PEDIATRIC Pennies - for the upcoming year

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PEDIATRIC Pennies - for the upcoming year ...

FOR IMMEDIATE RELEASE

 

 

Contact:

 

Rebecca Artman

Chair of Public Policy

P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune

Disorders Organization for Research and Advocacy

Business Office: c/o Vina & Company, 255 Alhambra Circle, Suite 715

Coral Gables, Florida 33134

(954) 783-6771

PANDORALobby

www.pandoranet.info

 

 

Pat Fero

Executive Director

P.A.N.D.A., Inc Patient Alliance for Neurological Disorders Assistance

747 Lois Drive

Sun Prairie, Wisconsin 53590

(608) 834-1001

www.Panda-clinic.com

 

May 12, 2005

 

 

Pediatric Pennies

 

 

Coral Gables, FL and Madison, WI How many pennies do you come across each

year? This year P.A.N.D.O.R.A., Inc. (Patient Alliance for

Neuroendocrineimmune Disorders Organization for Research and Advocacy) and

P.A.N.D.A., Inc. (Patient Alliance for Neurological Disorders Assistance)

invite you to find out by participating in Pediatric Pennies.

 

The idea is simple. Find an old jar or box and name it Pediatric

Pennies. Every time you get a penny, put it in your container. The

project can be for the school year or calendar year. The campaign ends the

week of May 12, 2006, which is Neuroendocrineimmune Disorders Awareness

Day. (Neuroendocrineimmune Disorders includes Chronic Fatigue Syndrome,

Fibromyalgia, and Gulf War Syndrome, among other illnesses.) At that time,

roll the pennies (or take them to a place that will convert them to cash)

and donate that amount to Pediatric Pennies at either the P.A.N.D.O.R.A. or

P.A.N.D.A. addresses listed above. Both are 501(3)c organizations working

together to find a treatment and cure for Pediatric Chronic Fatigue

Syndrome (CFS). Donations can be made by check or via our web sites at

http://www.pandoranet.info or http:/www.Panda-clinic.com.

 

P.A.N.D.O.R.A. and P.A.N.D.A. will donate posters for school libraries,

school classrooms and offices. The five schools that raise the most for

this special project will receive a special letter of commendation. Please

contact Rebecca Artman at pandoralobby for more details.

 

We invite you, your friends, your coworkers, organizations and classmates

to participate in this project. Everyone can be involved in raising

awareness of Pediatric Chronic Fatigue Syndrome. Help us find a cure for

Pediatric Neuroendocrineimmune Disorders. Commit to the Pediatric Pennies

project by visiting www.pandoranet.info or www.Panda-clinic.com to help end

the suffering.

 

P.A.N.D.O.R.A. has set the goal to raise $6 million dollars in pennies for

Pediatric Neuroendocrineimmune Disorders research and education. Six

million dollars has been the National Institute of Health's (NIH) fiscal

budget for Adult and Pediatric CFS.

 

Rebecca Artman, Public Policy Chair of P.A.N.D.O.R.A. says: " the idea for

Pediatric Pennies came to be when I noticed the way we toss away pennies,

as though they are useless. The people who suffer from

Neuroendocrineimmune Disorders are a lot like those pennies, tossed aside

because the illness is not glamorous "

 

Pat Fero, Executive Director of P.A.N.D.A. adds " The situation for children

with Neuroendocrineimmune Disorders is perilous. Currently, little kids can

be pressured and cajoled into participating in activities they cannot

possibly accomplish. Expectations are out of line with the child's

intellectual, emotional, social and physical abilities. Failure follows

and instead of a growth in self-reliance, these children experience

self-doubt and self-loathing. In middle school and high school, the

situation may worsen to the point where kids drop out as soon as they are

able. It is a no win situation for kids, parents and school personal.

Pediatric Pennies seeks to change the outlook for school children with

these illnesses. With proper diagnosis, a treatment protocol and

accommodations in school curriculum, children with CFS, FM and other

Neuroendocrineimmune disorders can thrive and become healthy adults. "

 

Jill Mclaughlin, the mother a of child with CFS (Chronic Fatigue Syndrome)

and a nationally recognized advocate for Children and Adults with CFS

states: " There is still [a] lack of awareness [to the fact] that children

[become ill with] CFS; yet many experts agree that if anything, children

are more seriously affected than adults. My daughter was a very active,

intelligent, social child who was frequently coming down with what we

thought was the flu. We took her to doctors and she would seem better, only

to get sick again. She missed a good deal of school, but was forced totry to

catch up on her own. It took several years and visits to severaldoctors before

she was finally diagnosed with CFS in the 6th grade. We took her to doctors

and she would seem better,

only to get sick again. She missed a good deal of school, but was forced to

try to catch up on her own. It took several years and visits to several

doctors before she was finally diagnosed with CFS in the 6th grade. We were

relieved to have a diagnosis, but at the time had no idea of the

seriousness of the illness.

 

 

Due to the general lack of awareness and misconceptions, [as her parents]

we were reported to the Department of Social Services [because of] her

frequent [school] absences. It is abusive to send a child to school when

they are ill, but [unfortunately] we were accused of neglect [because] we

did not send her [to school]. Children are virtually being punished for

being sick… Without adequate research and treatment, these children and

their families will continue to suffer, not only from the illness itself

but from the ignorance surrounding it. "

 

 

We invite you to join with us in using your pennies, to fund research to

find a treatment and a cure for Pediatric Neuroendocrineimmune Disorders.

 

 

 

 

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