Another successful chelation case.

[Guest guest]

Families turn to disputed autism drug

February 12, 2006

BY JIM RITTER Health Reporter

 

 

http://www.suntimes.com/output/news/cst-nws-autism12.html

 

His parents and his school are amazed at the progress an autistic little boy

named Charlie Blakey has been making.

 

The transformation began right after Charlie started a treatment most experts

say is useless -- and possibly dangerous. The treatment, called chelation,

removes mercury and other toxic metals from the body.

 

The theory is that the mercury kids received from vaccines caused their autism.

Since undergoing chelation, Charlie has had fewer temper tantrums and is

spending less time walking around in circles.

 

He is talking more and is easier to understand. And, there's been a big jump in

his language test scores.

 

Charlie's mom is pleased. " The brain fog lifted, " said his mother, Christina

Blakey, of Oak Park. " He just started picking things up. They couldn't teach him

fast enough. "

 

No one knows how many autistic kids are undergoing chelation, but by most

estimates, the number is in the thousands or even tens of thousands. Dr. Anju

Usman, who prescribed Charlie's chelation, has 1,000 autistic kids in her

practice, and a two-year waiting list of 500 patients.

 

The Naperville family practice physician is among a handful of doctors in the

country who prescribe chelation. Usman recommends chelation when other

treatments don't work. " Parents see kids get better and they tell one another, "

Usman said. " It's the results that bring them here. "

 

The chelation movement is a grass-roots revolt against mainstream medicine,

which has been unable to find out what causes autism or how to cure it.

 

People are desperate for cures

 

Government agencies and leading medical groups, including the U.S. Centers for

Disease Control, American Academy of Pediatrics and Institute of Medicine, say

there's no evidence to support chelation, or the theory behind it. " The word

chelation strikes a chord of disgust in most physicians, " said Arizona State

University autism researcher James Adams.

 

So why do parents persist? " Autism is a very difficult disease to live with.

People are desperate for cures and desperate for solutions, " said child autism

specialist Dr. Bennett Leventhal of the University of Illinois at Chicago.

 

Childhood vaccines used to contain thimerosal, a preservative that contains

mercury. (Charlie was vaccinated right before manufacturers began phasing out

thimerosal.)

 

Chelation proponents say autistic children for some reason are unable to excrete

mercury from their bodies. They note that some autism symptoms are similar to

mercury poisoning. An increase in reported autism cases coincided with the

expanded use of childhood vaccines.

 

However, the Institute of Medicine reported in 2004 that there's no link between

vaccines and autism. The institute said five large studies in the United States,

United Kingdom and Denmark found no association between thimerosal and autism.

 

Chelation drugs come in pills and creams. They are approved for the treatment

of lead poisoning, but are being used " off label " to remove mercury.

 

One risk of chelation is that it removes essential minerals such as zinc and

calcium along with the bad stuff. Chelation also can stress the liver and

kidneys.

 

Doctors skeptical

 

Last year, a 5-year-old Pennsylvania boy undergoing chelation went into cardiac

arrest and died. A CDC doctor later blamed the death on a drug mix-up. Rather

than receiving the intended chelation drug, the boy was given a look-alike and

sound-alike drug that pulled too much calcium from his blood.

 

A survey by the Autism Research Institute, which promotes alternative therapies,

found that 76 percent of parents who have tried chelation say their children

improved. That's a higher reported success rate than for any other drug,

supplement or special autism diet, the survey found.

 

But just because parents notice an improvement doesn't necessarily mean

chelation is the reason, Leventhal said. It could be because of the expectation

effect: Parents believe in the therapy, so they become convinced it works. And

Leventhal said children naturally improve as they get older.

 

The skeptics note that before chelation, parents used another untested

treatment, the intestinal hormone secretin. After anecdotal reports that

secretin helped autistic children, many parents began giving it to their

children. But more than a dozen subsequent studies showed it doesn't work, said

Dr. Scott Myers, a member of the pediatrics academy's autism panel.

 

The same thing now may be happening with chelation, Myers said. " The therapy has

gotten way ahead of the evidence. "

 

The only way to prove whether chelation works is to conduct a randomized,

placebo-controlled, double-blind study: Take a group of autistic kids. Randomly

assign half to receive chelation and half to get an inactive placebo. To prevent

bias, neither the parents nor the researchers doing the evaluation should know

who got what.

 

No such research has been done. But at least one study, involving 80 children,

is under way at Southwest College of Naturopathic Medicine in Arizona. '

 

I'm the expert on my child'

 

As many as 1 in 166 children are on the " autism spectrum, " which ranges from

mild to severe. They have impaired social and communication skills and tend to

repeat behaviors and routines. In the most severe cases, children do not talk at

all or simply parrot back what is said to them.

 

Many wind up institutionalized.

 

Charlie Blakey, 6, is mildly autistic. His mom first suspected something was

wrong when he was an infant. He suffered a digestive disorder, threw up

frequently and screamed nonstop. At 10 months, Charlie still wasn't sitting up,

crawling or babbling.

 

He spoke his first word, " ball, " at age 2. But he was hard to understand and had

almost no communication skills. He was trapped in his own world, unable to

explain when something was bothering him. " Our days were filled with him

screaming at everything, " his mother said.

 

At 3-1/2, Charlie began pacing back and forth in the living room, oblivious to

everything around him. He once paced 2-1/2 hours nonstop.

 

At age 41/2, Charlie went on a wheat- and milk-free diet, restricted to such

foods as rice milk and potato-flour muffins. " His symptoms were very much

improved, but he was still autistic, " his mom said. Charlie began chelation in

October 2004. He takes supplements to replace essential minerals that are

removed by the treatment and has blood tests every two to three months to make

sure there's no liver damage.

 

Before chelation, Charlie scored in the 1st percentile of language tests,

meaning he was behind 99 percent of kids his age. He has since jumped to the

12th percentile in speaking ability and the 34th percentile in speech

comprehension.

 

Arlene O'Meara, a teaching assistant assigned to Charlie at kindergarten,

noticed a big change. Instead of throwing tantrums, Charlie could tell what was

bothering him. " He became more verbal all of a sudden, " O'Meara said.

 

Blakey's parents plan to continue chelation for another year or so. His mom

thinks it's possible Charlie can move from the autism spectrum to the normal

range.

 

Despite what the experts say. " I'm the expert on my child, " she said. " I have

to go with what I see working with him. "

 

 

jritter

 

 

" Our ideal is not the spirituality that withdraws from life but the conquest

of life by the power of the spirit. " - Aurobindo.

 

 

 

 

 

 

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