Fwd:The Autoimmune ...Hanneke

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At 10:23 PM 3/27/2008, you wrote:

Hanneke,

Would you mind sharing what you specifically did and/or took that has

helped you? It couldn't be amalgam, as I don't have any. Vision has

become problematic again of late - it seems it gets more difficult to see

with each day. I'm off to an ophthalmologist today to see what he can

see. It's gotten to the point where reading anything is very difficult -

almost too difficult. If it continues, I don't think I'm going to be able

to see well enough to read anything on the computer, or books. Detail on

large things has become problematic.

I was diagnosed about 20 some years ago ..I forget exactly when. A lot of

people I've known with MS can tell you the exact date of their diagnosis.

But, I figured it out before the doc did. Like many, it took quite a

while before he gave me the diagnosis. And, even then, he didn't want to,

because he was afraid it would impact my being able to get insurance

(health). But, he did so I could qualify for the trials of Betaseron. It

was by lottery then - too many people, not so much drug.

No internet....but read all I could find - that was how I put all my

symptoms together

Also - I've never said I think certain personalities get MS - or that it

necessarily has anything to do with it. Only that I have noticed that

many of the women I've met who had MS, seemed to have certain personality

traits in common....As I said, perhaps I haven't noticed the whiny,

help-me type, as I tend to ignore that type of person as much as I can.

Plus, upon reflection, I doubt if they would have gone to the type of

groups or exercise classes that I have.

But, I do take issue with people who do not know much about the disease,

saying one thing or another is the cause. Or, that something else may not

be an element of it. Outside of the MS community, I have not found many

people who either know people who have MS, or who have studied it or done

research on it. Or, who really know much about it at all, other than a

couple of things which hit the news now and then. Why should they? It

doesn't affect them.......

MS fatigue is a good example - everyone gets tired, but it's not that

hit-the-wall, down to the bone exhaustion that hits many who have MS.

Where you find, all of a sudden, you can barely take the few steps needed

to sit down or get to the car. Many with MS have spoken of the

frustration they have when they try to explain it to someone, and they

reply, " oh, I know. I understand. I get tired (or fatigued)

too. " It's not the same. As most people who have MS will attest to.

Another good example is the heat issue - it's really hard to explain to

someone how the heat can affect you if you have MS. So, I rarely ever

even bother to try anymore.

My observations of people, women in particular, who have MS always remind

me of what I noticed when I worked with thalidimide children a long time

ago - without exception, the children I worked with were very bright, and

really tried to do everything. and to work with, and beyond, what they

had. But, it was a select group. Obviously, there must have been certain

criteria for entrance into that program. Actually, it was like a home,

but clearly, not all thalidimide babies and children were accepted. I

didn't and don't know what the criteria was, but after all these years I

can speculate. So, my view of thalidimide children was colored by those

I'd met.....so, even though I can honestly say I've met a couple of

hundred women over the past 20 or so years who had MS who seemed to have

certain things in common, I don't really think it has anything to do with

it. I think it's just the type of people I prefer associating with. I'm a

fighter, and I like being around other fighters. You may not be the type

who would be a CEO, but you clearly are a fighter. Otherwise, you

would have just sat back and accepted whatever people told you and

wouldn't have tried to do things on your own. See? You fit into the

category of people that I've met .........but, I know, not everyone does

............Not that it really matters, but when I talked about someone

being the type of person who would be a CEO, it wasn't a career

aspiration - it's a type of person, even if they've always been, and

always would be, a stay-at home mom.

Lynn

 

I second the request not to type

in caps... so very hard on the eyes that I usually delete (a possible

very informative) message.

About MS: I tend to disagree with the stereotyping regarding some

personalities being more susceptible than others. Genetic

make-up? maybe

I do know several people who have MS, one lady is in her mid 40's, the

nicest lady, none of the characterics of high flying career

aspirations, far from manipulative like asking for negative

attention using ill health as a means. Another lady, mid 30-s, devastated

after her diagnosis of having MS. She's mum in a young busy family,

farmer's wife.. I have suggested to look at possible overload of toxins

due to farming chemicals. The other lady is now close to 70,

and apart from having battled cancer 2x, has MS, is in wheel chair

and hanging in.

3 different ladies here in my home town and I could categorically say

that personality does not appear to play a role.

Now for myself: I had an MS diagnosis end of the 70's, not a welcome

message after just having given birth to 3rd child. To keep a long story

short, after refusing to accept the diagnosis and about 9 years of

doing research on all and everything I could get my hands on (no

internet!), I determined that it wasn't MS but mercury

poisoning. No neurologist nor doctor would support me in my

findings (they looked at me with a look that said: you poor deluded

woman), so I went ahead on my own, had all mercury removed.

And the rest is history... as the saying goes.

My eyesight in left eye returned fully, colour took a little

longer. Started to put on weight at last although still had to be

careful not to lose it.

It has taken me years to get over the intense fatigue, the allergies,

over sensitivities to certain things. I do believe that it has

permanently compromised my immune system. Dairy is forever off the

menu, intolerance of gluten appears to have stayed with me so

next to no bread unless I bake my own (spelt/quinoa). Diet

does wonders to keep on track.

The personality issue I would not apply to myself either.

On the Silver list, one of the members Nancy Delise, had great

results with consuming colloidal silver

 

http://testimonials.silvermedicine.org/content/ms-cured-argentyn.html

 

She passed away earlier last year due to an accident. However, if

you google for Nancy Delise you will find many articles about the

remarkable results she had with CS as well as her theory underlying MS.

She was an inspiration to many of us.

Hanneke