Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 this is quite long...... I downloaded it to desktop and read it a bit at a time. I do not think I have ever read anything so accurate - yet so easy to read - about this chronic illness..... particularly what I believe I am suffering from. Names aside.... ME/CFS/FM/FMS etc................. there is a huge debate going on about what to call this illness and what symptoms should be / should not be included in diagnosis....... THEY can waste time and money and energy all they like (sadly). I can highly recommend what this wonderful doc has written.... as valuable and worth reading. Suddenly I feel 'genuine', 'accepted', 'understood' .... even tho I cannot get treatment I know now that what I am experiencing and have experienced is REAL...... and that this Doctor must have been watching me closely (grin) whilst writing this! Ronnie I can't thank you sufficiently for letting me have a link to this valuable website. Clare in Tassie The message is ready to be sent with the following file or link attachments: Faces_of_CFS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 At 01:49 AM 3/30/2008, you wrote: It's amazing when you find someone - or people - who really understand what you're going through. What you're dealing with is one of those diseases that seem to be difficult to quantify, and just as difficult to explain. I'm a very observant person and have always noticed a lot of things most other people don't. I could never understand why people didn't notice the things I did. A lot of people thought I was weird. I thought I was weird - until I met a bunch of other writers, and realized they were just like me in that respect. It wasn't weird - just different than a lot of people. I was in my late 20's or early 30's when that happened. And I felt really " outside " until I realized there were a whole bunch of people just like me in that regard. You're not as alone as you think, kiddo....... Lynn this is quite long...... I downloaded it to desktop and read it a bit at a time. I do not think I have ever read anything so accurate - yet so easy to read - about this chronic illness..... particularly what I believe I am suffering from. Names aside.... ME/CFS/FM/FMS etc................. there is a huge debate going on about what to call this illness and what symptoms should be / should not be included in diagnosis....... THEY can waste time and money and energy all they like (sadly). I can highly recommend what this wonderful doc has written.... as valuable and worth reading. Suddenly I feel 'genuine', 'accepted', 'understood' .... even tho I cannot get treatment I know now that what I am experiencing and have experienced is REAL...... and that this Doctor must have been watching me closely (grin) whilst writing this! Ronnie I can't thank you sufficiently for letting me have a link to this valuable website. Clare in Tassie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 At 07:27 PM 3/30/2008, you wrote: No, I didn't...would you mind resending it please? thanks............L PS. Didn't think you were referring to me, Clares I think, but I'm a Leo which should be no shock to anyone on this group.....*grin* Lynn I wonder if you received my response to your email re auto immune.... I sent it to you off list Hanneke. After reading your email re the CFS book, a thought crossed my mind that you are perhaps Gemini(birth sign)? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 At 10:59 PM 3/30/2008, you wrote: thanks much..........got it.................Lynn Have just resent it Lynn, it was response to post by you. H. Quote Link to comment Share on other sites More sharing options...
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