for Margaret Helm-Duell : was Need Aromatherapist Suggestions

[Guest guest]

Oh Margaret, I am just now getting around to reading my mail and found this.

Please let me give you a message for your friend.

I have had PseudoTumor Cerebri for 7 years. And for the last five years

I've been in remission. It is very unusual to hear of someone recovering from

this strange disorder, but I am one of them. I had spinal taps, vision testing

every month, multiple doctors 'teaming' up to plan my treatment, and I

researched and read everything I could find on it. I started Diamox (the

medication that treats the cranial pappilidema) at 250mg a day and increased

every week until I reached 2000mg twice a day which seemed to be the level that

enabled me to function. Anyway, we aren't sure what helped, but I'm definitely

symptom free today with the exception of my vision. I did have permanent vision

damage but it seems to be halted for now. When the Diamox is increased it's

awful, each time it took me several days to adjust to it with nausea and other

symptoms, but then it leveled off and was okay until the next increase. It's

tough. I wish your friend the best, I wish there was a cure for this horrible

rare disorder. There is no telling when mine might return, and of course

everytime I have a headache I'm quite nervous. The headaches were extremely

dibilitating.

There is a good support group on line but I can't remember the name of it

now, a search on would probably find it. There is an increasing number of

teenagers and young children being diagnosed with it. :/

 

Tell your friend that aromatherapy, herbal teas, relaxation techniques,

rest, and avoiding stress are important. And take the medication.

How nice to have a concerned and thoughtful friend like you!

 

Oh, I also wanted to say that even though she says she doesn't like lavender, a

calming/relaxing blend that contains lavender would be good and she probably

wouldn't even recognize the lavender in it.

 

Regards, Simone

 

Simone Karsman

http://www.FlutterbyeAromatics.com

Basic needs for Natural Living & Healing

 

 

 

Margaret Helm-Duell wrote:

 

>Hi all,

>

>I have a friend that has Pseudotumor Celebri or IIH. Basically what it is,

>is she has extreme pressure on her optic nerve and it is causing her to

>loose her sight gradually. She is on modern medications to help relieve the

>amount on cerebral spinal fluid which contributes to the pressure on the

>nerve. This condition is quite rare and there is no cure. The only hope of

>saving her vision is to reduce that pressure. She has times when the

>pain/pressure on the nerve is so great that she can not function. At these

>times she uses a warm compress on her eyes and tries to relax to help the

>pain. I would like to purchase an oil burner/diffuser for her and would

>like to purchase any eo's that might contribute to her relaxation during the

>times it is at it's worst. She doesn't like lavender so that is out. Is

>there an eo that can help? Any advise or suggestions would be greatly

>appreciated.

>

>Margaret

>

>