RE: Early onset alzheimers/ To Terri

[Guest guest]

What did you do to get over this situation?

 

 

 

herbal remedies [herbal remedies ] On Behalf Of maddress

Monday,

November 21, 2005 7:40 AM

To:

herbal remedies

Re: Herbal Remedies -

Early onset alzheimers/dementia--warning, long post!

 

I just mentioned in a previous post that I was ill

with Chronic Fatigue Syndrome (CFS) for 11 years. MUCH of what you

describe your partner experiencing is consistent with CFS: headaches,

nausea, memory and cognition difficulties, speech difficulties. I even

experienced thinning hair, cracking cuticles and dry skin. In addition,

there was bone-deep exhaustion, transitory muscle and joint pain, dizziness,

sore throats, swollen glands, low-grade fevers, massive swings in my sleep

cycle (from insomnia to hypersomnia). But not every person with CFS experiences

every one of these symptoms. And not everyone experiencing these symptoms

has CFS. It's just something for you to investigate.

 

I will tell you that when I was first ill, my test

results came back normal, normal, normal. My doctor would say stuff like,

you're so healthy it's disgusting (attempting to make a joke). My

response was, then why do I feel so sick?

 

As bad as the exhaustion was, I think the memory

and cognition problems were the worst. Until I found out that they are

very common for people with CFS, I thought I was losing my mind. I would

be in a store, and suddenly not know where I was. It wasn't that I didn't

know which store I was in. I didn't know which CITY I was in...or even

which STATE! I eventually stopped driving for awhile because of the

memory problems. It would start with me just suddenly not knowing where I

was or where I was going. It got so bad that I would sometimes pull out

onto a highway, and I wouldn't be able to remember if I had looked for

traffic. It was terrifying. We finally decided that I just wasn't

safe to drive.

 

But it's a close tie with the speech

problems. It's so frustrating to know what you want to say, but to be

unable to form the words. Or to get the words half out, then have no idea

what you were trying to say. Or even worse, to get the words out only to find

out that the wrong words came out. Thanksfully, my family handled this

with a good sense of humor. The day I handed a book to my daughter and

told her to put it in the " oven " (I was thinking " bookcase " )

is a day we laugh about frequently. It was frustrating, but a sense of

humor helped.

 

I'm SO glad those days are over!

 

Terri

 

-

Ginger <vleonard

herbal remedies

Herbal Remedies - Early onset

alzheimers/dementia--warning, long post!

Mon, 21 Nov 2005 11:59:05 -0000

 

>

> 6 years ago, my partner had most of her

thyroid removed due to a

> tumor. She was not put on a thyroid

hormone replacement. Things

> were going fine. About a year ago, she

started losing hair, had

> cracking cuticles, dry skin, headaches,

nausea and began to have

> memory issues. To the point that she'd

be driving to a place she'd

> been to a hundred times and forget how to get

there. This happened

> on several occasions. She'd stumble

over words has if having trouble

> getting them out then would forget words

completely. She finally

> went for MRI and MRA which showed absolutely

nothing unremarkable in

> her brain. In fact, the doctor told her

she had the arteries of a

> newborn. There as no tumor whatsover

which is what we were first

> fearing. She was put on synthroid which

increased her headaches,

> insomnia, nausea. She lost 30lbs in

about a month because she wasn't

> eating. Took herself off the synthroid

and those symptoms

> disappeared although she now says the

headaches are back. She says

> she's still forgetting things and has to

write everything down. I

> don't see the forgetting as much but probably

because I'm at work all

> day. She's supposed to return to the

endocrinologist or neurologist

> next month. I forget which one.

She believes she has early onset

> dementia or alzheimers. She's 43 and in

good health otherwise.

>

> Is there anything I can suggest to help with

the memory or does

> anybody out there have any experience with

this?

 

 

 

" A ship is safe in a harbor - but that's not

what ships were made to do "

 

 

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