Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Guys, This isn't a joke, or just something I'd like to know. I've got some real concerns about this gal and what she's doing, and am looking for anything y'all might suggest. For those who don't know, Moyamoya disease is a progressive disease of the distal internal carotid arteries. Apparently, there is no cure, and it often evidences it's self when people are kids - like 3, 4, 5 years old. This gal is older than that, but don't exactly know how old she is. Here's a link that talks about it http://www.moyamoya.com/journals/moyamoya.html Is anyone familiar with it? Anyone heard of what someone can take who had this? but not just for this - she has a host of other things wrong with her. She says she's had 2 surgeries, and so far it has controlled it. She says she also has petit mal seizures. But, she's taking a ton of meds - and is going to run out before she is able to get more insurance. I don't know what her money situation is, but I suspect not too good. I'm very concerned that if she just stops taking all her meds, especially with a hx of seizures, she'll have more. Maybe not so petite this time. Plus, she's just written and said she's stopped everything in order to do a cleanse. she hasn't been specific about what she's taking, but I do know that abruptly stopping drugs that are being used to control seizures is going to cause a major physical reaction....Said she's also bi-polar...I'm guessing she stopped those too. She also said she wonders if a poor diet has contributed not only to this, but to some other physical issues. (duh........) She's just started a cleanse, so sodas and all that isn't in question - of course I'll tell her not to drink any, or eat any diet foods when it's completed. But, it sounds like she needs more than that....... Oh, yeah, she had a gastric bypass three years ago - used to weigh 395 lbs. Said she lost 220 lbs, but has gained 66 back. Anything you guys have to offer would be greatly appreciated. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I don't know anything about this disease /condition but will see if I can dig something up. To help the situation regarding the seizures... suggest lobelia tincture, to be rubbed down the edge of skull at back of neck,.. this when seizure is sensed to happen or straight after. All the meds may do some good stuff to keep her going but my guess is that it will heavily tax her liver in the long run. Hanneke At 07:19 AM 5/04/2008, you wrote: Guys, This isn't a joke, or just something I'd like to know. I've got some real concerns about this gal and what she's doing, and am looking for anything y'all might suggest. For those who don't know, Moyamoya disease is a progressive disease of the distal internal carotid arteries. Apparently, there is no cure, and it often evidences it's self when people are kids - like 3, 4, 5 years old. This gal is older than that, but don't exactly know how old she is. Here's a link that talks about it http://www.moyamoya.com/journals/moyamoya.html Is anyone familiar with it? Anyone heard of what someone can take who had this? but not just for this - she has a host of other things wrong with her. She says she's had 2 surgeries, and so far it has controlled it. She says she also has petit mal seizures. But, she's taking a ton of meds - and is going to run out before she is able to get more insurance. I don't know what her money situation is, but I suspect not too good. I'm very concerned that if she just stops taking all her meds, especially with a hx of seizures, she'll have more. Maybe not so petite this time. Plus, she's just written and said she's stopped everything in order to do a cleanse. she hasn't been specific about what she's taking, but I do know that abruptly stopping drugs that are being used to control seizures is going to cause a major physical reaction....Said she's also bi-polar...I'm guessing she stopped those too. She also said she wonders if a poor diet has contributed not only to this, but to some other physical issues. (duh........) She's just started a cleanse, so sodas and all that isn't in question - of course I'll tell her not to drink any, or eat any diet foods when it's completed. But, it sounds like she needs more than that....... Oh, yeah, she had a gastric bypass three years ago - used to weigh 395 lbs. Said she lost 220 lbs, but has gained 66 back. Anything you guys have to offer would be greatly appreciated. Lynn Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1359 - Release Date: 4/04/2008 8:23 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 There was something about clearing arterial plaque yesterday but I couldn't find it again Jane - Hanneke Saturday, April 05, 2008 6:57 AM Re: Repost - need help for someone I don't know anything about this disease /condition but will see if I can dig something up.To help the situation regarding the seizures... suggest lobelia tincture, to be rubbed down the edge of skull at back of neck,.. this when seizure is sensed to happen or straight after.All the meds may do some good stuff to keep her going but my guess is that it will heavily tax her liver in the long run.HannekeAt 07:19 AM 5/04/2008, you wrote: Guys, This isn't a joke, or just something I'd like to know. I've got some real concerns about this gal and what she's doing, and am looking for anything y'all might suggest.For those who don't know, Moyamoya disease is a progressive disease of the distal internal carotid arteries. Apparently, there is no cure, and it often evidences it's self when people are kids - like 3, 4, 5 years old. This gal is older than that, but don't exactly know how old she is. Here's a link that talks about it http://www.moyamoya.com/journals/moyamoya.htmlIs anyone familiar with it? Anyone heard of what someone can take who had this? but not just for this - she has a host of other things wrong with her. She says she's had 2 surgeries, and so far it has controlled it. She says she also has petit mal seizures. But, she's taking a ton of meds - and is going to run out before she is able to get more insurance. I don't know what her money situation is, but I suspect not too good. I'm very concerned that if she just stops taking all her meds, especially with a hx of seizures, she'll have more. Maybe not so petite this time.Plus, she's just written and said she's stopped everything in order to do a cleanse. she hasn't been specific about what she's taking, but I do know that abruptly stopping drugs that are being used to control seizures is going to cause a major physical reaction....Said she's also bi-polar...I'm guessing she stopped those too.She also said she wonders if a poor diet has contributed not only to this, but to some other physical issues. (duh........) She's just started a cleanse, so sodas and all that isn't in question - of course I'll tell her not to drink any, or eat any diet foods when it's completed. But, it sounds like she needs more than that.......Oh, yeah, she had a gastric bypass three years ago - used to weigh 395 lbs. Said she lost 220 lbs, but has gained 66 back.Anything you guys have to offer would be greatly appreciated.Lynn Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1359 - Release 4/04/2008 8:23 AM Quote Link to comment Share on other sites More sharing options...
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