young death in family/degenerative artery disease

[Guest guest]

Doc,

Having left the medico many years ago, I am familiar with many

diseases, but this one I have never heard of.

Not only have I not heard of it, but many who I know still in the

medico have not.

My 15 year old cousin died before she hit the ground this past Oct.

She was not excerting herself in the least. Her aorta blew up. She had

a growth spurt, it didn't.

Her father has it, at the age of 36 his blew up, he survived long

enough to have it put back together. They say it will happen again,

and his 4 year old surgery is giving way already.

So far what little even the specialists know has for the most part

been disproven by my family. It doesn't affect only the tall, or every

other generation, like they thought, but so far the double jointed

theory is correct. Seems it affects double jointed people. There are

no symptoms at all.

Since her death, in Oct., three more of my family have been diagnosed

with it all younger than 40 and another 15 year old. I thought they

were playing some medico game trying to put the fear into everyone,

but it turns out more family does have this condition, and have died

in the past with it.

They say death certificates are not accurate...duhhh, no kidding!...

and if they were this disease would be easier to track. As if...

One cousin has it in all 4 of his hearts arteries. They called it,

Morphan disease. I THINK that is the spelling. He has a slight curve

in his spine, but none of the others did. His father died at 42 of the

same condition sitting on the couch.

What would be your educated guess as to what would cause this? And the

double jointed thing, it is in essence, weak tendons, same cause?

Seems odd that one would be too stretchy and the other not enough but

bottom line is weakness either way.

I haven't searched the web yet to see what is out there on this, but

would appreciate what you had to say on the matter.

Thanks so much,

fft

[Guest guest]

Dear fft,

 

My name is Dr. Joe. I'm a chiropractor knowledgeable on neuromusculoskeletal diseases and conditions including Marfan Syndrome. Marfan Syndrome is a disease of the connective tissues of the body which include the skeletal system, the eyes, the cardiovascular system. Typically the patient is tall and thin with long extremities and fingers and toes. The joint ligaments of the hands and feet are lax, suggesting that the patient is double jointed. Many people with Marfans has spinal deformities including scoliosis, increased kyphosis and slippage of the lumbar vertebra.

Cardiovascular lesions are the most life-threatening. The two most common lesions are mitral valve prolapse and dilation of the ascending aorta contributing to cystic medionecrosis. Loss of the medial support results in progressive dilation the aortic valve ring and the root of the aorta causing severe aortic incompetence.

Marfans Syndrome is genetic. Marfan results from the mutations in the fibrillin gene. Fibrillin is secreted by fibroblasts and help make up the scaffolding of the extracellular matrix of elastin. Elastin is found in abundance in the aorta, ligaments and the supporting structures of the lens of the eye. This mutation leads increased elastic or stretching abilities but weak in strength.

Any further questions, please feel free to e-mail me.

 

Dr. Joe

 

 

-

food4tot

herbal remedies

Friday, December 30, 2005 9:15 PM

Herbal Remedies - young death in family/degenerative artery disease

Doc,Having left the medico many years ago, I am familiar with many diseases, but this one I have never heard of.Not only have I not heard of it, but many who I know still in the medico have not.My 15 year old cousin died before she hit the ground this past Oct. She was not excerting herself in the least. Her aorta blew up. She had a growth spurt, it didn't.Her father has it, at the age of 36 his blew up, he survived long enough to have it put back together. They say it will happen again, and his 4 year old surgery is giving way already.So far what little even the specialists know has for the most part been disproven by my family. It doesn't affect only the tall, or every other generation, like they thought, but so far the double jointed theory is correct. Seems it affects double jointed people. There are no symptoms at all. Since her death, in Oct., three more of my family have been diagnosed with it all younger than 40 and another 15 year old. I thought they were playing some medico game trying to put the fear into everyone, but it turns out more family does have this condition, and have died in the past with it.They say death certificates are not accurate...duhhh, no kidding!... and if they were this disease would be easier to track. As if...One cousin has it in all 4 of his hearts arteries. They called it, Morphan disease. I THINK that is the spelling. He has a slight curve in his spine, but none of the others did. His father died at 42 of the same condition sitting on the couch.What would be your educated guess as to what would cause this? And the double jointed thing, it is in essence, weak tendons, same cause? Seems odd that one would be too stretchy and the other not enough but bottom line is weakness either way. I haven't searched the web yet to see what is out there on this, but would appreciate what you had to say on the matter. Thanks so much,fft

[Guest guest]

Dear Dr. Joe,

 

Welcome to Herbal Remedies. As a reminder, I'd like to point you to The Files and our list's policy on Misunderstood Words which follows:

 

Dear All, I realize that I am no slouch when it comes to using "big" and / or "technical" words on list when describing certain conditions and their remedies, but I think we all need to start giving definitions when we do this. There is nothing wrong with using these words as long as they are defined in the same sentence or in a following foot note.

 

I'd say a majority of our members are laymen, and as such, need this service of having the technical words defined. Too many of these big words put people to sleep and make the posts boring. This practice is also the stock and trade of the Medicos who deliberately try to make the entire subject of health too complex and confusing so that us poor, stupid dummies have to rely on them for knowledge about "getting better", rather than learning for ourselves. Soooooooo, here is a new list policy on this: Please "try" to keep your posts as simple and as non-techincal as possible. When using any technical words, please define them as you go along or in foot notes. Natural Healing is simple. Let's keep it that way ;o) Much love, Doc

Many thanks. In Health and Love,

 

Doc

 

Doc Shillington727-447-5282Doc

 

-

JOSEPH SEKULSKI

herbal remedies

Saturday, December 31, 2005 10:57 AM

Re: Herbal Remedies - young death in family/degenerative artery disease

 

 

Dear fft,

 

My name is Dr. Joe. I'm a chiropractor knowledgeable on neuromusculoskeletal diseases and conditions including Marfan Syndrome. Marfan Syndrome is a disease of the connective tissues of the body which include the skeletal system, the eyes, the cardiovascular system. Typically the patient is tall and thin with long extremities and fingers and toes. The joint ligaments of the hands and feet are lax, suggesting that the patient is double jointed. Many people with Marfans has spinal deformities including scoliosis, increased kyphosis and slippage of the lumbar vertebra.

Cardiovascular lesions are the most life-threatening. The two most common lesions are mitral valve prolapse and dilation of the ascending aorta contributing to cystic medionecrosis. Loss of the medial support results in progressive dilation the aortic valve ring and the root of the aorta causing severe aortic incompetence.

Marfans Syndrome is genetic. Marfan results from the mutations in the fibrillin gene. Fibrillin is secreted by fibroblasts and help make up the scaffolding of the extracellular matrix of elastin. Elastin is found in abundance in the aorta, ligaments and the supporting structures of the lens of the eye. This mutation leads increased elastic or stretching abilities but weak in strength.

Any further questions, please feel free to e-mail me.

 

Dr. Joe

 

 

-

food4tot

herbal remedies

Friday, December 30, 2005 9:15 PM

Herbal Remedies - young death in family/degenerative artery disease

Doc,Having left the medico many years ago, I am familiar with many diseases, but this one I have never heard of.Not only have I not heard of it, but many who I know still in the medico have not.My 15 year old cousin died before she hit the ground this past Oct. She was not excerting herself in the least. Her aorta blew up. She had a growth spurt, it didn't.Her father has it, at the age of 36 his blew up, he survived long enough to have it put back together. They say it will happen again, and his 4 year old surgery is giving way already.So far what little even the specialists know has for the most part been disproven by my family. It doesn't affect only the tall, or every other generation, like they thought, but so far the double jointed theory is correct. Seems it affects double jointed people. There are no symptoms at all. Since her death, in Oct., three more of my family have been diagnosed with it all younger than 40 and another 15 year old. I thought they were playing some medico game trying to put the fear into everyone, but it turns out more family does have this condition, and have died in the past with it.They say death certificates are not accurate...duhhh, no kidding!... and if they were this disease would be easier to track. As if...One cousin has it in all 4 of his hearts arteries. They called it, Morphan disease. I THINK that is the spelling. He has a slight curve in his spine, but none of the others did. His father died at 42 of the same condition sitting on the couch.What would be your educated guess as to what would cause this? And the double jointed thing, it is in essence, weak tendons, same cause? Seems odd that one would be too stretchy and the other not enough but bottom line is weakness either way. I haven't searched the web yet to see what is out there on this, but would appreciate what you had to say on the matter. Thanks so much,fft

[Guest guest]

Dr. Joe,

Thank you so very much for responding to my post. I understand

things MUCH better now.

The email I tried to send you came back and the two posts I wrote

you here disappeared. Probably the holiday.

I was delighted, sort of, to find somebody who knew about this

thing. The mutation doesn't sound promising to treat however...

It's like this boogie man jumped out of the closet and said Boo!

I live 2300 miles from the family this has recently developed in,

and the Dr.'s they have spoken to...so, I get the translation, which

to say the least, according to what you are saying here, has been

far from reality.

Ack! O.K. so now what?

Is it the fibroblasts that manufacter the mutated fibrillin? Also

they say now that (again hearsay and maybe not accurate) if the

parent isn't carrying the gene, the kids and grandkids will never

have this. Trouble is, they say it takes till 40 or so to determine

if you will get the gene. Doesn't it cause mutation from birth on

and if you have it, you have it and if you don't, you never will? At

least even if they do carry the gene, it doesn't mean they will have

mitral valve prolapse (cave in) or dilation (blowing out)of the

ascending (upward) aorta.

But again, where do we start in stopping this mutation?

The email address I tried for you was jtthc4 I see now

that isn't correct, so I will try again to get your full address.

fft

 

 

herbal remedies , " JOSEPH SEKULSKI "

<jtthdc4@m...> wrote:

>

> Dear fft,

>

> My name is Dr. Joe. I'm a chiropractor knowledgeable on

neuromusculoskeletal diseases and conditions including Marfan

Syndrome. Marfan Syndrome is a disease of the connective tissues of

the body which include the skeletal system, the eyes, the

cardiovascular system. Typically the patient is tall and thin with

long extremities and fingers and toes. The joint ligaments of the

hands and feet are lax, suggesting that the patient is double

jointed. Many people with Marfans has spinal deformities including

scoliosis, increased kyphosis and slippage of the lumbar vertebra.

> Cardiovascular lesions are the most life-threatening.

The two most common lesions are mitral valve prolapse and dilation

of the ascending aorta contributing to cystic medionecrosis. Loss

of the medial support results in progressive dilation the aortic

valve ring and the root of the aorta causing severe aortic

incompetence.

> Marfans Syndrome is genetic. Marfan results from the

mutations in the fibrillin gene. Fibrillin is secreted by

fibroblasts and help make up the scaffolding of the extracellular

matrix of elastin. Elastin is found in abundance in the aorta,

ligaments and the supporting structures of the lens of the eye.

This mutation leads increased elastic or stretching abilities but

weak in strength.

> Any further questions, please feel free to e-mail

me.

>

> Dr. Joe

>

>

>

>

> -

> food4tot<food4tot>

> To:

herbal remedies <herbal remedies

m>

> Friday, December 30, 2005 9:15 PM

> Herbal Remedies - young death in family/degenerative

artery disease

>

>

> Doc,

> Having left the medico many years ago, I am familiar with many

> diseases, but this one I have never heard of.

> Not only have I not heard of it, but many who I know still in

the

> medico have not.

> My 15 year old cousin died before she hit the ground this past

Oct.

> She was not excerting herself in the least. Her aorta blew up.

She had

> a growth spurt, it didn't.

> Her father has it, at the age of 36 his blew up, he survived

long

> enough to have it put back together. They say it will happen

again,

> and his 4 year old surgery is giving way already.

> So far what little even the specialists know has for the most

part

> been disproven by my family. It doesn't affect only the tall, or

every

> other generation, like they thought, but so far the double

jointed

> theory is correct. Seems it affects double jointed people. There

are

> no symptoms at all.

> Since her death, in Oct., three more of my family have been

diagnosed

> with it all younger than 40 and another 15 year old. I thought

they

> were playing some medico game trying to put the fear into

everyone,

> but it turns out more family does have this condition, and have

died

> in the past with it.

> They say death certificates are not accurate...duhhh, no

kidding!...

> and if they were this disease would be easier to track. As if...

> One cousin has it in all 4 of his hearts arteries. They called

it,

> Morphan disease. I THINK that is the spelling. He has a slight

curve

> in his spine, but none of the others did. His father died at 42

of the

> same condition sitting on the couch.

> What would be your educated guess as to what would cause this?

And the

> double jointed thing, it is in essence, weak tendons, same

cause?

> Seems odd that one would be too stretchy and the other not

enough but

> bottom line is weakness either way.

> I haven't searched the web yet to see what is out there on this,

but

> would appreciate what you had to say on the matter.

> Thanks so much,

> fft

>

>

>

Federal Law requires that we warn you of the following:

> 1. Natural methods can sometimes backfire.

> 2. If you are pregnant, consult your physician before using any

natural remedy.

> 3. The Constitution guarantees you the right to be your own

physician and to

> prescribe for your own health.

> We are not medical doctors although MDs are welcome to post here

as long as

> they behave themselves.

> Any opinions put forth by the list members are exactly that, and

any person

> following the advice of anyone posting here does so at their own

risk.

> It is up to you to educate yourself. By accepting advice or

products from list members, you are agreeing to

> be fully responsible for your own health, and hold the List

Owner and members free of any liability.

>

> Dr. Ian Shillington

> Doctor of Naturopathy

> Dr.IanShillington@G...

>

>

>

>

[Guest guest]

Dear FFT,

 

The following is what I could find out about the disorder. Since it only attacks one in 5,000 it is not something I am personally familiar with, nor have I ever personally handled or consulted on such a case.

 

About Marfan Syndrome: What is Marfan Syndrome?

The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.The Marfan syndrome affects men, women and children, and has been found among people of all races and ethnic backgrounds. It is estimated that at least 1 in 5,000 people in the United States have the disorder. For more detailed information, read an excerpt from the NMF booklet The Marfan SyndromeFor a general overview of Marfan syndrome in Spanish, please visit El Síndrome de Marfan, sponsored by NIAMS.

Supposedly it is genetic, and it very well may be, from what I can glean from the above. I'd recommend you do your own investigation into it, to see what you can come up with. From an herbal viewpoint, I'd definitely add Cayenne, Hawthorne, Garlic, Red Clover Blossoms, Motherwort, Ginger, and Cactus Grandiflorus to your research as far as potential solutions. I'd also ensure DMSO was investigated as well for its DNA realignment properties.

 

Hope this helps.

 

In Health and Love,

 

Doc

 

Doc Shillington727-447-5282Doc

 

-

food4tot

herbal remedies

Friday, December 30, 2005 9:15 PM

Herbal Remedies - young death in family/degenerative artery disease

Doc,Having left the medico many years ago, I am familiar with many diseases, but this one I have never heard of.Not only have I not heard of it, but many who I know still in the medico have not.My 15 year old cousin died before she hit the ground this past Oct. She was not excerting herself in the least. Her aorta blew up. She had a growth spurt, it didn't.Her father has it, at the age of 36 his blew up, he survived long enough to have it put back together. They say it will happen again, and his 4 year old surgery is giving way already.So far what little even the specialists know has for the most part been disproven by my family. It doesn't affect only the tall, or every other generation, like they thought, but so far the double jointed theory is correct. Seems it affects double jointed people. There are no symptoms at all. Since her death, in Oct., three more of my family have been diagnosed with it all younger than 40 and another 15 year old. I thought they were playing some medico game trying to put the fear into everyone, but it turns out more family does have this condition, and have died in the past with it.They say death certificates are not accurate...duhhh, no kidding!... and if they were this disease would be easier to track. As if...One cousin has it in all 4 of his hearts arteries. They called it, Morphan disease. I THINK that is the spelling. He has a slight curve in his spine, but none of the others did. His father died at 42 of the same condition sitting on the couch.What would be your educated guess as to what would cause this? And the double jointed thing, it is in essence, weak tendons, same cause? Seems odd that one would be too stretchy and the other not enough but bottom line is weakness either way. I haven't searched the web yet to see what is out there on this, but would appreciate what you had to say on the matter. Thanks so much,fft

[Guest guest]

Doc,

Thanks a bunch.

I did try to check into this, a few days ago, there wasn't much.

Nothing herbal or natural anyway. Just been wading through a bunch

of medico's...sigh...

Well, I am glad that you haven't had any patients with this.

I will check into these herbs, some of them I already use and the

DMSO is on it's way.

The DMSO, is there a limit to the dosage an adult or child (for long

term use) to adhere by?

I was thinking raw glandulars?

I do have some exciting news...

My precious mom is going to do the distilled water, lemon and

hadanero cleanse. I couldn't believe it.

Well, thanks so much again, gotta slip on my boots I am off to

investigate....

fft

 

 

 

 

From an herbal viewpoint, I'd definitely add Cayenne, Hawthorne,

Garlic, Red Clover Blossoms, Motherwort, Ginger, and Cactus

Grandiflorus to your research as far as potential solutions. I'd

also ensure DMSO was investigated as well for its DNA realignment

properties.

>

> Hope this helps.

>

> In Health and Love,

>

> Doc

>

> Doc Shillington

> 727-447-5282

> Doc@A...

[Guest guest]

Dear FFT,

 

You want to start off slowly with DMSO so that one doesn't get suddenly thrown into a full blown healing crisis.

 

With adults, you want to start off with one dropperful. When you stop stinking at that dosage, raise it to two dropperfuls. Five dropperfuls is about the max I'd go for, but remember your 150 Rule of dosages for overweight people. This rule not only works for kids (and please use the 150 Rule for any Kids you're going to give it to), but it also works for overweight people too.

 

For a man who weighed 300 lbs, I'd double the dosage.

IE. 300/150 = 2 when brought down to its basic fraction.

For DMSO this would translate to a maximum of 10 dropperfuls.

 

For a Kid who weighed 50 lbs, I'd cut the dosage to a third.

IE. 50/150 = 1/3rd

For DMSO this would translate to a maximum of around 3 dropperfuls. Please note, that if I were handling an autistic child, or a Downes child, I'd work with full adult dosages or even more.

 

I've personally taken as much as a full 2oz shot glass of DMSO at one time, and besides stinking for three days straight noticed no ill effects. Please realize that I'm in pretty good shape, so there was no major detox turned on by this whereas others who were quite toxic would probably go into full detox mode.

 

Glad things are working out for you.

 

In Health and Love,

 

Doc

 

Doc Shillington727-447-5282Doc

 

-

food4tot

herbal remedies

Thursday, January 12, 2006 11:13 PM

Herbal Remedies - Re: young death in family/degenerative artery disease

Doc,Thanks a bunch.I did try to check into this, a few days ago, there wasn't much. Nothing herbal or natural anyway. Just been wading through a bunch of medico's...sigh...Well, I am glad that you haven't had any patients with this.I will check into these herbs, some of them I already use and the DMSO is on it's way.The DMSO, is there a limit to the dosage an adult or child (for long term use) to adhere by? I was thinking raw glandulars?I do have some exciting news...My precious mom is going to do the distilled water, lemon and hadanero cleanse. I couldn't believe it.Well, thanks so much again, gotta slip on my boots I am off to investigate....;)fft