Endometriosis and Meckel's diverticulitis

[Guest guest]

Hey everyone,

So glad i just found this group.Long story but please take the time to read im

at the end of my tether and any advice would be appreciated anyone who has

insight into what could be wrong with me and what i can do!

 

I am female, this problem appear to start when i was around 7 years old, from

what i can remember and from stories my mother tells me i use to wake up

screaming in pain in my genitals the pain was not specific to any area but the

pain was intense, it resulted in me going backwards and forwards to doctors, the

doctors thinking that i was being sexual molested(from what i remember i was not

and i think i would remember!) eventually they put a camera up my urethra(not

sure the medical name for this procedure)but they came to no conclusion other

than that i had a hormone imbalance that was causing the pain so the put me on a

course of hormonal creams that apparently they give to women going through the

menopause. The pains did reduce and became not as frequent but still to this day

i get the pains every now and then.

 

Around 7 years ago i became ill with severe stomach pains and extreme fatigue.

after 6 or so months out of education and after being rushed into A & E twice and

them coming to no conclusion i had a laparoscopy , they removed my appendix and

found that i had meckels diverticulitis the also removed this. A couple of days

after the operation i developed colic, i remember waking and feeling the gas

moving up my arms and into my neck?! it was quite severe and i was rushed back

in and put on two drips. Although the acute pains stopped enough for me enough

to try to go back to school i still got bad pains and now i was plagued with

constant gas,the same fatigue,with severe period pains and bleeding out of my

anus when i menstruated. The pain i was in when i went for a poo on my period

did not last long but was one of the worse pains iv ever felt, i had/have to

bite something/or squeeze something with me hand to stop myself crying and

screaming. The pain i get when have the severe period pains i cannot actually

cry i am in that much pain( if that makes sense?!) i have to concentrate on

breathing and not fainting, the severe(ist!) pains start 2-8 hours before i

actually start bleeding, they 9/10 wake me up. I've never lasted without having

to take painkillers, although i would love to im to much of a wimp to get

through the pain without them and honestly quite worried as to what would

happen. with painkillers they usually subsided within 30mins but who knows how

long they would last if i didnt take them. I have figured out a type of pattern

with them, they start off like waves and gradually get worse and worse until i

have to either stagger or crawl to the bathroom, my body the forces me to expel

anything in my system urine, poop, sick, at this point i get extremely hot and

break out in a sweat and then feeling very very faint my vision usually totally

goes for a minute of two just total black. then i have a few seconds to get to

somewhere to lay down for the pains to get worse and worse til they eventually

peak then i break out in a cold sweat then they get less and less until the

stop.

 

The other symptoms i have is constant wind but usually with colicky pains, the

specialist who operated on me told me that if i got any other pains that i had

IBS.( I never actually told him about bleeding from my anus when menstruating,

everything is a blurr but i remember it happening and just so scared of going

back to the hospital from the pain i was in being there i did not want another

operation ever again. ) These pains are manageable unless i am around a vast

number of other people, people have come up with all different conclusions such

as that i make it up to not have to see people, that it is part of me being

slightly psychic and picking up on other peoples physical problems or emotions,

or that it is part of the social phobia i developed when starting with the

stomach problems 7 years ago.

 

Things i have tried to heal or at least help the problems are:

Reiki

Crystals

Visualizations

Diet( low estrogen, vegan,raw vegan, vegetarian, no gluten)

Bowen

Shiatsu

Affirminations( from the louise hay books)

Herbal medicine

Exercise

 

All of these things have definatley helped in some shape or form, but sadly no

results with the actually physical problems. I thought i was regaining health

again and managed to hold down a job for 7 months only to develop what appeared

to be heat stroke this summer and gradually was having to keep leaving work due

to sickness, on off diarrhea, very very weak and tired my job being physically

demanding made it impossible to work when like this, my accommodation was

attached to my job my boss has been very understandable and has kept my job open

for me( it helps that i work at a holistic horse centre). I went to the doctors

had had blood tests as they thought it would be my thyroid?! turns out it wasnt

and as the doctor said it could of been a couple of months before i got in with

a specialist(as she suspected endometriosis)i had to leave where i was living

and my job to come and live at my mothers house.I have now been back here for 5

months, when i first came back i was very positive and thought i would be here

for a month or so then back again, sadly i was wrong. First of all my beliefs

and experiences are that natural things heal things wheras modern orthodox

medicine masks and causes things to worsen and sometimes to disperse into other

illness. I was quite ignorant in regards to healing endometriosis especially, i

had seen and heard how easy other illness's were to heal naturally but there

doesnt seem to be much written positively on endo just precautions and with

other illness being weaved into it..

 

again sorry for the long message but please any advice appreciated!!