Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 I am a CFS/ME victim, who was initially diagnosed FMS...... I sure wish I had an answer to give you, I do not - but I will always be happy to share with you. I believe every victim suffers some similar sumptoms and some dissimilar symptoms..... there is no ONE FITS ALL approach. Write to me if you wish I would be happy to journey with you. Clare in Tasmania http://www.mecfscanberra.org.au/aus_info/gdlines/canadiandoc.htm Canadian clinical definition and diagnostic and treatment protocols for ME/CFS and FMS Canada Leads the World! - this is the proud boast of the National ME/FM Action Network - a Canadian consumer organisation based in Ottawa, which has been doing important work coordinating the development of clinical definitions and diagnostic and treatment protocols for CFS/ME and Fibromyalgia. They are called "consensus documents" because each was developed by a panel of international experts with real experience of treating and researching the illnesses. They were developed under the auspices of Health Canada, and the project was driven and guided by the National ME/FM Action Network in Canada. Information about both documents is here on their website. For a short introduction to each, and a comparison of the ME/CFS document with the Australian CFS guidelines, see below. FMS consensus document (2004)ME/CFS consensus document (2003)Why the Canadian ME/CFS Guidelines are better than the Australian ones The new Fibromyalgia Guidelines were published as: "Fibromyalgia Syndrome: Canadian Clinical Working Case Definition, Diagnostic and Treatment Protocols. A Consensus Document" in the Journal of Musculoskeletal Pain 11(4), 2004. Authors include well-known FM practitioners such as Dr Jon Russell , Dr Thomas Romano and Dr Daniel Malone. Lydia Neilson, President of the National ME/FM Action Network in Canada, says: "This comprehensive document provides the family physician a practical tool for diagnosing and treating patients with FMS. There are also a number of helpful suggestions for patients." The article will also be published in a book, The Fibromyalgia Syndrome: A Clinical Definition for Practitioners by the The Haworth Press. You can get a 40% discount until December 1, 2004. (The promotional cost is US$14.97 which is around $21 + Australian.) Order the book online at http://www.haworthpress.com/store/product.asp?sku=5342 and use the promotional discount code FMS40 in the shopping cart to receive the discount. The new Fibromyalgia Guidelines are also available online here [PDF]. NOTE: At the time of writing (10 May 2004) I haven't read the FMS "guidelines", but if they're as good as the ME/CFS ones they will be useful indeed. - Moira The "Canadian guidelines" for ME/CFS were published in a special issue of the Journal of Chronic Fatigue Syndrome ( Vol. 11, No. 1, 2003 ). They were developed under the auspices of Health Canada, who convened an expert panel of internationally known doctors and researchers including such famous names as Dr. Daniel L. Peterson, Dr Nancy Klimas, and Dr Kenny de Meirleir. (personally ... Clare writing here... the Canadian guidelines are the best I have seen and I done a lot of research over the seven years I have been ill) To order the issue of the Journal of Chronic Fatigue Syndrome that contains both the guidelines and other relevant articles, go here to the Haworth Press website. Or go here to read it in PDF format on the National ME/FM Action Network's website.Why the Canadian ME/CFS Guidelines are better than the Australian RACP Guidelines 1. The Australian Guidelines over-emphasise fatigue and do not give a complete or accurate picture of the illness. They specifically exclude overlapping syndromes such as fibromyalgia or irritable bowel syndrome, which for many sufferers are an integral part of their illness. The Canadian Guidelines, in contrast, recognise that ME/CFS is far more than "just tiredness" and take account of the full range of symptoms including neurological, autonomic, neuroendocrine, and immune dysfunction. They also discuss fibromyalgia as part of the overall picture for many patients. 2. The Australian Guidelines portray CFS as a neuropsychiatric disorder linked to depression. The RACP working group, unlike the Canadian expert panel, was dominated by researchers who favor this point of view, and the research they used as evidence research was selected and interpreted to support it. There was a bias towards studies that purport to show the effectiveness of cognitive behavioural therapy and graduated exercise. Inconsistencies and methodological problems (such as, whether the subjects really met the criteria for CFS) were overlooked. On the other hand, many studies showing organic, physical abnormalities were judged not good enough to include as evidence. As a result, the work of some well-known and respected researchers was ignored.* 3. The Australian Guidelines followed a process for developing clinical practice guidelines laid down by the National Health and Medical Research Council. These require that research studies are assigned "quality of evidence ratings" from I to IV. Actual recommendations may only be based on Level I and Level II evidence, ie replicated results from controlled trials. "Consensus opinions of respected authorities, based on clinical experience and/or descriptive reports" are only assigned Level IV - the very lowest level of evidence that may be considered at all reliable - and the clinical experience of an experienced physician does not count at all. Why doesn't this approach work? Because there simply hasn't been enough good research on many aspects of the illness. Much of what we know or believe about the cause and treatment of ME/CFS/FM is the result of pioneering work by practicing doctors who have not been able to devote time and resources to lengthy large-scale research projects. The authors of the Canadian Guidelines (like the authors of the British CMO's report) have recognised this, and they also take patient reports and doctors' clinical experience into account. 4. The Australian Guidelines are based on the Fukuda criteria, which were designed not for diagnostic purposes but to select subjects for research. The Canadian expert panel first developed their own clinical case definition which is a great step forward in its own right. * For more information about the development of the Australian Guidelines, see The CFS Guidelines story. Back to main Australian Guidelines page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 New Guidelines for Fibromyalgia Townsend Letter for Doctors and Patients, April, 2005 by Katherine Duff The Fibromyalgia Syndrome: A Clinical Case Definition for Practitioners I. Jon Russell, MD, PhD, Editor The Haworth Medical Press[R], 10 Alice Street, Binghamton, New York 13904-1580 USA Softcover, 122 pp., $24.95 Few illnesses present as much uncertainty as the diagnosis of Fibromyalgia Syndrome (FMS), for doctors and patients alike. What has served as diagnostic criteria for several years is the American College of Rheumatology (ACR) 1990 Classification Criteria for the Fibromyalgia Syndrome. The primary purpose of the classification was to be able to supply research studies with a uniform selection of FMS patients. Pain being the primary symptom, the ACR Criteria required patients to be sensitive in at least eleven of 18 body sites, called tender points. Physicians have long been aware that the criteria failed to include several other symptoms common to FMS. For practical purposes in community medicine, physicians have had minimal guidance for the identification and treatment of FMS. more................... http://findarticles.com/p/articles/mi_m0ISW/is_261/ai_n13648128 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Try Miracle II bath soaks - it is an easy detox and might help. I have no financial interest in recommending it. We are trying the daily baths at the moment and my husband is walking better already. He is 90. Jane - LauraGeri Saturday, December 08, 2007 5:31 AM Fibromyalgia and chronic pain Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 & I'm happy to give you some homeopathy Clare if you want to give it a go in the New Year? Best, Jane - clare mcconville - harris Saturday, December 08, 2007 6:48 PM Re: Fibromyalgia and chronic pain I am a CFS/ME victim, who was initially diagnosed FMS...... I sure wish I had an answer to give you, I do not - but I will always be happy to share with you. I believe every victim suffers some similar sumptoms and some dissimilar symptoms..... there is no ONE FITS ALL approach. Write to me if you wish I would be happy to journey with you. Clare in Tasmania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Hey Jane I truly appreciate your offer. I am 'finally' seeing a naturopath who is helping me along .... slowly slowly slowly She says she is disapointed that my liver is slow in responding - I seem to have ? absorbtion issues when it comes to minerals etc........ just added silymarin ?sp at her advice of 'double' the recomended dose.... caused me pain in the liver area so I have backed down on dose and will build slowly. I am retrying B12 weekly injections (at home) again - what truly frustrates me are the 'members' of the medical profession ... some have fired me as a patient others I have fired as my doctor....... it has taken me since 2001 to finally meet someone in the 'helth' industry that treats me with respect and does NOT use a one size fits all approach to my bodies ailments. Ther are some neat folks on this list who have been sending me information which I am reading and learing from. right now I am CROOK as they say in Ozzy land....... meaning sick as can be and feeling ILL..... I went into another crash this week, but give me a few days and things will slowly pick up again. I willingly will share my 'limited non GP type' knowledge with other sufferers..... FMS CFS/ME are ugly diseases........ Thanks for reaching out - it is appreciated. Clare in Tassie & I'm happy to give you some homeopathy Clare if you want to give it a go in the New Year? Best, Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 So many illnesses, chronic pain that we have today might be alleviated by a really good detoxification and then excellent nutrition. A saying is, "All illness starts in the colon." If I were you, I would start with a more gentle herbal cleanse, from the health food store, then move on to stricter cleanses, such as from Hulda Clark's books, or The Master Cleanse. Just google them to find the info. Then look at his diet. Does he drink soda pop, eat fast food, sugar, etc. Have him do a three or five day food journal where he writes down everything. Then see where improvements can be made. You could go to a naturopathic doctor to help with this analysis and food allergies. Try NAET, to find out which foods he is allergic to. Changing habits can be difficult, but eventually you reach a point where you are so sick and tired of having chronic pain that you are willing to do anything. Good luck Cat In a messge dated 12/7/2007 11:39:31 PM Pacific Standard Time, luxnet12 writes: Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Hi Laura, Below Dr De Meirleir’s recent views on CFS and you´ll see that he immediately talks of gastrointestinal problems. I have CFS and hubby Fibromyalgia. Both of us got a lottttttt better after we started paying close attention to what we eat. Hubby was completely exhausted and in a lot of muscle pain. After eating gluten free for 3 or 4 days he felt a lotttttttt better. It is over 3 years now and the good results continue. But as soon as we eat something wrong our symptoms reappear but by now we immediately ask ourselves what food or drink could be the culprit and a day or so later we are better again. Just recently we found out that sprouted bread or sourdough bread is OK for us too. As your husband often has nausea he may have liver problems too as I have although I never was a alcoholic (or anything close) but I do have Gilbert´s Disease. I also avoid dairy, MSG, aspartame and fructose and eat low carb. We have a number of friends with FCS and Fibro. I have the impression that those who are willing to change their diet slowly get better. But some say they cannot change the way they are used to eating and most get worse over time. Feel free to ask if you have more questions. Don´t give up and keep looking for answers and solutions. All the best, Yannic ME/CFS & Chronic Infection of the Gut – Notes on Dr. Kenny De Meirleir’s Presentation in Perth http://www.immunesupport.com/library/print.cfm?ID=8489 & t=CFIDS_FM by Blake Graham, BSc, AACNEM*ImmuneSupport.com11-11-2007 In a recent presentation at the University of Western Australia, Dr. Kenny De Meirleir, MD, PhD, explored evidence suggesting that the gut of 80% to 90% of ME/CFS patients may be compromised by bacterial and/or viral pathogen infections, discussed how these may contribute to immune activation, and outlined a range of therapies that may support significant improvements in various ME/CFS symptoms. Dr. De Meirleir is Professor of Physiology, Pathophysiology, Internal Medicine and Sports Medicine at Vrije Universiteit, Brussels, and Clinical Professor, University of Nevada Medical School, USA. Following is a summary of Dr. De Meirleir’s presentation by Clinical Nutritionist Blake Graham, director of the Nutritional Healing clinic in Perth. It is reproduced with permission from Blake’s November 8 posting on the Co-Cure Listserv. * * * * * Dr. Kenny De Meirleir's Lecture on ME/CFS - November 3, 2007 Dr. Kenny De Meirleir, MD, PhD, spoke in Perth, Western Australia on November 3, 2007 at a seminar sponsored by the ME/CFS Society (WA). Kenny has seen over 12,000 CFS patients and first became interested in CFS in 1989. His research team has performed over 4,000 in vitro experiments and published many peer reviewed articles on CFS. I attended both his talks to the general public and to health professionals, plus got the opportunity to ask a large number of questions after the professionals talk. The following is based on written notes and from memory, not directly quoting Kenny. Gastrointestinal Problems More than 80% to 90% of patients have gastrointestinal symptoms. Gastrointestinal abnormalities range from one end of the gastrointestinal tract to the other. n Saliva pH is low (below 7 - acidic) which leads to both dental problems and disturbed oral flora. n Patients display delayed gastric emptying. n Biopsies of gastric mucosa on patients show all patients have atrophic gastritis [chronic inflammation of the stomach mucosa, or lining]. n When biopsy of the cecum is performed infiltration of lymphocytes is also found in all patients. [Lymphocytes are white blood cells with specialized immune functions. The cecum is a pouch where the small intestine transitions to the large intestine. Branching off from it is the small worm-like appendix.] In Kenny's last 100 patients, a point [at] 2 cm right then 2 cm down from the umbilicus is tender after mild pressure. This is the point just above the cecum. Tenderness is a sign of imbalanced intestinal bacteria. Intestinal Mucosal Health Patients have a compromised gastrointestinal mucosal integrity which contributes to immune activation and is a major factor in CFS. The cause of intestinal barrier damage is multifactorial and complex. One factor is likely viruses (Epstein-Barr Virus and HHV-6). EBV attacks the immune system of the gut. Kenny has observed that a significant proportion of patients with CFS have relatives with Crohn's Disease. A genetic predisposition to gastrointestinal problems likely exists. Intestinal Flora Kenny routinely does a blood test for immunoglobulin A (IgA) and immunoglobulin M (IgM) [antibodies] for a range of intestinal bacteria - called the Immunobilan test. He generally starts treatment with antibiotics to lower levels of problematic bacteria, then adds in probiotics. Kenny did a small study using the antibiotic ciprofloxacin and high quality probiotics. Patients reported a 58% improvement and elastase dropped 74%. Kenny most commonly uses a high potency multi-strain probiotic called VSL#3 (http://www.vsl3.com), which contains 450 billion bacteria per serve. Normal probiotics contain 25 billion or less. It mimics the bacteria normally present in the bowel. He also uses MutaflorR, which is a supplement of healthy intestinal Escherichia coli (E. coli) bacteria. At present this product is only available directly from Germany where it is it produced (http://www.metpharmacy.de). Fructose Malabsorption and Lactose Intolerance In a study of 143 patients, fructose malabsorption was found in 45.8% of patients. Lactose intolerance was found in 20.3%. Both can be measured via a simple hydrogen breath test: n 25 grams of fructose or lactose is administered to a fasting patient. n Breath hydrogen levels are measured before administration and at 30 minute intervals for 3.5 hours. Sugar malabsorption contributes to intestinal dysbiosis (bacterial imbalance), among other issues. Fructose malabsorption is treated with a fructose poor diet, while lactose intolerance is treated with a lactose free diet. A high baseline hydrogen breath measurement indicates intestinal bacterial overgrowth. Clinicians can buy the equipment to do the fructose and lactose breath testing in their offices. Kenny believes these intolerances were present before the illness onset, acting as a predisposing factor and may also get worse after illness onset. He observes these issues are often present in family members. Common associations with fructose malabsorption are: Fatty liver. Most patients with fatty liver have fructose malabsorption. Steatorrhea (fat in the stool/fat malabsorption). Constipation. Whereas those with lactose intolerance are more likely to have diarrhea. Hypoglycemia. Most patients with significant hypoglycemia have fructose malabsorption. [Hypoglycemia occurs when blood sugar drops too low to provide enough energy for the body’s activities.] Sensitivity to tyramine. [A compound that is produced as the amino acid tyrosine breaks down and is found in many foods, especially aged cheese, all nuts, and dried, fermented, salted, smoked or pickled foods.] Bloating. Gluten Intolerance Gluten intolerance is also found in a subset of patients. He uses immunoglobulin G (IgG) blood testing for testing gluten sensitivity. Sensitivity to gluten is a spectrum with celiac disease at one end and normal tolerance at the other, rather than tolerance being an all or nothing issue. A range of different levels of sensitivity exist. Diet Kenny's patients consult with his dietitian. A diet is created based on tolerance to fructose, lactose and gluten. He recommends patients drink 3 to 4 liters of water a day. [slightly more than 3 to 4 quarts.] Heavy Metals Kenny uses the MelisaR metal reactivity test (http://www.melisa.org) to assess sensitivity to heavy metals. He also uses provoked urine testing using IV DMPS and EDTA [chelating drugs that bind to certain metals and “pull them out of the body” via the urine]. The two heavy metals most significant are mercury and nickel. Nickel is found in soil and enters our food supply. Amalgam fillings are one source of mercury and Kenny suggests careful removal when patients are sensitive to mercury. Kenny presented in vitro evidence supporting greatly increased sensitivity to the toxic effects of mercury in CFS patients. He has found palladium in some patients, and based on this elevation is able to predict where in Belgium patients live with a high degree of accuracy. Increased levels of heavy metals are likely due to increased intestinal uptake and genetic abnormalities in certain detoxification proteins, including multidrug-resistance protein 1 (MRP1). The two options for treatment include pharmaceutical chelators (DMPS or DMSA) or combination products of herbs/nutrients (dose = 2x1/day) designed for detoxification. The names of the Belgium herbal/nutritional formulas are: n TMD (Toxic Metal Detox – http://www.labosp.com/lib/compendium_an/INT_165.pdf). n HMP (Heavy Metal Protect – http://www.labosp.com/lib/compendium_an/BE_165.pdf). These products contain [as discussed in the pdfs]: GSH (reduced glutathione) Lipoic acid (tiotic) SOD Selenomethionine Vitamin E (DL-alpha-tocopherol) Pycnogenol (OPC extract of grape seed) Vitamin B2 (Riboflavin) Mycelium shitake (atomized) Willow extract Glutathione Glutathione is low in patients. It can be treated via taking LipoceuticalTM Glutathione made by ReadisorbTM (http://www.readisorb.com). Normal oral glutathione is ineffective as it is broken down in the gut, and transdermal glutathione has variable metabolism. The benefit of IV glutathione is relatively short lived. N-acetyl-cysteine (NAC) can also boost glutathione, but large doses are needed (1.8 grams). Nutritional Supplements The basic nutritional supplements Kenny recommends commonly to patients are: Lipoceutical Glutathione Vitamin C Lipoic acid Coenzyme Q10 Alkalizing agents (e.g., potassium bicarbonate). Acetyl-L-carnitine. Nexavir and Vitamin B12 Nexavir (KutapressinR) is used effectively in combination with subcutaneous vitamin B12. In one study of a general group of CFS patients, 63% of patients in the treatment group responded while only 17% of the placebo group responded. In Kenny's experience around half of patients are pain free in 2 to 3 months and sleep often normalizes within a period of 3 days. Nexavir is a liver extract from pigs. It cuts immune activation and lowers elastase. 10 mg of vitamin B12 are used twice weekly in the form of methyl or hydroxy B12. (Most B12 shots contain 1 mg.) B12 scavenges nitric oxide (NO), often clearing up brain fog and helping with cold extremities. Nexavir can be ordered from countries other than the U.S. via a Texas pharmacy called Nexco Pharma (http://www.nexcopharma.com). Isoprinosine and Inosine When asked about the immune modulating medication Isoprinosine (which boosts natural killer cells), he mentioned that the basic amino acid version of inosine is as effective. HHV-6 The role of HHV-6 is being actively debated. A subgroup of patients have a mild HHV-6 related encephalitis. HHV-6 can be treated with antivirals (e.g., ValcyteTM) and immune modulators. HHV-6 is associated with neurological symptoms with extreme fatigue and no pain. Patients with active HHV-6 are usually in the 15 to 35 age group. He doesn't think herpes viruses are the cause of CFS but rather become reactivated. Mycoplasma Mycoplasma (a genus of bacteria lacking cell walls) is active in the presence of low NK and T cell function. Mycoplasma releases antigens which further disrupt immune function. Antibiotics (e.g., doxycycline) for mycoplasma-positive patients have shown success, although it is unclear if this is due to antibiotics treating mycoplasma, Rickettsia (intracellular parasites contracted via bites of ticks or other arthropods) or intestinal bacteria. Chlamydia Pneumoniae Chlamydia pneumoniae is present in a subgroup of patients. It stimulates heat shock proteins leading to immune activation. It can be treated with azithromycin. Rickettsia, Bartonella and Coxiella 8% to 10% of Kenny's patients have an active Rickettsia, Bartonella or Coxiella infection. Only 17% remember having a tick bite. These infections can come from ticks, dogs and cats. Ticks can carry many viruses and other infections. Australian research has found Rickettsia in a significant amount of Australian patients. Candida Candida (yeast) infection is found in some patients and is tested for via IgG. This is treated via diet and antifungals. Yeast is typically resistant to nystatin, so other antifungals are used. A recent study found 20% of patients have elevated bowel Candida levels. Mycotoxins Some patients are affected by mycotoxins - toxins produced by environmental mold. Kenny suspects mycotoxins when two people in the same house have CFS, or when symptoms significantly reduce when leaving your home for a period of days. It is more likely to be an issue in poorly ventilated houses and is known to act as an immune suppressor. Aspergillus Niger has been cultured in some homes of CFS patients. Mycotoxic patients have very low glutathione levels and glutathione helps the removal of mycotoxins from cells. Thyroid Function Thyroid dysfunction is present despite normal blood tests. There is both poor conversion of T4 to T3 and peripheral resistance to T3. Peripheral resistance is present in all dys-immune diseases. An immune activation protein has a 98% homology with the T3 receptor, binding to it and competing with T3. Kenny recommends treating with pure T3. He recommends starting low and titrating up. Patients appear to have destruction of T3 receptors over time - and after a long duration of CFS (e.g., 20 to 25 years) often do not lose weight on extremely low calorie diets (e.g., 800 calories) due to thyroid insensitivity. Sleep When asked about treating insomnia, Kenny said to take away the source of the problem. He stated that with NexavirR his patients often sleep normally after 3 days. If sleep cycle shift is present he treats with melatonin (6 mg) or an old anti-epileptic. (I did not catch the name.) He does sleep studies for sleep apnea and restless leg syndrome when indicated. ___* Blake Graham, BSc, AACNEM, is a clinical nutritionist specializing in nutritional and environmental treatments for patients with ME/CFS, FM, and other chronic conditions. He is an Associate of the Australasian College of Nutritional and Environmental Medicine, directs the Nutritional Healing clinic in Perth (WA) http://www.nutritional-healing.com.au, and publishes a free Nutritional Healing e-Newsletter. Note: This information has not been evaluated by the FDA. It is generic and is not meant to prevent, diagnose, mitigate, or cure any illness, condition, or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team. ©2007 ProHealth, Inc. Copyright PolicyBy: http://www.ImmuneSupport.com Related Articles Related Information Resources http://www.ImmuneSupport.comYour Chronic Fatigue & Fibromyalgia Resource http://www.ProHealthNetwork.comYour Complete Health Resource Chat- Message Boards- Support Groups- Information Libraries Current Events- Research Bulletins- & Much More!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 I just came across this site - I think it is wonderful .... and even though this mans illness is not what your husband has, or what my daughter has, there is still much wisdom on his pages and I hope that you will find out things that may help your husband there. http://home.goulburn.net.au/~shack/introduction.htmCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 I'm only up here in Vic! Best, Jane - clare mcconville - harris Saturday, December 08, 2007 7:52 PM Re: Fibromyalgia and chronic pain Hey Jane I truly appreciate your offer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 go to www.emofree.com, download the manual, and learn the Emotional Freedom Techniques which have had a profound effect in treating all sorts of emotional issues-including pain. Good Luck Hugh LauraGeri <luxnet12 Sent: Friday, December 7, 2007 10:31:36 AM Fibromyalgia and chronic pain Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 After many years of excruciating Fibro pain, I am almost completely pain free, thanks to Dr. Platt and Bio-Identical Progesterone Cream. You can listen to an interview with him at http://www.askclaudia.com/a-time-to-heal/oct292007.htm where he explains his treatment. He is the author of the book "The Miracle of Bio-Identical Hormones - How I Lost My Fatigue, Hot Flashes, ADHD, ADD, Fibromyalgia, PMS, Osteoporosis, Weight, Sexual Dysfunction, Anger and More..." I have only been using his treatment for a month, but I can't recommend him highly enough, he has totally changed my life! For the first time in so many years, I see hope of being healed. This is the miracle cure we have all be searching for! Claudia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Hello Hen & Yan, Thank you very much for the information and links for researching. We will be looking at all and hoping to find help. Sincerely, Laura Hen & Yan <fa034262 wrote: Hi Laura, Below Dr De Meirleir’s recent views on CFS and you´ll see that he immediately talks of gastrointestinal problems. I have CFS and hubby Fibromyalgia. Both of us got a lottttttt better after we started paying close attention to what we eat. Hubby was completely exhausted and in a lot of muscle pain. After eating gluten free for 3 or 4 days he felt a lotttttttt better. It is over 3 years now and the good results continue. But as soon as we eat something wrong our symptoms reappear but by now we immediately ask ourselves what food or drink could be the culprit and a day or so later we are better again. Just recently we found out that sprouted bread or sourdough bread is OK for us too. As your husband often has nausea he may have liver problems too as I have although I never was a alcoholic (or anything close) but I do have Gilbert´s Disease. I also avoid dairy, MSG, aspartame and fructose and eat low carb. We have a number of friends with FCS and Fibro. I have the impression that those who are willing to change their diet slowly get better. But some say they cannot change the way they are used to eating and most get worse over time. Feel free to ask if you have more questions. Don´t give up and keep looking for answers and solutions. All the best, Yannic ME/CFS & Chronic Infection of the Gut – Notes on Dr. Kenny De Meirleir’s Presentation in Perth http://www.immunesupport.com/library/print.cfm?ID=8489 & t=CFIDS_FM by Blake Graham, BSc, AACNEM*ImmuneSupport.com11-11-2007 In a recent presentation at the University of Western Australia, Dr. Kenny De Meirleir, MD, PhD, explored evidence suggesting that the gut of 80% to 90% of ME/CFS patients may be compromised by bacterial and/or viral pathogen infections, discussed how these may contribute to immune activation, and outlined a range of therapies that may support significant improvements in various ME/CFS symptoms. Dr. De Meirleir is Professor of Physiology, Pathophysiology, Internal Medicine and Sports Medicine at Vrije Universiteit, Brussels, and Clinical Professor, University of Nevada Medical School, USA. Following is a summary of Dr. De Meirleir’s presentation by Clinical Nutritionist Blake Graham, director of the Nutritional Healing clinic in Perth. It is reproduced with permission from Blake’s November 8 posting on the Co-Cure Listserv. * * * * * Dr. Kenny De Meirleir's Lecture on ME/CFS - November 3, 2007 Dr. Kenny De Meirleir, MD, PhD, spoke in Perth, Western Australia on November 3, 2007 at a seminar sponsored by the ME/CFS Society (WA). Kenny has seen over 12,000 CFS patients and first became interested in CFS in 1989. His research team has performed over 4,000 in vitro experiments and published many peer reviewed articles on CFS. I attended both his talks to the general public and to health professionals, plus got the opportunity to ask a large number of questions after the professionals talk. The following is based on written notes and from memory, not directly quoting Kenny. Gastrointestinal Problems More than 80% to 90% of patients have gastrointestinal symptoms. Gastrointestinal abnormalities range from one end of the gastrointestinal tract to the other. n Saliva pH is low (below 7 - acidic) which leads to both dental problems and disturbed oral flora. n Patients display delayed gastric emptying. n Biopsies of gastric mucosa on patients show all patients have atrophic gastritis [chronic inflammation of the stomach mucosa, or lining]. n When biopsy of the cecum is performed infiltration of lymphocytes is also found in all patients. [Lymphocytes are white blood cells with specialized immune functions. The cecum is a pouch where the small intestine transitions to the large intestine. Branching off from it is the small worm-like appendix.] In Kenny's last 100 patients, a point [at] 2 cm right then 2 cm down from the umbilicus is tender after mild pressure. This is the point just above the cecum. Tenderness is a sign of imbalanced intestinal bacteria. Intestinal Mucosal Health Patients have a compromised gastrointestinal mucosal integrity which contributes to immune activation and is a major factor in CFS. The cause of intestinal barrier damage is multifactorial and complex. One factor is likely viruses (Epstein-Barr Virus and HHV-6). EBV attacks the immune system of the gut. Kenny has observed that a significant proportion of patients with CFS have relatives with Crohn's Disease. A genetic predisposition to gastrointestinal problems likely exists. Intestinal Flora Kenny routinely does a blood test for immunoglobulin A (IgA) and immunoglobulin M (IgM) [antibodies] for a range of intestinal bacteria - called the Immunobilan test. He generally starts treatment with antibiotics to lower levels of problematic bacteria, then adds in probiotics. Kenny did a small study using the antibiotic ciprofloxacin and high quality probiotics. Patients reported a 58% improvement and elastase dropped 74%. Kenny most commonly uses a high potency multi-strain probiotic called VSL#3 (http://www.vsl3.com), which contains 450 billion bacteria per serve. Normal probiotics contain 25 billion or less. It mimics the bacteria normally present in the bowel. He also uses MutaflorR, which is a supplement of healthy intestinal Escherichia coli (E. coli) bacteria. At present this product is only available directly from Germany where it is it produced (http://www.metpharmacy.de). Fructose Malabsorption and Lactose Intolerance In a study of 143 patients, fructose malabsorption was found in 45.8% of patients. Lactose intolerance was found in 20.3%. Both can be measured via a simple hydrogen breath test: n 25 grams of fructose or lactose is administered to a fasting patient. n Breath hydrogen levels are measured before administration and at 30 minute intervals for 3.5 hours. Sugar malabsorption contributes to intestinal dysbiosis (bacterial imbalance), among other issues. Fructose malabsorption is treated with a fructose poor diet, while lactose intolerance is treated with a lactose free diet. A high baseline hydrogen breath measurement indicates intestinal bacterial overgrowth. Clinicians can buy the equipment to do the fructose and lactose breath testing in their offices. Kenny believes these intolerances were present before the illness onset, acting as a predisposing factor and may also get worse after illness onset. He observes these issues are often present in family members. Common associations with fructose malabsorption are: Fatty liver. Most patients with fatty liver have fructose malabsorption. Steatorrhea (fat in the stool/fat malabsorption). Constipation. Whereas those with lactose intolerance are more likely to have diarrhea. Hypoglycemia. Most patients with significant hypoglycemia have fructose malabsorption. [Hypoglycemia occurs when blood sugar drops too low to provide enough energy for the body’s activities.] Sensitivity to tyramine. [A compound that is produced as the amino acid tyrosine breaks down and is found in many foods, especially aged cheese, all nuts, and dried, fermented, salted, smoked or pickled foods.] Bloating. Gluten Intolerance Gluten intolerance is also found in a subset of patients. He uses immunoglobulin G (IgG) blood testing for testing gluten sensitivity. Sensitivity to gluten is a spectrum with celiac disease at one end and normal tolerance at the other, rather than tolerance being an all or nothing issue. A range of different levels of sensitivity exist. Diet Kenny's patients consult with his dietitian. A diet is created based on tolerance to fructose, lactose and gluten. He recommends patients drink 3 to 4 liters of water a day. [slightly more than 3 to 4 quarts.] Heavy Metals Kenny uses the MelisaR metal reactivity test (http://www.melisa.org) to assess sensitivity to heavy metals. He also uses provoked urine testing using IV DMPS and EDTA [chelating drugs that bind to certain metals and “pull them out of the body” via the urine]. The two heavy metals most significant are mercury and nickel. Nickel is found in soil and enters our food supply. Amalgam fillings are one source of mercury and Kenny suggests careful removal when patients are sensitive to mercury. Kenny presented in vitro evidence supporting greatly increased sensitivity to the toxic effects of mercury in CFS patients. He has found palladium in some patients, and based on this elevation is able to predict where in Belgium patients live with a high degree of accuracy. Increased levels of heavy metals are likely due to increased intestinal uptake and genetic abnormalities in certain detoxification proteins, including multidrug-resistance protein 1 (MRP1). The two options for treatment include pharmaceutical chelators (DMPS or DMSA) or combination products of herbs/nutrients (dose = 2x1/day) designed for detoxification. The names of the Belgium herbal/nutritional formulas are: n TMD (Toxic Metal Detox – http://www.labosp.com/lib/compendium_an/INT_165.pdf). n HMP (Heavy Metal Protect – http://www.labosp.com/lib/compendium_an/BE_165.pdf). These products contain [as discussed in the pdfs]: GSH (reduced glutathione) Lipoic acid (tiotic) SOD Selenomethionine Vitamin E (DL-alpha-tocopherol) Pycnogenol (OPC extract of grape seed) Vitamin B2 (Riboflavin) Mycelium shitake (atomized) Willow extract Glutathione Glutathione is low in patients. It can be treated via taking LipoceuticalTM Glutathione made by ReadisorbTM (http://www.readisorb.com). Normal oral glutathione is ineffective as it is broken down in the gut, and transdermal glutathione has variable metabolism. The benefit of IV glutathione is relatively short lived. N-acetyl-cysteine (NAC) can also boost glutathione, but large doses are needed (1.8 grams). Nutritional Supplements The basic nutritional supplements Kenny recommends commonly to patients are: Lipoceutical Glutathione Vitamin C Lipoic acid Coenzyme Q10 Alkalizing agents (e.g., potassium bicarbonate). Acetyl-L-carnitine. Nexavir and Vitamin B12 Nexavir (KutapressinR) is used effectively in combination with subcutaneous vitamin B12. In one study of a general group of CFS patients, 63% of patients in the treatment group responded while only 17% of the placebo group responded. In Kenny's experience around half of patients are pain free in 2 to 3 months and sleep often normalizes within a period of 3 days. Nexavir is a liver extract from pigs. It cuts immune activation and lowers elastase. 10 mg of vitamin B12 are used twice weekly in the form of methyl or hydroxy B12. (Most B12 shots contain 1 mg.) B12 scavenges nitric oxide (NO), often clearing up brain fog and helping with cold extremities. Nexavir can be ordered from countries other than the U.S. via a Texas pharmacy called Nexco Pharma (http://www.nexcopharma.com). Isoprinosine and Inosine When asked about the immune modulating medication Isoprinosine (which boosts natural killer cells), he mentioned that the basic amino acid version of inosine is as effective. HHV-6 The role of HHV-6 is being actively debated. A subgroup of patients have a mild HHV-6 related encephalitis. HHV-6 can be treated with antivirals (e.g., ValcyteTM) and immune modulators. HHV-6 is associated with neurological symptoms with extreme fatigue and no pain. Patients with active HHV-6 are usually in the 15 to 35 age group. He doesn't think herpes viruses are the cause of CFS but rather become reactivated. Mycoplasma Mycoplasma (a genus of bacteria lacking cell walls) is active in the presence of low NK and T cell function. Mycoplasma releases antigens which further disrupt immune function. Antibiotics (e.g., doxycycline) for mycoplasma-positive patients have shown success, although it is unclear if this is due to antibiotics treating mycoplasma, Rickettsia (intracellular parasites contracted via bites of ticks or other arthropods) or intestinal bacteria. Chlamydia Pneumoniae Chlamydia pneumoniae is present in a subgroup of patients. It stimulates heat shock proteins leading to immune activation. It can be treated with azithromycin. Rickettsia, Bartonella and Coxiella 8% to 10% of Kenny's patients have an active Rickettsia, Bartonella or Coxiella infection. Only 17% remember having a tick bite. These infections can come from ticks, dogs and cats. Ticks can carry many viruses and other infections. Australian research has found Rickettsia in a significant amount of Australian patients. Candida Candida (yeast) infection is found in some patients and is tested for via IgG. This is treated via diet and antifungals. Yeast is typically resistant to nystatin, so other antifungals are used. A recent study found 20% of patients have elevated bowel Candida levels. Mycotoxins Some patients are affected by mycotoxins - toxins produced by environmental mold. Kenny suspects mycotoxins when two people in the same house have CFS, or when symptoms significantly reduce when leaving your home for a period of days. It is more likely to be an issue in poorly ventilated houses and is known to act as an immune suppressor. Aspergillus Niger has been cultured in some homes of CFS patients. Mycotoxic patients have very low glutathione levels and glutathione helps the removal of mycotoxins from cells. Thyroid Function Thyroid dysfunction is present despite normal blood tests. There is both poor conversion of T4 to T3 and peripheral resistance to T3. Peripheral resistance is present in all dys-immune diseases. An immune activation protein has a 98% homology with the T3 receptor, binding to it and competing with T3. Kenny recommends treating with pure T3. He recommends starting low and titrating up. Patients appear to have destruction of T3 receptors over time - and after a long duration of CFS (e.g., 20 to 25 years) often do not lose weight on extremely low calorie diets (e.g., 800 calories) due to thyroid insensitivity. Sleep When asked about treating insomnia, Kenny said to take away the source of the problem. He stated that with NexavirR his patients often sleep normally after 3 days. If sleep cycle shift is present he treats with melatonin (6 mg) or an old anti-epileptic. (I did not catch the name.) He does sleep studies for sleep apnea and restless leg syndrome when indicated. ___* Blake Graham, BSc, AACNEM, is a clinical nutritionist specializing in nutritional and environmental treatments for patients with ME/CFS, FM, and other chronic conditions. He is an Associate of the Australasian College of Nutritional and Environmental Medicine, directs the Nutritional Healing clinic in Perth (WA) http://www.nutritional-healing.com.au, and publishes a free Nutritional Healing e-Newsletter. Note: This information has not been evaluated by the FDA. It is generic and is not meant to prevent, diagnose, mitigate, or cure any illness, condition, or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team. ©2007 ProHealth, Inc. Copyright PolicyBy: http://www.ImmuneSupport.com Related Articles Related Information Resources http://www.ImmuneSupport.comYour Chronic Fatigue & Fibromyalgia Resource http://www.ProHealthNetwork.comYour Complete Health Resource Chat- Message Boards- Support Groups- Information Libraries Current Events- Research Bulletins- & Much More!! Looking for last minute shopping deals? 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Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 What's helped my Fibromyalgia, is buying a memory foam mattress. I also bought a memory foam 2" topper. I can sleep w/o pain, and wake up refreshed. It's not a cure for the pain, but it does afford good sleep. I also sit on a memory foam pillow during the day. It sounds like your husband has IBS, which goes hand in hand with Fibromyalgia. Also with CFS. Hope this helps. Magnolia Hugh Ramsdell <hughman73 wrote: go to www.emofree.com, download the manual, and learn the Emotional Freedom Techniques which have had a profound effect in treating all sorts of emotional issues-including pain. Good Luck Hugh LauraGeri <luxnet12 > Sent: Friday, December 7, 2007 10:31:36 AM Fibromyalgia and chronic pain Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 THANKS JANE FOR BEATING ME TO THE MIRACLE ll DETOX BATHES!!! WHAT NONE OF THE SCIENCE HERE TALKS ABOUT IS THAT FIBRO...IS A DIS-EASE OF HIGH ACIDITY.......LAURAS' HUSBAND HAS A VERY DIFFERENT SOURCE OF HIS ACID PROBLEM, BUT AS SOON AS HE CLEANS OUT WITH THE MIRACLE ll BATHES, AND ALKALIZES THE INSIDE OF HIS BODY, ALL MANNER OF " BAD " THINGS JUST DISAPPEAR..[THE ESSENTIAL OIL OF LAVENDER AND A BLEND CALLED PEACE AND CALMING WOULD HELP WITH PAIN AND SLEEP] .......ONE OF THE REASON'S MIRACLE ll WORKS SO WELL IS BECAUSE IT IS HIGHLY ALKALINE IN NATURE!!!! CANCER CAN NOT LIVE IN AN ALKALINE ENVIRONMENT.........PAIN IS A FUNCTION OF SEVERAL THINGS NOT THE LEAST OF WHICH IS LOW OXYGEN, LOW WATER, AND INFLAMATION .........DEEP BREATHING, USING ANYONES TECHNIQUE WILL DO WONDERS TO START MOVING YOUR LYMPHATIC TREE,DRINKING ALKALIZED ENERGIZED WATER, .....DIDN'T KNOW YOU HAD A LYMPHATIC TREE? PLEASE VISIT SPEEDHEALING.COM.......READ THE WORKS AND TEACHINGS OF DR. C. SAMUAL WEST, ND. CHEMIST AND LYMPHOLOGIST....30 YEARS OF RESEARCH TO SUPPORT HIS TEACHINGS ABOUT MOVING YOUR LYMPHATICS!!!!! HE TEACHES YOU HOW TO FIX ANYTHING USING SPEEDHEALING!..........NEXT BEST THING I KNOW TO DO TO ALKALIZE ANYONE'S SYSTEM IS VISIT THE INNERLIGHTINC.COM SITE OF DR ROBERT YOUNG, PHD. AND HIS INCREDIBLE SUCCESS IN GETTING RID OF JUST ABOUT ANYTHING YOU CAN NAME, BY ALKALIZING YOUR INTERNAL TERRAIN.THRU DIET AND WATER...........OUR INTERNAL ORGANS ARE NOT SUPPOSED TO BE BATHED IN AN ACID ENVIRONMENT.....THIS UGLY SPIRAL CAUSES THE BODY TO PRODUCE FAT CELLS TO PROTECT OUR ORGANS FROM THE ACID.......THIS IS ALSO A NATURAL RESPONSE TO TOXIC CHEMICALS IN THE BODY...FAT CELLS TRY TO SURROUND THE POISON AND SORTA SEQUESTER IT TIL A LATER TIME TO 'DEAL' WITH THESE TOXINS THE BODY IS NOT DESIGNED TO HANDLE! IT GETS PARKED IN FAT CELLS, OLD INJURIES SITES AND THE JOINTS!..........ONCE YOU HAVE CLEANED OUT THE TOXINS WITH MIRACLE ll, OR IF YOU KNOW OF SOMETHING BETTER USE IT AND SHARE THE KNOWLEDGE, THEN BEGIN TO RE-JUVENATE THE DAMAGE DONE THRU ADDING WHAT I CONSIDER TO BE THE MOST POWERFUL LINE OF SUPPLEMENTS ON THE PLANET, ZIQUIN.......A TIBETAN WORD MEANING " ESSENCE OF LIFE " .....ZIQUIN ..COM IS THEIR SITE.......THE SECOND PAIN FACTOR SPOKEN OF HERE COMES FROM INFLAMATION.....ZIQUIN DOES A GREAT JOB OF MAKING THE INFLAMATION GO AWAY........AND INTO A CLEANED OUT BODY, IS A DELIVERY SYSTEM OF ENZYMES AND HORMONES, THE TRUE WORK HORSES OF HOW THE INSIDE OF OUR BODIES OPERATE EFFICIENTLY!] THAT CAN NOW GET TO THE CORRECT RECEPTOR SITES, THAT HAVE REMOVED THE TOXIC CRAP THAT WAS BLOCKING ACCESS FOR THE RIGHT STUFF TO GET TO THE RIGHT PLACE!!!!!.......NOW, OUR ON BOARD HEALER CAN FINALLY TAKE CHARGE.........WHEN WE PUT THE RIGHT STUFF IN OUR BODY, WE CAN THEN GET OUT OF THE WAY AND ALLOW THE TRUE HEALER IN US ALL TO DO THE REAL HEALING..........THE BEST ANY HEALING OR HEALER CAN DO IS TO SUPPORT OUR OWN GOD GIVEN ABILITY TO HEAL OURSELVES.........CLEANSE, DETOXIFY, AND RE-ENERGIZE THRU ALKALIZING........YOUR ENERGY LEVELS START GOING THRU THE ROOF!!!!!!! YOU EAT LESS, BECAUSE YOUR BODY IS NOW OPERATING MUCH MORE EFFICIENTLY AND YOU LITERALLY GET MORE BANG FOR YOUR FOOD BUCK!!!! I HAVE DONE ALL THAT I AM SHARING HERE, AND LIKE JANE, I HAVE NO FINANCIAL CONNECTION TO THESE COMPANIES........AND WITH 11+ YEARS IN ALT. MED. THEY ARE STILL NUMBER ONE IN MY LIFE! BE HAPPY TO ACT AS A GUIDE......MY LATE WIFE AND I HAD TO FIND ALL THIS AND MORE ON OUR OWN, SO I KNOW JUST HOW CRAZY JUMPING IN ON YOUR OWN IS! BUT YOU MUST BE WILLING TO TAKE RESPONSIBILITY FOR YOUR OWN HEALTH CARE......KRAIG Kraig Carroll Environmental Damage Repair --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.859 / Virus Database: 585 - Release 2/14/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2007 Report Share Posted December 8, 2007 Come check out my link in the link section, I'd be more than happy to help you with questions. (Absolutely Life Altering)...Save Time, Money, Your Health and Environment biggerstaff_2001 , LauraGeri <luxnet12 wrote: > > Hello, > > My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called " Gulf War Syndrome " with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. > > We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. > > We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. > > Laura > > > > Never miss a thing. Make your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 Hello Laurie~ I have something that may help your husband. My sister and I both suffer from auto-immune diseases. I have Hidradenitis suppurativa skin disease and she has Multiple Scerosis. I would love to share with you how we became symptom free. I know what you are going through since It was heart wrenching when my sister was in so much pain. She could barley walk or talk. Today she has her life back (we both do)! I have much to share with you of people getting results and becoming pain free..... Laurie my best to you and your husband.. Tracy LauraGeri <luxnet12 wrote: Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2007 Report Share Posted December 9, 2007 , " Jane MacRoss " <highfield1 wrote: > > I'm only up here in Vic! > > Best, > > Jane > - > clare mcconville - harris > > Saturday, December 08, 2007 7:52 PM > Re: Fibromyalgia and chronic pain > > > Hey Jane I truly appreciate your offer. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 Hi Laura, Fibromyalgia has so many symptoms, and so much pain, I have to hand it to you for standing by your husband to be, and trying to not only understand the disease, but help him. It is very hard to understand, and can be very frustrating for the suffer, and for those that love them. I had fought fibro for about 12 years, I was on several scripts, and just seemed like all I did was get worse. It got to the point where I was missing work, and seemed I had no life at all. I spent several days each mo. in bed, hardly able to move from the pain, and so tired I could hardly do anything. I had swelling over my whole body so bad some days I could not go up and down stairs. Every time I went to the Dr. all he did was give me an additional script or two. I was getting so bad, I thought I might have to see about disability. Finally last year, I was so fed up with feeling so bad all the time, that I decided to start doing some research on Fibromyalgia. There is a lot to read about fibro, in books and on line. It took me almost a year to start making some sense of it all. The " Gulf War Syndrome " , if I am not mistaken, has to do with toxic chemicals and pesticides. Toxic chemicals is one of the things that I finally found out about fibro. Chemicals are in many things that we use everyday, I did not realize how dangerous they can be, however to our health. As I researched I found that kitchen, bathroom, and laundry cleaners have a large amount of chemicals and pesticides. I also found that our personal care products, like shampoo, bath soaps, hand soaps, tooth paste, and mouth wash also have a lot of chemicals in them. These chemicals break down the immune system, and low immune system is a big factor with fibro. I also found that trying to stay away from foods with preservatives, pop, fried foods all helped. Eating more fruits and veg., and high fiber helped. You should also know that fruits and veg., can have a lot of pesticides on them, and should be washed was chemical free soaps very well. If the fruit or veg. is imported, it is much higher in pesticides. I try to buy organic when I can, but the price is extremely high on some, and still no real guarantees that they are pesticide free. I found that the vitamins and supplements that I was taking from over the counter, were not much help to me if any. They make them as cheap as possible, so they can make the most money. Most over the counter have a lot of fillers in them, I discover they use ground up plastic, glass and sand in many vitamins and supplements. Very little dissolves, and even less get into our body to help us. This is not a joke, there is very little regulation on over the counter vitamins and supplements. There is also very little regulation on home cleaners, and personal care products. It is truly amazing to me, the lack of regulation on these kinds of products. Do your own research, and you will find, that the FDA is the only one that has any regulation over these products. If you research further you will find, that they weight the cost to the industry, against the cost to human health. The cost to human health, as far as I can see, has to be death. They band things like lead, because it is shown to cause death. Even then it is allowed to be imported from China, in all kinds of products. One of the most important books that I read was Healthy Living in a Toxic world, a book that was written in the late 1990's. The first few chapters talk about symptoms of fibro., but it was written before it became a popular disease, so she does not call it by name. As I read those first few chapters, I could not believe everything she was describing, was exactly what I had been experiencing. Every symptom that she talked about, was caused by toxic chemicals in our products for home and personal care, as well as lawn chemicals. If you do a search for this book on line, you can find it pretty cheap. Another good book that I read was The Hundred Year Lie. I think it came out last year or the year before. It was good reading also. In the end the thing I found that helped me the most, was a lady at a web site called www.smartlivingsense.com She also has fibromyalgia, so she really understands what you need to be able to help yourself. She helped me get really great vitamins and supplements that really work, and a place to shop for safer home and personal products. I would highly recommend it, as it worked so well for me. I am off all my fibro. scripts, and doing so well. I have not had any swelling, and the pain is mostly gone. I can sleep, and do not have the constant fatigue. The more I build up my immune system the better I feel. Well Laura, good luck to you and your husband to be. I feel there is hope for him, and hope he can improve as much as I have. Life is good again! Annie , LauraGeri <luxnet12 wrote: > > Hello, > > My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called " Gulf War Syndrome " with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. > > We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. > > We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. > > Laura > > > > Never miss a thing. Make your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi! I'm Gerri and I've had fibromyalgia for over 10 years. You can try the Rosomoff clinic in Miami. I am now being treated by Dr. Benjamin Lechner in Hallandale Beach, and he seems to be pretty good. Good luck! --- Tanya Biggerstaff <biggerstaff_2001 wrote: > Come check out my link in the link section, I'd be > more than happy to > help you with questions. > > (Absolutely Life Altering)...Save Time, Money, Your > Health and > Environment > > biggerstaff_2001 > , LauraGeri > <luxnet12 wrote: > > > > Hello, > > > > My husband-to-be has been diagnosed with > fibromyalgia. He has > suffered in the past with what has been called " Gulf > War Syndrome " > with no help from doctors. Doctors say they do not > know how to help > him All laboratory tests come back with either a > negative (nothing > wrong) or 'no problems seen' report to him by the > doctor. Now he has > been diagnosed with fibromyalgia. He has almost > constant pain, he > does not sleep well, he cannot nap during the day, > when he does get to > sleepat night he awakens because of the constant > excruciating and > debilitating pain. He has nausea often, and either > diarrhea or > constipation. The pain can be anywhere in his > body--his back, legs, > face, feet, hands (also swelling), arms, joints, > both muscles and > bones it seems. We have noticed that stress in any > form seems to > intensify the pain and nausea. > > > > We are exhausted from this constant pain and > resulting lack of > quality-of-life. We have been to numerous doctors, > and now a famous > Texas clinic which treats fibromyalgia. He is still > in pain. > > > > We would love to hear from anyone who has had > success in dealing > with similar conditions. Thank you in advance for > sharing with us. > > > > Laura > > > > > > > > Never miss a thing. Make your homepage. > > > > > ______________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Iam not sure how much i can help since iam also on a pain free finding mission. I have also been diagnosed with fibermyalgia,osteoarthritis,degenerative disc disease and can only say that i suffered for many years until my nueroligist put me on methadone and somehow i iherantely knew that this is not a good thing for my body because of the addictive nature of the medicine but at this point in my life i just couldnt take the pain anymore and they did what they were supposed to and that is numb the pain so i have some semblence of a life if you will . My quality of life was a disaster prior to the meds and now my quality of life is a disaster because of the meds. Iam also on Darvocets as well i tried several natural remedies none worked but iam begging anyone who might have any information on some new natural remedies that might have worked for them some sort of regimen iam willing to do anything to get of these medicines They are killing me and iam terrified of the ramifications of long term use.I have been on these meds for 1 year the mental phycological impact is extreme ie; forgetfulness,suicidal thoughts,emotional roller coaster ,irritability,mood swings,anger alot of anger and so much more seperate from the physical i can walk get up of the bed in the morning i have range of movement how about i can actually move period but iam giving up so much for so much(sarcasm at my best) any help ican get with my dilemma i would be so grateful!!!!!!!!!!! I dont want to be drugged up anymore and iam scared of what my doctor is doing to me all to shut me up and stop bothering him about my pain and because he cant figure out what to do to help me so he drugged me up instead and like a sheep being led to slaughter i followed all to just be done with the pain. The excruciating pain. cynthia delarosa just plain sad but not going to take this anymore........ T D <ctrs1998 wrote: Hello Laurie~ I have something that may help your husband. My sister and I both suffer from auto-immune diseases. I have Hidradenitis suppurativa skin disease and she has Multiple Scerosis. I would love to share with you how we became symptom free. I know what you are going through since It was heart wrenching when my sister was in so much pain. She could barley walk or talk. Today she has her life back (we both do)! I have much to share with you of people getting results and becoming pain free..... Laurie my best to you and your husband.. Tracy LauraGeri <luxnet12 > wrote: Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hello Cynthia and Laura I have suffered with fibromyalgia for about 4 years and it has been in the last 12-24 months that we have managed to make significant progress, in stages, towards nearly regaining my health. The only two methods of pain relief that worked for me weren't panadeine, ecotrin, ponstan, or voltaren rapid, but panadeine forte. The other method was heat - I would pack wheat bags around my hips, back, shoulders and neck and just sit in my rocker chair for hours, reheating them as needed, until I felt that the pain was sufficiently under control to try to do a few things. The following is a list of things we have used, and continue to use, because each was another step in the right direction - I don't believe there is any ONE answer to cure fibromyalgia because there can be multiple contributing factors, so it needs to be attacked from multiple fronts. Also, it is often a condition which takes years to take hold once the body is weakened enough, so you can only expect that it will take years to slowly repair the damage and rebuild the body to strength again. So ... In the beginning I found Bowtech therapy quite useful, but it wasn't enough on its own. I then added an alkalising diet (as many feel that the root cause is an overly acidic system), and this helped too, but it still wasn't enough on its own (although this brought about one of the first big leaps forward). Then I added colostrum (bovine, not human!), also known as 'transfer factor' (the best and most potent we found was from 4Life), and this helped a lot too, but it still wasn't enough on its own. Then I added twice-weekly chiropractic treatments with an alternative chiropractor over 12 months (as some believe another contributing factor is that if the spine is locked up in any way then the signals from the brain telling the organs, etc, to operate properly aren't getting through effectively and therefore the organs aren't functioning effectively), and this helped too, but it still wasn't enough on its own (although this brought about the second big leap forward). At this point I had to stop the Bowtech therapy as strictly speaking you can't have treatments within 7 days of having a physiotherapy of chiropractic treatment also. Then I added various nutritional supplements to boost my immune system (because there are some who believe that this is also a contributing factor) and build myself up again (we like to only use the most pure and best, so stuck to Neways products, as well as the 4Life ones previously mentioned), and this helped too, but it still wasn't enough. Then I consulted an excellent naturopath who used haemaview (live blood testing) as a diagnostic tool. We see him every 10 weeks and at each visit he repeats the blood viewing test and adjusts the supplements according (he uses mainly Neways and Metagenic products (this one is a naturopath prescription line only). And this helped too, but it still wasn't enough on its own. Then I added in a coral calcium supplement to my drinking water (filtered, not tap water!), as some believe that one of the complicating factors to wellness is poor oxygenation of the body and cells. The product we used is from Xooma and is truly excellent (it also works to alkalinise the water, too). And this helped too, but it still wasn't enough on its own (although this brought about the third big leap forward - I actually experienced a period of about 6-8 weeks initially where I almost felt like a normal human being again!) So with all this in use I have gone from not being able to get out of bed until mid- to late-morning most days, and not at all on others, from having to return to bed for an hour or more each morning some mornings, and then 2-4 hours in the afternoon every day, of terrible insomnia, aching/crushing pain in my hips and lower back, muscle spasms through out my upper and lower back and shoulders and neck, intermittent nausea, debilitating brain fog, nasty abdominal pain and 'scary' problems with my bowel, etc, etc, etc, to now I only need to take tablet pain relief occasionally, use heat treatment from time to time, can get through most days without having to 'crash' back to bed for hours, etc, etc. I'm not totally well but have made huge progress - I can start to contribute to the running of the home instead of leaving it all to my husband, and I can spend time actually 'doing' things with my children instead of seeing them grow up frustrated because they can never do anything with me (except fetch and carry and re-heat wheat bags all the time!). Happy to discuss anything in more detail. Cheers ~ Marina John & Marina Wright South Australia - wright My HS blog page: http://www.homeschoolblogger.com/MissTardy/ My chat group: AusHSevents/ The business we love: http://www.neways.com.au/products/product.htm ---- paul delarosa 6/01/2008 2:53:52 PM Re: Fibromyalgia and chronic pain I am not sure how much i can help since iam also on a pain free finding mission. I have also been diagnosed with fibermyalgia,osteoarthritis,degenerative disc disease and can only say that i suffered for many years until my nueroligist put me on methadone and somehow i iherantely knew that this is not a good thing for my body because of the addictive nature of the medicine but at this point in my life i just couldnt take the pain anymore and they did what they were supposed to and that is numb the pain so i have some semblence of a life if you will . My quality of life was a disaster prior to the meds and now my quality of life is a disaster because of the meds. Iam also on Darvocets as well i tried several natural remedies none worked but iam begging anyone who might have any information on some new natural remedies that might have worked for them some sort of regimen iam willing to do anything to get of these medicines They are killing me and iam terrified of the ramifications of long term use.I have been on these meds for 1 year the mental phycological impact is extreme ie; forgetfulness,suicidal thoughts,emotional roller coaster ,irritability,mood swings,anger alot of anger and so much more seperate from the physical i can walk get up of the bed in the morning i have range of movement how about i can actually move period but iam giving up so much for so much(sarcasm at my best) any help ican get with my dilemma i would be so grateful!!!!!!!!!!! I dont want to be drugged up anymore and iam scared of what my doctor is doing to me all to shut me up and stop bothering him about my pain and because he cant figure out what to do to help me so he drugged me up instead and like a sheep being led to slaughter i followed all to just be done with the pain. The excruciating pain. Cynthia delarosa Just plain sad but not going to take this anymore........ ---- T D <ctrs1998 wrote: Hello Laurie~ I have something that may help your husband. My sister and I both suffer from auto-immune diseases. I have Hidradenitis suppurativa skin disease and she has Multiple Scerosis. I would love to share with you how we became symptom free. I know what you are going through since It was heart wrenching when my sister was in so much pain. She could barley walk or talk. Today she has her life back (we both do)! I have much to share with you of people getting results and becoming pain free..... Laurie my best to you and your husband.. Tracy ---- LauraGeri <luxnet12 > wrote: Hello, My husband-to-be has been diagnosed with fibromyalgia. He has suffered in the past with what has been called "Gulf War Syndrome" with no help from doctors. Doctors say they do not know how to help him All laboratory tests come back with either a negative (nothing wrong) or 'no problems seen' report to him by the doctor. Now he has been diagnosed with fibromyalgia. He has almost constant pain, he does not sleep well, he cannot nap during the day, when he does get to sleepat night he awakens because of the constant excruciating and debilitating pain. He has nausea often, and either diarrhea or constipation. The pain can be anywhere in his body--his back, legs, face, feet, hands (also swelling), arms, joints, both muscles and bones it seems. We have noticed that stress in any form seems to intensify the pain and nausea. We are exhausted from this constant pain and resulting lack of quality-of-life. We have been to numerous doctors, and now a famous Texas clinic which treats fibromyalgia. He is still in pain. We would love to hear from anyone who has had success in dealing with similar conditions. Thank you in advance for sharing with us. Laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi All, My husband who used to have Fibromyalgia and Neuropathy has been greatly helped by going on a gluten free diet. Within days he noticed a biggggg difference. At one point he couldn't walk 100 yards anymore, now he can again walk for miles and is active all day. He still get tired now and then but if he sits down he is OK again within 30 minutes. Recently we discovered that he also does well on sourdough bread. But as soon as he eats something that is wrong his body reacts immediately and some symptoms pop up but within hours he is OK again. I think you will find some very interesting info here: http://www.immunesupport.com/library/print.cfm?ID=8489 & t=CFIDS_FM http://ezinearticles.com/?Brain-And-Neurological-Problems-Affect-Almost-Half-Of-Celiacs-Even-With-A-Gluten-Free-Diet & id=904155 http://ezinearticles.com/?A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole & id=715504 & opt=print I would advice everything to give gluten free a try to see if it makes a difference. It isn't expensive and quite easy. By the way, Trader Joe's has very tasty gluten free bread. Feel free to contact me if you need more info. To our good health, Yannic (fa034262) - paul delarosa Friday, January 04, 2008 9:51 AM Re: Fibromyalgia and chronic pain Iam not sure how much i can help since iam also on a pain free finding mission. I have also been diagnosed with fibermyalgia,osteoarthritis,degenerative disc disease and can only say that i suffered for many years until my nueroligist put me on methadone and somehow i iherantely knew that this is not a good thing for my body because of the addictive nature of the medicine but at this point in my life i just couldnt take the pain anymore and they did what they were supposed to and that is numb the pain so i have some semblence of a life if you will . My quality of life was a disaster prior to the meds and now my quality of life is a disaster because of the meds. Iam also on Darvocets as well i tried several natural remedies none worked but iam begging anyone who might have any information on some new natural remedies that might have worked for them some sort of regimen iam willing to do anything to get of these medicines They are killing me and iam terrified of the ramifications of long term use.I have been on these meds for 1 year the mental phycological impact is extreme ie; forgetfulness,suicidal thoughts,emotional roller coaster ,irritability,mood swings,anger alot of anger and so much more seperate from the physical i can walk get up of the bed in the morning i have range of movement how about i can actually move period but iam giving up so much for so much(sarcasm at my best) any help ican get with my dilemma i would be so grateful!!!!!!!!!!! I dont want to be drugged up anymore and iam scared of what my doctor is doing to me all to shut me up and stop bothering him about my pain and because he cant figure out what to do to help me so he drugged me up instead and like a sheep being led to slaughter i followed all to just be done with the pain. The excruciating pain. cynthia delarosa just plain sad but not going to take this anymore........ TNever miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Yannic I too am trialing a Gluten Free regiem...... it has helped my gastro intestinal symptoms greatly but - as of yet- there is no change in my Chronic Fatigue Sydndrome/ ME and Fibromyalgia pains. I shall read all the links you posted.... thank you very much. It is such a debilitating situation to be in and to be thought of as a hypochondriac by the medical establishment doesn't help! I am happy for you and your husband. Cheer's from Clare in Taz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 My pain is almost gone thanks to Bio-Identical Hormones and change in diet. Since mostly women are affected by fibro, it makes sense that it is hormone related. Listen to Dr. Platt's interview on A Time To Heal Internet Radio http://www.askclaudia.com/a-time-to-heal/oct292007.htm about the miracles he has created for people with Bio-Identical Hormones. He has me using Natural Progesterone Cream prior to each meal to keep the blood sugar balanced. I am on a high protein, low carb diet. As long as I stick to the diet, I have almost no pain at all. If I eat something I am not supposed to, such as sugar or wheat, my pain is immediate. This treatment has created a miracle in my life, and I have only been on it for 2 months. After so many years of pain, I can see a chance of healing this completely. Check it out and see your own miracle. Claudia Quote Link to comment Share on other sites More sharing options...
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