Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Can anyone shed some light on this? Below is a time line and history of what my friend's daughter has been experiencing. Thank you in advance for any help and information. In addition to history below, in Sept. also started seeing chiropractor 2x's week for tune up, although not having back trouble, he has a holistic approach to his practice and we were hoping to help overall. Lauren was athletic, healthy 12 year old girl. Scholar, book worm and really loves school and sports. Not much could slow this girl down. Happy/well adjusted with many friends. No social or psychological underlining issues. History: 1. 2nd week of April 2007- last year: diarrhea for 5 months - abdominal pain consistently got worse. They did routine tests for allergy, parasites. Suffers with diarrhea all summer(while trying to play baseball -on the boy's team for more action- on fields that don't even have port-a-potty's. Determined to not miss games or practice, would just not eat all day if that was what it took. 2. Beginning of August: Pediatric G/I specialists do tests that showed positive for hpilori (but positive test doesn't tell you when it was active, just that she had it at some point.) Did ProPack and pepsid for abdominal pain. No results. Taking probiotics Culturelle daily. No headaches. Did hediscan-radioactive dye test to check gall bladder. All normal. 3. End of August: Pediatric G/I randomly tried xifaxan-antibiotic 5 day, wondering if she had some sort of bacterial overgrowth. All symptoms were gone within 3 days and she was a normal happy 12 year old for month of Sept.. (with milk daily). Headache only while taking xifaxan. Lost about six pounds since spring. 4. End of Sept.: abdominal pain -upper only - and diarrhea came back. - xifaxan worked again for three weeks was symptom free (even with milk daily). Headache only while taking xifaxan. Did soccer season part time as diarrhea and upper abdominal pain would allow. Lauren likes 7th grade and her new school so much she says she wishes she could go on the weekends. 5. Mid Nov.: upper abdominal pain, diarrhea and this time vomiting every time she ate - endoscopy scheduled for end of Nov. Still do advil (with food) culturelle and start two weeks of daily yogurt also. 6. End Nov: did endoscopy - was told results showed lactose intolerance - take lactaid with dairy and put on a longer course of the antibiotic 10-day this time. Saw results for two days - no abdominal pain, headache or diarrhea- as long as she had a lactaid with dairy. Weight stayed steady once diarrhea under control. Usually headache only while taking xifaxan, this time Day three headache (avg 5-6 on a scale of 1-10) and abdominal pain return and have never left. Talk with G/I Dr about pancreas and parasites. They do amalise test and pancreas checks out fine. They say if a parasite, it could explain why the xifaxan works temporarily and then symptoms come back. 7. Dec 17: still having bad headache and upper abdominal pain. Advil/tylenol no relief for pain. Muscles and joints ache. Left knee pain consistently. She isn't tired or fatigued, just joints achy. Still taking Culturelle. Pediatrician tries med for possible abdominal migraines - don't have name of med. It was supposed stop the spasms. No results. Still diarrhea free as long as she had lactaid. Discontinued that med after pharmacist sister-in-law said med was rather extreme and she would not give it to her children. Switch from Culturelle to Primal Defense probiotics. 8. Dec. 21: Infectious disease/parasite Dr's at Strong review the case, have no explanation on why xifaxan works and then stops, say Lauren has no indication through the standard testing of a parasite. Dr. had no real desire for further testing, but though my request did a lyme disease and her seds rate in blood test that would show inflammation. Seds rate fine, don't have lyme test results back yet. Infectious disease Dr. says highly doubt lyme disease as no cases reported contracted in this area and the only place we had traveled was Lake Placid in May. Lauren only going to school part time due to constant upper abdominal and severe headaches - bright lights bother it, unable to concentrate in class due to pain. She still makes honor roll and works hard to keep grades up although missing classes. Not doing tennis as usually would this time of year. Not knowing Lauren personally, and her love of school and sports, Infectious disease Dr says Lauren could just be hypersensitive to symptoms now, kinda just not feeling like going to school, and have tired teen syndrome, similar to fibromaliga and probably just needs to push though it. I calmly disagree with Dr and express frustration as to no explanation for cause of anything, but tell him I am desperate as her mother and willing to try anything. Refers us to the rheumatology dr and tired teen clinic who work in tandem. No apt. avail till mid-January. Ask Dr. about hormone related issues, Lauren is 12 1/2 and hasn't gotten her period. He dismisses it as a cause for anything. 9. Dec. 28: follow up with pediatric g/i at Strong. Lauren still having persistent bad headaches and upper abdominal pain, and knee pain. New resident not familiar with Lauren consults with records, us and her endoscopy results. She says endoscopy shows gastritis (was previously only told of lactose intolerance and trying lactaids only), and think headaches could be related. Start acid reducing Prevacid (vs. acid blocker pepsid tried in past.) She cautions that it will take 6-8 weeks to see stomach relief and not to give up. Also try 3 days of high-dose Advil for headaches, but no relief of headache. Headache like a headband toward front part of head - vision sometimes wavy. G/I dr. gets blood drawn again to test for common food alleryies. No results back yet. They think we should systematically rule out the current gastritis/migraine diagnosis with treatment for them for a few weeks before doing other allergy testing. 10. Dec. 28: follow up with pediatrician re: left knee persistent pain and allergy/cold symptoms developed in last 3 days. Suspect Lauren has typical adolescent Osgood-Schlotter disease - like growing pain in knee. Hi-dose advil taking for head also should help knee - which it does. Allergy/cold just take allegra as usual when needed. Mom and Lauren decide to try diet of totally eliminating milk as well as anything spicy or acidic. Taking advil cold/sinus next few days, allegra not helping. Start fiber supplement and still taking probiotic. Check eyes and " windows to the brain " show as normal. Are encouraged at no more weight loss. 11. Dec. 31 - try Imatrex for migraine - helps some, reducing pain to a four. Headache returns in following day, Imatrex helping minimally. Still have upper abdominal pain. Taking Children's triaminic for bad cold symptoms. 12. Jan. 2 am - try imatrex again. no help - headache progressively getting worse, with food take 800 mg advil 8pm. No relief. Start taking dark walnut oil as home remedy test for abdominal pain. Headache mostly on left side and vision in left eye is fuzzy and troublesome. Still persistent cold symptoms also. 13. Jan. 3 (first day back to school from vacation) Wake at 5 am with worse headache - take Imatrex (corner of pill broke off in dark, Lauren not aware, takes it - with peanut butter crackers-no dairy). 6:15 am still have bad headache, but get ready for bus at 7am. 7 am not better, stays home, sleeps for hour or so. (Mom discovers corner of broken pill and reads insert saying not to break pill or take broken - too late, as Lauren already took it early am.) Has diarrhea-first time in several weeks since taking lactaid. 9:30 am take second Imatrex. Don't see any relief. Not sleepy. Tries to study for mid term exams at home - light and reading book or computer really bother head and left eye. Noon cereal with soy milk, 1/2 banana, few chunks of chicken from homemade soup-no diary. 1pm goes to school though feeling like crap having worse abdominal pain. Has diarrhea 1:15 at school. 2:30 pick Lauren up from school headache still 7/8 - no improvement. Abdominal pain same. Take more triaminicc for cold symptoms. Fiber and probiotics still taking daily. So as of now, symptoms are: Migraine headache daily and constant- moved from " headband " to mostly left side and bothering vision in left eye Continued upper abdominal pain daily and constant Occasional night sweats/hot flashes 2-3x's week Today, first time in weeks, diarrhea - 2x's after eating and taking Imatrex - hoping it to be isolated instances. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Lindy I am not a doctor nor am I an expert by any means. But this child could either have a rare serious condition or she could be suffering from something phsychological. She sounds alot like me until I turned 12. At 12, all of a sudden I was total opposite. I had been a model child, excellent grades and very confident. Sometimes when hormones kick in or there is a change in the life, such as moving, divorce, death, marriage, esp at this time in life, the child can do a complete turn about. Things to think about: Is there someone at school she is wary of, or jealous of, or is picking on her or is there a teacher bothering her, or that she might even have a severe crush on? Has there been any abuse at all? Sexual abuse? Could she have developed anxiety and migraines from stress that she brings on to herself? Is she a perfectionist? Often children who try to be so perfect set themselves up for all of this and it becomes too much for them to handle. They are often type " A " personalities. To me, yes, continue to search for something physically wrong, but please don't discount any of the above possibilities. This child might need alot of understanding and support. Marsha and the Yorkies http://www.miracleyorkies.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 What is her diet like, a typical SAD? I would suggest for her to go on a dairy-free, wheat-free, preservative/chemical-free, sugar-free diet. Eat only whole foods (nothing from a box or can) - organic is best if possible. Lots of green leafy veggies, colorful fruits, seeds, nuts, etc. Add plant-based digestive enzymes, a higher quality probiotic supplement, whole food mineral supplements, whole food antioxidants. Carol http://www.bluegreensolutions.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Is she on any other daily medications, such as antidepressants or antipsychotics .. or anything that she takes daily that might be unintentionally harming her? More and more kids are put of these things for Attention Deficit Disorder and other things. I ask this, as these medications can actully be the culprit for these types of symptoms. Barring something like that, I don't have any other ideas. Cook , " lindylu527 " <LDiel wrote: > > Can anyone shed some light on this? Below is a time line and history > of what my friend's daughter has been experiencing. Thank you in > advance for any help and information. > > In addition to history below, in Sept. also started seeing > chiropractor 2x's week for tune up, although not having back trouble, > he has a holistic approach to his practice and we were hoping to help > overall. > > Lauren was athletic, healthy 12 year old girl. Scholar, book worm > and really loves school and sports. Not much could slow this girl > down. Happy/well adjusted with many friends. No social or > psychological underlining issues. > > History: > 1. 2nd week of April 2007- last year: diarrhea for 5 months - > abdominal pain consistently got worse. They did routine tests for > allergy, parasites. Suffers with diarrhea all summer(while trying to > play baseball -on the boy's team for more action- on fields that > don't even have port-a-potty's. Determined to not miss games or > practice, would just not eat all day if that was what it took. > > 2. Beginning of August: Pediatric G/I specialists do tests that > showed positive for hpilori (but positive test doesn't tell you when > it was active, just that she had it at some point.) Did ProPack > and pepsid for abdominal pain. No results. Taking probiotics > Culturelle daily. No headaches. Did hediscan-radioactive dye test > to check gall bladder. All normal. > > 3. End of August: Pediatric G/I randomly tried xifaxan-antibiotic 5 > day, wondering if she had some sort of bacterial overgrowth. All > symptoms were gone within 3 days and she was a normal happy 12 year > old for month of Sept.. (with milk daily). Headache only while > taking xifaxan. Lost about six pounds since spring. > > 4. End of Sept.: abdominal pain -upper only - and diarrhea came > back. - xifaxan worked again for three weeks was symptom free (even > with milk daily). Headache only while taking xifaxan. Did soccer > season part time as diarrhea and upper abdominal pain would allow. > Lauren likes 7th grade and her new school so much she says she wishes > she could go on the weekends. > > 5. Mid Nov.: upper abdominal pain, diarrhea and this time vomiting > every time she ate - endoscopy scheduled for end of Nov. Still do > advil (with food) culturelle and start two weeks of daily yogurt also. > > 6. End Nov: did endoscopy - was told results showed lactose > intolerance - take lactaid with dairy and put on a longer course of > the antibiotic 10-day this time. Saw results for two days - no > abdominal pain, headache or diarrhea- as long as she had a lactaid > with dairy. Weight stayed steady once diarrhea under control. > Usually headache only while taking xifaxan, this time Day three > headache (avg 5-6 on a scale of 1-10) and abdominal pain return and > have never left. Talk with G/I Dr about pancreas and parasites. > They do amalise test and pancreas checks out fine. They say if a > parasite, it could explain why the xifaxan works temporarily and > then symptoms come back. > > 7. Dec 17: still having bad headache and upper abdominal pain. > Advil/tylenol no relief for pain. Muscles and joints ache. Left > knee pain consistently. She isn't tired or fatigued, just joints > achy. Still taking Culturelle. Pediatrician tries med for possible > abdominal migraines - don't have name of med. It was supposed stop > the spasms. No results. Still diarrhea free as long as she had > lactaid. Discontinued that med after pharmacist sister-in-law said > med was rather extreme and she would not give it to her children. > Switch from Culturelle to Primal Defense probiotics. > > 8. Dec. 21: Infectious disease/parasite Dr's at Strong review the > case, have no explanation on why xifaxan works and then stops, say > Lauren has no indication through the standard testing of a parasite. > Dr. had no real desire for further testing, but though my request did > a lyme disease and her seds rate in blood test that would show > inflammation. Seds rate fine, don't have lyme test results back > yet. Infectious disease Dr. says highly doubt lyme disease as no > cases reported contracted in this area and the only place we had > traveled was Lake Placid in May. > Lauren only going to school part time due to constant upper abdominal > and severe headaches - bright lights bother it, unable to > concentrate in class due to pain. She still makes honor roll and > works hard to keep grades up although missing classes. Not doing > tennis as usually would this time of year. Not knowing Lauren > personally, and her love of school and sports, Infectious disease Dr > says Lauren could just be hypersensitive to symptoms now, kinda just > not feeling like going to school, and have tired teen syndrome, > similar to fibromaliga and probably just needs to push though it. I > calmly disagree with Dr and express frustration as to no explanation > for cause of anything, but tell him I am desperate as her mother and > willing to try anything. Refers us to the rheumatology dr and tired > teen clinic who work in tandem. No apt. avail till mid-January. Ask > Dr. about hormone related issues, Lauren is 12 1/2 and hasn't gotten > her period. He dismisses it as a cause for anything. > > 9. Dec. 28: follow up with pediatric g/i at Strong. Lauren still > having persistent bad headaches and upper abdominal pain, and knee > pain. New resident not familiar with Lauren consults with records, > us and her endoscopy results. She says endoscopy shows gastritis > (was previously only told of lactose intolerance and trying lactaids > only), and think headaches could be related. Start acid reducing > Prevacid (vs. acid blocker pepsid tried in past.) She cautions that > it will take 6-8 weeks to see stomach relief and not to give up. > Also try 3 days of high-dose Advil for headaches, but no relief of > headache. Headache like a headband toward front part of head - > vision sometimes wavy. G/I dr. gets blood drawn again to test for > common food alleryies. No results back yet. They think we should > systematically rule out the current gastritis/migraine diagnosis with > treatment for them for a few weeks before doing other allergy > testing. > > > 10. Dec. 28: follow up with pediatrician re: left knee persistent > pain and allergy/cold symptoms developed in last 3 days. Suspect > Lauren has typical adolescent Osgood-Schlotter disease - like growing > pain in knee. Hi-dose advil taking for head also should help knee - > which it does. Allergy/cold just take allegra as usual when needed. > Mom and Lauren decide to try diet of totally eliminating milk as well > as anything spicy or acidic. Taking advil cold/sinus next few days, > allegra not helping. Start fiber supplement and still taking > probiotic. Check eyes and " windows to the brain " show as normal. > Are encouraged at no more weight loss. > > 11. Dec. 31 - try Imatrex for migraine - helps some, reducing pain > to a four. Headache returns in following day, Imatrex helping > minimally. Still have upper abdominal pain. Taking Children's > triaminic for bad cold symptoms. > > 12. Jan. 2 am - try imatrex again. no help - headache progressively > getting worse, with food take 800 mg advil 8pm. No relief. Start > taking dark walnut oil as home remedy test for abdominal pain. > Headache mostly on left side and vision in left eye is fuzzy and > troublesome. Still persistent cold symptoms also. > > 13. Jan. 3 (first day back to school from vacation) Wake at 5 am > with worse headache - take Imatrex (corner of pill broke off in dark, > Lauren not aware, takes it - with peanut butter crackers-no dairy). > 6:15 am still have bad headache, but get ready for bus at 7am. 7 am > not better, stays home, sleeps for hour or so. (Mom discovers corner > of broken pill and reads insert saying not to break pill or take > broken - too late, as Lauren already took it early am.) Has > diarrhea-first time in several weeks since taking lactaid. 9:30 am > take second Imatrex. Don't see any relief. Not sleepy. Tries to > study for mid term exams at home - light and reading book or computer > really bother head and left eye. Noon cereal with soy milk, 1/2 > banana, few chunks of chicken from homemade soup-no diary. 1pm goes > to school though feeling like crap having worse abdominal pain. Has > diarrhea 1:15 at school. 2:30 pick Lauren up from school headache > still 7/8 - no improvement. Abdominal pain same. Take more > triaminicc for cold symptoms. Fiber and probiotics still taking daily. > > So as of now, symptoms are: > Migraine headache daily and constant- moved from " headband " to > mostly left side and bothering vision in left eye > Continued upper abdominal pain daily and constant > Occasional night sweats/hot flashes 2-3x's week > Today, first time in weeks, diarrhea - 2x's after eating and taking > Imatrex - hoping it to be isolated instances. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Possibility of Leaky Gut Syndrome and stress. hPylori and leaky gut go hand in hand. Lactose intolerance, advil, antibiotics and other prescription medications will only make it worse. Has she been tested for amoeba? Common place pathogen that shows up with leaky gut, but not usually tested for in standard parasite tests. Stress reduction, such as Biofeedback, will be of great benefit as this type of stressor only increases stress levels. Play ball on a male team when female is a unique stress all in its own. Jenny Kernan --- lindylu527 <LDiel wrote: > Can anyone shed some light on this? Below is a time > line and history > of what my friend's daughter has been experiencing. > Thank you in > advance for any help and information. > > In addition to history below, in Sept. also started > seeing > chiropractor 2x's week for tune up, although not > having back trouble, > he has a holistic approach to his practice and we > were hoping to help > overall. > > Lauren was athletic, healthy 12 year old girl. > Scholar, book worm > and really loves school and sports. Not much could > slow this girl > down. Happy/well adjusted with many friends. No > social or > psychological underlining issues. > > History: > 1. 2nd week of April 2007- last year: diarrhea for 5 > months - > abdominal pain consistently got worse. They did > routine tests for > allergy, parasites. Suffers with diarrhea all > summer(while trying to > play baseball -on the boy's team for more action- on > fields that > don't even have port-a-potty's. Determined to not > miss games or > practice, would just not eat all day if that was > what it took. > > 2. Beginning of August: Pediatric G/I specialists > do tests that > showed positive for hpilori (but positive test > doesn't tell you when > it was active, just that she had it at some point.) > Did ProPack > and pepsid for abdominal pain. No results. Taking > probiotics > Culturelle daily. No headaches. Did > hediscan-radioactive dye test > to check gall bladder. All normal. > > 3. End of August: Pediatric G/I randomly tried > xifaxan-antibiotic 5 > day, wondering if she had some sort of bacterial > overgrowth. All > symptoms were gone within 3 days and she was a > normal happy 12 year > old for month of Sept.. (with milk daily). Headache > only while > taking xifaxan. Lost about six pounds since spring. > > > 4. End of Sept.: abdominal pain -upper only - and > diarrhea came > back. - xifaxan worked again for three weeks was > symptom free (even > with milk daily). Headache only while taking > xifaxan. Did soccer > season part time as diarrhea and upper abdominal > pain would allow. > Lauren likes 7th grade and her new school so much > she says she wishes > she could go on the weekends. > > 5. Mid Nov.: upper abdominal pain, diarrhea and this > time vomiting > every time she ate - endoscopy scheduled for end of > Nov. Still do > advil (with food) culturelle and start two weeks of > daily yogurt also. > > 6. End Nov: did endoscopy - was told results showed > lactose > intolerance - take lactaid with dairy and put on a > longer course of > the antibiotic 10-day this time. Saw results for > two days - no > abdominal pain, headache or diarrhea- as long as she > had a lactaid > with dairy. Weight stayed steady once diarrhea > under control. > Usually headache only while taking xifaxan, this > time Day three > headache (avg 5-6 on a scale of 1-10) and abdominal > pain return and > have never left. Talk with G/I Dr about pancreas > and parasites. > They do amalise test and pancreas checks out fine. > They say if a > parasite, it could explain why the xifaxan works > temporarily and > then symptoms come back. > > 7. Dec 17: still having bad headache and upper > abdominal pain. > Advil/tylenol no relief for pain. Muscles and > joints ache. Left > knee pain consistently. She isn't tired or > fatigued, just joints > achy. Still taking Culturelle. Pediatrician tries > med for possible > abdominal migraines - don't have name of med. It > was supposed stop > the spasms. No results. Still diarrhea free as > long as she had > lactaid. Discontinued that med after pharmacist > sister-in-law said > med was rather extreme and she would not give it to > her children. > Switch from Culturelle to Primal Defense probiotics. > > > 8. Dec. 21: Infectious disease/parasite Dr's at > Strong review the > case, have no explanation on why xifaxan works and > then stops, say > Lauren has no indication through the standard > testing of a parasite. > Dr. had no real desire for further testing, but > though my request did > a lyme disease and her seds rate in blood test that > would show > inflammation. Seds rate fine, don't have lyme test > results back > yet. Infectious disease Dr. says highly doubt lyme > disease as no > cases reported contracted in this area and the only > place we had > traveled was Lake Placid in May. > Lauren only going to school part time due to > constant upper abdominal > and severe headaches - bright lights bother it, > unable to > concentrate in class due to pain. She still makes > honor roll and > works hard to keep grades up although missing > classes. Not doing > tennis as usually would this time of year. Not > knowing Lauren > personally, and her love of school and sports, > Infectious disease Dr > says Lauren could just be hypersensitive to > symptoms now, kinda just > not feeling like going to school, and have tired > teen syndrome, > similar to fibromaliga and probably just needs to > push though it. I > calmly disagree with Dr and express frustration as > to no explanation > for cause of anything, but tell him I am desperate > as her mother and > willing to try anything. Refers us to the > rheumatology dr and tired > teen clinic who work in tandem. No apt. avail till > mid-January. Ask > Dr. about hormone related issues, Lauren is 12 1/2 > and hasn't gotten > her period. He dismisses it as a cause for > anything. > > 9. Dec. 28: follow up with pediatric g/i at > Strong. Lauren still > having persistent bad headaches and upper abdominal > pain, and knee > pain. New resident not familiar with Lauren > consults with records, > us and her endoscopy results. She says endoscopy > shows gastritis > (was previously only told of lactose intolerance and > trying lactaids > only), and think headaches could be related. Start > acid reducing > Prevacid (vs. acid blocker pepsid tried in past.) > She cautions that > it will take 6-8 weeks to see stomach relief and not > to give up. > Also try 3 days of high-dose Advil for headaches, > but no relief of > headache. Headache like a headband toward front > part of head - > vision sometimes wavy. G/I dr. gets blood drawn > again to test for > common food alleryies. No results back yet. They > think we should > systematically rule out the current > gastritis/migraine diagnosis with > treatment for them for a few weeks before doing > other allergy > testing. > > > 10. Dec. 28: follow up with pediatrician re: left > knee persistent > pain and allergy/cold symptoms developed in last 3 > days. Suspect > Lauren has typical adolescent Osgood-Schlotter > disease - like growing > pain in knee. Hi-dose advil taking for head also > should help knee - > which it does. Allergy/cold just take allegra as > usual when needed. > Mom and Lauren decide to try diet of totally > eliminating milk as well > as anything spicy or acidic. Taking advil > cold/sinus next few days, > allegra not helping. Start fiber supplement and > still taking > probiotic. Check eyes and " windows to the brain " > show as normal. > Are encouraged at no more weight loss. > > 11. Dec. 31 - try Imatrex for migraine - helps > some, reducing pain > to a four. Headache returns in following day, > Imatrex helping > minimally. Still have upper abdominal pain. Taking > Children's > triaminic for bad cold symptoms. > > 12. Jan. 2 am - try imatrex again. no help - > headache progressively > getting worse, with food take 800 mg advil 8pm. No > relief. Start > taking dark walnut oil as home remedy test for > abdominal pain. > Headache mostly on left side and vision in left eye > is fuzzy and > troublesome. Still persistent cold symptoms also. > > 13. Jan. 3 (first day back to school from vacation) > Wake at 5 am > with worse headache - take Imatrex (corner of pill > broke off in dark, > Lauren not aware, takes it - with peanut butter > crackers-no dairy). > 6:15 am still have bad headache, but get ready for > bus at 7am. 7 am > not better, stays home, sleeps for hour or so. (Mom > discovers corner > of broken pill and reads insert saying not to break > pill or take > broken - too late, as Lauren already took it early > am.) Has > diarrhea-first time in several weeks since taking > lactaid. 9:30 am > take second Imatrex. Don't see any relief. Not > sleepy. Tries to > study for mid term exams at home - light and reading > book or computer > really bother head and left eye. Noon cereal with > soy milk, 1/2 > banana, few chunks of chicken from homemade soup-no > diary. 1pm goes > to school though feeling like crap having worse > abdominal pain. Has > diarrhea 1:15 at school. 2:30 pick Lauren up from > school headache > still 7/8 - no improvement. Abdominal pain same. > Take more > triaminicc for cold symptoms. Fiber and probiotics > still taking daily. > > So as of now, symptoms are: > Migraine headache daily and constant- moved from " > headband " to > mostly left side and bothering vision in left eye > Continued upper abdominal pain daily and constant > Occasional night sweats/hot flashes 2-3x's week > Today, first time in weeks, diarrhea - 2x's after > eating and taking > Imatrex - hoping it to be isolated instances. > > Quantum Biofeedback Therapist Theta Practitioner/ Medical Intuitive www.quantumassociatesoftuah.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Oops...perhaps being confused with another Carol here as I didn't advocate the bluegreensolutions site. I am involved with an organization that promotes green powders but still people need to know what they can also eat as suggestions so my note was originally posted. carolg carolg , " Carol " <carol wrote: > > What is her diet like, a typical SAD? > > I would suggest for her to go on a dairy-free, wheat-free, > preservative/chemical-free, sugar-free diet. Eat only whole foods > (nothing from a box or can) - organic is best if possible. Lots of > green leafy veggies, colorful fruits, seeds, nuts, etc. Add > plant-based digestive enzymes, a higher quality probiotic supplement, > whole food mineral supplements, whole food antioxidants. > > Carol > http://www.bluegreensolutions.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 as a 12 year old (entering puberty), we can be experiencing patterns which started around birth .. just before birth, the actual birthing process and the first few months of life. The birth patterns appear around 2 years of age, 7 years of age, 21, 28, 35, 42 etc in varying degrees of severity. It would be interesting to know what sort of birth experiences were involved with both this child and her mother. The other direct clue can be found in the actual date .. April 2007 .. relative to the child's actual birth day. From your description, my experience suggests that there is something under the symptoms you describe and I'd be looking at the whole pattern of the child's life .. from conception until now. Some of the incidents can seem totally unrelated but may be vital clues. If you can get this history and either post it here or email me, I'll see if there is anything that I can see. The other thing that would be advantageous to know .. is either the child's mother or father a returned serviceman or woman. I have seen symptoms such as this as the direct hereditary result of parental or second generation war syndrome. Christopher Wynter > Can anyone shed some light on this? Below is a time line and > history > of what my friend's daughter has been experiencing. Thank you in > advance for any help and information. > > In addition to history below, in Sept. also started seeing > chiropractor 2x's week for tune up, although not having back > trouble, > he has a holistic approach to his practice and we were hoping to > help > overall. > > Lauren was athletic, healthy 12 year old girl. Scholar, book worm > and really loves school and sports. Not much could slow this girl > down. Happy/well adjusted with many friends. No social or > psychological underlining issues. > > History: > 1. 2nd week of April 2007- last year: diarrhea for 5 months - > abdominal pain consistently got worse. They did routine tests for > allergy, parasites. Suffers with diarrhea all summer(while trying > to > play baseball -on the boy's team for more action- on fields that > don't even have port-a-potty's. Determined to not miss games or > practice, would just not eat all day if that was what it took. > > 2. Beginning of August: Pediatric G/I specialists do tests that > showed positive for hpilori (but positive test doesn't tell you when > it was active, just that she had it at some point.) Did ProPack > and pepsid for abdominal pain. No results. Taking probiotics > Culturelle daily. No headaches. Did hediscan-radioactive dye test > to check gall bladder. All normal. > > 3. End of August: Pediatric G/I randomly tried xifaxan-antibiotic 5 > day, wondering if she had some sort of bacterial overgrowth. All > symptoms were gone within 3 days and she was a normal happy 12 year > old for month of Sept.. (with milk daily). Headache only while > taking xifaxan. Lost about six pounds since spring. > > 4. End of Sept.: abdominal pain -upper only - and diarrhea came > back. - xifaxan worked again for three weeks was symptom free (even > with milk daily). Headache only while taking xifaxan. Did soccer > season part time as diarrhea and upper abdominal pain would allow. > Lauren likes 7th grade and her new school so much she says she > wishes > she could go on the weekends. > > 5. Mid Nov.: upper abdominal pain, diarrhea and this time vomiting > every time she ate - endoscopy scheduled for end of Nov. Still do > advil (with food) culturelle and start two weeks of daily yogurt > also. > > 6. End Nov: did endoscopy - was told results showed lactose > intolerance - take lactaid with dairy and put on a longer course of > the antibiotic 10-day this time. Saw results for two days - no > abdominal pain, headache or diarrhea- as long as she had a lactaid > with dairy. Weight stayed steady once diarrhea under control. > Usually headache only while taking xifaxan, this time Day three > headache (avg 5-6 on a scale of 1-10) and abdominal pain return and > have never left. Talk with G/I Dr about pancreas and parasites. > They do amalise test and pancreas checks out fine. They say if a > parasite, it could explain why the xifaxan works temporarily and > then symptoms come back. > > 7. Dec 17: still having bad headache and upper abdominal pain. > Advil/tylenol no relief for pain. Muscles and joints ache. Left > knee pain consistently. She isn't tired or fatigued, just joints > achy. Still taking Culturelle. Pediatrician tries med for possible > abdominal migraines - don't have name of med. It was supposed stop > the spasms. No results. Still diarrhea free as long as she had > lactaid. Discontinued that med after pharmacist sister-in-law said > med was rather extreme and she would not give it to her children. > Switch from Culturelle to Primal Defense probiotics. > > 8. Dec. 21: Infectious disease/parasite Dr's at Strong review the > case, have no explanation on why xifaxan works and then stops, say > Lauren has no indication through the standard testing of a parasite. > Dr. had no real desire for further testing, but though my request > did > a lyme disease and her seds rate in blood test that would show > inflammation. Seds rate fine, don't have lyme test results back > yet. Infectious disease Dr. says highly doubt lyme disease as no > cases reported contracted in this area and the only place we had > traveled was Lake Placid in May. > Lauren only going to school part time due to constant upper > abdominal > and severe headaches - bright lights bother it, unable to > concentrate in class due to pain. She still makes honor roll and > works hard to keep grades up although missing classes. Not doing > tennis as usually would this time of year. Not knowing Lauren > personally, and her love of school and sports, Infectious disease Dr > says Lauren could just be hypersensitive to symptoms now, kinda > just > not feeling like going to school, and have tired teen syndrome, > similar to fibromaliga and probably just needs to push though it. I > calmly disagree with Dr and express frustration as to no explanation > for cause of anything, but tell him I am desperate as her mother and > willing to try anything. Refers us to the rheumatology dr and tired > teen clinic who work in tandem. No apt. avail till mid-January. > Ask > Dr. about hormone related issues, Lauren is 12 1/2 and hasn't gotten > her period. He dismisses it as a cause for anything. > > 9. Dec. 28: follow up with pediatric g/i at Strong. Lauren still > having persistent bad headaches and upper abdominal pain, and knee > pain. New resident not familiar with Lauren consults with records, > us and her endoscopy results. She says endoscopy shows gastritis > (was previously only told of lactose intolerance and trying lactaids > only), and think headaches could be related. Start acid reducing > Prevacid (vs. acid blocker pepsid tried in past.) She cautions that > it will take 6-8 weeks to see stomach relief and not to give up. > Also try 3 days of high-dose Advil for headaches, but no relief of > headache. Headache like a headband toward front part of head - > vision sometimes wavy. G/I dr. gets blood drawn again to test for > common food alleryies. No results back yet. They think we should > systematically rule out the current gastritis/migraine diagnosis > with > treatment for them for a few weeks before doing other allergy > testing. > > > 10. Dec. 28: follow up with pediatrician re: left knee persistent > pain and allergy/cold symptoms developed in last 3 days. Suspect > Lauren has typical adolescent Osgood-Schlotter disease - like > growing > pain in knee. Hi-dose advil taking for head also should help knee - > which it does. Allergy/cold just take allegra as usual when needed. > Mom and Lauren decide to try diet of totally eliminating milk as > well > as anything spicy or acidic. Taking advil cold/sinus next few days, > allegra not helping. Start fiber supplement and still taking > probiotic. Check eyes and " windows to the brain " show as normal. > Are encouraged at no more weight loss. > > 11. Dec. 31 - try Imatrex for migraine - helps some, reducing pain > to a four. Headache returns in following day, Imatrex helping > minimally. Still have upper abdominal pain. Taking Children's > triaminic for bad cold symptoms. > > 12. Jan. 2 am - try imatrex again. no help - headache > progressively > getting worse, with food take 800 mg advil 8pm. No relief. Start > taking dark walnut oil as home remedy test for abdominal pain. > Headache mostly on left side and vision in left eye is fuzzy and > troublesome. Still persistent cold symptoms also. > > 13. Jan. 3 (first day back to school from vacation) Wake at 5 am > with worse headache - take Imatrex (corner of pill broke off in > dark, > Lauren not aware, takes it - with peanut butter crackers-no dairy). > 6:15 am still have bad headache, but get ready for bus at 7am. 7 am > not better, stays home, sleeps for hour or so. (Mom discovers corner > of broken pill and reads insert saying not to break pill or take > broken - too late, as Lauren already took it early am.) Has > diarrhea-first time in several weeks since taking lactaid. 9:30 am > take second Imatrex. Don't see any relief. Not sleepy. Tries to > study for mid term exams at home - light and reading book or > computer > really bother head and left eye. Noon cereal with soy milk, 1/2 > banana, few chunks of chicken from homemade soup-no diary. 1pm goes > to school though feeling like crap having worse abdominal pain. Has > diarrhea 1:15 at school. 2:30 pick Lauren up from school headache > still 7/8 - no improvement. Abdominal pain same. Take more > triaminicc for cold symptoms. Fiber and probiotics still taking > daily. > > So as of now, symptoms are: > Migraine headache daily and constant- moved from " headband " to > mostly left side and bothering vision in left eye > Continued upper abdominal pain daily and constant > Occasional night sweats/hot flashes 2-3x's week > Today, first time in weeks, diarrhea - 2x's after eating and taking > Imatrex - hoping it to be isolated instances. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 This poor child has some major food allergies and until she changes her diet she will continue to have symptoms. NO DAIRY PRODUCTS...Period. And she needs to do a total parasite cleanse. I recommend Microbe- Flush. Its the easiest and works great. She needs to be on as much raw foods as possible. She will also need to detox her body from all the drugs she has been given over the past year. I can only imagine what her liver and kidneys have been through. She also could have a over growth of Candida. It has symptoms that even the doctors don't know about. I also would recommend going to a natropath MD. Hope the info you have gotten here on this great group helps her get well and soon. Daphne , " lindylu527 " <LDiel wrote: > > Can anyone shed some light on this? Below is a time line and history > of what my friend's daughter has been experiencing. Thank you in > advance for any help and information. > > In addition to history below, in Sept. also started seeing > chiropractor 2x's week for tune up, although not having back trouble, > he has a holistic approach to his practice and we were hoping to help > overall. > > Lauren was athletic, healthy 12 year old girl. Scholar, book worm > and really loves school and sports. Not much could slow this girl > down. Happy/well adjusted with many friends. No social or > psychological underlining issues. > > History: > 1. 2nd week of April 2007- last year: diarrhea for 5 months - > abdominal pain consistently got worse. They did routine tests for > allergy, parasites. Suffers with diarrhea all summer(while trying to > play baseball -on the boy's team for more action- on fields that > don't even have port-a-potty's. Determined to not miss games or > practice, would just not eat all day if that was what it took. > > 2. Beginning of August: Pediatric G/I specialists do tests that > showed positive for hpilori (but positive test doesn't tell you when > it was active, just that she had it at some point.) Did ProPack > and pepsid for abdominal pain. No results. Taking probiotics > Culturelle daily. No headaches. Did hediscan-radioactive dye test > to check gall bladder. All normal. > > 3. End of August: Pediatric G/I randomly tried xifaxan-antibiotic 5 > day, wondering if she had some sort of bacterial overgrowth. All > symptoms were gone within 3 days and she was a normal happy 12 year > old for month of Sept.. (with milk daily). Headache only while > taking xifaxan. Lost about six pounds since spring. > > 4. End of Sept.: abdominal pain -upper only - and diarrhea came > back. - xifaxan worked again for three weeks was symptom free (even > with milk daily). Headache only while taking xifaxan. Did soccer > season part time as diarrhea and upper abdominal pain would allow. > Lauren likes 7th grade and her new school so much she says she wishes > she could go on the weekends. > > 5. Mid Nov.: upper abdominal pain, diarrhea and this time vomiting > every time she ate - endoscopy scheduled for end of Nov. Still do > advil (with food) culturelle and start two weeks of daily yogurt also. > > 6. End Nov: did endoscopy - was told results showed lactose > intolerance - take lactaid with dairy and put on a longer course of > the antibiotic 10-day this time. Saw results for two days - no > abdominal pain, headache or diarrhea- as long as she had a lactaid > with dairy. Weight stayed steady once diarrhea under control. > Usually headache only while taking xifaxan, this time Day three > headache (avg 5-6 on a scale of 1-10) and abdominal pain return and > have never left. Talk with G/I Dr about pancreas and parasites. > They do amalise test and pancreas checks out fine. They say if a > parasite, it could explain why the xifaxan works temporarily and > then symptoms come back. > > 7. Dec 17: still having bad headache and upper abdominal pain. > Advil/tylenol no relief for pain. Muscles and joints ache. Left > knee pain consistently. She isn't tired or fatigued, just joints > achy. Still taking Culturelle. Pediatrician tries med for possible > abdominal migraines - don't have name of med. It was supposed stop > the spasms. No results. Still diarrhea free as long as she had > lactaid. Discontinued that med after pharmacist sister-in-law said > med was rather extreme and she would not give it to her children. > Switch from Culturelle to Primal Defense probiotics. > > 8. Dec. 21: Infectious disease/parasite Dr's at Strong review the > case, have no explanation on why xifaxan works and then stops, say > Lauren has no indication through the standard testing of a parasite. > Dr. had no real desire for further testing, but though my request did > a lyme disease and her seds rate in blood test that would show > inflammation. Seds rate fine, don't have lyme test results back > yet. Infectious disease Dr. says highly doubt lyme disease as no > cases reported contracted in this area and the only place we had > traveled was Lake Placid in May. > Lauren only going to school part time due to constant upper abdominal > and severe headaches - bright lights bother it, unable to > concentrate in class due to pain. She still makes honor roll and > works hard to keep grades up although missing classes. Not doing > tennis as usually would this time of year. Not knowing Lauren > personally, and her love of school and sports, Infectious disease Dr > says Lauren could just be hypersensitive to symptoms now, kinda just > not feeling like going to school, and have tired teen syndrome, > similar to fibromaliga and probably just needs to push though it. I > calmly disagree with Dr and express frustration as to no explanation > for cause of anything, but tell him I am desperate as her mother and > willing to try anything. Refers us to the rheumatology dr and tired > teen clinic who work in tandem. No apt. avail till mid-January. Ask > Dr. about hormone related issues, Lauren is 12 1/2 and hasn't gotten > her period. He dismisses it as a cause for anything. > > 9. Dec. 28: follow up with pediatric g/i at Strong. Lauren still > having persistent bad headaches and upper abdominal pain, and knee > pain. New resident not familiar with Lauren consults with records, > us and her endoscopy results. She says endoscopy shows gastritis > (was previously only told of lactose intolerance and trying lactaids > only), and think headaches could be related. Start acid reducing > Prevacid (vs. acid blocker pepsid tried in past.) She cautions that > it will take 6-8 weeks to see stomach relief and not to give up. > Also try 3 days of high-dose Advil for headaches, but no relief of > headache. Headache like a headband toward front part of head - > vision sometimes wavy. G/I dr. gets blood drawn again to test for > common food alleryies. No results back yet. They think we should > systematically rule out the current gastritis/migraine diagnosis with > treatment for them for a few weeks before doing other allergy > testing. > > > 10. Dec. 28: follow up with pediatrician re: left knee persistent > pain and allergy/cold symptoms developed in last 3 days. Suspect > Lauren has typical adolescent Osgood-Schlotter disease - like growing > pain in knee. Hi-dose advil taking for head also should help knee - > which it does. Allergy/cold just take allegra as usual when needed. > Mom and Lauren decide to try diet of totally eliminating milk as well > as anything spicy or acidic. Taking advil cold/sinus next few days, > allegra not helping. Start fiber supplement and still taking > probiotic. Check eyes and " windows to the brain " show as normal. > Are encouraged at no more weight loss. > > 11. Dec. 31 - try Imatrex for migraine - helps some, reducing pain > to a four. Headache returns in following day, Imatrex helping > minimally. Still have upper abdominal pain. Taking Children's > triaminic for bad cold symptoms. > > 12. Jan. 2 am - try imatrex again. no help - headache progressively > getting worse, with food take 800 mg advil 8pm. No relief. Start > taking dark walnut oil as home remedy test for abdominal pain. > Headache mostly on left side and vision in left eye is fuzzy and > troublesome. Still persistent cold symptoms also. > > 13. Jan. 3 (first day back to school from vacation) Wake at 5 am > with worse headache - take Imatrex (corner of pill broke off in dark, > Lauren not aware, takes it - with peanut butter crackers-no dairy). > 6:15 am still have bad headache, but get ready for bus at 7am. 7 am > not better, stays home, sleeps for hour or so. (Mom discovers corner > of broken pill and reads insert saying not to break pill or take > broken - too late, as Lauren already took it early am.) Has > diarrhea-first time in several weeks since taking lactaid. 9:30 am > take second Imatrex. Don't see any relief. Not sleepy. Tries to > study for mid term exams at home - light and reading book or computer > really bother head and left eye. Noon cereal with soy milk, 1/2 > banana, few chunks of chicken from homemade soup-no diary. 1pm goes > to school though feeling like crap having worse abdominal pain. Has > diarrhea 1:15 at school. 2:30 pick Lauren up from school headache > still 7/8 - no improvement. Abdominal pain same. Take more > triaminicc for cold symptoms. Fiber and probiotics still taking daily. > > So as of now, symptoms are: > Migraine headache daily and constant- moved from " headband " to > mostly left side and bothering vision in left eye > Continued upper abdominal pain daily and constant > Occasional night sweats/hot flashes 2-3x's week > Today, first time in weeks, diarrhea - 2x's after eating and taking > Imatrex - hoping it to be isolated instances. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 The doctors in the US do not test for ALL parasite's. They only test for two. Please email me off line at jennyhauf my step-father had a similar problem. jenny --- Jenny Kernan <rainysnana wrote: > Possibility of Leaky Gut Syndrome and stress. > hPylori > and leaky gut go hand in hand. Lactose intolerance, > advil, antibiotics and other prescription > medications > will only make it worse. Has she been tested for > amoeba? Common place pathogen that shows up with > leaky > gut, but not usually tested for in standard parasite > tests. > > Stress reduction, such as Biofeedback, will be of > great benefit as this type of stressor only > increases > stress levels. Play ball on a male team when female > is > a unique stress all in its own. > > > Jenny Kernan > > --- lindylu527 <LDiel wrote: > > > Can anyone shed some light on this? Below is a > time > > line and history > > of what my friend's daughter has been > experiencing. > > Thank you in > > advance for any help and information. > > > > In addition to history below, in Sept. also > started > > seeing > > chiropractor 2x's week for tune up, although not > > having back trouble, > > he has a holistic approach to his practice and we > > were hoping to help > > overall. > > > > Lauren was athletic, healthy 12 year old girl. > > Scholar, book worm > > and really loves school and sports. Not much > could > > slow this girl > > down. Happy/well adjusted with many friends. No > > social or > > psychological underlining issues. > > > > History: > > 1. 2nd week of April 2007- last year: diarrhea for > 5 > > months - > > abdominal pain consistently got worse. They did > > routine tests for > > allergy, parasites. Suffers with diarrhea all > > summer(while trying to > > play baseball -on the boy's team for more action- > on > > fields that > > don't even have port-a-potty's. Determined to not > > miss games or > > practice, would just not eat all day if that was > > what it took. > > > > 2. Beginning of August: Pediatric G/I > specialists > > do tests that > > showed positive for hpilori (but positive test > > doesn't tell you when > > it was active, just that she had it at some > point.) > > Did ProPack > > and pepsid for abdominal pain. No results. > Taking > > probiotics > > Culturelle daily. No headaches. Did > > hediscan-radioactive dye test > > to check gall bladder. All normal. > > > > 3. End of August: Pediatric G/I randomly tried > > xifaxan-antibiotic 5 > > day, wondering if she had some sort of bacterial > > overgrowth. All > > symptoms were gone within 3 days and she was a > > normal happy 12 year > > old for month of Sept.. (with milk daily). > Headache > > only while > > taking xifaxan. Lost about six pounds since > spring. > > > > > > 4. End of Sept.: abdominal pain -upper only - and > > diarrhea came > > back. - xifaxan worked again for three weeks was > > symptom free (even > > with milk daily). Headache only while taking > > xifaxan. Did soccer > > season part time as diarrhea and upper abdominal > > pain would allow. > > Lauren likes 7th grade and her new school so much > > she says she wishes > > she could go on the weekends. > > > > 5. Mid Nov.: upper abdominal pain, diarrhea and > this > > time vomiting > > every time she ate - endoscopy scheduled for end > of > > Nov. Still do > > advil (with food) culturelle and start two weeks > of > > daily yogurt also. > > > > 6. End Nov: did endoscopy - was told results > showed > > lactose > > intolerance - take lactaid with dairy and put on a > > longer course of > > the antibiotic 10-day this time. Saw results for > > two days - no > > abdominal pain, headache or diarrhea- as long as > she > > had a lactaid > > with dairy. Weight stayed steady once diarrhea > > under control. > > Usually headache only while taking xifaxan, this > > time Day three > > headache (avg 5-6 on a scale of 1-10) and > abdominal > > pain return and > > have never left. Talk with G/I Dr about pancreas > > and parasites. > > They do amalise test and pancreas checks out fine. > > > They say if a > > parasite, it could explain why the xifaxan works > > temporarily and > > then symptoms come back. > > > > 7. Dec 17: still having bad headache and upper > > abdominal pain. > > Advil/tylenol no relief for pain. Muscles and > > joints ache. Left > > knee pain consistently. She isn't tired or > > fatigued, just joints > > achy. Still taking Culturelle. Pediatrician > tries > > med for possible > > abdominal migraines - don't have name of med. It > > was supposed stop > > the spasms. No results. Still diarrhea free as > > long as she had > > lactaid. Discontinued that med after pharmacist > > sister-in-law said > > med was rather extreme and she would not give it > to > > her children. > > Switch from Culturelle to Primal Defense > probiotics. > > > > > > 8. Dec. 21: Infectious disease/parasite Dr's at > > Strong review the > > case, have no explanation on why xifaxan works and > > then stops, say > > Lauren has no indication through the standard > > testing of a parasite. > > Dr. had no real desire for further testing, but > > though my request did > > a lyme disease and her seds rate in blood test > that > > would show > > inflammation. Seds rate fine, don't have lyme > test > > results back > > yet. Infectious disease Dr. says highly doubt > lyme > > disease as no > > cases reported contracted in this area and the > only > > place we had > > traveled was Lake Placid in May. > > Lauren only going to school part time due to > > constant upper abdominal > > and severe headaches - bright lights bother it, > > unable to > > concentrate in class due to pain. She still makes > > honor roll and > > works hard to keep grades up although missing > > classes. Not doing > > tennis as usually would this time of year. Not > > knowing Lauren > > personally, and her love of school and sports, > > Infectious disease Dr > > says Lauren could just be hypersensitive to > > symptoms now, kinda just > > not feeling like going to school, and have tired > > teen syndrome, > > similar to fibromaliga and probably just needs to > === message truncated === Immature love is loving someone because you need them, mature love is needing someone because you love them! 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Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 From an energetic medicine perspective these are symptoms of excess heat in the system. If you don't get any help from orthodox medical you might want to take her to a practitioner of Chinese medicine. I'm sure they could help you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I posted my daughter has similar problems, got tested for parasites, but need to check on which ones, lost about 23ish pounds, but now we are getting great help with a local practioner that does NAET and acupuncture as well as Ion Cleanses from another practioner. Amazing. She is not having the pains/diahr/in past couldn't eat due to intestinal/stomach issues then, etc. Now she has had I believe 6 NAET treatments and doing great. She'll be back in CO for more I believe mid March. It's amazing but she probably has candida which triggered Crohn's Disease. Jenny, how is step-father now? What is he doing? What was he diagnosed as having? Thanks for sharing. We're all in this together. carolg , Jenny Hauf <jennyhauf wrote: > > The doctors in the US do not test for ALL parasite's. > They only test for two. Please email me off line at > jennyhauf my step-father had a similar > problem. > > jenny > --- Jenny Kernan <rainysnana wrote: > > > Possibility of Leaky Gut Syndrome and stress. > > hPylori > > and leaky gut go hand in hand. Lactose intolerance, > > advil, antibiotics and other prescription > > medications > > will only make it worse. Has she been tested for > > amoeba? Common place pathogen that shows up with > > leaky > > gut, but not usually tested for in standard parasite > > tests. > > > > Stress reduction, such as Biofeedback, will be of > > great benefit as this type of stressor only > > increases > > stress levels. Play ball on a male team when female > > is > > a unique stress all in its own. > > > > > > Jenny Kernan > > > > --- lindylu527 <LDiel wrote: > > > > > Can anyone shed some light on this? Below is a > > time > > > line and history > > > of what my friend's daughter has been > > experiencing. > > > Thank you in > > > advance for any help and information. > > > > > > In addition to history below, in Sept. also > > started > > > seeing > > > chiropractor 2x's week for tune up, although not > > > having back trouble, > > > he has a holistic approach to his practice and we > > > were hoping to help > > > overall. > > > > > > Lauren was athletic, healthy 12 year old girl. > > > Scholar, book worm > > > and really loves school and sports. Not much > > could > > > slow this girl > > > down. Happy/well adjusted with many friends. No > > > social or > > > psychological underlining issues. > > > > > > History: > > > 1. 2nd week of April 2007- last year: diarrhea for > > 5 > > > months - > > > abdominal pain consistently got worse. They did > > > routine tests for > > > allergy, parasites. Suffers with diarrhea all > > > summer(while trying to > > > play baseball -on the boy's team for more action- > > on > > > fields that > > > don't even have port-a-potty's. Determined to not > > > miss games or > > > practice, would just not eat all day if that was > > > what it took. > > > > > > 2. Beginning of August: Pediatric G/I > > specialists > > > do tests that > > > showed positive for hpilori (but positive test > > > doesn't tell you when > > > it was active, just that she had it at some > > point.) > > > Did ProPack > > > and pepsid for abdominal pain. No results. > > Taking > > > probiotics > > > Culturelle daily. No headaches. Did > > > hediscan-radioactive dye test > > > to check gall bladder. All normal. > > > > > > 3. End of August: Pediatric G/I randomly tried > > > xifaxan-antibiotic 5 > > > day, wondering if she had some sort of bacterial > > > overgrowth. All > > > symptoms were gone within 3 days and she was a > > > normal happy 12 year > > > old for month of Sept.. (with milk daily). > > Headache > > > only while > > > taking xifaxan. Lost about six pounds since > > spring. > > > > > > > > > 4. End of Sept.: abdominal pain -upper only - and > > > diarrhea came > > > back. - xifaxan worked again for three weeks was > > > symptom free (even > > > with milk daily). Headache only while taking > > > xifaxan. Did soccer > > > season part time as diarrhea and upper abdominal > > > pain would allow. > > > Lauren likes 7th grade and her new school so much > > > she says she wishes > > > she could go on the weekends. > > > > > > 5. Mid Nov.: upper abdominal pain, diarrhea and > > this > > > time vomiting > > > every time she ate - endoscopy scheduled for end > > of > > > Nov. Still do > > > advil (with food) culturelle and start two weeks > > of > > > daily yogurt also. > > > > > > 6. End Nov: did endoscopy - was told results > > showed > > > lactose > > > intolerance - take lactaid with dairy and put on a > > > longer course of > > > the antibiotic 10-day this time. Saw results for > > > two days - no > > > abdominal pain, headache or diarrhea- as long as > > she > > > had a lactaid > > > with dairy. Weight stayed steady once diarrhea > > > under control. > > > Usually headache only while taking xifaxan, this > > > time Day three > > > headache (avg 5-6 on a scale of 1-10) and > > abdominal > > > pain return and > > > have never left. Talk with G/I Dr about pancreas > > > and parasites. > > > They do amalise test and pancreas checks out fine. > > > > > They say if a > > > parasite, it could explain why the xifaxan works > > > temporarily and > > > then symptoms come back. > > > > > > 7. Dec 17: still having bad headache and upper > > > abdominal pain. > > > Advil/tylenol no relief for pain. Muscles and > > > joints ache. Left > > > knee pain consistently. She isn't tired or > > > fatigued, just joints > > > achy. Still taking Culturelle. Pediatrician > > tries > > > med for possible > > > abdominal migraines - don't have name of med. It > > > was supposed stop > > > the spasms. No results. Still diarrhea free as > > > long as she had > > > lactaid. Discontinued that med after pharmacist > > > sister-in-law said > > > med was rather extreme and she would not give it > > to > > > her children. > > > Switch from Culturelle to Primal Defense > > probiotics. > > > > > > > > > 8. Dec. 21: Infectious disease/parasite Dr's at > > > Strong review the > > > case, have no explanation on why xifaxan works and > > > then stops, say > > > Lauren has no indication through the standard > > > testing of a parasite. > > > Dr. had no real desire for further testing, but > > > though my request did > > > a lyme disease and her seds rate in blood test > > that > > > would show > > > inflammation. Seds rate fine, don't have lyme > > test > > > results back > > > yet. Infectious disease Dr. says highly doubt > > lyme > > > disease as no > > > cases reported contracted in this area and the > > only > > > place we had > > > traveled was Lake Placid in May. > > > Lauren only going to school part time due to > > > constant upper abdominal > > > and severe headaches - bright lights bother it, > > > unable to > > > concentrate in class due to pain. She still makes > > > honor roll and > > > works hard to keep grades up although missing > > > classes. Not doing > > > tennis as usually would this time of year. Not > > > knowing Lauren > > > personally, and her love of school and sports, > > > Infectious disease Dr > > > says Lauren could just be hypersensitive to > > > symptoms now, kinda just > > > not feeling like going to school, and have tired > > > teen syndrome, > > > similar to fibromaliga and probably just needs to > > > === message truncated === > > > Immature love is loving someone because you need them, mature love is needing someone because you love them! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I'm sorry to hear about the 12 yr old girl. I have had stomach problems most of my life and after I had my gallbladder removed things got much worse. I realize you said her gallbladder was fine and I'm assuming they have already checked her for diabetes. I will tell you what has really helped me, but please do the research. First of all I am allergic to milk and eggs. But these are not the only trigger foods, such as any high fat foods. I noticed when I have kept away from breads carbs ect ( I do eat some fruit however) things are so so much better. But this is what I do nightly and the best thing that has helped me. If you go to the FlaxSeedOil2 which is a diet for cancer and other things from Johanna Budwig. I do not follow the entire diet, but every night I do take the Flax Oil/ Seed/ Cottage Cheese mixture (yes I can tolerate it) and take each bite with some fruit for taste. This had made an enormous difference in my life. No more runs or constipation. However it does bother my stomach unless I take it before bed. Please go to the site and if you decide to try start out very very slow!!! This will help her digestion so much and believe me I've tried everything! The next thing which is very very important is that at least for me I suspect the culprit to be either an inability to digest most of carbs or the fungus that they bring. I am really coming to believe after yrs of researching that fungus is a huge huge problem. You will find it on breads, corn, peanut butter and more. I suggest following a diet for candida for a long long time to try to clear this up!! I know for a young girl it will be hard, but if you check out the Body Ecology site and learn to make coconut kefir and read that book (and others) you will find many foods to eat. I wonder if she has had any athletes foot or any yeast problems? For me I have not, yet I will tell you when I follow the diet it is soooo much better. I have heard that there are antifungal pills that are helpful and need to be prescribed by a doctor. The latest thing I'm checking out is from http://www.Beating-Cancer- Gently.com/nl115.html where I found this link to something called miraclemineral from the site http://miraclemineral.org It seems to help a lot of people with this issue and many others! However I warn you, please check with her doctor to make sure any and all changes are safe and healthly for her!!! I have just begun investigating this last site and need to speak with someone knowledgable to make sure it is safe. So good luck and really get the the flaxseedoil2 site at and look into that mixture...honestly it changed my life! You wonder why I am still working on this issue. I notice I still get stomach aches with foods however the elimation problem is much better. So I notice when I stay away from breads ect I feel really good. If I go back I get the stomach aches. From what I understand candida problems do not go away in a week or two, or I should say fungus problems will still be there after a couple weeks, you need to stay on the diet for a long long time. However I have never taken antifungal pills ect just trying to do it naturally. Please check the internet for this info there are a lot of great authors out there! Also has she had a colonoscopy already? Been checked for pinworms? But you can check at home if want but I just heard on Oprah so look at the website " ask Dr Oz? " Does she ever scratch her bottom so to speak? (: Does her poop float? Could be parasite they havent found. Sorry to be so explicit! Maybe you could also ask people on this forum if they know of a good holistic doctor in your area? Good luck and please don't give up! Deb PS As I'm typing this I'm watching the late show of Oprah and Dr. Oz is on talking about parasites, ringworm, tapeworm, hookworm which could be gotten from walking around barefoot ect.! Why don't you also look up her website and find a link to dr oz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Did this child by any chance have any dental work done before this started happening? Any vaccinations? My daughter went through a lot of the same symptoms, migraines and bowels. Don't think that this girl is having emotional problems. I was told by three doctors and one naturopath that in her case it was physical and they said usually it is. We write off way more as being emotional than really happens. People are constantly being put on meds when all they need is to get the poison out of their body. She has classic symptoms of some type of poisoning. The knee can indicate kidney problems which can also be a sign of mercury overload. Headache sounds the same as my girl's was before detoxifying. Her brain was swollen due to mercury. Seems that when the molars grow in around that age a lot of kids get dental work, get amalgams (50% mercury) and get sick. Also, it's a time for booster shots which may contain a mercury derivative. Mercury will make the body acidic and cause bowel problems. NO DAIRY IS VITAL! It will cause inflammation. No 12 year old needs dairy products. Not all probiotics are created equal and while Primal Defense is better than most, soil based organisms can irritate some sensitive people. Carol made some excellent dietary suggestions. It took us about ten years of trying stuff to solve our problem which was mainly mercury but also other metals like cadmium. A little over a week on Natural Cellular Defense and our problem was gone. You can read our full story on my website: www.ncdpro.com/detoxqueen. Listen to the recorded interview with the doctor while you're there and feel free to call for more individualized attention than I can give here. Toxins are at the root of roughly 95% of " diseases " which are in reality just symptoms. My only other guess would be Lyme. Doesn't matter if there are no occurances in the area. My Mom's friend was the first in Ontario to have Lyme! It is not always detectable by standard testing. Hope this helps, Sharon , " lindylu527 " <LDiel wrote: > > Can anyone shed some light on this? Below is a time line and history > of what my friend's daughter has been experiencing. Thank you in > advance for any help and information. > > In addition to history below, in Sept. also started seeing > chiropractor 2x's week for tune up, although not having back trouble, > he has a holistic approach to his practice and we were hoping to help > overall. > > Lauren was athletic, healthy 12 year old girl. Scholar, book worm > and really loves school and sports. Not much could slow this girl > down. Happy/well adjusted with many friends. No social or > psychological underlining issues. > > History: > 1. 2nd week of April 2007- last year: diarrhea for 5 months - > abdominal pain consistently got worse. They did routine tests for > allergy, parasites. Suffers with diarrhea all summer(while trying to > play baseball -on the boy's team for more action- on fields that > don't even have port-a-potty's. Determined to not miss games or > practice, would just not eat all day if that was what it took. > > 2. Beginning of August: Pediatric G/I specialists do tests that > showed positive for hpilori (but positive test doesn't tell you when > it was active, just that she had it at some point.) Did ProPack > and pepsid for abdominal pain. No results. Taking probiotics > Culturelle daily. No headaches. Did hediscan-radioactive dye test > to check gall bladder. All normal. > > 3. End of August: Pediatric G/I randomly tried xifaxan-antibiotic 5 > day, wondering if she had some sort of bacterial overgrowth. All > symptoms were gone within 3 days and she was a normal happy 12 year > old for month of Sept.. (with milk daily). Headache only while > taking xifaxan. Lost about six pounds since spring. > > 4. End of Sept.: abdominal pain -upper only - and diarrhea came > back. - xifaxan worked again for three weeks was symptom free (even > with milk daily). Headache only while taking xifaxan. Did soccer > season part time as diarrhea and upper abdominal pain would allow. > Lauren likes 7th grade and her new school so much she says she wishes > she could go on the weekends. > > 5. Mid Nov.: upper abdominal pain, diarrhea and this time vomiting > every time she ate - endoscopy scheduled for end of Nov. Still do > advil (with food) culturelle and start two weeks of daily yogurt also. > > 6. End Nov: did endoscopy - was told results showed lactose > intolerance - take lactaid with dairy and put on a longer course of > the antibiotic 10-day this time. Saw results for two days - no > abdominal pain, headache or diarrhea- as long as she had a lactaid > with dairy. Weight stayed steady once diarrhea under control. > Usually headache only while taking xifaxan, this time Day three > headache (avg 5-6 on a scale of 1-10) and abdominal pain return and > have never left. Talk with G/I Dr about pancreas and parasites. > They do amalise test and pancreas checks out fine. They say if a > parasite, it could explain why the xifaxan works temporarily and > then symptoms come back. > > 7. Dec 17: still having bad headache and upper abdominal pain. > Advil/tylenol no relief for pain. Muscles and joints ache. Left > knee pain consistently. She isn't tired or fatigued, just joints > achy. Still taking Culturelle. Pediatrician tries med for possible > abdominal migraines - don't have name of med. It was supposed stop > the spasms. No results. Still diarrhea free as long as she had > lactaid. Discontinued that med after pharmacist sister-in-law said > med was rather extreme and she would not give it to her children. > Switch from Culturelle to Primal Defense probiotics. > > 8. Dec. 21: Infectious disease/parasite Dr's at Strong review the > case, have no explanation on why xifaxan works and then stops, say > Lauren has no indication through the standard testing of a parasite. > Dr. had no real desire for further testing, but though my request did > a lyme disease and her seds rate in blood test that would show > inflammation. Seds rate fine, don't have lyme test results back > yet. Infectious disease Dr. says highly doubt lyme disease as no > cases reported contracted in this area and the only place we had > traveled was Lake Placid in May. > Lauren only going to school part time due to constant upper abdominal > and severe headaches - bright lights bother it, unable to > concentrate in class due to pain. She still makes honor roll and > works hard to keep grades up although missing classes. Not doing > tennis as usually would this time of year. Not knowing Lauren > personally, and her love of school and sports, Infectious disease Dr > says Lauren could just be hypersensitive to symptoms now, kinda just > not feeling like going to school, and have tired teen syndrome, > similar to fibromaliga and probably just needs to push though it. I > calmly disagree with Dr and express frustration as to no explanation > for cause of anything, but tell him I am desperate as her mother and > willing to try anything. Refers us to the rheumatology dr and tired > teen clinic who work in tandem. No apt. avail till mid-January. Ask > Dr. about hormone related issues, Lauren is 12 1/2 and hasn't gotten > her period. He dismisses it as a cause for anything. > > 9. Dec. 28: follow up with pediatric g/i at Strong. Lauren still > having persistent bad headaches and upper abdominal pain, and knee > pain. New resident not familiar with Lauren consults with records, > us and her endoscopy results. She says endoscopy shows gastritis > (was previously only told of lactose intolerance and trying lactaids > only), and think headaches could be related. Start acid reducing > Prevacid (vs. acid blocker pepsid tried in past.) She cautions that > it will take 6-8 weeks to see stomach relief and not to give up. > Also try 3 days of high-dose Advil for headaches, but no relief of > headache. Headache like a headband toward front part of head - > vision sometimes wavy. G/I dr. gets blood drawn again to test for > common food alleryies. No results back yet. They think we should > systematically rule out the current gastritis/migraine diagnosis with > treatment for them for a few weeks before doing other allergy > testing. > > > 10. Dec. 28: follow up with pediatrician re: left knee persistent > pain and allergy/cold symptoms developed in last 3 days. Suspect > Lauren has typical adolescent Osgood-Schlotter disease - like growing > pain in knee. Hi-dose advil taking for head also should help knee - > which it does. Allergy/cold just take allegra as usual when needed. > Mom and Lauren decide to try diet of totally eliminating milk as well > as anything spicy or acidic. Taking advil cold/sinus next few days, > allegra not helping. Start fiber supplement and still taking > probiotic. Check eyes and " windows to the brain " show as normal. > Are encouraged at no more weight loss. > > 11. Dec. 31 - try Imatrex for migraine - helps some, reducing pain > to a four. Headache returns in following day, Imatrex helping > minimally. Still have upper abdominal pain. Taking Children's > triaminic for bad cold symptoms. > > 12. Jan. 2 am - try imatrex again. no help - headache progressively > getting worse, with food take 800 mg advil 8pm. No relief. Start > taking dark walnut oil as home remedy test for abdominal pain. > Headache mostly on left side and vision in left eye is fuzzy and > troublesome. Still persistent cold symptoms also. > > 13. Jan. 3 (first day back to school from vacation) Wake at 5 am > with worse headache - take Imatrex (corner of pill broke off in dark, > Lauren not aware, takes it - with peanut butter crackers-no dairy). > 6:15 am still have bad headache, but get ready for bus at 7am. 7 am > not better, stays home, sleeps for hour or so. (Mom discovers corner > of broken pill and reads insert saying not to break pill or take > broken - too late, as Lauren already took it early am.) Has > diarrhea-first time in several weeks since taking lactaid. 9:30 am > take second Imatrex. Don't see any relief. Not sleepy. Tries to > study for mid term exams at home - light and reading book or computer > really bother head and left eye. Noon cereal with soy milk, 1/2 > banana, few chunks of chicken from homemade soup-no diary. 1pm goes > to school though feeling like crap having worse abdominal pain. Has > diarrhea 1:15 at school. 2:30 pick Lauren up from school headache > still 7/8 - no improvement. Abdominal pain same. Take more > triaminicc for cold symptoms. Fiber and probiotics still taking daily. > > So as of now, symptoms are: > Migraine headache daily and constant- moved from " headband " to > mostly left side and bothering vision in left eye > Continued upper abdominal pain daily and constant > Occasional night sweats/hot flashes 2-3x's week > Today, first time in weeks, diarrhea - 2x's after eating and taking > Imatrex - hoping it to be isolated instances. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Well done Sharon. This sounds very similar to the reading I got for this child. Only the metal I got is aluminum. Dr. Bate had a resource for testing doing hair analysis: " As many of you know, I quit doing hair analysis a few years back because it was more trouble than it was worth. However, now, I am getting further and further into the ADD-Autism continuum with the success of my Neuroliminal Training, particularly for Autism, and I find that there are few affordable labs that offer this to lay persons. Since mercury toxicity is a huge part of solving the ADD-Autism continuum, along with the use of Neuroliminal Training and nutritional support, I am now offering a simple mineral list showing 36 minerals both toxic and nutritional, showing ratios, and levels. This is excellent for those parents who want to check for mercury toxicity, and also for checking for mercury or copper toxicity for depressives or schizophrenics. For those adults who want the complete package with nutritional advice on " balancing: minerals for better health, there is a second format with all the above, but also a comprehensive computerized readout with lots of data on correcting imbalances. I used Trace Elements Inc successfully for many years in my practice. I have confidence in their service - and their data is easy to read and interpret for anyone. I will be again using their service. For more details, go to: http://www.drbate.com/Ref/hair.html -- Phil Bate PhD http://DrBate.com Neuroliminal does what Neurofeedback does at low cost. http://ADHD-Autism.com " I have used homeopathics to get rid of metals with great success. Do the hair analysis first. Or get a reading from the people below. Homeopathics for these metals are available from: http://www.southernherb.com/ and/or http://www.kroegerherb.com/ They also have resources available to do inexpensive medical readings if you need more help or direction. Namaste, divya In , <energy_now wrote: > > Did this child by any chance have any dental work done before this > started happening? Any vaccinations? My daughter went through a lot > of the same symptoms, migraines and bowels. Don't think that this > girl is having emotional problems. I was told by three doctors and one > naturopath that in her case it was physical and they said usually it > is. We write off way more as being emotional than really happens. > People are constantly being put on meds when all they need is to get > the poison out of their body. > > She has classic symptoms of some type of poisoning. The knee can > indicate kidney problems which can also be a sign of mercury overload. > Headache sounds the same as my girl's was before detoxifying. Her > brain was swollen due to mercury. > > Seems that when the molars grow in around that age a lot of kids get > dental work, get amalgams (50% mercury) and get sick. Also, it's a > time for booster shots which may contain a mercury derivative. > > Mercury will make the body acidic and cause bowel problems. NO DAIRY > IS VITAL! It will cause inflammation. No 12 year old needs dairy > products. > > Not all probiotics are created equal and while Primal Defense is > better than most, soil based organisms can irritate some sensitive > people. > > Carol made some excellent dietary suggestions. It took us about ten > years of trying stuff to solve our problem which was mainly mercury > but also other metals like cadmium. A little over a week on Natural > Cellular Defense and our problem was gone. You can read our full story > on my website: www.ncdpro.com/detoxqueen. Listen to the recorded > interview with the doctor while you're there and feel free to call for > more individualized attention than I can give here. Toxins are at the > root of roughly 95% of " diseases " which are in reality just symptoms. > > My only other guess would be Lyme. Doesn't matter if there are no > occurances in the area. My Mom's friend was the first in Ontario to > have Lyme! It is not always detectable by standard testing. > > Hope this helps, > > Sharon > > , " lindylu527 " <LDiel@> wrote: > > > > Can anyone shed some light on this? Below is a time line and history > > of what my friend's daughter has been experiencing. Thank you in > > advance for any help and information. > > > > In addition to history below, in Sept. also started seeing > > chiropractor 2x's week for tune up, although not having back trouble, > > he has a holistic approach to his practice and we were hoping to help > > overall. > > > > Lauren was athletic, healthy 12 year old girl. Scholar, book worm > > and really loves school and sports. Not much could slow this girl > > down. Happy/well adjusted with many friends. No social or > > psychological underlining issues. > > > > History: > > 1. 2nd week of April 2007- last year: diarrhea for 5 months - > > abdominal pain consistently got worse. They did routine tests for > > allergy, parasites. Suffers with diarrhea all summer(while trying to > > play baseball -on the boy's team for more action- on fields that > > don't even have port-a-potty's. Determined to not miss games or > > practice, would just not eat all day if that was what it took. > > > > 2. Beginning of August: Pediatric G/I specialists do tests that > > showed positive for hpilori (but positive test doesn't tell you when > > it was active, just that she had it at some point.) Did ProPack > > and pepsid for abdominal pain. No results. Taking probiotics > > Culturelle daily. No headaches. Did hediscan-radioactive dye test > > to check gall bladder. All normal. > > > > 3. End of August: Pediatric G/I randomly tried xifaxan-antibiotic 5 > > day, wondering if she had some sort of bacterial overgrowth. All > > symptoms were gone within 3 days and she was a normal happy 12 year > > old for month of Sept.. (with milk daily). Headache only while > > taking xifaxan. Lost about six pounds since spring. > > > > 4. End of Sept.: abdominal pain -upper only - and diarrhea came > > back. - xifaxan worked again for three weeks was symptom free (even > > with milk daily). Headache only while taking xifaxan. Did soccer > > season part time as diarrhea and upper abdominal pain would allow. > > Lauren likes 7th grade and her new school so much she says she wishes > > she could go on the weekends. > > > > 5. Mid Nov.: upper abdominal pain, diarrhea and this time vomiting > > every time she ate - endoscopy scheduled for end of Nov. Still do > > advil (with food) culturelle and start two weeks of daily yogurt also. > > > > 6. End Nov: did endoscopy - was told results showed lactose > > intolerance - take lactaid with dairy and put on a longer course of > > the antibiotic 10-day this time. Saw results for two days - no > > abdominal pain, headache or diarrhea- as long as she had a lactaid > > with dairy. Weight stayed steady once diarrhea under control. > > Usually headache only while taking xifaxan, this time Day three > > headache (avg 5-6 on a scale of 1-10) and abdominal pain return and > > have never left. Talk with G/I Dr about pancreas and parasites. > > They do amalise test and pancreas checks out fine. They say if a > > parasite, it could explain why the xifaxan works temporarily and > > then symptoms come back. > > > > 7. Dec 17: still having bad headache and upper abdominal pain. > > Advil/tylenol no relief for pain. Muscles and joints ache. Left > > knee pain consistently. She isn't tired or fatigued, just joints > > achy. Still taking Culturelle. Pediatrician tries med for possible > > abdominal migraines - don't have name of med. It was supposed stop > > the spasms. No results. Still diarrhea free as long as she had > > lactaid. Discontinued that med after pharmacist sister-in-law said > > med was rather extreme and she would not give it to her children. > > Switch from Culturelle to Primal Defense probiotics. > > > > 8. Dec. 21: Infectious disease/parasite Dr's at Strong review the > > case, have no explanation on why xifaxan works and then stops, say > > Lauren has no indication through the standard testing of a parasite. > > Dr. had no real desire for further testing, but though my request did > > a lyme disease and her seds rate in blood test that would show > > inflammation. Seds rate fine, don't have lyme test results back > > yet. Infectious disease Dr. says highly doubt lyme disease as no > > cases reported contracted in this area and the only place we had > > traveled was Lake Placid in May. > > Lauren only going to school part time due to constant upper abdominal > > and severe headaches - bright lights bother it, unable to > > concentrate in class due to pain. She still makes honor roll and > > works hard to keep grades up although missing classes. Not doing > > tennis as usually would this time of year. Not knowing Lauren > > personally, and her love of school and sports, Infectious disease Dr > > says Lauren could just be hypersensitive to symptoms now, kinda just > > not feeling like going to school, and have tired teen syndrome, > > similar to fibromaliga and probably just needs to push though it. I > > calmly disagree with Dr and express frustration as to no explanation > > for cause of anything, but tell him I am desperate as her mother and > > willing to try anything. Refers us to the rheumatology dr and tired > > teen clinic who work in tandem. No apt. avail till mid-January. Ask > > Dr. about hormone related issues, Lauren is 12 1/2 and hasn't gotten > > her period. He dismisses it as a cause for anything. > > > > 9. Dec. 28: follow up with pediatric g/i at Strong. Lauren still > > having persistent bad headaches and upper abdominal pain, and knee > > pain. New resident not familiar with Lauren consults with records, > > us and her endoscopy results. She says endoscopy shows gastritis > > (was previously only told of lactose intolerance and trying lactaids > > only), and think headaches could be related. Start acid reducing > > Prevacid (vs. acid blocker pepsid tried in past.) She cautions that > > it will take 6-8 weeks to see stomach relief and not to give up. > > Also try 3 days of high-dose Advil for headaches, but no relief of > > headache. Headache like a headband toward front part of head - > > vision sometimes wavy. G/I dr. gets blood drawn again to test for > > common food alleryies. No results back yet. They think we should > > systematically rule out the current gastritis/migraine diagnosis with > > treatment for them for a few weeks before doing other allergy > > testing. > > > > > > 10. Dec. 28: follow up with pediatrician re: left knee persistent > > pain and allergy/cold symptoms developed in last 3 days. Suspect > > Lauren has typical adolescent Osgood-Schlotter disease - like growing > > pain in knee. Hi-dose advil taking for head also should help knee - > > which it does. Allergy/cold just take allegra as usual when needed. > > Mom and Lauren decide to try diet of totally eliminating milk as well > > as anything spicy or acidic. Taking advil cold/sinus next few days, > > allegra not helping. Start fiber supplement and still taking > > probiotic. Check eyes and " windows to the brain " show as normal. > > Are encouraged at no more weight loss. > > > > 11. Dec. 31 - try Imatrex for migraine - helps some, reducing pain > > to a four. Headache returns in following day, Imatrex helping > > minimally. Still have upper abdominal pain. Taking Children's > > triaminic for bad cold symptoms. > > > > 12. Jan. 2 am - try imatrex again. no help - headache progressively > > getting worse, with food take 800 mg advil 8pm. No relief. Start > > taking dark walnut oil as home remedy test for abdominal pain. > > Headache mostly on left side and vision in left eye is fuzzy and > > troublesome. Still persistent cold symptoms also. > > > > 13. Jan. 3 (first day back to school from vacation) Wake at 5 am > > with worse headache - take Imatrex (corner of pill broke off in dark, > > Lauren not aware, takes it - with peanut butter crackers-no dairy). > > 6:15 am still have bad headache, but get ready for bus at 7am. 7 am > > not better, stays home, sleeps for hour or so. (Mom discovers corner > > of broken pill and reads insert saying not to break pill or take > > broken - too late, as Lauren already took it early am.) Has > > diarrhea-first time in several weeks since taking lactaid. 9:30 am > > take second Imatrex. Don't see any relief. Not sleepy. Tries to > > study for mid term exams at home - light and reading book or computer > > really bother head and left eye. Noon cereal with soy milk, 1/2 > > banana, few chunks of chicken from homemade soup-no diary. 1pm goes > > to school though feeling like crap having worse abdominal pain. Has > > diarrhea 1:15 at school. 2:30 pick Lauren up from school headache > > still 7/8 - no improvement. Abdominal pain same. Take more > > triaminicc for cold symptoms. Fiber and probiotics still taking daily. > > > > So as of now, symptoms are: > > Migraine headache daily and constant- moved from " headband " to > > mostly left side and bothering vision in left eye > > Continued upper abdominal pain daily and constant > > Occasional night sweats/hot flashes 2-3x's week > > Today, first time in weeks, diarrhea - 2x's after eating and taking > > Imatrex - hoping it to be isolated instances. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I'd have to agree. These practices are very unlikely to interfere with medical advice, and can improve almost anyone's quality of life. Try eliminating gluten, dairy, sugars, anything processed, and balance her pH. Personally, I would also eliminate all animal products, as parasites are common in them, but that's just my opinion. Take LOTS of probiotics EVERY day. From what I've read about parasites, there are so many that are not found in medical tests. Perhaps you should do a thorough parasite & candida cleanse. Here are some links that you may find helpful: http://www.wholeapproach.com/ http://shop.toolsforhealing.com/Clarkia_Cleanse_2_oz_p/rbc-clarkia.htm http://www.shanti.com.au/body/parasite_cleanse.htm http://www.bodyecologydiet.com/ I haven't read through the recent discussion here about Threelac, but it's highly recommended for intense candida cleansing, though it's not without side effects. Both parasites and candida can wreak havoc on the body. I've personally battled with them for the last couple of years, and believe I've had them most of my life. I'm currently breastfeeding, so am not yet able to safely do a thorough cleanse, but I've found drastically altering my diet made a TREMENDOUS difference. There is a lot of information on the web about candida cleansing, and it can be overwhelming, but for me, it was the first step to a much better life. I, too, was very physically active & already ate what most people considered to be a very healthy diet, but it wasn't enough. I now eat mostly fresh, organic produce (cooked - with a challenged gut, I'd stay away from raw stuff until her gut has healed: research Ayurveda), whole grains (rarely wheat), nuts (not peanuts), other legumes. Get as many colorful veggies into her diet as possible, especially greens. There are lots of great green drink powders that blend well with nut milks, juice or produce. The most important thing is eliminating sugars (including dairy & most fruits). Parasites, including candida, feed on sugars, and when they're well-fed, they reproduce with mind-numbing speed. I don't recall if you were able to get a celiac test. For whatever reason, docs are reluctant to do the test, but it is an important one. Best to you and your dd. , " Carol " <carol wrote: > > What is her diet like, a typical SAD? > > I would suggest for her to go on a dairy-free, wheat-free, > preservative/chemical-free, sugar-free diet. Eat only whole foods > (nothing from a box or can) - organic is best if possible. Lots of > green leafy veggies, colorful fruits, seeds, nuts, etc. Add > plant-based digestive enzymes, a higher quality probiotic supplement, > whole food mineral supplements, whole food antioxidants. > > Carol > http://www.bluegreensolutions.com > Quote Link to comment Share on other sites More sharing options...
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