CDC Probes Bizarre Morgellons Condition

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Wed, 09 Aug 2006 21:06:49 -0000

CDC Probes Bizarre Morgellons Condition

 

 

 

Oh boy, the government and the shrinks are hot on the trail. We know

how much they care about everyones health, so everything will be just

fine now......

 

 

 

 

Health News

 

Verna Gallagher, who claims to be suffering from a rare infliction

called, Morgellons, is seen in ...

 

CDC Probes Bizarre Morgellons Condition

By MIKE STOBBE, AP Medical Writer

Tue Aug 8, 8:15 PM

 

ATLANTA - Imagine your body pocked by erupting sores. The sensation

of little bugs crawling all over you. And worst of all, mysterious

red and blue fibers sprouting from your skin.

 

It may sound like a macabre science fiction movie, but a growing

legion of Americans say they suffer from this condition. And now the

U.S. Centers for Disease Control and Prevention is investigating.

 

Some doctors dismiss these patients as delusional. But the condition

_ called Morgellons _ has caused a small frenzy on the Internet, with

hundreds of people pleading for help.

 

" Sometimes the government doesn't want to panic people until they can

figure out a definitive cause, " said Pat Boddie, a 62-year-old

Alabama woman who said she's had Morgellons for 14 years.

 

" They're trying to figure out if this is going to be an epidemic. I

hate to tell them, but it already is, " she said.

 

The CDC has been receiving as many as 20 calls a day from self-

diagnosed Morgellons patients. The agency has been urged to

investigate by, among others, U.S. Sen. Dianne Feinstein of

California.

 

" We're going into this with an open mind, " said Dan Rutz, spokesman

for a CDC Morgellons task force that began meeting in June.

 

But so far there is no evidence of an infectious agent, and health

officials say there is not yet enough evidence even to call it a

disease.

 

People claiming to have Morgellons report a wide variety of symptoms,

ranging from joint pain to irregular bowel movements. But most

describe crawling sensations along the skin, sores, fatigue, " brain

fog, " and the appearance of small or microscopic fibers on or under

the skin.

 

Some say they've suffered for decades, but the syndrome did not get a

name until 2002, when the name " Morgellons " (pronounced mor-GELL-uns)

was chosen by Mary Leitao. The South Carolina woman, who said her son

suffers from the condition, founded the Morgellons Research

Foundation.

 

She found the name in a 1674 medical paper that described a condition

called Morgellons, with symptoms somewhat like her son's. So she

began using the name. " I never expected it to stick, " she said.

 

Leitao's organization has become a leading source of information and

research advocacy, but it too has become controversial.

 

Last week, at least three of the eight members of the organization

resigned over disagreements with Leitao, the executive director,

about how she's been running the foundation. One member _ the board's

chairman _ sent a letter to the U.S. Internal Revenue Service, saying

Leitao had failed to produce requested financial records and he

voiced suspicions of financial impropriety.

 

Another board member who resigned, Dr. Greg Smith, a Gainesville,

Ga., pediatrician, had recently posted a donations-soliciting letter

for the foundation on an Internet site frequented by Morgellons

patients. Last week, he posted a retraction.

 

" I cannot in good faith ask anyone to contribute to the foundation, "

Smith wrote.

 

Leitao described the controversy as " a power struggle " and said she's

done nothing illegal.

 

Also resigning from the organization was Randy Wymore, an Oklahoma

State University assistant professor of pharmacology. He was the

organization's director of research.

 

Wymore had initiated the relationship last year. But because of the

in-fighting he said he decided to distance himself. " The research I'm

doing is not affected by this, " Wymore added.

 

Until the CDC task force, Wymore was seen as the most reputable

scientist to research Morgellons, although he was trained in

molecular biology, not clinical disease or fibrous materials.

 

He recruited two Oklahoma State faculty physicians. They tweezed

fibers from beneath the skin of some Morgellons patients who visited

the Oklahoma State Center for Health Sciences in Tulsa in February,

Wymore said, and sent those samples to the Tulsa Police Department's

forensic laboratory.

 

The police checked the samples against carpet and clothing fibers and

other materials, and conducted chemical analyses and other tests.

Nothing matched, said Mark Boese, the police lab's director.

 

" How it is being produced, I don't know, " Boese said. He theorized

the fibers could be produced by human hair follicles that somehow

encapsulated pollutants processed by the body.

 

Some doctors believe Morgellons is produced by the mind, not the body.

 

" I think of Morgellons as a piece of a larger phenomenon _ delusional

parasitosis, " said Dr. Annette Matthews, a psychiatrist at the Oregon

Health & Science University in Portland.

 

Delusional parasitosis is a psychosis in which sufferers believe they

are infected with parasites. Often the patients have a real-life

problem with scabies, lice, or some other tiny attackers, but then

imagine they are continuing to plague them, Matthews said.

 

Asked about reports of multiple Morgellons cases within a family,

Matthews said delusions are transmissible _ the psychiatric term

is 'folie a deux,' for instances in which people come to share a

delusion.

 

Some people will biopsy themselves, or seek large quantities of

antibiotics, herbal remedies, industrial bug killers and other

expensive and potentially harmful treatments, she said.

 

The CDC's Rutz said there may be several subgroups among the people

who identify themselves as Morgellons sufferers. One group may have

delusional parasitosis, but another may have something else.

 

The 12-person CDC task force includes two pathologists, a

toxicologist, an ethicist, a mental health expert and specialists in

infectious, parasitic, environmental and chronic disease. The group

is developing a case definition of Morgellons.

 

It's impossible to say how many people have Morgellons without a

commonly accepted way to define it. The Morgellons Research

Foundation believes the number is at least 5,500, based on the number

of families registered with the organization's Web site.

 

Hopefully, a CDC case definition will lead some physicians to stop

treating Morgellons patients like they're crazy, said Smith, the

Georgia pediatrician and a Morgellons sufferer.

 

" A lot of physicians think that if it's not in the textbooks, it's

not real, " said Smith, who said a fiber once slid across his eyeball

and then burrowed in.

 

Verna Gallagher, 48, said she's been seeing a dermatologist for

nearly a year. " (But) he doesn't believe in Morgellons. He

said 'That's not a real thing,' " said Gallagher, of Roseville,

Calif., near Sacramento.

 

But while her doctor dismisses the fibers as lint, Gallagher says he

is concerned that she may become suicidal. " I cry, and he says I have

to live my life " and tells here to write down things that she likes

to do.

 

Meanwhile, she says she is plagued by tiny dark specks and fibers

that infest her house. She's paid for exterminators, taken

antidepressants, bathed in Borax and spent hundreds on vitamins,

garlic pills and other potential remedies.

 

" Nothing's helped, " she said.

 

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