Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Origin1 @al sender's name: aussietickchick Original sender's address: roseonhigh Hi Edy, I was like you for so many years. I could hardly hold my head up or sit up in a chair. I had nurses come to shower me as I couldn't even sit up on a chair in the shower. I recall going to a doctor and I lay my head on his desk as I could not sit up. I asked for a test for Lupus and he refused. He decided it was a " psychiatric " problem and sent me for " rest " in a psyche ward! The docs in the psyche ward said I was more rational than any of their patients and one guy couldn't understand why my BP was only 80/50. He could see I was sick. I checked myself out after a few days because I had 2 toddlers to care for and the hospital had nothing to offer me. I spent many family outings curled up in the back seat of the car, trying to get the energy to join in with my family. My first husband was so furious and resentful that I would push myself to act normal but I was so incredibly ill for so long with no proper diagnosis or treatment. When I married Vic in 1998 I was in a wheelchair and still didn't know why. It was so scarey to be going downhill for no good reason. Vic had to hold me over the edge of the bath to wash my hair! Every outing and family event was just a trauma because I had to prop my head on my hand just to talk to people and often had to go and lie down. But I looked really well, so most people judged and abused & abandoned me. When I finally got my diagnosis of Lyme after 22 years, I had to prop my head up on my hand to sit at the computer and research treatments. I had to shift my head from one hand to the other all the time. I had a walking frame to help me balance as I was falling over. Now I am walking miles! My muscles are building up and I am finally getting well. Hang in there and do not give up. My case seemed so impossible. Rosemary. Hi Rosemary, Thank you for responding. I'm not going to take the ABX as I think that's how I got into all this trouble in the first place. I'm only going to Shoemaker for his cholestyramine protocol as I think by going after the lyme without detoxing I got in more trouble. I know that Australia doesn't believe there's lyme there and I used to get a product called Progurt from there and the man, who tho very nice, that I spoke with said there was no such thing as Lyme! He actually said, and I quote " You Americans and your lyme disease! " He made it very clear Aussie's didn't think it existed and we're a bit neurotic over here about it. Your story sounds like mine and who knows how many others. A hell for 31 years for me. I've spent more than half that time bedbound and only able to crawl, but only had to be in wheelchairs in airports and such. Can't tell you how many docs I've been to and how many hours spent in the back seat of a car lying down all the way. I would even have to lie down in the offices and talk to them from there as I was just too weak to sit. There's about a zillion more symptoms, but I'm sure you all know them, too. I'm MCS now as well and can't go anywhere without a mask on and am allergic to most foods so have lost a lot of weight. Because of the bland diet and that I can only eat in liquified like you I use a lot of salt, but am allergic to vit C. I'm going to try the one from the Linus Pauling Institute as it's not make from corn and maybe I can tolerate it. I measured the salt one day out of curiousity and found that I'm eating about 4-5 grams a day. Good sea salt. I'm so happy for you that you've improved so much. YEA! Hugs onya, Edy aussietickchick <roseonhigh wrote: miracle_mineral_supplement , Edy Rayfield <edyrayfield@> wrote: I've been fighting this thing for 31 years and am in almost the worst shape yet. How long did it take the salt/C to do it's work and how much do you take? I'm toying with the idea of MMS, but haven't made the plunge, yet. I've got an appt with Shoemaker and am going to go after the neurotoxins first. I fail the VCS test pretty badly and have all the symptoms of neuromediated illness. Hi Edy, I am sorry to hear of your struggles. I read Shoemaker's book and took anti-biotics together with cholestyramine as per his protocol for 6 months. It did not help me, but I know others who have been helped by him & I do think he is brilliant. However, I don't like abx and think salt & C & MMS are a better way to go for chronic Lyme. I am in Australia and our docs believe there is no Lyme here, so I didn't even get a diagnosis for 22 years! So, you can imagine how sick I was. I had severe neurological Lyme. I have been in a wheelcahir at times and used a walking frame for years. By 2005 I believe I was dying and prayed it would be soon. I was having trouble eating, speaking, swallowing and lived on pureed food for a year. I was falling over as I had no balance. I was housebound as I couldn't cope with chemicals in the air and I was too fragile to go very far. My doc had run out of ideas. I was scared to try salt & C, but I had nothing to lose. My doc decided it just might work. I began with a small dose in Feb 2005. With the very first dose I got biting, prickling & itching all over my skin which felt like being bitten by fleas, from the inside! To Understand this read www.Lymephotos.com I KNEW it was working. With every dose the biting sensations increased until I actually had visible bites on my skin after a few days! This eventually settled down but I knew it was a good sign. The first 18 months on salt & C were slow, gruelling and tough, but I had evidence of healing, so I persevered through the herxes. I had bad headaches most days, which were only relieved by coffee enemas. (this sounds awful, but brings instant relief.) Last year I tried Chlorella and this also relieved the headaches quickly. I take 1000mg 1/2 an hout before meals. I rarely do enemas now. For much of the 3 years on salt & C I tried to take between 9- 12 doses per day, according to body weight and herxes. This can vary. Some days I did not take any, but resumed ASAP when I could cope. Then I intoduced MMS 7 months ago. I began with 1 drop morning and night and worked my way up slowly. The beauty of these treatments is that you can adjust the doses according to how you are coping. Do not take vitamin C within 2 hours of MMS as the C will neutralise MMS. I am not a doctor but if I was you I would begin salt & C and just ramp up slowly. Sny decent doc can oversee your blood pressure, liver & kidney functions, etc. The promoters of salt & C had been sick for years and are now symptom- free & working. I was about as low as you can get without dying & now I have a good life. Do not give up as nothing is impossible. We have some wonderful tools to kill these " critters. " Just put one foot in front of the other and you will probably find, like many of us, that you will slowly walk out of the woods and into the sunshine again. Love & best wishes, Rosemary. Quote Link to comment Share on other sites More sharing options...
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