Sign the petition against CDC's new defintion of CFS!

May 21, 2009

forwarding.......

me_cfs

Sign the petition against

CDC's new defintion of CFS!

Tom Kindlon has set up a petition on the internet

in order to stop CDC to use the new definition of

CFS. At this time there are 636 signatures, and it

would be wonderful if at least 1000 signatures

could be achieved.

Tom Kindlon from Ireland, has written comments to

several research articles relating to the new

definition of CFS made by Reeves et al. 2005, and

adopted by the Centers for Disease Control and

Prevention (CDC) in the USA. Tom Kindlon is one of

the few knowledgeable about the CFS-Reeves

definition.

Leonard Jason from USA has written articles

about how the new CDC CFS definition is a flaw.

The CFS-Reeves definition does not require malaise,

mental fog and post-exertional malaise exceeding 24

h, which make it hard to believe that it has

something to do with ME/CFS as the patients know

it. It does not even require the symtoms to be

chronic, because it does not require the symtoms to

have lasted for at least 6 months. It only looks 1

month back in time.

The CFS-Reeves definition lacks specifcity (<16%).

Already the Fukuda definition was lacking specificity,

and the expected way to go would to have increased

specificity in order to speed up research. With the

CFS-Reeves low specificity, the ME/CFS part will be

dissipated in the stastistical data. As no meaningful

scienfific results will be produced with the " Reeves

illness melange " , one can expect that CFS will cease

to be exist as an interesting entity to study.

I think all ME/CFS-patients are hoping for research to

go forward, not to stop up and dissipate because a

TOTALLY FLAWED DEFINITION is accepted and used

by CDC.

Please, help to get more signatures by letting people

know about this petition.

Sign at the bottom of this page. Note: When you are

urged to donate money to the site, you can simply

skip that. Your signature will be registered anyhow.

_http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/

_ (http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/)

/Kasper Ezelius, Örebro, Sweden

ME-information: _http://me-cfs.se_ (http://me-cfs.se/)

ME-föreningen: _http://me-foreningen.se/_ (http://me-foreningen.se/)

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May 21, 2009

forwarding.......me_cfs Sign the petition against CDC's new defintion of CFS! Tom Kindlon has set up a petition on the internet in order to stop CDC to use the new definition of CFS. At this time there are 636 signatures, and it would be wonderful if at least 1000 signatures could be achieved.Tom Kindlon from Ireland, has written comments to several research articles relating to the new definition of CFS made by Reeves et al. 2005, and adopted by the Centers for Disease Control and Prevention (CDC) in the USA. Tom Kindlon is one of the few knowledgeable about the CFS-Reeves definition.Leonard Jason from USA has written articles about how the new CDC CFS definition is a flaw.The CFS-Reeves definition does not require malaise, mental fog and post-exertional malaise exceeding 24 h, which make it hard to believe that it has something to do with ME/CFS as the patients know it. It does not even require the symtoms to be chronic, because it does not require the symtoms to have lasted for at least 6 months. It only looks 1 month back in time.The CFS-Reeves definition lacks specifcity (<16%). Already the Fukuda definition was lacking specificity, and the expected way to go would to have increased specificity in order to speed up research. With the CFS-Reeves low specificity, the ME/CFS part will be dissipated in the stastistical data. As no meaningful scienfific results will be produced with the "Reeves illness melange", one can expect that CFS will cease to be exist as an interesting entity to study.I think all ME/CFS-patients are hoping for research to go forward, not to stop up and dissipate because a TOTALLY FLAWED DEFINITION is accepted and used by CDC.Please, help to get more signatures by letting people know about this petition.Sign at the bottom of this page. Note: When you are urged to donate money to the site, you can simply skip that. Your signature will be registered anyhow. http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/ /Kasper Ezelius, Örebro, Sweden ME-information: http://me-cfs.se ME-föreningen: http://me-foreningen.se/