Hailey Hailey disease

[Guest guest]

Hello All,

 

I have a 29-year old female patient who has been diagnosed with Hailey Hailey

disease, an inherited skin disease. This disorder manifests with severe redness,

cracking, burning of skin in the folds of the body, or wherever perspiration

accumulates. My patient has exhibited these symptoms for the last 7 years,

under her arms, in the groin area, on the sternum. When I say severe, I mean it.

The skin under the arms resembles a very yin Xu tongue - purply-red, severly

cracked, oozing fluids. It is very prone to staph infections, hence the frequent

antibiotic and steroid use. She is otherwise healthy, albeit frustrated, because

she cannot run or exercise without greatly exascerbating her skin situation.

This recent weather, hot and humid, has been terrible for her.

 

Her pulse is thin and slightly rapid, tongue is red, with red dots at the

tip, raised edges, puffy, thin white coat, and a dip in the tip. She tends to

agitation (who wouldn't), and covers it all up with a huge smile. She has dark

shadows under her eyes. She had exerercise-induced asthma since the age of 14,

used an inhaler for years, now it is no longer a problem. (Aha? Perhaps the

pathogen has moved to a deeper level?) Periods are regular and normal. Her

bowels are very loose, with urgency. She is thin, moves rapidly, speaks quickly,

is very sensitive and intuitive. She is open to Chinese medicine as nothing else

has really had more than a palliative effect. My diagnosis is Ht blood Xu, Lv

blood xu, toxic heat in the blood, blood stasis, spQi xu.

 

I have treated her 4 times and have given her Yin Care to use topically

3x/day, along with the Kan formulation Drema Wind Release, xiao feng san. She

came in today looking guilty because she had to go to the emergency room, it was

so bad. They of course immediately gave her antibiotics and oral steroids, along

with topical steroid cream.

 

This genetic defect occurs statistically in 1 in a million people. I would

love to help her. Does anyone have any ideas?

 

Thankyou!

 

Beata Booth

______________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

 

 

 

[Guest guest]

Dear Beata,

 

the formula you used, xiao feng san, has jing jie, niu bang zi, fang feng

and chan tui in it to expel external wind.

I don't know how much itching there is in your case, but if there is, it is

created from the dampness and the heat.

The erythema are a sign of heat in the blood. Her rapid speaking, being

sensitive, agitation...are all signs of (toxic) heat ; these signs will

become less severe when the heat dissipates. Heat seems to be the focus

(redness, burning) , damaging the fluids (cracking of the skin) with less

damp (oozing, loose stools). I don't see much signs of blood vacuity, but

there probably is some blood stasis, since she has had the symptoms for 7

years.

I would base my formule on, for example, xi jiao di huang tang or even long

dan xie gan tang, with large amounts of sheng di, mu dan pi; and use herbs

like bai mao gen, chi shao, hong hua, xuan shen, lian qiao, jin yin hua, zi

cao, shi hu, zi hua di ding.

Acupuncture: points like PC3, BL40, LI11, SP10, PC8, BL17, SP6, LI4

 

I believe Chinese medicine should be able to help your patient. Good luck

with treating her,

 

Tom.

 

----

 

coastacu

07/15/06 22:29:16

Chinese Medicine

Hailey Hailey disease

 

Hello All,

 

I have a 29-year old female patient who has been diagnosed with Hailey

Hailey disease, an inherited skin disease. This disorder manifests with

severe redness, cracking, burning of skin in the folds of the body, or

wherever perspiration accumulates. My patient has exhibited these symptoms

for the last 7 years, under her arms, in the groin area, on the sternum.

When I say severe, I mean it. The skin under the arms resembles a very yin

Xu tongue - purply-red, severly cracked, oozing fluids. It is very prone to

staph infections, hence the frequent antibiotic and steroid use. She is

otherwise healthy, albeit frustrated, because she cannot run or exercise

without greatly exascerbating her skin situation. This recent weather, hot

and humid, has been terrible for her.

 

Her pulse is thin and slightly rapid, tongue is red, with red dots at the

tip, raised edges, puffy, thin white coat, and a dip in the tip. She tends

to agitation (who wouldn't), and covers it all up with a huge smile. She has

dark shadows under her eyes. She had exerercise-induced asthma since the age

of 14, used an inhaler for years, now it is no longer a problem. (Aha?

Perhaps the pathogen has moved to a deeper level?) Periods are regular and

normal. Her bowels are very loose, with urgency. She is thin, moves rapidly,

speaks quickly, is very sensitive and intuitive. She is open to Chinese

medicine as nothing else has really had more than a palliative effect. My

diagnosis is Ht blood Xu, Lv blood xu, toxic heat in the blood, blood stasis

spQi xu.

 

I have treated her 4 times and have given her Yin Care to use topically

3x/day, along with the Kan formulation Drema Wind Release, xiao feng san.

She came in today looking guilty because she had to go to the emergency room

it was so bad. They of course immediately gave her antibiotics and oral

steroids, along with topical steroid cream.

 

This genetic defect occurs statistically in 1 in a million people. I would

love to help her. Does anyone have any ideas?

 

Thankyou!

 

Beata Booth

________

Check out AOL.com today. Breaking news, video search, pictures, email and IM

All on demand. Always Free.