Moyamoya Syndrome

[Guest guest]

Link to support group: http://www.moyamoya.com/

and there are several others to be found here:

/search?query=moyamoya

 

I don't know if they follow mainstream procedures and guidelines... I

guess you will find out by joining them and ask.

 

Hanneke

[Guest guest]

At 05:04 PM 4/4/2008, you wrote:

Well, I'll tell you - I don't know if she'll go, but I'll pass them on to

her. She's in another group I belong to - a cleansing one - and she

wanted to do the cleanse. So, among other things, she wrote that she

stopped all her meds.........Now, I know for a fact, that one's body gets

addicted to the meds one uses to control seizures. Plus, I suspect a

number of the other things she's been taking as well. Regardless of one's

stance on natural vs the other, a number of drugs can be very dangerous

when you just stop them - versus titrating down. Especially when you have

a number of things going on. I suspect part of it is her fear that she's

going to run out before she gets more insurance. Don't know that for a

fact, but she brought it up.

I told her to gradually stop...........once she's done that, and the

shock hasn't been too big, I feel she might be able to control, at the

very least, a number of her issues with various natural methods. She

definitely needs to clean her system out, as well as begin eating a

better diet. I'm going to send her the article on " Sweet

Poison " among other things.

First time I ever heard of moyamoya. One of the sites, when you google

it, has a video of this little kid - you watch him and his parents

explain what happened and what the disease is. Made me cry. Then I

checked a couple of other sites quickly, so I could get a feel for what

she's dealing with in that regard. It doesn't sound as if she's very

disciplined - and she sounded rather desperate. She lasted 2 days on the

cleanse, then folded. Part of the problem was, she stopped taking

everything, then wound up in a lot of pain, plus some other symptoms.

I've been through cold-turkey detox from several meds at once (my

choice), and it's not a pretty way to do it. It was painful and

uncomfortable, to say the least.

The scope of her problems is way out of my league - which is why I came

to you all. Many of you are so much more experienced than I in certain

areas. Among other things, I guess she has that gastric bypass, and had

difficulty doing the fluids she needed to. And, once she gave in to the

pain and took some meds, she felt like a failure and quite the cleanse

all together. Perhaps it wasn't for her - I don't know. All I know, is I

thought it was the responsible thing to see if I could find whatever I

could and pass it on to her - because I thought, and think - the way she

was going about things was physically dangerous for her. It really

bothered me that no one else spoke to that - and I think a couple of the

people should have. She had gained back 60+ pounds, and I think part of

the reason - if not the whole reason, she chose to cleanse, was to lose

weight. She doesn't seem to really understand she needs to change her WOE

(way of eating) - other than not eating as much junk food.

Anyway, appreciate your effort - we'll see how it works out. Truth is, I

think she's going to go back doing exactly what she's been

doing...........

Lynn

Link to support group:

http://www.moyamoya.com/

and there are several others to be found here:

 

/search?query=moyamoya

I don't know if they follow mainstream procedures and guidelines... I

 

guess you will find out by joining them and ask.

Hanneke

[Guest guest]

I believe the food industry in America is truly a drug industry in deiguise, designed to trap people one way or another...

She is being brave to try it on her own but will probably have many failures as she realizes that she has a true chemical addiction to everything she is trying to eliminate from her body.

 

I believe she also needs to connect to God to get back to square one, very much like AA and the 12 step program.

 

We don't hear about people being medically addicted to veggies!

 

GOd bless her and hope she keeps on "quitting"

 

Sincerely Barb M.

 

http://moyamoya.com/

 

 

----

 

 

Lynn Ward

4/4/2008 7:46:15 PM

 

Re: Moyamoya Syndrome

 

 

At 05:04 PM 4/4/2008, you wrote:Well, I'll tell you - I don't know if she'll go, but I'll pass them on to her. She's in another group I belong to - a cleansing one - and she wanted to do the cleanse. So, among other things, she wrote that she stopped all her meds.........Now, I know for a fact, that one's body gets addicted to the meds one uses to control seizures. Plus, I suspect a number of the other things she's been taking as well. Regardless of one's stance on natural vs the other, a number of drugs can be very dangerous when you just stop them - versus titrating down. Especially when you have a number of things going on. I suspect part of it is her fear that she's going to run out before she gets more insurance. Don't know that for a fact, but she brought it up.I told her to gradually stop...........once she's done that, and the shock hasn't been too big, I feel she might be able to control, at the very least, a number of her issues with various natural methods. She definitely needs to clean her system out, as well as begin eating a better diet. I'm going to send her the article on "Sweet Poison" among other things. First time I ever heard of moyamoya. One of the sites, when you google it, has a video of this little kid - you watch him and his parents explain what happened and what the disease is. Made me cry. Then I checked a couple of other sites quickly, so I could get a feel for what she's dealing with in that regard. It doesn't sound as if she's very disciplined - and she sounded rather desperate. She lasted 2 days on the cleanse, then folded. Part of the problem was, she stopped taking everything, then wound up in a lot of pain, plus some other symptoms. I've been through cold-turkey detox from several meds at once (my choice), and it's not a pretty way to do it. It was painful and uncomfortable, to say the least.The scope of her problems is way out of my league - which is why I came to you all. Many of you are so much more experienced than I in certain areas. Among other things, I guess she has that gastric bypass, and had difficulty doing the fluids she needed to. And, once she gave in to the pain and took some meds, she felt like a failure and quite the cleanse all together. Perhaps it wasn't for her - I don't know. All I know, is I thought it was the responsible thing to see if I could find whatever I could and pass it on to her - because I thought, and think - the way she was going about things was physically dangerous for her. It really bothered me that no one else spoke to that - and I think a couple of the people should have. She had gained back 60+ pounds, and I think part of the reason - if not the whole reason, she chose to cleanse, was to lose weight. She doesn't seem to really understand she needs to change her WOE (way of eating) - other than not eating as much junk food.Anyway, appreciate your effort - we'll see how it works out. Truth is, I think she's going to go back doing exactly what she's been doing...........Lynn

Link to support group: http://www.moyamoya.com/and there are several others to be found here: /search?query=moyamoyaI don't know if they follow mainstream procedures and guidelines... I guess you will find out by joining them and ask.Hanneke

 

 

[Guest guest]

The thing is - from the look of the description of the disease the seizures are because of reduced blood flow to the brain - would gingko increase the brain circulation and would more water improve things too

 

Jane

 

 

-

Lynn Ward

Saturday, April 05, 2008 9:45 AM

Re: Moyamoya Syndrome

At 05:04 PM 4/4/2008, you wrote:Well, I'll tell you - I don't know if she'll go, but I'll pass them on to her. She's in another group I belong to - a cleansing one - and she wanted to do the cleanse. So, among other things, she wrote that she stopped all her meds.........Now, I know for a fact, that one's body gets addicted to the meds one uses to control seizures. Plus, I suspect a number of the other things she's been taking as well. Regardless of one's stance on natural vs the other, a number of drugs can be very dangerous when you just stop them - versus titrating down. Especially when you have a number of things going on. I suspect part of it is her fear that she's going to run out before she gets more insurance. Don't know that for a fact, but she brought it up.I told her to gradually stop...........once she's done that, and the shock hasn't been too big, I feel she might be able to control, at the very least, a number of her issues with various natural methods. She definitely needs to clean her system out, as well as begin eating a better diet. I'm going to send her the article on "Sweet Poison" among other things. First time I ever heard of moyamoya. One of the sites, when you google it, has a video of this little kid - you watch him and his parents explain what happened and what the disease is. Made me cry. Then I checked a couple of other sites quickly, so I could get a feel for what she's dealing with in that regard. It doesn't sound as if she's very disciplined - and she sounded rather desperate. She lasted 2 days on the cleanse, then folded. Part of the problem was, she stopped taking everything, then wound up in a lot of pain, plus some other symptoms. I've been through cold-turkey detox from several meds at once (my choice), and it's not a pretty way to do it. It was painful and uncomfortable, to say the least.The scope of her problems is way out of my league - which is why I came to you all. Many of you are so much more experienced than I in certain areas. Among other things, I guess she has that gastric bypass, and had difficulty doing the fluids she needed to. And, once she gave in to the pain and took some meds, she felt like a failure and quite the cleanse all together. Perhaps it wasn't for her - I don't know. All I know, is I thought it was the responsible thing to see if I could find whatever I could and pass it on to her - because I thought, and think - the way she was going about things was physically dangerous for her. It really bothered me that no one else spoke to that - and I think a couple of the people should have. She had gained back 60+ pounds, and I think part of the reason - if not the whole reason, she chose to cleanse, was to lose weight. She doesn't seem to really understand she needs to change her WOE (way of eating) - other than not eating as much junk food.Anyway, appreciate your effort - we'll see how it works out. Truth is, I think she's going to go back doing exactly what she's been doing...........Lynn

Link to support group: http://www.moyamoya.com/and there are several others to be found here: /search?query=moyamoyaI don't know if they follow mainstream procedures and guidelines... I guess you will find out by joining them and ask.Hanneke

[Guest guest]

For example - my now 90 yo friend used to cut her then 94 yo husband's hair - everytime she pushed his head to the side he would pass out - totally occluding his carotid artery - it is a similar problem

 

Jane

 

-

Jane MacRoss

Saturday, April 05, 2008 5:37 PM

Re: Moyamoya Syndrome

 

The thing is - from the look of the description of the disease the seizures are because of reduced blood flow to the brain - would gingko increase the brain circulation and would more water improve things too

 

Jane

 

 

-

Lynn Ward

Saturday, April 05, 2008 9:45 AM

Re: Moyamoya Syndrome

At 05:04 PM 4/4/2008, you wrote:Well, I'll tell you - I don't know if she'll go, but I'll pass them on to her. She's in another group I belong to - a cleansing one - and she wanted to do the cleanse. So, among other things, she wrote that she stopped all her meds.........Now, I know for a fact, that one's body gets addicted to the meds one uses to control seizures. Plus, I suspect a number of the other things she's been taking as well. Regardless of one's stance on natural vs the other, a number of drugs can be very dangerous when you just stop them - versus titrating down. Especially when you have a number of things going on. I suspect part of it is her fear that she's going to run out before she gets more insurance. Don't know that for a fact, but she brought it up.I told her to gradually stop...........once she's done that, and the shock hasn't been too big, I feel she might be able to control, at the very least, a number of her issues with various natural methods. She definitely needs to clean her system out, as well as begin eating a better diet. I'm going to send her the article on "Sweet Poison" among other things. First time I ever heard of moyamoya. One of the sites, when you google it, has a video of this little kid - you watch him and his parents explain what happened and what the disease is. Made me cry. Then I checked a couple of other sites quickly, so I could get a feel for what she's dealing with in that regard. It doesn't sound as if she's very disciplined - and she sounded rather desperate. She lasted 2 days on the cleanse, then folded. Part of the problem was, she stopped taking everything, then wound up in a lot of pain, plus some other symptoms. I've been through cold-turkey detox from several meds at once (my choice), and it's not a pretty way to do it. It was painful and uncomfortable, to say the least.The scope of her problems is way out of my league - which is why I came to you all. Many of you are so much more experienced than I in certain areas. Among other things, I guess she has that gastric bypass, and had difficulty doing the fluids she needed to. And, once she gave in to the pain and took some meds, she felt like a failure and quite the cleanse all together. Perhaps it wasn't for her - I don't know. All I know, is I thought it was the responsible thing to see if I could find whatever I could and pass it on to her - because I thought, and think - the way she was going about things was physically dangerous for her. It really bothered me that no one else spoke to that - and I think a couple of the people should have. She had gained back 60+ pounds, and I think part of the reason - if not the whole reason, she chose to cleanse, was to lose weight. She doesn't seem to really understand she needs to change her WOE (way of eating) - other than not eating as much junk food.Anyway, appreciate your effort - we'll see how it works out. Truth is, I think she's going to go back doing exactly what she's been doing...........Lynn

Link to support group: http://www.moyamoya.com/and there are several others to be found here: /search?query=moyamoyaI don't know if they follow mainstream procedures and guidelines... I guess you will find out by joining them and ask.Hanneke

[Guest guest]

At 03:37 AM 4/5/2008, you wrote:

Thanks, will pass it on............Lynn

 

The thing is - from the look of the

description of the disease the seizures are because of reduced blood flow

to the brain - would gingko increase the brain circulation and would more

water improve things too

 

Jane

 

[Guest guest]

you do not have to go thru this level of detox, actually, if done

correctly, there is no detox to deal with......when you get into a bath

tub with the miracle ll products.......i don't care what your situation

arises from, the " name " is the least important part, using miracle

ll is the safest and most effective " clean out " product you can

find........ relative to what it does, it is dirt cheap!!!!!! and the

most effective way to clean out anything to include

radiation......parasites [anyone with a cancer diagnoses has parasites as

well as an acid body and neither can live in an alkaline

enviornment] toxic chemicals, heavy metals, vaccines, viruses,

bacteria...anything not self is now allowed to pass thru the pores of your

skin and not visit all your organs thru your blood stream in the old

fashioned way of detoxing the body!!!! the " how long " of producing

results varies, if you are dealing with a long term condition, the basic

rule of thumb says it will take longer to get your body back to

balance, to stasis.....the longer time your body has been holding on to

these toxins it does not know how to process, and parks these

" foreign,synthetic objects, in joints, old injuries and fat

cells....you do know that cellulite is toxic laden fat cells?? [that is one

of the bodies self defense mechanism 's to put fat around the toxic

substance to help protect your internal environment , where your organs

live, from becoming acidic....,..cancer and a whole host of dis-eases,

ailments and conditions, have their beginning in a body that has been kept

acidic., from numerous causes] [toxic chemicals of all description, help

keep or make more acidic, an already acid body!] usually it will take

you longer to mend........keep taking and treating the baths like a medical

protocol and take them daily until you have a positive reaction, your

body feeling good again is just like being in love, no one has to tell

you cause you already know how great that feels!!!!!!!!! for some of

you, releasing your toxic burden like this will make you feel brand

new!!!!!!!! do the baths at night preferably, then go to bed......have

a great nights sleep....again because you have removed a toxic layer from

the inside of your body,..[after you have taken at least two soaks, [30

minutes max..] .....you now begin to put seven drops to a dropperful of

the neutralizer into everything you drink........., .................now

that the pores of your skin are cleaned miracle ll clean, anything the

neutralizer runs into, gets transmuted, made harmless and allowed to

pass painlessly thru the skin.....an old GOD designed system called

sweat!!!!!!!!.....if you know of either live blood cell analysis [dark

field mycroscopy sp?] or electra-dermal screening? both of theses

diagnostic procedures are non -invasive and in the hands of an

experienced operator or tech..., are extremely accurate!!!!! and very

revealing about the state of your internal terrain! if you are not

familiar with these , might be a good idea to check them out.......hair

analysis is o.k. for conformation, but it didn't further our knowledge

when we did this!!!! no matter what toxic chemical or heavy metal anyone

has been assaulted by, you are now also dealing with the " cumulative

effect " from the variety of toxic cocktails in the commercial food

industry.....in america, our public water supply is a chemical freaks'

paradise! personal care products, cleaning products of any kind that has a

warning label that says: danger, warning, or caution!!!!! why would you

keep putting something in your mouth that has a bloody warning

label!!!! and then we come to the big one!!! over 90,000 toxic

chemicals have been made or created for a toxic chemical impact on all

of us, with mercury as an example, 50% of the mercury found in the

united states today, is from the coal fired, cheap, and proving to be

incredibility toxic crap from all over thei chinese export web!!!! we see

it on this list and others with increasing regularity!!!!! now if

anyone has something as good or better, than miracle ll, beyond high

quality ozone, share it please!!!!! one size rarely fits all, but

miracle is the closet thing that i've found!!!!!!! enjoy, Kraig

 

 

 

 

 

 

 

 

 

******

Kraig and Shirley Carroll ... in the woods of SE Kentucky

http://www.thehavens.com/

thehavens

606-376-3363

 

 

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