feet. Wow, you think this must be the one. They have such high success rate, But sadly with each > one we see an escalation of the pain. No matter how good the treatments feel, the effects are only temporary and your back in the same old routine of pain and exhaustion. > > A simple pressure test on the back and shoulders will confirm the presence of an invisible serious illness called Fibromyalgia. Still, most sufferers go to many doctors and go for years without a diagnosis. Why? > > We have to pay thousands of dollars we cannot afford for tests to eliminate other possibilities. Why does it take so long, everyone knows the test? Why can't they confirm it? Are they afraid of us because they cannot cure us? Well are they? > > For the medical community this disease is a mystery. No one knows what triggers it or where it is in the body, they have their theories but nothing conclusive. Many doctors refuse to believe that it exists since it lacks that evidence. Others believe but do not want to treat it because there is no clear answer. Yet they are the ones we must turn to and put our trust in, only to leave us just hanging. Why? >  > Again it is because they do not know the why, how, or where to begin. They only know that we are in pain and we tend not to exercise because it causes even greater pain. Nevertheless, we must exercise. So we do so we can still stand and walk, We know we must do that much, yet they want more so we try, why? Because that is what they tell us to do. Some even believe that the more we exercise the better the chance is to be cured. The only thing they have right is that we do need to exercise although it hurts, we just have to learn to pace at our own individual level. There is no cure or even hope of major relief. > > Searching for someone we can get to help us turns into a full time job. Hundreds of dollars are spent on prescribed drugs and therapies that do not help. Sometimes they are damaging, causing side effects that build until we become intolerant of most drugs and even just over stretching a little one time, can set someone back for months. > > No money is being spent to research a cure, and no panel has been formed to study the effects of fibromyalgia. It is almost as if we are Lepers, banned to living a nightmare existence from which there is no escape. > > The pain wakes you every two hours through the night and the days are spent in a barely functional fog. You do not feel safe to drive and even the short ride to the doctor with a friend driving increases the pain. Then only when the overwhelming tiredness consumes you. It is the same as always, 3:00 o'clock in the morning. Only to sleep for 2-4 hours, more if your very lucky. > > Fibromyalgia remains a very devastating but invisible disease.. It is debilitating because when we try to do anything we are in fact hurting ourselves because our muscles cannot heal themselves. Instead we are risking triggering a flare up that could last a day or even a month. Some are bedridden by the effects of this disease. Unable to do the simplest of tasks.. Some take the antidepressants and after years of taking them suddenly start thinking that suicide is in fact a really good option, and sadly some have taken that course. May their souls find peace. >  > Everyone says that you look fine. Your employer, if you are still able to work at all, questions why you can barely do anything and then implies that you are slacking on the duties you once could do without a problem. > > How can something that cannot be seen or found in a x-ray or a blood test be so devastating? We do not know. We just know that we are in pain and no one wants to help. Those who are willing to try to help are few and far between. Even then we are forced to weed through the charlatans selling their Snake Oil Cures. That is how rare it is to find a doctor who really wants to try to understand and help you. Yet even he cannot cure you or even lessen your pain. > > We who suffer from this disease wonder when somebody will take notice that there is not a few of us but millions. Yes, I said millions. They can treat some of us with a couple of Advil but there are those among us who take Morphine and it does not stop the pain. The medical community only sees the ones who are getting by taking Advil and walking for 30 minutes or more per day. Some of us cannot walk for 10 minutes without a break. Some are even worse. > > You stand to lose your wife, husband, family, career and your home, because this disease does not allow you to function enough to take care of all these things, to protect them as you always did before. > > Your friends do not want to be around someone who is constantly sick and cannot go out to do things. No single person could imagine the multitude of sordid symptoms, let alone millions of people from all over the country and world with identical symptoms. Surely no one would choose to live like this.. > > We call on you to help us draw attention to this. We are tired of being ignored, and watching those among us who we call friends deteriorate further and die, but not from Fibromyalgia. No, that is not the killer, it just makes you wish you were dead. No the drugs that we take have a cumulative effect so that we get diabetes, hypertension, kidney disease, all caused by taking the wrong drugs but they cannot tell us what the correct drugs are. Nor will they admit that the drugs you have been taking are the root cause to your more mundane problems. > > Please do not let another one of us fall by the wayside because we are not a majority and Fibromyalgia is a little known disease that is " all in their head " until the devastating effects strike you personally. > > " Acute pain protects life, Chronic pain destroys it. " Always remember this. >  > ============ ========= ========= ========= > > Read stories of Men with Fibromyalgia: www.fms-help. com/men.htm. > ============ ========= ========= ========= > II Corinthians 1: 4 - " Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. "  Visit Dominie's FMS/CFIDS Homepage at www.fms-help. com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families. >  >  >  >  >  > > > > > > > > > > > > > --- > > «¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§\ «¤»¥«¤«¤»¥«¤»§«¤»¥«¤»§«¤» > > § - PULSE ON 21st CENTURY ALTERNATIVE MEDICINE! § > > > Subscribe send email to: - > > «¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§\ «¤»¥«¤«¤»¥«¤»§«¤»¥«¤»§«¤» > > GREAT VACATION RENTAL ON THE LAKE: www.vacationhomerentals.com/39833 > > DISCLOSURE: > Any information here in is for educational purpose only; it may be news related, purely speculation or SOMEONE’S OPINION. 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Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 to my understanding SO FAR no one has come up with a reason/cause for Fibromyalgia.... they seem to be 'possibly' innumerable. AND what causes it and or heals it for one person may not be the same for another. I do not agree that either JUST being overweight Or JUST having Lyme Disease or JUST having bad circulation etc etc etc can be stated as the cause. In my own case there are several 'possible' factors/causes which I have never been able to definitely say ARE why.......... was it the necrotic spider bite? was it the MMR adult revaccination? was it the Statin Drugs? is it because of food sensitivities and possible malabsortion issues? For everyone the 'trigger' is probably different. As to the article witten by the GUY with FMS...... I applaud his written work. There are not too many chaps who will openly come out and say I HURT. Clare in TAssie Quote Link to comment Share on other sites More sharing options...
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