Morgellons - Communications with the CDC

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http://www.crossinglines.net/communications_with_the_cdc.htm

 

 

Communications with the CDC

 

 

 

southcity [southcity]

Friday, May 05, 2006 8:19 PM

Rutz, Dan (CDC/NCID/OD)

pregnancy and the transmission of morgellons disease

 

 

 

Hello Mr. Rutz, Dr. Gerberding,

 

 

 

My name is and I am hoping that you could answer a few

questions for me concerning this new and emerging illness some are

calling morgellons disease. I have had it for going on 4 years, and

this illness, as I am not quite certain the CDC is aware, is

definitely contagious, infectious or both. I say this with certainty

because after 2 years of suffering from it, the acute symptoms

gradually became less to the point where I believed myself over it.

That is when I met my fiancé and she moved in with me. Perhaps I

simply became accustomed to the sensations this illness causes, as I

obviously still carried it. I am not sure how the transmission to her

occurred, sexually perhaps? I do not know for certain as others close

to me have not yet shown symptoms. I say yet simply because it took a

little more than 1 year from the time moved in, until she began

showing the acute stages of this nightmare. So in our case anyway,

besides being persistent, this is infectious/contagious or both, and

latent. For just how long is a good question, but for her it took a

little more than 1 year. It has now been a little more than one year

since then, and now both of our symptoms have lessened considerably.

But now we have reason for all the concern one can imagine.

is Pregnant. 15 weeks. Which leads me to my questions.

 

 

 

Is the CDC even aware of this disorder? If so, what is being done

about it? Is anything being done about it?

 

 

 

Do you have any clue as to what is causing this illness, or ideas

towards its susceptibility pattern?

 

 

 

Can you recommend any type of treatment options?

 

 

 

Do you know anything concerning the transmission of this pathogen to a

newborn? Or any information concerning this illness related to

pregnancy? Are you aware of any others that have gone full term which

could inform or prepare us as to what to expect or ways of avoiding

any problems with our baby?

 

 

 

Why has there been no public notification concerning this illness by

the CDC? It is, without question, spreading rather quickly now. Could

you please explain to me why there has been no public offering of

information or warnings issued?

 

 

 

Can you offer any thoughts concerning the video claiming to document

this pathogen found at www.silentsuperbug.com? His theory is a bit

unbelievable and very frightening considering the fact that what is

shown in the video is the exact same things I have seen on myself.

 

 

 

I have many other questions, but these are a good start. Because of

the pregnancy, time is critical and we anxiously await your reply.

 

 

 

Thank you for your time

 

p.s. Please do not respond with something ridiculous such as

recommending us to qualified physicians, Unless you can confidently

refer us to one. They are without clue and very quick to refer to

psychiatrist. We live in the san Francisco bay area, but are

willing to travel for " qualified " help. Again, thank you for your time.

 

 

 

 

 

 

 

Rutz, Dan (CDC/NCID/OD) [dwr1]

Monday, May 08, 2006 10:03 AM

southcity

RE: pregnancy and the transmission of morgellons disease

 

 

 

Dear :

 

 

 

I am a communications specialist involved with CDC

activities around the condition you describe. CDC is aware of the

disorder and is working toward a better understanding of it, beginning

with the development of a case definition that will begin to address

commonalities and distinctions. There is, at this time, no evidence

of an infectious agent, so we are not able to address questions raised

about that aspect. It is our intention and hope to characterize the

situation. Your P.S. aside, you are best advised to seek medical

attention for any troubling symptoms and, of course, seek credible

prenatal care as well. Thank you for your correspondence. /

 

Dan Rutz, MPH

Special Assistant for Communications

National Center for Infectious Diseases (NCID)

Centers for Disease Control and Prevention (CDC)

 

 

 

 

 

 

southcity [southcity]

Wednesday, May 10, 2006 2:09 AM

Rutz, Dan (CDC/NCID/OD)

RE: pregnancy and the transmission of morgellons disease

 

 

 

Hello Mr Rutz.

 

 

 

Thank you for your reply. Having had a day to absorb your words and

also to read more about your career history and current position as

special advisor, has confirmed my thoughts as to the fact that we are

in quite a bit of trouble in regards to this illness. This would also

explain the lack of public notification as to the reality of this

disorder. If this was not the case I doubt someone of your

qualifications would be the one leading the media activities around

this illness. I simply want to know that this is being taken

seriously by all federal health agencies and to understand the delay

in public action on their parts. As I am writing this, I am listening

to your lecture on crisis communication at Emory university. A good

lecture with a very frightening undertone.

 

 

 

I have a few more questions if you will allow me. I noticed that you

did not use the term morgellons. Does the CDC have a different name

for these symptoms that they prefer to use?

 

 

 

Of course there is and will continue to be proper prenatal care, but

may I ask if the effects of this illness during pregnancy have been

looked into at all yet? If so can you share this information so I can

pass it along to our GP and OBGYN. This would be most appreciated.

 

 

 

Can you share the CDC's thoughts concerning the findings presented in

the video found either at www.crossinglines.net or the update to that

video which is found at www.silentsuperbug.com?

 

 

 

Lastly, you stated that it is the CDC's intention and hope to

characterize the situation. I would like to state the symptoms

experienced by my fiancé and myself, match almost exactly those given

in this draft case definition provided by the Morgellons research

foundation. see http://www.morgellons.org/casedef.html for original

of the copy below.

 

 

 

Can you please provide more details as to the CDC's efforts and

current work being done on this problem? Could you please also

include the reason or justification in allowing the continued

psychiatric diagnoses currently being given by physicians,

 

 

 

Your words and advice are very much appreciated and held with respect.

 

Again, Thank you for your time.

 

 

 

 

 

Rutz, Dan (CDC/NCID/OD) [dwr1]

Wednesday, May 10, 2006 8:34 AM

southcity

RE: pregnancy and the transmission of morgellons disease

 

 

 

Dear Mr. :

 

 

 

First, allow me to please make clear to you, as in our

previous correspondence, that I am a communications specialist and not

a doctor. CDC subject matter experts (who are doctors) are conferring

on how best to scientifically characterize this situation. Arriving

at scientifically valid information—which is most useful in coming up

with the answers you seek, requires careful thought and planning. We

are fully engaged in that process. Regarding the term " morgellons " we

would, at this point, employ it hesitantly, in the absence of a

scientifically vetted case definition. The spectrum of complaints,

e.g, symptoms, and sensations, described under this heading requires a

disciplined approach to determine whether or not a single label is

appropriate. It is important, therefore, to develop the necessary

data. Most of the answers you seek are dependent on careful steps,

taken under scientific discipline. This approach, while possibly

appearing tedious offers the best chance of cutting to the quick on

what is or is not clinically relevant. Only with that understanding

can the professional community lift the cloud of speculation that

presently hangs low over this matter.

 

 

 

Thank you for your understanding. /

 

 

 

Dan Rutz, MPH

Special Assistant for Communications

 

 

 

 

southcity

 

Subj: RE: pregnancy and the transmission of morgellons disease

 

Mon Jun 5, 2006 8:41 am

 

Size: 15K

 

" Rutz, Dan \(CDC/NCID/OD\) " <dwr1

 

Hello Mr. Rutz,

 

much has changed as of now from our last communication. My fiancé and

I lost our baby boy, an 18th week pregnancy. All tests as to why this

has happened, have thus far given no definite reason. Perhaps it is

simply one of those things in life that happens and I am aware this is

somewhat common. But I do not believe this in the least to be the

reason we lost our child.

 

I understand the Cdc is launching an investigation into this illness,

and I would certainly hope that this is not a smokescreen attempt to

allow this issue to run its course with hopes of it burning itself out.

 

The strongest proof as to this illness's being caused by a released

product of experimental genomic/proteomic research is shown at

www.silentsuperbug.com. Of all explanations ever presented, this is

the only one that appears to hold water. Please explain the science in

the microscopic images presented in that video to me. The only thing I

understand about the video is the macroscopic images shown of which is

exactly that we are currently seeing on ourselves. This is an

identical match and cannot be anything but the very same thing.. ( I

am referring to the dissemination of this in the skin. This is the

most common thing noticed by us that is shown exactly in this video

that we are able to see in ourselves at this moment)

 

Because of the loss of our baby, and the serious nature of what is

implied by the makers of the video, I will be following the activities

of the Cdc around this issue closely, and if needed or necessary, will

hold the CDC and the NIH responsible for not only our recent loss, but

also any future loss of health, career, family, etc., because of lack

of vigilance, or lack of competency on the part of these institutions.

 

thank you for your time