[SecretsNowRevealed] THE PAIN OF 'NEW AUTISM'

[Guest guest]

At 07:38 AM 7/30/07, you wrote:

>I Can Vouch For The Pain Of " New Autism " .

>Posted by: " Jagannath Chatterjee " jagchat01 jagchat01

>Sun Jul 29, 2007 6:13 pm (PST)

>Dear Friends,

>

>I can vouch for what Dr Bryan says, as he describes the " new autism " . The

>gut, the entire nervous and neuro-muscular system, the brain are severely

>affected. It is very difficult to accurately describe what goes on.

>Imagine all sorts of boring insects gnawing at your innards and wasps,

>flies and mosquitoes bothering you from the outside and you may come near.

>

>An autistic feels his entire nervous system all the time, mostly because

>of the pain. The pain in the guts and inflammatory brain pains are

>simultaneous. The brain feels jammed with accessing the memory a

>tantalising inch away. You feel your entire memory may be wiped out at any

>moment and the brain may just flicker out and die leaving you a total blank.

>

>The soles become extremely sensitive and painful, hence the tendency to

>walk on the toes. This sort of stretching also relieves the neuro-muscular

>pain for some time. The head banging, moving around in circles, is due to

>the awesome intestinal colic that is madding. Sometimes this colic appears

>in the solar plexus region forcing you to bend double.

>

>You are past caring leading to the fearless state that autistic's exhibit.

>What could be worse than this, is the underlying thought. People, even

>God, say there is a limit to pain. Try telling that to an autistic. Never

>ending pain is the only thing that is constant in his life.

>

>The guts loose the ability to retain stools. All emotions are reflected in

>the guts leading to a further deterrioration of the situation. Even a

>slight anxiety necessitates a rush to the toilet.

>

>You feel tired and exhausted all the time. Even sleep exhausts. You

>desparately try to escape the hell hole that is life but you do not know how.

>

>It is very difficult to tackle even ordinary situations. You get used to a

>certain pattern with great difficulty and when things change, ever more

>subtly, you panic at the thought of having to re-adjust once again. Change

>is anathema to the autistic. Even the thought of being cured may be

>daunting for a cure may mean a different world, a world about which you

>have no idea.

>

>Your moods, your symptoms, your fears change all the time.Each day is new

>and brings a fresh set of problems. If change is what you hate, change is

>what you get. This is an irrefutable law of life and autistics cannot

>escape it.

>

>You do not want to face the world outside. It is full of unexpected tricks

>and turns. Coupled with an affected gut, the situation makes even the

>thought of travel break into a cold sweat. At times of stress such as

>these the memory may suffer a total blackout. On two occasions I have

>alighted at a station with no idea of who I am and what I was doing there.

>A very frightening situation, I can assure you. Meeting strangers is

>difficult because you don't have them mapped out in your brain.

>

>The depression never lifts. You often feel like retiring to a corner of a

>dark room and curling up. The external world being so frightening, the

>autistic creates a world within and is happy there.

>

>The worst thing is, you know. You know your difficulties, you know your

>shortcomings, and in my case, I know what caused it. You also know that

>you are not supposed to be like this. That you ought to be normal. That

>you ARE normal but this malfunctioning body and brain comes in between.

>When this feeling becomes overwhelming you snap. You go crazy. You scream,

>you cry, you hurt others, you run away. You are termed a schizophrenic.

>

>You are not free of pain even in your sleep. You dream of even greater

>pain. You dream of not being able to do what others do sans a thought. You

>dream of facing exams without a shred of memory in your brain. You dream

>of doing the wrong thing even as you know what is right. Your dreams are

>full of anxiety. Such dreams rob you of the much required rest and you get

>up feeling frightened and totally exhausted.

>

>Oh, how wonderful it would be to simply vanish and not exist. There would

>be less trouble for yourself, your care givers, and the world in general.

>The autistic is only too acutely aware that he is a burden unto others.

>The problem is accentuated by a tremendous sense of duty, a great desire

>to care for others, a love for work, a struggle to be perfect. The intense

>battle that rages relentlessly within is often lost in the expressionless

>face of the autistic.

>

>This is a peep into the world of autism. This is the autism that only the

>sufferer knows. This is the " new autism " that Dr Bryan speaks of, the

>latest gift of medical science to the world's children, and some adults.

>

>God bless them, even though they know what they are doing.

>

>Regards,

>Jagannath.

>

>Deseret Morning News, Friday, July 27, 2007

>Author focuses on 'new autism'

>By Elaine Jarvik

>

>Deseret Morning News

>

>http://deseretnews.com/dn/view/0,1249,695195442,00.html

>Here's what Dr. Bryan Jepson thought he knew about autism six years ago:

>that it was a rare, genetic, developmental, untreatable brain disorder.

>But that's the " old autism, " he says.

>

>Bryan Jepson

>

>Jepson, who graduated from the University of Utah School of Medicine in

>1995, says what he knew about autism then he mostly learned from the movie

> " Rain Man. " Later, in 2001, his lovable, happy 18-month-old baby began to

>change — to " fade away, " as Jepson puts it. The toddler no longer wanted

>to be read to, wouldn't look his parents in the eye and liked to spin in

>circles in the middle of the floor.

>

>A child psychiatrist told Jepson and his wife, Laurie, " Prepare yourself

>for the time when Aaron will need to be institutionalized. Forget

>experimental therapies. "

>

>Instead, Laurie Jepson took to the Internet. And before long, her husband

>— who categorizes himself as a " mainstream " physician — was deep in

>medical literature about the biochemistry of autism. Soon he was convinced

>that autism is a complex metabolic disease that has as much to do with the

>gut as it does with the brain.

>

>Bryan Jepson, who is now director of medical services at Thoughtful House

>Center for Children in Austin, Texas, is back in Utah this week to talk

>about his new book, " Changing the Course of Autism: A Scientific Approach

>for Parents and Physicians. " On Saturday, he will speak at a free workshop

>sponsored by Porter's Hope, a Utah-based company that assists the families

>of children diagnosed with autism.

>

> " All of a sudden, there's an explosion of autistic kids, " Jepson says. As

>recently as 1980, autism was rare, with a rate of about 1 in 5,000. Now,

>he says, it's 1 in 160.

>

>It's an epidemic, he says, " and there's no such thing as a genetic epidemic. "

>

>At the same time, the " new autism " is less likely to show up within the

>first six months or year of a baby's life, and is much more likely to be

> " regressive, " showing up at 18 months to 3 years to rob the child of

>previous skills — sometimes almost overnight, sometimes as a gradual decline.

>

>There's a genetic susceptibility for autism. But something else has to

>explain the sudden rise in numbers — and it's not simply a matter of

>better diagnosis or a broader definition of what autism means, he says.

>

>The answer appears to have something to do with the increased toxicity of

>the environment, he says, from food additives to vaccines and antibiotics.

>Children who are born with a genetic susceptibility for autism have

>trouble detoxifying, he says.

>

>The increase in other chronic diseases such as asthma is evidence that

>autistic children may also be proof of what's to come, he says. " It's kind

>of like the canary in the coal mine. "

>

>Already, he says, the treatments he uses have helped children with

>attention-deficit hyperactive disorder, or ADHD, as well as autism. He

>believes that eventually the knowledge of how autism works will affect our

>understanding of conditions such as chronic fatigue, dementia and Parkinson's.

>

>Jepson's book is a review of scientific studies conducted by the Autism

>Research Institute, whose founder, Bernard Rimland, was " the first to put

>the puzzle pieces together, " Jepson says. The book also examines studies

>done by independent scientists.

>

>Many primary-care physicians and pediatricians are not up-to-date on the

>latest research, he says, " and it's hard to do autism in the 15 minutes "

>allocated for many doctor visits. Jepson, who founded the Children's

>Biomedical Center of Utah before moving in 2006 to Texas, says he knows of

>only two Utah doctors who are currently treating autism as a medical

>disease rather than a behavioral disorder.

>

>Calling autism a behavioral disorder, says Jepson, is like calling a tumor

>a headache. Instead, he says, autism is just one symptom of a disease

>process that affects the digestive, immune and neurological systems.

>

>The majority of children with autism have gastrointestinal problems,

>sometimes causing severe pain. Their tantrums and head banging may be a

>manifestation of pain they can't articulate, Jepson says. If the gut

>disease is treated — with diet, nutritional supplements and medication —

>that behavior goes away.

>

> " Your gut is an immune organ, and it can trigger inflammation elsewhere in

>the body, including the brain, " he explains. " And it's a big source of

>your metabolism. If it's not working right, you're not getting the

>appropriate amount of nutrients from your food, and you're not preventing

>toxic exposures as you otherwise would. "

>

>The sooner children are put on aggressive

>gastrointestinal-immune-detoxification treatment, the more likely they are

>to recover, he says. There's still no cure, he says, but the vast majority

>improve. The Jepsons' son has gone from " pretty severe to pretty moderate. "

>

>E-mail: jarvik

>

>© 2007 Deseret News Publishing Company

>

>What if a “dirty bomb” exploded over a large segment of U.S.population

>that simultaneously exposed citizens to Hepatitis B,Hepatitis A, tetanus,

>pertussis, diphtheria, three strains of polio viruses, three strains of

>influenza, measles, mumps, and rubella viruses, two types of meningitis,

>four strains of herpes viruses, the chickenpox virus, 7 strains of

>Streptococcus bacteria, and four strains of rotavirus.

>

>• We would declare a national emergency.

>• It would be an “extreme act of BIOTERRORISM

>• The public outcry would be immense and our government would react

>accordingly.

>

>And yet, those are the very organisms we inject into our babies and our

>small children in multiple doses, with immature, underdeveloped

>immunesystems, many at the same time with vaccines.

>But instead of bioterrorism, we call it “protection.” Reflect on that irony.

>

>- Dr Sheri Tenpenny, MD

 

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Kraig and Shirley Carroll ... in the woods of SE Kentucky

http://www.thehavens.com/

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