Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Has anyone heard of this? Its like a migraine without the headache, having very odd visual disturbances. My 6 year old son has complained of some symtpoms that sound just like this. http://en.wikipedia.org/wiki/Alice_in_Wonderland_Syndrome http://forum.rikkus.info/simpleforum_pro.cgi?fid=01 Trying to find out as much as I can about it. My first gut instinct is food sensitivities. Even though we have a pretty good diet compared to the typical SAD, I'm going to really clean it up and make sure no nitrates, MSM or artificial colors/flavors get through. Best, Michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Yes, I have heard of it before. In fact, I experienced it when I was a child. I remember that I was trying to sleep but then my vision became distorted. That is, the world around me seemed to change and seem farther away. It disturbed me quite a bit and so I ran downstairs to see my parents. While downstairs, I noticed that things around me seemed to not appear normal. I remember that objects appeared smaller than they normally appeared. This perceptual illusion went away that night, and it never happened again. YB : mmives: Thu, 18 Oct 2007 21:05:54 -0400 Alice in Wonderland Syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 My thought is that it's a chemical reaction to some product. I had just such a headache from the toxic smell of linens at the Marriot the other night. Couldn't bear it anymore and had to move to another hotel instead. I know they are contracted to use Tide and Downey and wash everything in that toxic stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 So it only happened to you that once? I took my son to the doctor today actually. She didn't find anything wrong on examination, but is sending him for a CT scan, and to a pediatric opthamologist (which I wanted done, anyway, just to be safe). I suspect, for him, it is migraines. Do you have migraines now? I've also read that it could be related to epilepsy. Best, Michelle > Yes, I have heard of it before. In fact, I experienced it when I was a > child. I remember that I was trying to sleep but then my vision became > distorted. That is, the world around me seemed to change and seem farther > away. It disturbed me quite a bit and so I ran downstairs to see my > parents. While downstairs, I noticed that things around me seemed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 I don't use any chemicals in my home. I have used only natural cleansers since long before he was born. He is also not vaccinated. I suspect it is food allergies, i.e., food chemicals. He reacts strongly to dye's (blue gatoraide sends him into orbit). It may be MSG. I do not use MSG, but he does visit relatives and friends who buy conventional products that contain MSG. Best, Michelle > My thought is that it's a chemical reaction to some product. I had > just such a headache from the toxic smell of linens at the Marriot the > other night. Couldn't bear it anymore and had to move to another > hotel instead. I know they are contracted to use Tide and Downey and > wash everything in that toxic stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Never heard of this syndrome before but the visual disturbances seem very similar to those I experienced until learning to avoid monosodium glutamate. I've since read that MSG sensitivity may be linked to B6 deficiency. Good luck, Larry , " Michelle Ives " <mmives wrote: > > Has anyone heard of this? Its like a migraine without the headache, having very odd visual disturbances. My 6 year old son has complained of some symtpoms that sound just like this. > > http://en.wikipedia.org/wiki/Alice_in_Wonderland_Syndrome > http://forum.rikkus.info/simpleforum_pro.cgi?fid=01 > > Trying to find out as much as I can about it. > > My first gut instinct is food sensitivities. Even though we have a pretty good diet compared to the typical SAD, I'm going to really clean it up and make sure no nitrates, MSM or artificial colors/flavors get through. > > > Best, > Michelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 This type of visual disturbance is not uncommon in the young - it can be related to constipation and dehydration as well as sensitivity to chemicals, environmental and nutritional Jane >> Has anyone heard of this? Its like a migraine without the headache, > having very odd visual disturbances. My 6 year old son has complained > of some symtpoms that sound just like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Hi Michelle, I have had ocular migraines in the past. Sometimes I would get a headache afterward, sometimes not. If it was mild - I might just notice sparkles of light or my vision would get wavy. On one occasion, I panicked and it got very bad as if I was looking through a Kaleidescope. Then there were holes in my vision. I looked in the mirror to see if there was something in my eye and could only see half my face. It was very disconcerting. That one lasted about 20-30 minutes. I know it has something to do with pressure on the ocular nerves. Splashing cold water on your face helps and if you remain calm it will usually pass without getting severe. I never really determined what caused mine. I have heard that foods that trigger regular migraines can also trigger these - like nuts, chocolate, and cheese. It seemed to always happen to me on days with a sudden weather change, maybe barometric pressure. An optometrist told me that he would get one whenever a bright light reflected back into his face like sun off a car in front of him. I have not had one in over 2 years. I am not sure why but that is about the time I got into rainforest herbs. Maybe they are taking care of some imbalance I had or keeping my trace minerals at a proper level. I know they have helped with my allergies so if that was my trigger it could be another reason why they are gone. If you search on Ocular Migraines - there is a good bit of information out there. Some even have pictures of the kinds of visual distortions so you can show him and see if that is what is happening to him. Let him know that the calmer he is when it happens, the faster it will go away. Take care. Claire , " MasterScytale " <larrygfox wrote: > > Never heard of this syndrome before but the visual disturbances seem > very similar to those I experienced until learning to avoid monosodium > glutamate. I've since read that MSG sensitivity may be linked to B6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 I suspect it is the chemicals. Thank you. That said, he went to the pediatrician yesterday who found nothing wrong on an office exam, but to be safe, he is having a CT today, and will be seeing a pediatric opthamologist. Best, Michelle > This type of visual disturbance is not uncommon in the young - it can be > related to constipation and dehydration as well as sensitivity to > chemicals, > environmental and nutritional > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Hi Claire -- thank you for sharing. This is definately different though. I looked up ocular migraines. HE does not get those disturbances at all. What he gets, is that suddenly things (usually people's heads) will look extremely large. It lasts anywhere from a few seconds to a half hour. It mostly happens in the evening when he is laying down for bed, but is beginning to happen more often earlier in the evening, and sometimes during school. Luckily, it does not scare him. He actually thinks its kinda cool to torture his sister by telling her that her head or butt looks big. She, of course, responds by screaming, crying and carrying on. ;-) Best, Michelle > I have had ocular migraines in the past. Sometimes I would get a > headache afterward, sometimes not. If it was mild - I might just > notice sparkles of light or my vision would get wavy. On one > occasion, I panicked and it got very bad as if I was looking through > a Kaleidescope. Then there were holes in my vision. I looked in the > mirror to see if there was something in my eye and could only see > half my face. It was very disconcerting. That one lasted about 20-30 > minutes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Hi Michelle: My sense is that on a spiritual/emotional/mental level the syndrome has to do with a deep fear of one's perception of the world around him or her. According to one of the links, it is the brain's interpretation of what is seen through the eyes. There appears to be a mental belief/perception of fear and distortion of one's surroundings...which could be attributed to lack of trust and security. Nicole. Quote Link to comment Share on other sites More sharing options...
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