Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 Hey folks, hope everyone is having a great day! My name is Maggie and I'm 31. The chronic pain and associated symptoms of Fibromyalgia have made my life miserable. I was placed in " Pain Management Therapy " to help my symptoms but they only gave me heavier doses of narcotic medications and they all make my very sick, even with an anti-nausea medication (not to mention I hate the narcotic side effect). My insurance doesn't cover any of the FDA approved medications and they are very expensive. I'm hoping to find an alternative way to combat chronic pain. I have a TENS unit but it just doesn't cover enough area at once to be effective. Any suggestions? Any ideas? Thanks so much for your time! Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Dear Maggie, The information below shows the futility of using pain drugs to eliminate the pain of fibromyalgia. The answer is to take systemic enzymes, such as Bragg's Braggzyme (120 Caps). Ask for it at you local health food store. John from Israel ********************************************** Fibromyalgia and its Ischemic Pain By: William ND, PhD, Member World Sports Medicine Hall of Fame To most physicians the pain of Fibromyalgia Syndrome is a mystery. Its unrelenting and debilitating pain is often relegated to being of psychosomatic origin due to the fact that it does not decrease with the use of NSAID's, opiates or psychotropics. In the present mindset of medicine if these medications do not relieve the pain then it must be all in the patients mind! If this is so, than the pain of an MI (heart attack) must also be all in the patients mind. We know that for 3 days following a heart attack the patient will have angina, oft-times severe. We also know that for post MI pain, medicine does not normally administer pain killers. Why? Because the pain of a heart attack is the pain of ischemia (the lack of oxygen or Adenosine Tri Phosphate for the cells to breathe). Ischemic pain we know can only be relieved by restoring either proper O2 or ATP levels to the involved tissues. Let's use a simple example we've all experienced. When you were a child you likely at some time put rubber bands or string around your wrist and cut the blood supply off to your hand. At first the hand went numb. Then while turning an interesting shade of blue or purple, it began to throb. The more you moved your fingers and contracted the muscles the more the hand hurt. The longer the time the circulation was occluded from the area the harder the hand hurt. At that same moment in time, if you mainlined heroin that hand would still have hurt despite the fact that the strong opiate was swimming round your system and brain killing all other pain. Why? Pain meds have no effect on relieving the pain of ischemia! OK, so ischemic pain can't be relieved by pain killers or anti-depressants, so how does this relate to Fibromyalgia. Easy, in FMS we have a build up of fibrin (the fibro of Fibromyalgia) through and across striated muscle around the body. There is also the growth of fibrin in the micro circulation essentially plugging these tiny blood vessels in the effected areas. The combo of decreased blood supply, with the strangulating effect of the fibrin on muscle tissue, (remember what fibrin can do to strangulate intestines after abdominal surgery), creates the environment of ischemia. This is also why when these patients are taken through bouts of aerobic exercise or high intensity resistance exercise their pain greatly increases. * What can be done to decrease the fibrosis? Until recently, nothing. There has been really nothing in either the allopathic or naturopathic armamentum that was capable of lysing away scar tissue or fibrosis. The only treatment allopathic medicine has had up to now to try to control fibrosis growth has been to use cortico steroids to lower the level of inflammation knowing that inflammation is one of the things that produces fibrosis. Plastic surgeons have used this technique on their post op patients with mixed results and cortico steroid therapies used with FMS patients have proven to be failures. With the advent of oral systemic enzyme research and application all branches of the healing arts now have a powerful and effective tool for the safe lysing away of fibrosis and the non- toxic control of inflammation. First used in Germany and Japan against fibrocystic cysts of the breast and to prevent post operative scar tissue in abdominal and orthopedic surgery, the effect of orally administered highly fibrinolytic systemic enzymes has been documented in both research and clinical use. (See abstracts in this web site). The safety and complete lack of toxicity of systemic enzymes make it the primary treatments of choice against inflammation (as they are used in German emergency medicine) and the only choice available for the lysing away of scar tissue or fibrosis. With FMS patients, to be effective, an activation dose of the enzymes should be found and maintained for at least 3 months. After which an attempt can be made to reduce the dose. Experience of the docs using systemic enzymes with their FMS patients has shown that in roughly 50% of the patients their maintenance dose will be about 50% of their activation dose. For the other half of this patient population the dose will have to be maintained at the high activation dose as lowering it causes inflammation to return. (I must interject a personal note both as an FMS patient myself and as one who has treated hundreds if not thousands of FMS patients in the last 15 years: many, many FMS patients are actually Munchausens patients and not true FMS patients. The true FMS patient is anxious to do anything that might alleviate their pain including exercise, nutrition and self applied therapies. The malingerer will be wanting the doctor to do something to relieve their pain and and reinforce their need for being dependent. If they are getting better they will doctor hop to another doc as relief is not really what they really want. These patients will have the " victim " mindset and be seen to be manipulating their families for secondary gain. With these misdiagnosed FMS patients NOTHING WILL WORK, EVEN IF IT IS. While these patients can enrich practices by their frequent visits, they can also pose a problem and even be an insurance liability as they will bad mouth one doc, his or her treatment plans and bedside manner to the next doc they hop to in a never ending line of pity seeking and manipulation. Once I discovered this about certain FMS patients while I was in practice, I refused to work with these folks. If the patient would not exercise, if they would not take their enzymes, if they would not follow the therapeutic guidelines - I would not work with them. Using enzymes, nutrition and the correct type of exercise, over 88% of my FMS patients did not remember they had FMS after the first 8 to 16 weeks of work! I booked no malingering, as most of the time I was worse off than the patients I was working with and I did not have the time, patience or energy to deal with the " pity me " Munchausens patient). Fibromyalgia is a multi-faceted disease demanding a multi-faceted solution and since a major aspect of the problem is the pain of ischemia, the only treatment available is also the safest treatment available, the use of highly fibrinolytic orally administered systemic enzymes, to safely lyse away the fibrin, free strangulated muscle tissue and open peripheral circulation by lysing away the fibrin that is clogging the blood vessels. If the unrelenting pain of FMS can be dealt with then the rest of the problems relating to the condition can be ameliorated with ease. * While exercise is a must for these patients to rebuild their strength, overcome atrophy, increase the vascular bed there by improving circulation and oxygenation and to increase the number of mitochondria to relieve the chronic fatigue / EBB aspect of the disease; the exercise must be strength work of low intensity but high resistance, (i.e. 3 to 4 sets of 3 to 5 repetitions with 70% or more of the 1 rep max.) with long rest periods of 2 to 5 minuets in-between sets. Aerobic exercise is not generally recommended but if done must not be over 8 minutes or of high intensity (over 50 to 60% of max HR) as the patient will have no tolerance for it, either in their energy reserves or their recuperative capacity. (Current Adaptation Reserve, Siff and Verkhoshansky, 1999). As per Karvonin and Cooper 7 to 8 minutes is the minimum time aerobic work can be done for while gaining a benefit to the heart and vascular system. Please read the article: How To Keep From Having A Heart Attack - Do Less Aerobic Exercise at www.drwong.us. ********************************************* , " Maggie " <maggiesturtz wrote: > > Hey folks, hope everyone is having a great day! > > My name is Maggie and I'm 31. The chronic pain and associated symptoms of Fibromyalgia have made my life miserable. I was placed in " Pain Management Therapy " to help my symptoms but they only gave me heavier doses of narcotic medications and they all make my very sick, even with an anti-nausea medication (not to mention I hate the narcotic side effect). My insurance doesn't cover any of the FDA approved medications and they are very expensive. I'm hoping to find an alternative way to combat chronic pain. I have a TENS unit but it just doesn't cover enough area at once to be effective. > > Any suggestions? Any ideas? > > Thanks so much for your time! > Maggie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Please google LDN, I also have Fibro and take that - it is a compounded prescription, but it is not expensive, which is exactly why you don't hear enough about it. Let me know if you cannot find it. Hey folks, hope everyone is having a great day! My name is Maggie and I'm 31. The chronic pain and associated symptoms of Fibromyalgia have made my life miserable. I was placed in " Pain Management Therapy " to help my symptoms but they only gave me heavier doses of narcotic medications and they all make my very sick, even with an anti-nausea medication (not to mention I hate the narcotic side effect). My insurance doesn't cover any of the FDA approved medications and they are very expensive. I'm hoping to find an alternative way to combat chronic pain. I have a TENS unit but it just doesn't cover enough area at once to be effective. Any suggestions? Any ideas? Thanks so much for your time! Maggie __________ Digital Photography - Click Now. http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTDvmTamm1q8NdP1sNtalGbYLmn8jFv\ uJVMhQhUqVsO1MTue6ZAWw4/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 , " Maggie " <maggiesturtz wrote: > > Hey folks, hope everyone is having a great day! > > My name is Maggie and I'm 31. The chronic pain and associated symptoms of Fibromyalgia have made my life miserable. I was placed in " Pain Management Therapy " to help my symptoms but they only gave me heavier doses of narcotic medications and they all make my very sick, even with an anti-nausea medication (not to mention I hate the narcotic side effect). My insurance doesn't cover any of the FDA approved medications and they are very expensive. I'm hoping to find an alternative way to combat chronic pain. I have a TENS unit but it just doesn't cover enough area at once to be effective. > > Any suggestions? Any ideas? > > Thanks so much for your time! > Maggie > HI Maggie Have you tryed Acupuncture to help you with the chronic pain? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Thank you So much to all of you who have been so incredibly helpful regarding the chronic pain of Fibromyalgia. I have a ton of wonderful information to look up and hopefully some brighter days ahead! I'll let you know if anything works really well for me! Have a safe and happy holiday weekend! Maggie , " Kaylee " <kaylee4848 wrote: > > Please google LDN, I also have Fibro and take that - it is a compounded > prescription, but it is not expensive, which is exactly why you don't hear > enough about it. > > Let me know if you cannot find it. > > Hey folks, hope everyone is having a great day! > > My name is Maggie and I'm 31. The chronic pain and associated symptoms of > Fibromyalgia have made my life miserable. I was placed in " Pain Management > Therapy " to help my symptoms but they only gave me heavier doses of narcotic > medications and they all make my very sick, even with an anti-nausea > medication (not to mention I hate the narcotic side effect). My insurance > doesn't cover any of the FDA approved medications and they are very > expensive. I'm hoping to find an alternative way to combat chronic pain. I > have a TENS unit but it just doesn't cover enough area at once to be > effective. > > Any suggestions? Any ideas? > > Thanks so much for your time! > Maggie > > > __________ > Digital Photography - Click Now. > http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTDvmTamm1q8NdP1sNtalGbYLmn8jFv\ uJVMhQhUqVsO1MTue6ZAWw4/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 I bought some Blockbuster Allclear, seems similar to the Braggs, but does seem to have more in it. But so far I have not noticed a difference in my Fibro, beyond the help I get from taking LDN, which is not a pain medication, but does help, very much with pain among other things. Here is what is in the Blockbuster. What do you think?? Supplement Facts (BlockBusterT capsule) Serving Size: 2 Capsules Serving Per Container: 60 (120 caps per bottle) Amount Per Serving Information Serrapeptase 40,000 IU Nattokinase (including vitamin K2) 1600 FU Protease 20,000 HUT Lipase 1000 LU Amylase 4000 SKB Cellulase 600CU Lactase 1000 ALU Acerola 17.5% 50 mg amla 45% Tannins 50 mg Olive Leaf Citrus Blend 200 mg CitroliveT 25 mg Trace Mineral Complex 100 mg Lactospore Probiotics 15 million 25 mg Seaprose S 5 mg Grapeseed Extract 25% 100 mg Policosanol 6 mg PycnogenolR 10 mg SeaLady The information below shows the futility of using pain drugs to eliminate the pain of fibromyalgia. The answer is to take systemic enzymes, such as Bragg's Braggzyme (120 Caps). Ask for it at you local health food store. __________ Make the right POS decision. Click here for POS systems that meet your business needs. http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTEHBCQnCNfQcvo2kcJI6ytLS8RJQ23\ 9gCTYSNgsLXDpaBHpsGTGL2/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Kaydee how much are you taking a day and how many divided doses a day? I have been taking Systemic Enzymes for about 18 monnths now and the 'secret' so to speak, is to take take enough plus to take them 3 x a day. The amount they tell you to take on the bottle is 'maintenance' dose ONLY. And even for mainetenance I would not take so little. Email me backchannel and I will give you a couple of good articles about Systemic Enzymes, and also some urls. You also need to commit to taking Systemic Enzymes for at least 3 to 6 months or don't bother to take them at all. The studies say that it will take at least 3 months to notice any results - this was not true in my case nor others I know whom started takeing a good multi-systemic enzyme product. But I suspect it is an individual things and so it is a good idea not to look for resutls for about 3 months. The studies say that it is better to take the systemic enymes 3 x a day - that is better or more effective then 2 x a day...........One recent study says that the Systemic Enzymes are active for about 5 to 5 & 1/2 hours after taking them. I have not tried Blockbuster Allclear but know poeple whom I trust whom say it is a good product. I was taking Zymitol by Generation Plus - it has no fillers, especially magnesiumn stearate....... You don't want magnesium stearate in your supplements! It is NOT a form or magnesium - it is a 'stearate' which is a trans-fat, among other things. Stearic Acid definition http://en.wikipedia.org/wiki/Stearic_acid Beware of Additives in Supplements Stearates – Hydrogenated Fats Used in the Production of Most Supplements– Decrease Absorption and May Be Toxic and Immunosuppressive by Ron Schmid, N.D., ©2003 Magnesium stearate, stearic acid and ascorbyl palmitate, made by hydrogenating cottonseed or palm oil, are used throughout the supplements industry as lubricants. They are added to the raw materials in supplements so that production machinery will run at maximum speeds. These fatty substances coat every particle of the nutrients, so the particles will flow rapidly. http://www.drrons.com/beware-additives.htm Everybody whom is going to take supplements needs to read the below article, in my opinion. If one wants to inject magnesium stearate, then at least they will know what they are doing. I like to get the most bang for my buck, myself. Dietary Supplements: What the Industry does NOT want you to know http://www.westonaprice.org/healthissues/supplements.html http://www.drrons.com/supplements-industry.htm I started off taking 20 capsules a day - then after a month I went up to 30 a day for a few months................then back down to 15 a day [5 capsules 3x a day] After about another 4 months I started also adding Serrapeptase about 3 a day. I went completely off of all the Systemic Enzymes as I ran out of money one month - was off them for 3 weeks - had a small stroke durring that time and will never go off them again unless I am in great and almost perfect health...... Anyways, I have been taking just Serrapetase for the last 6 months now. Mine are twice as strong as yours though - I take 9 a day [3 capsules 3x a day] Each capsule has 80,000 I.U. of serrapeptase. I decided to take only serrapeptase after being on a multi-systemic enzyme for about 10 months. After the initial period of cleaning up your body, you need to take as many as you need to effect what you need the SEs to do. The more pain you want them to deal with and the quicker , the more you would need to take.If I could afford it,I would be taking at least 30 a day as I have Bartonella and Lyme disease as well as MCS now. What I am taking is enough to keep my blood thin so I won't have another stroke -and maybe a bit more but not a lot.......... but this is a lot for them to do as I have Lyme & Bartonella plus am hopefully killing a lot of those 'critters' all the time and the SE has to get rid of them to keep my blood thin....I wouldn't be as sick from die-off if I could afford to take more......but we can only do what we are able to do. You need to be careful how much you take if what you are taking has natto in it though - that is another conversation......you need to read about it and decide..in my opinion.......... blessings Shan , " Kaylee " <kaylee4848 wrote: > > I bought some Blockbuster Allclear, seems similar to the Braggs, but does > seem to have more in it. But so far I have not noticed a difference in my > Fibro, beyond the help I get from taking LDN, which is not a pain > medication, but does help, very much with pain among other things. > > > > Here is what is in the Blockbuster. What do you think?? > > > > > Supplement Facts (BlockBusterT capsule) > > > Serving Size: 2 Capsules > > > Serving Per Container: 60 (120 caps per bottle) > > > > Amount Per Serving Information > > > Serrapeptase > > 40,000 IU > > > Nattokinase (including vitamin K2) > > 1600 FU > > > Protease > > 20,000 HUT > > > Lipase > > 1000 LU > > > Amylase > > 4000 SKB > > > Cellulase > > 600CU > > > Lactase > > 1000 ALU > > > Acerola 17.5% > > 50 mg > > > amla 45% Tannins > > 50 mg > > > Olive Leaf Citrus Blend > > 200 mg > > > CitroliveT > > 25 mg > > > Trace Mineral Complex > > 100 mg > > > Lactospore Probiotics 15 million > > 25 mg > > > Seaprose S > > 5 mg > > > Grapeseed Extract 25% > > 100 mg > > > Policosanol > > 6 mg > > > PycnogenolR > > 10 mg > > > > > > SeaLady > > The information below shows the futility of using pain drugs to eliminate > the pain of fibromyalgia. The answer is to take systemic enzymes, such as > Bragg's Braggzyme (120 Caps). Ask for it at you local health food store. > > > > __________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 Hi Maggie! I have Fibro, too. I have found some things to help with it over the years. Here's what has helped me... Chiropractic adjustments Whey Protien (NOW brand) multidophilus (by Solaray) detoxing with Bentonite (by NOW or Sonne's #7) Epsom salt soaks I've been going to the chiropractor for 10 years & that alone helped a lot. But I just discovered the rest last year. After a couple of months of the supplements I listed above I was nearly pain free for a good while. I have also recently heard of a diet for it that is 1 month of High Protien foods only, no carbs, and no starches. Which is similar to what I did by taking the whey protien. I've figured out by trial and error that as long as I stay on the Whey Protien and multidophilus I feel SO much better. I'm out of my Whey right now, so I've been a bit achey, but the pain is still minimal in comparison to what it had been. I hope this gives you some ideas and helps you... Good Luck to you! Sheri at 37 years old I was using a walking cane... at 37 I'm strong enough that I'm taking horse back riding lessons! =) ............................... , " Maggie " <maggiesturtz wrote: > > Hey folks, hope everyone is having a great day! > > My name is Maggie and I'm 31. The chronic pain and associated symptoms of Fibromyalgia have made my life miserable. I was placed in " Pain Management Therapy " to help my symptoms but they only gave me heavier doses of narcotic medications and they all make my very sick, even with an anti-nausea medication (not to mention I hate the narcotic side effect). My insurance doesn't cover any of the FDA approved medications and they are very expensive. I'm hoping to find an alternative way to combat chronic pain. I have a TENS unit but it just doesn't cover enough area at once to be effective. > > Any suggestions? Any ideas? > > Thanks so much for your time! > Maggie > Quote Link to comment Share on other sites More sharing options...
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