CO-CURE:ACT,NOT:Another Inconvenient Truth - CFLs and CFS, FMS, Lyme, Migraines

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Thu, 10 Sep 2009 20:30:30 -0400

" uncmom59 [via Co-Cure Moderators

<co-cure-mod] " <auntiem6

ACT,NOT:Another Inconvenient Truth - CFLs and CFS, FMS, Lyme,

Migraines

 

I am forwarding information on the new disability-related CFL fluorescent

lighting web site: _http://www.cflimpact.com/_ (http://www.cflimpact.com/) .

I have been contacted by numerous persons with CFS/ME, MCS, FMS, GWI,

TBI, etc. that are having adverse health reactions while in this lighting.

Some may find the information that Jerry, I and others cross-disability have

been gathering to be educational.

 

It is up and running with videos, news stories, research and technical

papers all in a user-friendly format, literally loaded with information. Many

people with various disabilities and medical conditions will find this to

be very helpful. CFS/Myalgic Encephalopathy and Fibromyalgia are mentioned.

 

TBI frontal lobe disabled engineer, Jerry Straub has collaborated on

gathering CFL information from persons in the US, England, and Australia since

Christmas before last. This was when the incandescent lighting ban was

announced (Energy Act of 2007), and he and I spoke out of desperation of being

left " in the dark " . Jerry's presentation is loss of his ability to walk,

which he regained after post-accident neuro-optometric rehabilitation. He falls

when CFLs are present, risking reinjury of his previously broken back. My

presentation in the lights is right and left temporal lobe complex partial

epilepsy triggered after onset of CFS/ME/MCS/FMS, driven by the flicker

rate in florescents, strobe lights, emergency vehicles, CRT computer

monitors?with low refresh rates, etc. This website is Jerry's gift to the

disability

community. His news story is on the website.

 

I believe that it is also a call to action. Persons whose disabilities are

adversely affected by fluorescents are asked to contact their federal

Congressional representatives, _www.whitehouse.gov_ (http://www.whitehouse.gov)

, local and national media, and support groups. You may provide the website

link to information, and possibly a request for disability accommodation

by amendment to the Energy Act ban on incandescent lighting. It would also be

helpful to contact the ACCESS Board, who promulgate disability barrier

regulations, to develop a specific lighting disability access guideline. None

yet exists for this barrier to a large group of persons with photosensitive

disabilities.

 

It could also be helpful to send an email accommodation request to:

* The Department of Justice, Civil Rights, Disability Rights Section to

give them awareness regarding this potential ADA civil rights inaccessibility

issue.

* The Dept. of Energy

* Energy Subcommittee

* The EPA

 

Jerry has a copy of EPA's lack of action to Senator Carl Levin's request

on behalf of Jerry to address the disability barrier problem presented by

CFLs. The research is on the site, along with 30 some years of research on

Critical Flicker Frequency from brain trauma, ie. tumor, traumatic brain

injury, and acquired brain injury. The latter, in my lay opinion, could

conceivably fit the CFS/ME, neurotoxin, neuroimmune or neuroborreliosis models

that present with symptoms of brain injury including autonomic nervous system

dysfunction.

 

 

Jerry's additional notes below:

 

CONTACT INFO:

Jerry Straub email: _adggjs_ (adggjs)

Res:? 517-263-0760?

Cell:? 231-881-1000

 

 

N. B. Interesting to note that the E.P.A. was among the first visitors to

the site and they have visited it numerous times.

 

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