Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 http://www.badbugs.org/ Medical Mismanagement The bowel parasites Dientamoeba fragilis and Blastocystis hominis were discovered in the early 1900s. Almost a century later, as the examples on this site shows, the pathogenicity debate has not been settled. This debate can create insurmountable barriers to recovery, as the Canadian man below, with B.hominis shows. His story is typical of emails received since 1998 when my site was established: " I have been living with several severe symptoms for 12 years now - chronic fatigue, abdominal pain, weight loss, etc. I have seen many specialists but nobody seems to be able to help me. Last year, I did a parasitology test and received the results but nobody wants to treat it. I cried for an hour just reading your web site and all these stories. For the first time in my 12 years I found people that live with the same kind of problems as I do. Almost incredible to me! " (January 05) An Irish student struggled to cope for four years with an untreated D.fragilis infection. Despite losing a quarter of his body weight his GP advised D.fragilis does not cause symptoms: " Every single aspect of life is a struggle at the moment for me. I cannot plan anything and even if I have a night out with my friends I find it hard to eat the next day even though I have only been drinking water on the night out. The nausea comes all the way from my stomach to my mouth, it is so overwhelming at times that it is painful to be conscious. " (Ireland , July 2005) More examples of medical mismanagement: Dientamoeba fragilis Blastocystis hominis other's stories " Once again I wanted to say how totally grateful I am to you for putting your informational website together...if you hadn't done it myself & so many others would not have the necessary details to get the proper treatment in order to beat this stubborn parasite! Your website also made me feel very supported and not alone in how I was feeling...at some points I thought that my symptoms were all in my head & that I was going crazy! " read Mary-Anne's story here N. suffered with bloating, gas, constipation, dizziness, fuzzy headedness, and lethargy for 22 years. He wrote " I can't tell you the impact this has had on my life " ....cont S., infected for eight years with Dientamoeba fragilis misdiagnosed as Irritable Bowel Syndrome (IBS) recovered after specialised treatment....cont Suffering chronic digestive symptoms C, from the UK, bypassed doctors sceptical of the need for specialised stool testing, by enlisting the aid of her vet....cont " My doctor refused to consider (that Dientamoeba fragilis and Blastocystis hominis) were causing my health problems, and referred me for a full abdominal CAT scan. It was his view that I might well have an aortic aneurysm, and that it was entirely possible I was only moments away from an imminent rupture, and instant death. " Read T's attempts to get treated by the US health authorities...here Finding a doctor to take his D.fragilis and B.hominis test result seriously was not an easy task for this man...cont lab testing Published literature, spanning decades, proves that specialised stool collection and testing methods significantly increase the detection of Blastocystis hominis, and is essential to diagnose Dientamoeba fragilis. Although more doctors are becoming aware of the importance of specialised testing, according to site feedback, many remain unconvinced and also question the legitimacy of specialist labs: " When I mentioned GSD to my gastro doctor he kind of snickered and said they have nice looking reports but I would not trust the results. He also said that D fragilis does not stay in the body that long and that if I still had a parasite it would more likely be Giardia. " (Canada. Nov. 2005) Treatment: Flagyl is still the most commonly prescribed drug for treating B.hominis, but is it effective? Based on published medical literature and site feedback the failure rate is unacceptably high. " I just found out I have blasto hominis and found your site. I mentioned to the Dr. that your site doesn't recommend Flagyl, but that is what he prescribed. It is kind of spooky how your site predicted the Dr.'s comments even down to telling me the this bacteria doesn't cause symptoms but they will treat it because I might have something else. " (Nov 2005) Blastocystis hominis treatments as well as information about the need for specialised treatments for D.fragilis and B.hominis. Irritable Bowel Syndrome Irritable Bowel Syndrome (IBS) affects almost one quarter of the population in developed countries. The symptoms of IBS are very similar to those of D.fragilis and B.hominis. Despite this authoritative IBS literature fails to recommend specialised stool collection and testing methods for people exhibiting IBS symptoms. more diet How does restricting, starchy foods help during parasitic infections? - Find out here my story For seven years specialist gastroenterologists refused to consider the possibility that Dientamoeba fragilis was contributing to my chronic health problems. Uninterested in the extensive scientific literature I had collected from a university medical library I was left to cope with a parasite described in later medical literature as able to cause " severe bowel distress " Full story here Quote Link to comment Share on other sites More sharing options...
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