My Road to Recovery from Fibromyalgia/CFS

[Guest guest]

My Road to Recovery from Fibromyalgia/CFS

by Yvonne Keeny

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My fibromyalgia/chronic fatigue syndrome (CFS) odyssey began in 1984. I had

been healthy my entire life when something went terribly wrong. I developed

widespread muscle pain, fatigue, digestive problems, sleep disturbances,

anxiety, brain fog, and short-term memory loss. I went to several doctors and

all

they could find was " a little osteoarthritis " and a case of lactose

intolerance. Even though the fatigue was more debilitating, I eventually

received a

fibromyalgia diagnosis.

 

My road to recovery was often one step back to every two steps forward. But

it was a journey filled with many victories that collectively restored my

health and has allowed me to remain so for over nine years after more than 13

years of suffering.

 

MY FIRST MAJOR DISCOVERY

came in the early 1990s while reading a book on reversing arthritis. There

was an illustration of tender points and a one-page description of

fibromyalgia. Fibro-my-what? I had never heard of it, but I certainly fit the

description!

 

I immediately scheduled an appointment with my doctor, who ran several tests

to rule out other diseases and $450 later concluded, " I believe you have

fibromyalgia. "

 

I spent the next few years on pain medication, anti-depressants, etc., as I

waged a losing battle to control my pain and multiple symptoms. While the

medications seemed to take the edge off, they did not stop the pain. However,

they did cause a multitude of side effects which also contributed to my

fibromyalgia/CFS.

 

My health was getting worse and I would constantly pray for just one day

without pain. The day I picked up the Physician's Desk Reference Guide (PDR)

and

saw stroke listed as a possible side effect of one of the medications I was

prescribed, I lost it! Bursting into tears, I realized there had to be a

better way to battle this illness! " There had to be something out there, " I

thought, " that can help me without wreaking havoc on my body! "

 

MY SECOND MAJOR DISCOVERY

came in the spring of 1997 when I began searching the Internet for natural

remedies. I discovered there were several alternative treatments that had been

effective. Once I changed my approach from " Cope to Hope, " information just

started jumping out at me. I became immersed in finding the cause of my

problems and looking for ways to prevent my life from being completely

destroyed

by this illness.

 

The most beneficial treatments came from alternative/integrative doctors:

M.D.s, D.O.s, and N.D.s; from acupuncturists, chiropractors, massage

therapists, energy healers, as well as from self-help strategies, such as

exercise,

dietary changes, and nutritional supplements.

 

In addition to a good multi-vitamin, I started taking magnesium malate,

probiotics, glucosamine, digestive enzymes, ginkgo biloba, and antioxidants as

well as various supplements to help me sleep.

 

MY THIRD MAJOR DISCOVERY

occurred in October 1997 when I attended a workshop led by Mary Moeller,

L.P.N. Mary had suffered with fibromyalgia/CFS since she was a child, but in

her

mid-30s had decided to take an alternative approach and start doing what she

could to help herself. She had been well for about three years. Her program

was simple: drink plenty of filtered water; avoid MSG, white flour, refined

sugar, artificial sweeteners, coffee, carbonated beverages, alcohol, and

tobacco smoke; take nutritional supplements; and do stretching exercises every

day. These were things I was mostly doing already.

 

However, Mary said that many fibromyalgia/CFS sufferers have a systemic

yeast infection. I found an alternative physician who tested for yeast. I did

have a yeast overgrowth and I was also sensitive to several foods, and

chemicals

such as those found in perfumes, common household cleaning products,

pesticides, etc. Within a few weeks after starting treatment for the yeast

infection, along with avoiding the offending foods and chemicals, I was pain

free for

the first time in years!

 

In addition to diagnosis and treatment of underlying causes by alternative

doctors, reversing Fibromyalgia/CFS largely depended on gathering practical

information, making use of it in dietary and lifestyle changes, and avoiding

foods and chemicals that trigger reactions. Adhering to these self-help

techniques has been as important to my recovery as anything that even the best

doctors did for me. I don't believe either would have worked without the other.

 

THE SIGNIFICANCE OF MY STORY IS THIS:

My illness brought a special understanding and empathy for people with

Fibromyalgia and CFS and the difficulties of day-to-today living. In January

1998,

after my own recovery, I started the Getting Well support group to offer

hope and help to other Fibromyalgia/CFS patients. The support group soon grew

into one of the largest support groups in the U.S., the Fibromyalgia Coalition

International _http://www.fibrocoalition.org/_

(http://www.fibrocoalition.org/) .

 

I have been well since December 1997. I work 45-50 hours per week for the

Fibromyalgia Coalition. And, although being the executive director of a large

non-profit organization which publishes an alternative newsletter/magazine and

hosts an annual Fibromyalgia/CFS conference is challenging and stressful, I

can endure tight deadlines and a busy schedule. I feel an immense amount of

satisfaction because every year I receive hundreds of calls, letters, and

e-mails from Fibromyalgia Coalition members saying they feel better than they

have felt in years!

 

I strongly encourage fibromyalgia/CFS sufferers to be proactive in their

treatment process. People with fibromyalgia/CFS can improve their health. But

in

order to do this, you need to take an active role in managing your health

and well-being.

 

 

 

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[Guest guest]

I have tried many things for Fibro, but so far, what works the BEST is LDN -

it is a compounded medicine, it is not expensive either - it helps with a

lot of immune diseases - just google it join the LDN group here on .

 

 

 

It is probably one of the best kept secrets - the drug companies simply do

NOT want anyone to know about it - it can help or cure too many

things....and they can't figure out how to make money off of it.

 

 

 

Thank goodness there are some private research studies being done.

 

 

 

SeaLady

 

 

 

__________

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[Guest guest]

I had never heard of LDN. So I did some research. LDN stands for Low

Dose Naltrexone. It is a drug that blocks opioid receptors and

hormone receptors. Who knows what the long term effects will be or

what effect they will have on adrenal function? This drug has been

approved by the FDA. They are promoting it.

 

I have cured myself of severe CFS that I have dealt with for 13 years.

I got it from eating soy, low-fat diet, low protein and stress and

illness.

 

I would only use fermented fish oil, virgin coconut oil,raw butter and

milk and whole food, herbs and such to treat any of these conditions.

Hormones are created by eating enough of the right fats.

 

Lo

http://www.cure-my-fatigue.com/

 

 

> I have tried many things for Fibro, but so far, what works the BEST

is LDN -

> it is a compounded medicine, it is not expensive either - it helps

with a

>

> It is probably one of the best kept secrets - the drug companies

simply do

> NOT want anyone to know about it - it can help or cure too many

> things....and they can't figure out how to make money off of it.

>

>

>

> Thank goodness there are some private research studies being done.

>

>

>

> SeaLady

>