Delusional Parasitosis - two sites

[Guest guest]

http://thecomfortzone.org/

 

This site is for the sufferers of an unknown skin disease that may

manifest itself as non-healing skin lesions; lesions with fibers;

black specks; lesions due to resistant bacterial infection; biting,

itching and crawling sensations; track marks on skin; " fiber balls " or

" glitter " emerging from lesions; on face, scalp and/or body.

 

Skin symptoms are commonly accompanied by symptoms unrelated to skin,

including Chronic Fatigue Syndrome (CFS), Fibromyalgia (ME), joint

pain, and significant problems with concentration and memory (brain

fog). Candida, and other fungal infections, are common among these

suffers.

 

Several independent foundations, or organizations are currently

researching this disease. Some theories currently, and previously

researched / discussed are: infestation of the skin by Collembola

(springtails), co-infections of certain auto-immune diseases (i.e.,

Lyme Disease), severe gram-negative bacteria infection

(Stenotrophomonas Maltophilia), co-infections of systemic fungal

infections, nematode infestations and unknown drug resistant pathogens.

 

No one knows what's causing this. It seems a medical mystery. Many

who suffer from this disease are called crazy and labeled DOP

(Deusions of Parasitosis). Once labeled as DOP, procuring further

physical treatment is extremely difficult, if not impossible.

 

There are many that have been ravaged by this disease, that know it

is VERY REAL. Doctors are unable, and unwilling, to find the cause

or effective treatment. Lack of treatment sends the sufferer into a

debilitating spiral of declining health, and finances, until lives and

relationships are destroyed.

 

Sound dramatic? Think this is just another one of those " internet

nut " sites, talking about things that just COULDN'T be possible?

 

Decide for yourself. Take a cruise through the webring and see

information that's out there. READ , WATCH, LISTEN to the media

stories of family, after family, afflicted with this disease. READ

the papers and information on research. LOOK at the photos. Ask

yourself " what if this happened to me? " .

 

I didn't think it would happen to me. But it did. And two years,

and several thousand dollars, later...........it's still happening to

me. Two years later, I see more and more people appearing with these

symptoms, that can't get help.

 

I built this site for one reason. TO RAISE AWARENESS. I am not

aligned, or affiliated with, any particular organization / foundation.

I don't care who finds the cause, as long as someone does and figures

out to treat it. No stone should be left unturned.

 

So for this reason, this site is basically a data repository, and

discussion group, that includes anything I can find on this disease,

without prejudice.

 

Sure, I have my personal opinions. But that's what they are.

Opinions. I will not let any personal opinion influence the data

shared on this site. ALL data found will be included in the

" skinlesionsandfibers " webring. ALL topics are suitable for

discussion in the message board, as long as posts adhere to the basic

proboards.com, terms and conditions.

 

This site is raw, and in your face, data. It's for the individual to

decide what applies to them and how they use it. Maybe if we get

enough data out there, in one place, someone will pay attention.

 

So if you are a sufferer, WELCOME. If you are a doctor, or

researcher, WE NEED YOU. If you are just curious, TAKE A TOUR

THROUGH THE WEBRING, MEDIA LINKS, AND INFORMATIONAL LINKS. If you can

sleep, afterwards, give me the number of your XANAX provider. But

most of all tell everyone you know.

 

Thanks for visiting, and please check back regularly for updates!

 

Vitae Summa Brevis Spem Nos Vetat Incohare Longam

 

 

 

 

http://dpref.com/

 

 

Ever Hopeful's Delusions

 

I came down with Delusions of Parasitosis in 2001. This bizarre

syndrome is also called Delusional Parasitosis, Delusionary

Parasitosis, Neurocutaneous Syndrome, Monosymptomatic Hypochondriasis,

or even DOP or DP for short. Although dermatologists think they know

everything they need to know about this condition, and can usually

diagnose it in minutes, they still do not know what causes it. (For

more information on DOP and its history in medicine and science, click

here: A Brief Introduction to the Concept & Science of DOP.)

 

Oddly enough, my delusions, although mostly microscopic, are

completely capable of being photographed. Using an inexpensive digital

microscope made by Intel and marketed for schoolchildren, I have made

many pictures and videos of my delusions. This website offers a few,

selected for being the most representative or illustrative. In fact,

the border on this and the other text pages is made from an image of a

starfish delusion, shrunk and cropped. With one exception, the photos

on the photo pages have not been " doctored " in anyway, except for

cropping and, in a couple of cases, resizing to fit the page. The

exception is the first image of the sandal thing, which was pasted

together from two pictures, only because the thing was too large to

fit in one photo. None of the other images has been touched up,

airbrushed, had anything added or removed, or changed in any way. To

see what some of my delusions look like, click on one of the links below.

 

I began studying and photographing my delusions on my own to try

to identify their source, so that I could get well. I thought that,

with the help of a microscope, I would be able to see what was causing

my delusions, look it up in a book or online, and then figure out how

to get rid of it. Unfortunately, it turned out to be far more

difficult than I ever suspected.

 

These delusions, although reasonably easy to locate and photograph

once I had some experience with them, are not described in any book or

article. I have looked through pages of images on the web of animal

and human parasites, including protozoa, helminths, and arthropods,

without finding them. Entomologists, including a vector

parasitologist, have been unable to identify the organism in the

video, although they have suggested it appears most like a flagellate

protozoa. Parasitologists have told me they have not seen anything

like my sandal thing in their lives. I am not a scientist, and after

four years of research, I remain ignorant of the identity of what I

have seen with my scope. I have had to conclude that I am looking at a

parasite still unknown to the scientific community.

 

I now believe it will take highly trained and experienced

scientists to identify my delusions. I have created this website

partly in the hope of catching the eye of some parasitologist or

protozoologist or microbiologist or other such specialist who might be

able to help identify some of my delusions. If one of you is reading

this and can offer any suggestions or just plain interest, please

email me at identify at dpref dot com. I am in contact with many of

those who are currently studying the condition and will be thrilled to

hear from any others who might like to contribute to the advancement

of knowledge on this condition, even if it is just to offer one small

idea or clue to follow.

 

I have also created this website to honor, support and validate

the thousands of others who also suffer from this condition. If you

would like to share your story, send me an email. I answer all

legitimate emails, although it does sometimes take me awhile. So many

people suffer from this condition that I sometimes get overwhelmed

with emails. So I ask your patience in advance.

 

There are some organizations and other websites that offer support

and assistance. For a list, Additional Resources. If you

know of others, please drop me a line with a link and a description,

and I will add it to my list.

 

For general mail, notes, inquiries, etc., please email me at EH at

dpref dot com.

 

Thanks to all.

 

 

Photo Pages:

 

The Delusion That Something Is Burrowing Into My Skin

 

The Fibers Delusion

 

The Fuzzball Delusion

 

The Starfish Delusion

 

The Capsule Delusion

 

The Black Specks Delusion

 

The Grains of Sand Delusion

 

The Delusion that It's Alive: A Video

 

My Sandal Thing Delusion

 

Text Pages:

 

A Brief Introduction to the Concept and Science of Delusional Parasitosis

 

Articles About Delusions of Parasitosis

 

Additional Resources

 

Acknowledgements & Dedications