A Hummingbirds Guide to ME Newsletter - February 2008

[Guest guest]

forwarding .................

 

Hello and welcome to the 'A Hummingbirds Guide to Myalgic Encephalomyelitis'

e-newsletter for February 2008

 

I hope this newsletter finds you and yours doing as well as possible.

 

I have a handful of new updates to tell you about this month.

 

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The 'Treating Myalgic Encephalomyelitis - The Basics' paper was updated.

 

Many new links were added and the treatment examples section was fully

updated and now provides more detailed information on this topic.

 

New treatments mentioned include: Alpha Lipoic Acid, N-Acetyl Cysteine,

sublingual ATP, sublingual vitamin B12, antioxidants, digestive enzymes,

Malic acid, D-ribose, medical quality (carefully fitted) compression

stockings, Betaine, Turmeric (Curcumin), DMAE and low dose daily aspirin.

 

Before trying any of these treatments however (or any treatments) please do

read the various cautions given in this paper FIRST.

 

See: _http://www.ahummingbirdsguide.com/treatingmethebasics.htm_

(http://www.ahummingbirdsguide.com/treatingmethebasics.htm)

 

(A big thank you to those M.E. patients who offered suggestions and

constructive criticism for the updating of this paper, it was much

apprciated as always!)

 

 

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Minor updates

 

Minor updates were made to the following papers (and their summaries, where

applicable):

 

1. The Ultra-comprehensive Myalgic Encephalomyelitis Symptom List

_http://www.ahummingbirdsguide.com/themesymptomlist.htm_

(http://www.ahummingbirdsguide.com/themesymptomlist.htm)

 

2. What it feels like to have Myalgic Encephalomyelitis: A personal M.E.

symptom list and description of M.E.

_http://www.ahummingbirdsguide.com/whatmefeelslike.htm_

(http://www.ahummingbirdsguide.com/whatmefeelslike.htm)

 

3. Myalgic Encephalomyelitis is not fatigue, or 'CFS'

_http://www.ahummingbirdsguide.com/fatigueschmatigue.htm_

(http://www.ahummingbirdsguide.com/fatigueschmatigue.htm)

 

4. Practical tips for living with Myalgic Encephalomyelitis, and

_http://www.ahummingbirdsguide.com/helpyhints.htm_

(http://www.ahummingbirdsguide.com/helpyhints.htm)

 

5. A day in the life of severe Myalgic Encephalomyelitis

_http://www.ahummingbirdsguide.com/adayinthelife.htm_

(http://www.ahummingbirdsguide.com/adayinthelife.htm)

 

 

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Reminder: Would you like to see your M.E. story on a M.E. YouTube video?

 

For more information see:

_http://www.ahummingbirdsguide.com/newmevideo.htm_

(http://www.ahummingbirdsguide.com/newmevideo.htm)

 

 

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That's it for this month!

 

Next month I very much hope to be well enough to write again publically

about the sham so-called 'Fair Name' campaign (and the ill-advised use of

the unhelpful and unscientific term 'ME/CFS' generally by advocates). This

campaign makes a mockery of legitimate advocacy, and we must join together

to oppose it; M.E. sufferers *and* patients who do not have M.E. but have

been misdiagnosed with 'CFS' alike. It serves neither of our best interests

and indeed will only increase confusion and make the problems much worse.

 

We must not let another 20 years be wasted! Too many of us have had our

lives needlessly destoyed by mistreatment, abuse and neglect already, and

there have been more than enough needless deaths...

 

For more information on this topic see:

_http://www.ahummingbirdsguide.com/cfsmustbeabandoned.htm_

(http://www.ahummingbirdsguide.com/cfsmustbeabandoned.htm) and

_http://www.ahummingbirdsguide.com/whatisme.htm_

(http://www.ahummingbirdsguide.com/whatisme.htm)

 

 

All the best, as always, in your ongoing battle with M.E. or your loved

one's battle with M.E., until next month,

 

(Also please note that, unfortunately I am not able to reply to all of the

emails and Guestbook entries I have received and also that some replies will

be very delayed. I am more than 6 months behind with my email. My

apologies. A big thank you to everyone who has written though, especially if

it was with suggestions for the site or positive comments.)

 

Jodi Bassett

--

A Hummingbirds Guide to Myalgic Encephalomyelitis:

_www.ahummingbirdsguide.com_ (http://www.ahummingbirdsguide.com)

 

Do not for one minute believe that CFS is simply another name for Myalgic

Encephalomyelitis (M.E.). It is not. The CDC 1988 definition of CFS

describes a non-existing chimera based upon inexperienced individuals who

lack any historical knowledge of this disease process. Any disease process

that has major criteria, of excluding all other disease processes, is

simply not a disease at all; it doesn't exist. M.E. and CFS should be

separated as definitions. They are not the same. Dr Byron Hyde MD 2006

--

 

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