Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Dear Ones, I have been lurking for a while and I hope you can help with my question. The lady is 62 and has been diagnosed with this malady. At times she is strong enough to rise out of her wheelchair and transfer, at other times she struggles and fails. Her disesase has been down hill for the 30 yrs that I have known her. She did walk some when I first met her as well as wash dishes and do some machine sewing. Over the yrs. she has lost much of that ability. Mostly she just transfers from her chair to the bed or toilet. She can dress herself, fed herself, as well as operate a computer. What is odd is 20 - 30 minutes between tries to get up she accomplishes the effort. In between she can be so frustrated I feel for her. Is there any help for the nerves/muscles to work better? The MD's have told her the nerves feed the muscles and sometimes they don't. Then the muscles don't work and if it continues it will die a little at a time. So far the prognosis has been right. Is there any way of stopping the progression? Thanks for any help! Sincerly, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Hi Kim, Is there only weakness or twitching and numbness and any signs of internal wind? What's her tongue and pulse say? What does she think it is? What tests were run by her neurologist? Have you considered a secondary vessel treatment? Perhaps after differentiating whether a divergent, luo or extraordinary vessel treatment is indicated... Is she filled with grief or despair (or both) prior to the onset thirty years ago? I'm assuming this isn't MS or some such western label/diagnosis other than the ABMA... If there is even the slightest suspicion of adverse reactions to artificial sweeteners with her, she must stop any intake of Nutrasweet, Splenda, Saccharine, etc. They're are really debilitating poisons for lots of us with all sorts of strange paralytic, neoplastic formations and nerve type symptoms. See links. http://www.wnho.net/history_of_aspartame.htm http://www.naturalnews.com/008952.html http://www.mercola.com/article/aspartame/fda_safety_study.htm Out of my realm but some sort of chelated therapy or nutritional supplementation to offset the deterioration. Can you tell us more? Perhaps privately if that's appropriate? Pete - kimmarie2124 Chinese Traditional Medicine Friday, May 30, 2008 10:53 PM [Chinese Traditional Medicine] atypical bilateral muscle atrophy Dear Ones, I have been lurking for a while and I hope you can help with my question. The lady is 62 and has been diagnosed with this malady. At times she is strong enough to rise out of her wheelchair and transfer, at other times she struggles and fails. Her disesase has been down hill for the 30 yrs that I have known her. She did walk some when I first met her as well as wash dishes and do some machine sewing. Over the yrs. she has lost much of that ability. Mostly she just transfers from her chair to the bed or toilet. She can dress herself, fed herself, as well as operate a computer. What is odd is 20 - 30 minutes between tries to get up she accomplishes the effort. In between she can be so frustrated I feel for her. Is there any help for the nerves/muscles to work better? The MD's have told her the nerves feed the muscles and sometimes they don't. Then the muscles don't work and if it continues it will die a little at a time. So far the prognosis has been right. Is there any way of stopping the progression? Thanks for any help! Sincerly, Kim Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.4/1474 - Release 5/30/2008 7:44 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 On Fri, May 30, 2008 at 7:53 PM, kimmarie2124 <scarbroughkim wrote: > Dear Ones, I have been lurking for a while and I hope you can > help with my question. > > The lady is 62 and has been diagnosed with this malady. At times she > is strong enough to rise out of her wheelchair and transfer, at other > times she struggles and fails. > " this malady " is more of a description than a known disease process. " atypical bilateral muscle atrophy " means " unusual loss of muscle mass on both sides " . That says very little beyond the obvious observations. " Atypical " can also be read as " of unknown origin " . > Her disesase has been down hill for the 30 yrs that I have known > her. She did walk some when I first met her as well as wash dishes > and do some machine sewing. > Processes that last 30 years are considered chronic and for that reason are generally assumed to be due to a deficiency of something, especially when the result is weakness. Over the yrs. she has lost much of that ability. Mostly she just > transfers from her chair to the bed or toilet. She can dress herself, > fed herself, as well as operate a computer. > > What is odd is 20 - 30 minutes between tries to get up she > accomplishes the effort. In between she can be so frustrated I feel > for her. Is there any help for the nerves/muscles to work better? > > The MD's have told her the nerves feed the muscles and sometimes they > don't. Then the muscles don't work and if it continues it will die a > little at a time. So far the prognosis has been right. Is there any > way of stopping the progression? > Perhaps. I've seen muscular dystrophy slowed and sometimes halted with acupuncture. But this is only a symptom, and until one can see the big picture, it is hard to make any particular statement. This would be called a " wei " or atrophy or wilting syndrome. There are a few common approaches to this using herbs, and a few others using acupuncture. The patterns that show up from the herbal standpoint include: 1. Lung heat with damage to liquids: this is going to look like the fatigue one feels when sick with a fever, or in the wake of a fever where there has been a lot of sweating or fluid loss (vomiting, diarrhea, etc.) Rx: qing zao jiu fei tang 2. Soddening by damp-heat: this atrophy may present with edema and/or numbness. The lower limbs may turn red too. The limbs will feel heavy and there will be an overall desire for cool temperatures over warm. Might also see burning urination, yellow explosive diarrhea and vaginal discharge of the turbid yellow to green type. Rx: Er Miao San 3. Spleen or Stomach deficiency: expect to also see lack of appetite, sloppy or loose stools, puffy face, lusterless complexion. Rs. Shen Ling Bai Zhu San. If there is also sensitivity to cold, one can add warming herbs such as Fu Zi (Rx. Aconite) and/or Gan Jiang (baked ginger). If there is a deficiency of both qi and blood, add huang qi and dang gui. 4. Liver / Kidney depletion: probably associated with low back pain, dizziness, tinnitus (ringing in ears), urinary or fecal incontinence. There are oodles of herbs and formulas for this pattern since the Kidney can lack yin, yang, qi, or jing, or a mixture of any or all. Acupuncture is also a great way to get those nerves woken up. The key channel considered important is the " yang ming " which is the Stomach and Large Intestine channels. Even some good strong acupressure along these trajectories can help. Now these four differentiations are (literally) the textbook examples. There are a whole host of related factors, such as in the case of #3, if the Liver is stressed or pissed, it can mess with the functioning of the Earth element organs (Spleen/Stomach) and unless the Liver is calmed, the Spleen and Stomach will not be easily strengthened. But that's not something easily determined at this stage of the process by someone outside of the field. If you can see a relationship between emotional stress and the exasperation of her symptoms, that would be supportive of this issue, but there are other signs and symptoms that would need to conform too. So there you have it. If your friend is in a major metropolitan area, acupuncture may be available. If not, herbs may be able to be tracked down. Worse case scenario, consider a shiatsu practitioner. Their massage favors channel trajectories and would provide your friend with a rather pleasant therapy efficacious or not. -al. -- , DAOM Pain is inevitable, suffering is optional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Hello, it has been quite some time since I posted here but would like to make a suggestion for a Western drug which is used for MS, cancer, parkinson's, autoimmune and other diseases. There is a group dedicated to the use of this medication here on . The medication is used at low dose and is off label use by doctors ( originally prescribed for heroin and alchohol addiction at much higher doses than used for MS and these other diseases): Low Dose Naltrexone Many patients say this helps them tremendously to regain energy and sometimes lost body functions. Others only slow progression of what disease they have. Still it might be worth a look/see on the . Here is a web site which has a video and also some further extensive discussion of this medication: http://www.lowdosenaltrexone.org/ Here's just one little quote from this website: " Animal Trials of LDN > Research on Neurodegeneration at NIEHS Suggests a Protective Naltrexone Role J.S. Hong, Ph.D., head of the Neuropharmacology Section of the Laboratory of Pharmacology and Chemistry at the National Institute of Environmental Health Sciences, finds that " morphinan " drugs, including naltrexone and naloxone, are able to reduce inflammatory reactions in microglia brain cells in animal studies. Such inflammation is believed to be central to the progressive neurodegenerative effects seen in disorders such as Parkinson’s disease and Alzheimer’s disease. Hong’s report, summarizing the role of microglia in inflammation-related neurodegeneration and the potential of therapy using morphinans, appears in a January 2007 issue of Nature Reviews Neuroscience [8(1):57-69]. " best, Sarah Quote Link to comment Share on other sites More sharing options...
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