Severe pain

[Guest guest]

Deep breathing and distraction. Try eating ice cream, playing a video game,

watching a good movie or organizing your home. Remember Spock? Put your mind

above your pain and ignore it. If you're alone with no one to upset, you can try

screaming and pounding on a soft cushion. All these things have helped for me,

but the breathing is probably the best to use first.

 

--- On Thu, 8/7/08, batesfan66 <batesfan66 wrote:

 

batesfan66 <batesfan66

Severe pain

 

Thursday, August 7, 2008, 1:18 PM

 

 

 

 

 

 

Hello, I just needed to vent I am in severe pain today and have alot of

nausea.I am really tired of all of this. I cant find a doctor who

prescribe anything to help. Im given a low dose vicoidin as needed but

#30 tabs have to last me a year!and when I complained to rheum. that

they no longer seem to help she took me off! I was so mad. She is

listed as specialist in fibro. reason I went to her. and she is so cold

and acts disgusted with the diease. She said anyone with firo should be

working...Im going to try to find a new doctor.

 

I am feeling like Im dying though. I wish this pain would end.

 

Any ideas on what could help?

 

Thanks

[Guest guest]

hello, I just needed to vent I am in severe pain today and have alot of

> nausea.I am really tired of all of this. I cant find a doctor who

> prescribe anything to help. Im given a low dose vicoidin as needed but

> #30 tabs have to last me a year!and when I complained to rheum. that

> they no longer seem to help she took me off! I was so mad. She is

> listed as specialist in fibro. reason I went to her. and she is so cold

> and acts disgusted with the diease. She said anyone with firo should be

> working...Im going to try to find a new doctor.

>

> I am feeling like Im dying though. I wish this pain would end.

>

> Any ideas on what could help?

>

> Thanks

 

Hi there and hang in. Don't let your doctor upset you because they

can't find a solution that you can live with. This is actually going

to be a blessing in disguise. Why? Because you need to look in the

archives and find information on how people helped themselves with

fibro by changing diet and learning what is good for them. The

pills that doctors prescribe do not heal they mask and while they

are doing that they also affect other parts of the body negatively.

Search and ye shall find. good luck and thanks to the doctor for

taking you off the medication. Edith

[Guest guest]

I don't think prescription pain killers are going to be your long-term

answer or even your short-term answer. Maybe you should consult a

homeopath for a constitutional to heal your problem and stop your

pain. In the meantime, hang in there! There are people who love you!

 

Kathy

[Guest guest]

"EFT" is an alternative treatment method that has been mentioned a number of times on this list. And there are a couple of practitioners that could tell you more about it. From: realfoodie2003Date: Thu, 7 Aug 2008 21:53:08 +0000 Re: Severe pain

 

 

 

I don't think prescription pain killers are going to be your long-term

answer or even your short-term answer. Maybe you should consult a

homeopath for a constitutional to heal your problem and stop your

pain. In the meantime, hang in there! There are people who love you!

 

Kathy

 

 

 

Reveal your inner athlete and share it with friends on Windows Live. Share now!

[Guest guest]

We need more details about what is happening - where and what type of pain

do you have? Muscle? Bone? Joint? Which joints? What do you eat and drink?

Are you drinking 3L Alkaline water a day? Have you tried MSM? With Vitamin

C?

 

Jane

 

-

" batesfan66 " <batesfan66

 

Friday, August 08, 2008 4:18 AM

Severe pain

 

 

Hello, I just needed to vent I am in severe pain today and have alot of

nausea.I am really tired of all of this. I cant find a doctor who

prescribe anything to help. Im given a low dose vicoidin as needed but

#30 tabs have to last me a year!and when I complained to rheum. that

they no longer seem to help she took me off! I was so mad. She is

listed as specialist in fibro. reason I went to her. and she is so cold

and acts disgusted with the diease. She said anyone with firo should be

working...Im going to try to find a new doctor.

 

I am feeling like Im dying though. I wish this pain would end.

 

Any ideas on what could help?

 

Thanks

 

 

---

 

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[Guest guest]

I'm sorry but for all of you who don't have fibro have no freakin' idea what you are talking about! Organize your home, we can barely walk across the damn room without passing out from the pure to-the-bone exhaustion not to mention the pain and not to mention the fact that when we do ANYTHING we pay for it for 2 or 3 days afterwards. So, until you have had this kind of chronic pain that is on going and relentless you can take all your "breathing" and "moving above the pain" and put it where the sun doesn't shine. And I really hate to be so blunt here but in defense of this woman who is in severe pain, and speaking from my own experiences with fibro, I have to be. I truly appreciate all of the support and all of the advice when it comes to nutrition and alternative

medicine but that is not what this person is reaching out for, in my opinion. She is asking for help that will help her today, NOW. Know what I mean?

 

So, in answer to your question about your pain today and your fibro....I would most definitely find a doctor with compassion and knowledge about fibro and one who has been taught to listen and put leave her judgments at the door. This disease is real and anyone who thinks otherwise can go jump off of a bridge! I don't like allopathic medicine but I use it because for now, I have no choice and it doesn't sound like you do either...for now. I would combine finding a REALLY good doctor (I would suggest a neurologist), and I would interview them before going in as to their experience with fibro and ask them bluntly if they believe it is a real disease or not, and if not....next! Then I would, at the same time, find a really good homeopathic, accupuncture, pracitioner. I would read about nutrition as it relates to fibro and start your journey on eating organic fruits and vege's, brown foods, and organic

meats. Good water (preferably alkalinized water), plenty of rest. If you can have a sleep study done to verify that you are in fact not getting deep sleep, alpha, (because fibro people don't) and therefore our bodies don't regenerate and we are slowly burning out from using up our reserves, so to speak. I would recommend getting on a good sleep medication and a good pain killer. Your (new) doctor (neurologist) will hopefully be supportive and helpful. I myself take 10/325 of vicodan 3 times a day and 10mg of Ambien at night. I am also taking Namenda (which is typically used for Alzheimers but works on fibro pain and restoritive sleep), 10mg at night. FOR NOW, today, I would go the nearest immedi-center or ER and get help for today and the next few days until you can get into to see someone who is willing and able to truly help you.

 

Yes, I have been on my soap box here, but people, PLEASE get it that all the advice in the world is only good to a point...we are in constant relentless agonizing pain every moment of every day and some days are much worse than others and some days we get to look like and feel like we have a normal life...like perhaps YOU! Have compassion guys!

 

jude in sb

 

 

jean white <free2wait Sent: Thursday, August 7, 2008 11:25:10 AMRe: Severe pain

 

Deep breathing and distraction. Try eating ice cream, playing a video game, watching a good movie or organizing your home. Remember Spock? Put your mind above your pain and ignore it. If you're alone with no one to upset, you can try screaming and pounding on a soft cushion. All these things have helped for me, but the breathing is probably the best to use first.--- On Thu, 8/7/08, batesfan66 <batesfan66 > wrote:batesfan66 <batesfan66 >[Health_and_ Healing] Severe painThursday,

August 7, 2008, 1:18 PMHello, I just needed to vent I am in severe pain today and have alot of nausea.I am really tired of all of this. I cant find a doctor who prescribe anything to help. Im given a low dose vicoidin as needed but #30 tabs have to last me a year!and when I complained to rheum. that they no longer seem to help she took me off! I was so mad. She is listed as specialist in fibro. reason I went to her. and she is so cold and acts disgusted with the diease. She said anyone with firo should be working...Im going to try to find a new doctor.I am feeling like Im dying though. I wish this pain would end.Any ideas on what could help?Thanks

[Guest guest]

I'm sorry if my advice offended you. However, I wasn't aware I was answering

you. My mother tried all kinds of drugs for her pain and just got worse the more

she took. I had to stand by and watch her become less and less of a person. As I

am not a doctor, my opinion was worthless of course. In the end, thanks to all

the lovely drugs available to us now, she could neither hear, see, taste or

sleep.Anything she ate came back on her. She only wanted to die. I'm sorry if

you think a quick fix is preferable to a better life. I don't agree. I know

about pain. I've certainly had enough. Sometimes I just moan and flail about on

my bed and dread having to get up, but I do. I'm lucky if I get 2 straight hours

of sleep a night. Still I know enough not to seek out doctors with drugs. My

mother taught me that in her own way. I agree about the diet and alternative

treatments. Acupunture or even acupressure can relieve pain for a while. My

mother took ambien. I'm

sorry, but sometimes you do just have to tough it out if you ever want to get

better. I'm still in pain but it's not going to defeat me. Sympathy is not what

you need. It just makes you weak. Be determined to fight and win.

 

-- On Thu, 8/7/08, Jude Johnson <jjskinguru wrote:

 

Jude Johnson <jjskinguru

Re: Severe pain

 

Thursday, August 7, 2008, 8:27 PM

 

 

 

 

 

 

 

 

I'm sorry but for all of you who don't have fibro have no freakin' idea what you

are talking about!  Organize your home, we can barely walk across the damn room

without passing out from the pure to-the-bone exhaustion not to mention the pain

and not to mention the fact that when we do ANYTHING we pay for it for 2 or 3

days afterwards.  So, until you have had this kind of chronic pain that is on

going and relentless you can take all your " breathing " and " moving above the

pain " and put it where the sun doesn't shine.  And I really hate to be so blunt

here but in defense of this woman who is in severe pain, and speaking from my

own experiences with fibro, I have to be.  I truly appreciate all of the

support and all of the advice when it comes to nutrition and alternative

medicine but that is not what this person is reaching out for, in my opinion. 

She is asking for help that will help her today, NOW.  Know what I mean? 

 

So, in answer to your question about your pain today and your fibro....I would

most definitely find a doctor with compassion and knowledge about fibro and one

who has been taught to listen and put leave her judgments at the door.  This

disease is real and anyone who thinks otherwise can go jump off of a bridge!  I

don't like allopathic medicine but I use it because for now, I have no choice

and it doesn't sound like you do either...for now.  I would combine finding a

REALLY good doctor (I would suggest a neurologist) , and I would interview them

before going in as to their experience with fibro and ask them bluntly if they

believe it is a real disease or not, and if not....next!  Then I would, at the

same time, find a really good homeopathic, accupuncture,

pracitioner.  I would read about nutrition as it relates to fibro and start

your journey on eating organic fruits and vege's, brown foods, and organic

meats.  Good water

(preferably alkalinized water), plenty of rest.  If you can have a sleep study

done to verify that you are in fact not getting deep sleep, alpha, (because

fibro people don't) and therefore our bodies don't regenerate and we are slowly

burning out from using up our reserves, so to speak.  I would recommend getting

on a good sleep medication and a good pain killer..  Your (new) doctor

(neurologist) will hopefully be supportive and helpful.  I myself take 10/325

of vicodan 3 times a day and 10mg of Ambien at night.  I am also taking Namenda

(which is typically used for Alzheimers but works on fibro pain and restoritive

sleep), 10mg at night.  FOR NOW, today, I would go the nearest immedi-center or

ER and get help for today and the next few days until you can get into to see

someone who is willing and able to truly help you. 

 

Yes, I have been on my soap box here, but people, PLEASE get it that all the

advice in the world is only good to a point...we are in constant relentless

agonizing pain every moment of every day and some days are much worse than

others and some days we get to look like and feel like we have a normal

life...like perhaps YOU!  Have compassion guys!

 

jude in sb

 

 

 

 

 

jean white <free2wait >

 

Thursday, August 7, 2008 11:25:10 AM

Re: [Health_and_ Healing] Severe pain

 

 

 

Deep breathing and distraction. Try eating ice cream, playing a video game,

watching a good movie or organizing your home. Remember Spock? Put your mind

above your pain and ignore it. If you're alone with no one to upset, you can try

screaming and pounding on a soft cushion. All these things have helped for me,

but the breathing is probably the best to use first.

 

--- On Thu, 8/7/08, batesfan66 <batesfan66 > wrote:

 

batesfan66 <batesfan66 >

[Health_and_ Healing] Severe pain

 

Thursday, August 7, 2008, 1:18 PM

 

Hello, I just needed to vent I am in severe pain today and have alot of

nausea.I am really tired of all of this. I cant find a doctor who

prescribe anything to help. Im given a low dose vicoidin as needed but

#30 tabs have to last me a year!and when I complained to rheum. that

they no longer seem to help she took me off! I was so mad. She is

listed as specialist in fibro. reason I went to her. and she is so cold

and acts disgusted with the diease. She said anyone with firo should be

working...Im going to try to find a new doctor.

 

I am feeling like Im dying though. I wish this pain would end.

 

Any ideas on what could help?

 

Thanks

[Guest guest]

All or nothing is one of the reasons why we get stuck in pain. I believe throwing the baby out with the bath water and not taking advantage of using medication responsibly in order to have somewhat of a life, I don't think is wrong, I am very sorry for you and for your Mother's pain BUT her experience does not by any means cancel out ALL medicine and ALL use of medication. No it is not an answer and no it is not treating the actual problem(s) and yes it is treating the symptoms BUT sometimes you have to way the options and whatever each persons particular situation is has to be decided by that person, and that person only. I lead a very productive life, I know that with each day I have a limited amount of energy and I have to use it wisely. I can not push the

envelope, I can do what I used to be able to do, I know that when I push it, I pay for it for days. I know that I would have NO LIFE if I did not use medication RESPONSIBLY each day. Would I like not to take them, hell yes...but I am not willing, and perhaps you are and that is fine, to give up my life and to live my life miserably. All that I ask here is that we remember that chronic pain is horrific and you have no right to condemn anyone for using whatever resources they chose to use, be it medication, exercise, smoking pot, (which does help some, I wish it did me!), standing on their head, dancing with tap shoes on,....whatever! but don't condemn them for their choices! Compassion, compassion, compassion....until you walk a mile in THEIR shoes, you have no idea what they are experiencing...this message is not directed at you personally...and no you were not answering me personally, but one thing I have learned about

fibro and that is that it is definitely partially due to not speaking our truth, not speaking out when we know we should, not honoring our rightous anger, not taking care of ourselves first and foremost, but instead taking care of everyone else first...psychic trauma stuck in our bodies, emotional trauma stuck in our bodies, "the issues are in the tissues" in every sense of the word with fibro. So I honor you in saying your piece here..good for you!

 

jude

 

 

jean white <free2wait Sent: Thursday, August 7, 2008 7:11:36 PMRe: Severe pain

 

I'm sorry if my advice offended you. However, I wasn't aware I was answering you. My mother tried all kinds of drugs for her pain and just got worse the more she took. I had to stand by and watch her become less and less of a person. As I am not a doctor, my opinion was worthless of course. In the end, thanks to all the lovely drugs available to us now, she could neither hear, see, taste or sleep.Anything she ate came back on her. She only wanted to die. I'm sorry if you think a quick fix is preferable to a better life. I don't agree. I know about pain. I've certainly had enough. Sometimes I just moan and flail about on my bed and dread having to get up, but I do. I'm lucky if I get 2 straight hours of sleep a night. Still I know enough not to seek out doctors with drugs. My mother taught me that in her own way. I agree about the diet and alternative treatments. Acupunture or even acupressure can relieve pain for a while. My mother took ambien.

I'msorry, but sometimes you do just have to tough it out if you ever want to get better. I'm still in pain but it's not going to defeat me. Sympathy is not what you need. It just makes you weak. Be determined to fight and win.-- On Thu, 8/7/08, Jude Johnson <jjskinguru > wrote:Jude Johnson <jjskinguru >Re: [Health_and_ Healing] Severe painThursday, August 7, 2008, 8:27 PMI'm sorry but for all of you who don't have fibro have no freakin' idea what you are talking

about! Organize your home, we can barely walk across the damn room without passing out from the pure to-the-bone exhaustion not to mention the pain and not to mention the fact that when we do ANYTHING we pay for it for 2 or 3 days afterwards. So, until you have had this kind of chronic pain that is on going and relentless you can take all your "breathing" and "moving above the pain" and put it where the sun doesn't shine. And I really hate to be so blunt here but in defense of this woman who is in severe pain, and speaking from my own experiences with fibro, I have to be. I truly appreciate all of the support and all of the advice when it comes to nutrition and alternative medicine but that is not what this person is reaching out for, in my opinion. She is asking for help that will help her today, NOW. Know what I mean?  So, in answer to your question about your pain today and your

fibro....I would most definitely find a doctor with compassion and knowledge about fibro and one who has been taught to listen and put leave her judgments at the door. This disease is real and anyone who thinks otherwise can go jump off of a bridge! I don't like allopathic medicine but I use it because for now, I have no choice and it doesn't sound like you do either...for now. I would combine finding a REALLY good doctor (I would suggest a neurologist) , and I would interview them before going in as to their experience with fibro and ask them bluntly if they believe it is a real disease or not, and if not....next! Then I would, at the same time, find a really good homeopathic, accupuncture, pracitioner. I would read about nutrition as it relates to fibro and start your journey on eating organic fruits and vege's, brown foods, and organic meats. Good water(preferably alkalinized

water), plenty of rest. If you can have a sleep study done to verify that you are in fact not getting deep sleep, alpha, (because fibro people don't) and therefore our bodies don't regenerate and we are slowly burning out from using up our reserves, so to speak. I would recommend getting on a good sleep medication and a good pain killer.. Your (new) doctor (neurologist) will hopefully be supportive and helpful. I myself take 10/325 of vicodan 3 times a day and 10mg of Ambien at night. I am also taking Namenda (which is typically used for Alzheimers but works on fibro pain and restoritive sleep), 10mg at night. FOR NOW, today, I would go the nearest immedi-center or ER and get help for today and the next few days until you can get into to see someone who is willing and able to truly help you.  Yes, I have been on my soap box here, but people, PLEASE get it that all the advice in the

world is only good to a point...we are in constant relentless agonizing pain every moment of every day and some days are much worse than others and some days we get to look like and feel like we have a normal life...like perhaps YOU! Have compassion guys! jude in sbjean white <free2wait >Thursday, August 7, 2008 11:25:10 AMRe: [Health_and_ Healing] Severe painDeep breathing and distraction. Try eating ice cream, playing a video game, watching a good movie or organizing your home. Remember Spock? Put your mind above your pain and ignore it. If you're alone with no one to upset, you can try screaming and pounding on a soft cushion. All these things have helped for me, but the breathing is probably the best to use first.--- On Thu, 8/7/08, batesfan66 <batesfan66> wrote:batesfan66 <batesfan66>[Health_and_ Healing] Severe painThursday, August 7, 2008, 1:18 PMHello, I just needed to vent I am in severe pain today and have alot of nausea.I am really tired of all of this. I cant find a doctor who prescribe anything to help. Im given a low dose vicoidin as needed but #30 tabs have to last me a year!and when I complained to rheum. that they no longer seem to help she took me off! I was so mad. She is listed as specialist in fibro. reason I went to her. and she is so cold and acts disgusted with the diease. She said anyone with firo should be working...Im going to try to find a new doctor.I am feeling like Im dying though. I wish this pain would end.Any ideas on what could

help?Thanks

[Guest guest]

WOW! Thank you for that email! I have fibro and what you said at the end about "the issues are in the tissues" helped me more than any medicine ! That describes me exactly. I did have a hair test done and my calcium levels are off the charts. Has anyone else with fibro had high calcium levels? My magnesium levels are high but not as much as the calcium. Also high level of copper. From: jjskinguruDate: Thu, 7 Aug 2008 19:28:22 -0700Re: Severe pain

 

 

 

All or nothing is one of the reasons why we get stuck in pain. I believe throwing the baby out with the bath water and not taking advantage of using medication responsibly in order to have somewhat of a life, I don't think is wrong, I am very sorry for you and for your Mother's pain BUT her experience does not by any means cancel out ALL medicine and ALL use of medication. No it is not an answer and no it is not treating the actual problem(s) and yes it is treating the symptoms BUT sometimes you have to way the options and whatever each persons particular situation is has to be decided by that person, and that person only. I lead a very productive life, I know that with each day I have a limited amount of energy and I have to use it wisely. I can not push the

envelope, I can do what I used to be able to do, I know that when I push it, I pay for it for days. I know that I would have NO LIFE if I did not use medication RESPONSIBLY each day. Would I like not to take them, hell yes...but I am not willing, and perhaps you are and that is fine, to give up my life and to live my life miserably. All that I ask here is that we remember that chronic pain is horrific and you have no right to condemn anyone for using whatever resources they chose to use, be it medication, exercise, smoking pot, (which does help some, I wish it did me!), standing on their head, dancing with tap shoes on,....whatever! but don't condemn them for their choices! Compassion, compassion, compassion....until you walk a mile in THEIR shoes, you have no idea what they are experiencing...this message is not directed at you personally...and no you were not answering me personally, but one thing I have learned about

fibro and that is that it is definitely partially due to not speaking our truth, not speaking out when we know we should, not honoring our rightous anger, not taking care of ourselves first and foremost, but instead taking care of everyone else first...psychic trauma stuck in our bodies, emotional trauma stuck in our bodies, "the issues are in the tissues" in every sense of the word with fibro. So I honor you in saying your piece here..good for you!

 

jude

 

 

jean white <free2wait > Sent: Thursday, August 7, 2008 7:11:36 PMRe: Severe pain

 

I'm sorry if my advice offended you. However, I wasn't aware I was answering you. My mother tried all kinds of drugs for her pain and just got worse the more she took. I had to stand by and watch her become less and less of a person. As I am not a doctor, my opinion was worthless of course. In the end, thanks to all the lovely drugs available to us now, she could neither hear, see, taste or sleep.Anything she ate came back on her. She only wanted to die. I'm sorry if you think a quick fix is preferable to a better life. I don't agree. I know about pain. I've certainly had enough. Sometimes I just moan and flail about on my bed and dread having to get up, but I do. I'm lucky if I get 2 straight hours of sleep a night. Still I know enough not to seek out doctors with drugs. My mother taught me that in her own way. I agree about the diet and alternative treatments. Acupunture or even acupressure can relieve pain for a while. My mother took ambien.

I'msorry, but sometimes you do just have to tough it out if you ever want to get better. I'm still in pain but it's not going to defeat me. Sympathy is not what you need. It just makes you weak. Be determined to fight and win.-- On Thu, 8/7/08, Jude Johnson <jjskinguru > wrote:Jude Johnson <jjskinguru >Re: [Health_and_ Healing] Severe painThursday, August 7, 2008, 8:27 PMI'm sorry but for all of you who don't have fibro have no freakin' idea what you are talking

about! Organize your home, we can barely walk across the damn room without passing out from the pure to-the-bone exhaustion not to mention the pain and not to mention the fact that when we do ANYTHING we pay for it for 2 or 3 days afterwards. So, until you have had this kind of chronic pain that is on going and relentless you can take all your "breathing" and "moving above the pain" and put it where the sun doesn't shine. And I really hate to be so blunt here but in defense of this woman who is in severe pain, and speaking from my own experiences with fibro, I have to be. I truly appreciate all of the support and all of the advice when it comes to nutrition and alternative medicine but that is not what this person is reaching out for, in my opinion. She is asking for help that will help her today, NOW. Know what I mean?  So, in answer to your question about your pain today and your

fibro....I would most definitely find a doctor with compassion and knowledge about fibro and one who has been taught to listen and put leave her judgments at the door. This disease is real and anyone who thinks otherwise can go jump off of a bridge! I don't like allopathic medicine but I use it because for now, I have no choice and it doesn't sound like you do either...for now. I would combine finding a REALLY good doctor (I would suggest a neurologist) , and I would interview them before going in as to their experience with fibro and ask them bluntly if they believe it is a real disease or not, and if not....next! Then I would, at the same time, find a really good homeopathic, accupuncture, pracitioner. I would read about nutrition as it relates to fibro and start your journey on eating organic fruits and vege's, brown foods, and organic meats. Good water(preferably alkalinized

water), plenty of rest. If you can have a sleep study done to verify that you are in fact not getting deep sleep, alpha, (because fibro people don't) and therefore our bodies don't regenerate and we are slowly burning out from using up our reserves, so to speak. I would recommend getting on a good sleep medication and a good pain killer.. Your (new) doctor (neurologist) will hopefully be supportive and helpful. I myself take 10/325 of vicodan 3 times a day and 10mg of Ambien at night. I am also taking Namenda (which is typically used for Alzheimers but works on fibro pain and restoritive sleep), 10mg at night. FOR NOW, today, I would go the nearest immedi-center or ER and get help for today and the next few days until you can get into to see someone who is willing and able to truly help you.  Yes, I have been on my soap box here, but people, PLEASE get it that all the advice in the

world is only good to a point...we are in constant relentless agonizing pain every moment of every day and some days are much worse than others and some days we get to look like and feel like we have a normal life...like perhaps YOU! Have compassion guys! jude in sbjean white <free2wait >Thursday, August 7, 2008 11:25:10 AMRe: [Health_and_ Healing] Severe painDeep breathing and distraction. Try eating ice cream, playing a video game, watching a good movie or organizing your home. Remember Spock? Put your mind above your pain and ignore it. If you're alone with no one to upset, you can try screaming and pounding on a soft cushion. All these things have helped for me, but the breathing is probably the best to use first.--- On Thu, 8/7/08, batesfan66 <batesfan66> wrote:batesfan66 <batesfan66>[Health_and_ Healing] Severe painThursday, August 7, 2008, 1:18 PMHello, I just needed to vent I am in severe pain today and have alot of nausea.I am really tired of all of this. I cant find a doctor who prescribe anything to help. Im given a low dose vicoidin as needed but #30 tabs have to last me a year!and when I complained to rheum. that they no longer seem to help she took me off! I was so mad. She is listed as specialist in fibro. reason I went to her. and she is so cold and acts disgusted with the diease. She said anyone with firo should be working...Im going to try to find a new doctor.I am feeling like Im dying though. I wish this pain would end.Any ideas on what could

help?Thanks

 

 

Got Game? Win Prizes in the Windows Live Hotmail Mobile Summer Games Trivia Contest Find out how.

[Guest guest]

There are some studies that state that fibro is a mis-fire of calcium, which causes us to have to much calcium in many schools of thought....for what it is worth. What kind of calcium have you been using? What kind of magnesium. Always choose liquid over pills for actual assimilation. No Tums don't count!

 

There is a type of massage that very few people are trained to do because it also encompasses someone to have a license to practice therapy. It is called bio-massage. A stethescope is placed under the kidneys and then placed to where you can hear it as the person gives you a massage. I have had about 25 of these done on my body. So I am telling you this from my own experience. When the tech would work on ANY of the trigger points of my fibro I would hear the stethescope go off and hear my kidneys gurgling all over the place, talking to me!!!! The body carries our memories and wants to let go of anything that isn't healthy for us. Also, when that would happen and she would apply pressure and breathe into the "wounded area" where she is applying presssure-= I kid you not, I had flashes of memories every single time! It was like a camera opening a lense and you see the whole picture and then closes, but

they stay stuck in your current memory and you have the choice to then talk about what happend for you during your session with the massage/therapist. So you are actually working with the "issues that are in the tissues".....it did help me alot and it has been about 10 years since I had any sessions. It is time to go back. My fibro has moved into a deeper layer now. I would search out "bio-massage" and see what comes up. I know that the person I work(ed) with is from Amsterdamn and she had to train for 8 years! She is in Santa Barbara, where I live.

 

I'm glad that my words and insight were good for you. Nothing makes me feel better than feeling that I am of service to others with this "freakin fibro"!

 

Take care,

jude

 

helen marie --------------------- <hmariewvhealth_and_healing Sent: Thursday, August 7, 2008 9:42:50 PMRE: Severe pain

 

 

WOW! Thank you for that email! I have fibro and what you said at the end about "the issues are in the tissues" helped me more than any medicine ! That describes me exactly. I did have a hair test done and my calcium levels are off the charts. Has anyone else with fibro had high calcium levels? My magnesium levels are high but not as much as the calcium. Also high level of copper.

 

jjskinguru Thu, 7 Aug 2008 19:28:22 -0700Re: [Health_and_ Healing] Severe pain

 

 

 

All or nothing is one of the reasons why we get stuck in pain. I believe throwing the baby out with the bath water and not taking advantage of using medication responsibly in order to have somewhat of a life, I don't think is wrong, I am very sorry for you and for your Mother's pain BUT her experience does not by any means cancel out ALL medicine and ALL use of medication. No it is not an answer and no it is not treating the actual problem(s) and yes it is treating the symptoms BUT sometimes you have to way the options and whatever each persons particular situation is has to be decided by that person, and that person only. I lead a very productive life, I know that with each day I have a limited amount of energy and I have to use it wisely. I can not push the envelope, I can do what I used to be able to do, I know that when I push it, I pay

for it for days. I know that I would have NO LIFE if I did not use medication RESPONSIBLY each day. Would I like not to take them, hell yes...but I am not willing, and perhaps you are and that is fine, to give up my life and to live my life miserably. All that I ask here is that we remember that chronic pain is horrific and you have no right to condemn anyone for using whatever resources they chose to use, be it medication, exercise, smoking pot, (which does help some, I wish it did me!), standing on their head, dancing with tap shoes on,....whatever! but don't condemn them for their choices! Compassion, compassion, compassion.. ..until you walk a mile in THEIR shoes, you have no idea what they are experiencing. ..this message is not directed at you personally.. .and no you were not answering me personally, but one thing I have learned about fibro and that is that it is definitely partially due to not speaking our truth,

not speaking out when we know we should, not honoring our rightous anger, not taking care of ourselves first and foremost, but instead taking care of everyone else first...psychic trauma stuck in our bodies, emotional trauma stuck in our bodies, "the issues are in the tissues" in every sense of the word with fibro. So I honor you in saying your piece here..good for you! jude

 

 

jean white <free2wait >Thursday, August 7, 2008 7:11:36 PMRe: [Health_and_ Healing] Severe pain

I'm sorry if my advice offended you. However, I wasn't aware I was answering you. My mother tried all kinds of drugs for her pain and just got worse the more she took. I had to stand by and watch her become less and less of a person. As I am not a doctor, my opinion was worthless of course. In the end, thanks to all the lovely drugs available to us now, she could neither hear, see, taste or sleep.Anything she ate came back on her. She only wanted to die. I'm sorry if you think a quick fix is preferable to a better life. I don't agree. I know about pain. I've certainly had enough. Sometimes I just moan and flail about on my bed and dread having to get up, but I do. I'm lucky if I get 2 straight hours of sleep a night. Still I know enough not to seek out doctors with drugs. My mother taught me that in her own way. I agree about the diet and alternative treatments. Acupunture or even acupressure can relieve pain for a while. My mother

took ambien. I'msorry, but sometimes you do just have to tough it out if you ever want to get better. I'm still in pain but it's not going to defeat me. Sympathy is not what you need. It just makes you weak. Be determined to fight and win.-- On Thu, 8/7/08, Jude Johnson <jjskinguru > wrote:Jude Johnson <jjskinguru >Re: [Health_and_ Healing] Severe painThursday, August 7, 2008, 8:27 PMI'm sorry but for all of you who don't have fibro have no freakin' idea what you are talking

about! Organize your home, we can barely walk across the damn room without passing out from the pure to-the-bone exhaustion not to mention the pain and not to mention the fact that when we do ANYTHING we pay for it for 2 or 3 days afterwards. So, until you have had this kind of chronic pain that is on going and relentless you can take all your "breathing" and "moving above the pain" and put it where the sun doesn't shine. And I really hate to be so blunt here but in defense of this woman who is in severe pain, and speaking from my own experiences with fibro, I have to be. I truly appreciate all of the support and all of the advice when it comes to nutrition and alternative medicine but that is not what this person is reaching out for, in my opinion. She is asking for help that will help her today, NOW. Know what I mean?  So, in answer to your question about your pain today and your

fibro....I would most definitely find a doctor with compassion and knowledge about fibro and one who has been taught to listen and put leave her judgments at the door. This disease is real and anyone who thinks otherwise can go jump off of a bridge! I don't like allopathic medicine but I use it because for now, I have no choice and it doesn't sound like you do either...for now. I would combine finding a REALLY good doctor (I would suggest a neurologist) , and I would interview them before going in as to their experience with fibro and ask them bluntly if they believe it is a real disease or not, and if not....next! Then I would, at the same time, find a really good homeopathic, accupuncture, pracitioner. I would read about nutrition as it relates to fibro and start your journey on eating organic fruits and vege's, brown foods, and organic meats. Good water(preferably alkalinized

water), plenty of rest. If you can have a sleep study done to verify that you are in fact not getting deep sleep, alpha, (because fibro people don't) and therefore our bodies don't regenerate and we are slowly burning out from using up our reserves, so to speak. I would recommend getting on a good sleep medication and a good pain killer.. Your (new) doctor (neurologist) will hopefully be supportive and helpful. I myself take 10/325 of vicodan 3 times a day and 10mg of Ambien at night. I am also taking Namenda (which is typically used for Alzheimers but works on fibro pain and restoritive sleep), 10mg at night. FOR NOW, today, I would go the nearest immedi-center or ER and get help for today and the next few days until you can get into to see someone who is willing and able to truly help you.  Yes, I have been on my soap box here, but people, PLEASE get it that all the advice in the

world is only good to a point...we are in constant relentless agonizing pain every moment of every day and some days are much worse than others and some days we get to look like and feel like we have a normal life...like perhaps YOU! Have compassion guys! jude in sbjean white <free2wait >Thursday, August 7, 2008 11:25:10 AMRe: [Health_and_ Healing] Severe painDeep breathing and distraction. Try eating ice cream, playing a video game, watching a good movie or organizing your home. Remember Spock? Put your mind above your pain and ignore it. If you're alone with no one to upset, you can try screaming and pounding on a soft cushion. All these things have helped for me, but the breathing is probably the best to use first.--- On Thu, 8/7/08, batesfan66 <batesfan66> wrote:batesfan66 <batesfan66>[Health_and_ Healing] Severe painThursday, August 7, 2008, 1:18 PMHello, I just needed to vent I am in severe pain today and have alot of nausea.I am really tired of all of this. I cant find a doctor who prescribe anything to help. Im given a low dose vicoidin as needed but #30 tabs have to last me a year!and when I complained to rheum. that they no longer seem to help she took me off! I was so mad. She is listed as specialist in fibro. reason I went to her. and she is so cold and acts disgusted with the diease. She said anyone with firo should be working...Im going to try to find a new doctor.I am feeling like Im dying though. I wish this pain would end.Any ideas on what could

help?Thanks

 

Got Game? Win Prizes in the Windows Live Hotmail Mobile Summer Games Trivia Contest Find out how.

[Guest guest]

Have you tried heat---when my leg would get real bad I would wrap it in an

electric lap blanket and turn it on high. After about a half hour the pain

would start to ease. Now that the areas of pain are smaller I use a large

heating pad that I warm in the microwave or a regular electric heating pad.

 

DH uses a chair heating pad. For the first year when he was so bad that is

all he did---sit in his chair with the pad on high---we went through a lot

of pads. He couldn't use the vibration for a year but for the next 10 years

he used the combination of the heat and the vibrator to cut the pain.

 

Jackie

-

" batesfan66 " <batesfan66

 

Thursday, August 07, 2008 2:18 PM

Severe pain

 

 

Hello, I just needed to vent I am in severe pain today and have alot of

nausea.I am really tired of all of this. I cant find a doctor who

prescribe anything to help. Im given a low dose vicoidin as needed but

#30 tabs have to last me a year!and when I complained to rheum. that

they no longer seem to help she took me off! I was so mad. She is

listed as specialist in fibro. reason I went to her. and she is so cold

and acts disgusted with the diease. She said anyone with firo should be

working...Im going to try to find a new doctor.

 

I am feeling like Im dying though. I wish this pain would end.

 

Any ideas on what could help?

 

Thanks

 

__________

Need cash? Click to get an emergency loan, bad credit ok

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4tGBIn2ORGITwntVk4bLt8LuJqb\

UgNgpkJugLJRwPBVGYzRe/

[Guest guest]

hi,

there is a solution to get rid of your pain

 

you can use BIO DISC to pass light on the affected area... your pain will vanish in few days... please try out

 

 

"Hill8628" <Hill8628 Sent: Friday, 8 August, 2008 6:24:17 PMRe: Severe pain

 

Have you tried heat---when my leg would get real bad I would wrap it in an electric lap blanket and turn it on high. After about a half hour the pain would start to ease. Now that the areas of pain are smaller I use a large heating pad that I warm in the microwave or a regular electric heating pad.DH uses a chair heating pad. For the first year when he was so bad that is all he did---sit in his chair with the pad on high---we went through a lot of pads. He couldn't use the vibration for a year but for the next 10 years he used the combination of the heat and the vibrator to cut the pain.Jackie- "batesfan66" <batesfan66 ><>Thursday, August 07, 2008 2:18 PM[Health_and_ Healing] Severe painHello, I just needed to vent I am in severe pain today and have alot ofnausea.I am really tired of all of this. I cant find a doctor whoprescribe anything to help. Im given a low dose vicoidin as needed but#30 tabs have to last me a year!and when I complained to rheum. thatthey no longer seem to help she took me off! I was so mad. She islisted as specialist in fibro. reason I went to her. and she is so coldand acts disgusted with the diease. She said anyone with firo should beworking...Im going to try to find a new doctor.I am feeling like Im dying though. I wish this pain would end.Any ideas on what could help?Thanks____________ _________ _________ _________ _________ _________ _Need cash? Click to

get an emergency loan, bad credit okhttp://thirdpartyof fers.netzero. net/TGL2241/ fc/Ioyw6i4tGBIn2 ORGITwntVk4bLt8L uJqbUgNgpkJugLJR wPBVGYzRe/

Unlimited freedom, unlimited storage. Get it now

[Guest guest]

The idea of distraction is a good one. One of the things I did --I had

forgotten--was play Tetris on the computer--I don't even know if they have

it anymore. I only needed to move three fingers on my right hand in order

to play it. I would wrap myself up in the electric blanket and play tetris

for hours to keep my mind off the pain.

 

The idea was to get my muscles to relax to ease the tension which cut down

the intensity of the pain. The pain is always there but if you can get it

down to a tolerable level it sure helps!

 

Jackie

-

" jean white " <free2wait

 

Thursday, August 07, 2008 2:25 PM

Re: Severe pain

 

 

Deep breathing and distraction. .

 

--- On Thu, 8/7/08, batesfan66 <batesfan66 wrote:

 

batesfan66 <batesfan66

Severe pain

 

Thursday, August 7, 2008, 1:18 PM

 

 

 

 

 

 

Hello, I just needed to vent I am in severe pain today and have alot of

nausea.I am really tired of all of this. I cant find a doctor who

prescribe anything to help. Im given a low dose vicoidin as needed but

#30 tabs have to last me a year!and when I complained to rheum. that

they no longer seem to help she took me off! I was so mad. She is

listed as specialist in fibro. reason I went to her. and she is so cold

and acts disgusted with the diease. She said anyone with firo should be

working...Im going to try to find a new doctor.

 

I am feeling like Im dying though. I wish this pain would end.

 

Any ideas on what could help?

 

Thanks

 

 

 

__________

Need cash? Click to get an emergency loan, bad credit ok

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4tGBIKzMt9WNts8GZbRraIoI20z\

oSIJtakCSxWhnNplHcwmk/

[Guest guest]

Thank you for understanding. At first I was just going to ignore what you said

before and remain silent as I have so often before in similar situations. But

then, something stopped me, I had to speak out for " my truth " . I felt maybe it

would help someone avoid the mistakes I'd seen with my mother and to some extent

myself. I understand people need relief. And if it's possible to be responsible

with the kind of addictive drugs given out today, good luck. My mother took

those drugs for 12 years and just kept getting worse.. I do have compassion and

a sense of responsibility which is why I wrote. Your message idea sounds very

interesting. I will check it out. We are both just trying to help. I wish you

the best in your life.

 

 

 

--- On Thu, 8/7/08, Jude Johnson <jjskinguru wrote:

 

Jude Johnson <jjskinguru

Re: Severe pain

 

Thursday, August 7, 2008, 9:28 PM

 

 

 

 

 

 

 

 

All or nothing is one of the reasons why we get stuck in pain.  I believe

throwing the baby out with the bath water and not taking advantage of using

medication responsibly in order to have somewhat of a life, I don't think is

wrong,  I am very sorry for you and for your Mother's pain BUT her experience

does not by any means cancel out ALL medicine and ALL use of medication.  No it

is not an answer and no it is not treating the actual problem(s) and yes it is

treating the symptoms BUT sometimes you have to way the options and whatever

each persons particular situation is has to be decided by that person, and that

person only.  I lead a very productive life, I know that with each day I have a

limited amount of energy and I have to use it wisely.  I can not push the

envelope, I can do what I used to be able to do, I know that when I push it, I

pay for it for days.  I know that I would have NO LIFE if I did not use

medication RESPONSIBLY each day. 

Would I like not to take them, hell yes...but I am not willing, and perhaps you

are and that is fine, to give up my life and to live my life miserably.  All

that I ask here is that we remember that chronic pain is horrific and you have

no right to condemn anyone for using whatever resources they chose to use, be it

medication, exercise, smoking pot, (which does help some, I wish it did me!),

standing on their head, dancing with tap shoes on,....whatever!  but don't

condemn them for their choices!  Compassion, compassion, compassion.. ..until

you walk a mile in THEIR shoes, you have no idea what they are experiencing.

...this message is not directed at you personally.. .and no you were not

answering me personally, but one thing I have learned about fibro and that is

that it is definitely partially due to not speaking our truth, not speaking out

when we know we should, not honoring our rightous anger, not taking care of

ourselves first and foremost, but

instead taking care of everyone else first...psychic trauma stuck in our

bodies, emotional trauma stuck in our bodies, " the issues are in the tissues " in

every sense of the word with fibro.  So I honor you in saying your piece

here..good for you! 

 

jude

 

 

 

 

 

jean white <free2wait >

 

Thursday, August 7, 2008 7:11:36 PM

Re: [Health_and_ Healing] Severe pain

 

 

 

I'm sorry if my advice offended you. However, I wasn't aware I was answering

you. My mother tried all kinds of drugs for her pain and just got worse the more

she took. I had to stand by and watch her become less and less of a person. As I

am not a doctor, my opinion was worthless of course. In the end, thanks to all

the lovely drugs available to us now, she could neither hear, see, taste or

sleep.Anything she ate came back on her. She only wanted to die. I'm sorry if

you think a quick fix is preferable to a better life. I don't agree. I know

about pain. I've certainly had enough. Sometimes I just moan and flail about on

my bed and dread having to get up, but I do. I'm lucky if I get 2 straight hours

of sleep a night. Still I know enough not to seek out doctors with drugs. My

mother taught me that in her own way. I agree about the diet and alternative

treatments. Acupunture or even acupressure can relieve pain for a while. My

mother took ambien. I'm

sorry, but sometimes you do just have to tough it out if you ever want to get

better. I'm still in pain but it's not going to defeat me. Sympathy is not what

you need. It just makes you weak. Be determined to fight and win.

 

-- On Thu, 8/7/08, Jude Johnson <jjskinguru > wrote:

 

Jude Johnson <jjskinguru >

Re: [Health_and_ Healing] Severe pain

 

Thursday, August 7, 2008, 8:27 PM

 

I'm sorry but for all of you who don't have fibro have no freakin' idea what you

are talking about!  Organize your home, we can barely walk across the damn

room without passing out from the pure to-the-bone exhaustion not to mention the

pain and not to mention the fact that when we do ANYTHING we pay for it for 2 or

3 days afterwards.  So, until you have had this kind of chronic pain that is

on going and relentless you can take all your " breathing " and " moving above the

pain " and put it where the sun doesn't shine.  And I really hate to be so

blunt here but in defense of this woman who is in severe pain, and speaking from

my own experiences with fibro, I have to be.  I truly appreciate all of the

support and all of the advice when it comes to nutrition and alternative

medicine but that is not what this person is reaching out for, in my

opinion.  She is asking for help that will help her today, NOW.  Know what

I mean? 

 

So, in answer to your question about your pain today and your fibro....I would

most definitely find a doctor with compassion and knowledge about fibro and one

who has been taught to listen and put leave her judgments at the door.  This

disease is real and anyone who thinks otherwise can go jump off of a bridge! 

I don't like allopathic medicine but I use it because for now, I have no choice

and it doesn't sound like you do either...for now.  I would combine finding a

REALLY good doctor (I would suggest a neurologist) , and I would interview them

before going in as to their experience with fibro and ask them bluntly if they

believe it is a real disease or not, and if not....next!  Then I would, at

the same time, find a really good homeopathic, accupuncture,

pracitioner.  I would read about nutrition as it relates to fibro and start

your journey on eating organic fruits and vege's, brown foods, and organic

meats.  Good

water

(preferably alkalinized water), plenty of rest.  If you can have a sleep

study done to verify that you are in fact not getting deep sleep, alpha,

(because fibro people don't) and therefore our bodies don't regenerate and we

are slowly burning out from using up our reserves, so to speak.  I would

recommend getting on a good sleep medication and a good pain killer..  Your

(new) doctor (neurologist) will hopefully be supportive and helpful.  I

myself take 10/325 of vicodan 3 times a day and 10mg of Ambien at night.  I

am also taking Namenda (which is typically used for Alzheimers but works on

fibro pain and restoritive sleep), 10mg at night.  FOR NOW, today, I would go

the nearest immedi-center or ER and get help for today and the next few days

until you can get into to see someone who is willing and able to truly help

you. 

 

Yes, I have been on my soap box here, but people, PLEASE get it that all the

advice in the world is only good to a point...we are in constant relentless

agonizing pain every moment of every day and some days are much worse than

others and some days we get to look like and feel like we have a normal

life...like perhaps YOU!  Have compassion guys!

 

jude in sb

 

 

jean white <free2wait >

 

Thursday, August 7, 2008 11:25:10 AM

Re: [Health_and_ Healing] Severe pain

 

Deep breathing and distraction. Try eating ice cream, playing a video game,

watching a good movie or organizing your home. Remember Spock? Put your mind

above your pain and ignore it. If you're alone with no one to upset, you can try

screaming and pounding on a soft cushion. All these things have helped for me,

but the breathing is probably the best to use first.

 

--- On Thu, 8/7/08, batesfan66 <batesfan66> wrote:

 

batesfan66 <batesfan66>

[Health_and_ Healing] Severe pain

 

Thursday, August 7, 2008, 1:18 PM

 

Hello, I just needed to vent I am in severe pain today and have alot of

nausea.I am really tired of all of this. I cant find a doctor who

prescribe anything to help. Im given a low dose vicoidin as needed but

#30 tabs have to last me a year!and when I complained to rheum. that

they no longer seem to help she took me off! I was so mad. She is

listed as specialist in fibro. reason I went to her. and she is so cold

and acts disgusted with the diease. She said anyone with firo should be

working...Im going to try to find a new doctor.

 

I am feeling like Im dying though. I wish this pain would end.

 

Any ideas on what could help?

 

Thanks