Guest guest Posted September 30, 2007 Report Share Posted September 30, 2007 Hi everybody, I know I don't post often about my renal condition, since I'm quite occupied with my daughter's Autism, but I would like some input on a strange experience that I just had where someone commented on my renal disease. I posted to a group called openblooms http://health.openblooms/ where the description says, " A place for digestive, mental, soul wellness. " Since it is commonly accepted that stress can worsen health conditions, I attempted to start a discussion about happiness and " how we can choose the most optimal life for ourselves and maybe even help others in the process? " This apparently ruffled the feathers of two members (one of which is the owner). Here's the strange part, the owner complained about what she called my " long soliloquies " and said that my writing style (which she apparently doesn't like) was due to my kidney disease. Have any of you been faced with such an odd accusation regarding your condition before? Just wondering. Peace be with you!---Nicole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 I live alone and have a gift of writing. Being alone is not something I want in my life and can be very painful so writing helps keep me sane and in touch with the world. It is a way to reach out and network with others. Writing helps me to sort out my thoughts, feelings, and understand what I need to know; when I figure something out and share, it can become a gift that offers a wealth of ideas and wisdom to and with others. Years ago, when I first began to write my thoughts and send them into the world, they were short pieces. Readers often would misinterpret things I would say, and I realized it was because the topic was broad but my thoughts and data were too concise and/or abbreviated. So I learned how to write with clarity - to thoroughly discuss a topic which added more words/paragraphs to a letter, but gave order and understanding. What I found when I changed my writing techniques to more fully express myself, I was beginning to enjoy my life, tolerating being alone, and liked what my writing invoked in me. I felt that in my aloneness, I was filling a need to communicate, digging deeper into understanding a research topic, and in this self teaching I was able to contribute unknowingly a wealth of knowledge with others, and after I would send a letter, then I would let it go with no expectations though intuiting that I was actually helping someone out there. There are always some who write back expressing thanks for helping to understand, but often, I find that most people do not want to read lengthy scripts. I have been told that my emails are deleted, not read, and too long. I have been told to stop the soliloquies and " tomes " of long and endless emails where I never get to the point. I was banned from Athena - a homeopathic digest twice for writing long comments. The moderator was a well known healer/shaman who said people were angry at my long letters. These sites are for healing. Healing comes in many ways. Some people heal themselves through their writings. I was told to blog by myself if I needed to write, but I needed to reach out and touch others and be a part of a voice and an ear. I could talk to the walls all day and go crazy but I need a place where there are ears, voices, and hearts. I assumed that a healing digest would offer just that. How can healing take place in a forum when there are angry, judgmental, opinioned, impatient, and intolerant people out there mocking with condescension? This is an instant gratification society and people want a 20 second tickle - then they need to rush on to the next moment. People are constantly multitasking which waters down " the pure essence " of the moment if we do not give our full attention to absorb the richness of each present moment. We are living in a fast paced society that breeds intolerance and impatience. Tolerance is one of 12 personal and social values: they are cooperation, freedom, happiness, honesty, humility, love, peace, respect, responsibility, simplicity, tolerance and unity. These values, when taught at a young age, help people to develop increased self esteem, positive social communication, critical thinking, and artistic and dramatic expression. You said, <The moderator of a Healing digest called Open Blooms criticized you when he or she " complained about what she called my " long soliloquies " and said that my writing style (which she apparently doesn't like) was due to my kidney disease " .> You said, <Your topic on happiness and " how we can choose the most optimal life for ourselves and maybe even help others in the process " > It sounds lovely; in fact, it sounds like the right focus to take on an emotional healing level when one suffers from kidney problems. If you believe in what Louise Hays teaches please listen to what she says in " You Can Heal Your Life " about kidney problems: Kidney Problems, she says are caused by " criticism, disappointment, failure, shame, reacting like a little kid " . The affirmation she offers to counter-effect negative probable cause is the following: Divine right action is always taking place in my life. Only GOOD comes from each experience. It is safe to grow up. Please remember no body can make you feel anything........UNLESS YOU ALLOW IT. If what this moderator said hurt you, please re-think your thoughts.....make a new thought pattern for yourself and stay in the light of love with caring people. View those words with detachment and say out loud, " Isn't that interesting what the moderator said to me? The moderator demonstrated actions that are the same exact probable cause of kidney disease on an emotional level. I am going to be mindful not to allow any criticism into my day. I will not be disappointed or act in a hurtful way. I am going to love myself. I am only going to see GOOD from this experience. If this was too long winded for anyone, rather than apologize, I offer you this opportunity to practice tolerance because sitting here this morning and responding to one of our valuable members' post is exactly what I needed for my own healing, today. :-) in loving kindness, Linda ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Nicole I just saw a tv presentation last night on a couple who worked with their autistic child daily with a technique that brought him out of his autism. It was incredible. I wish I could remember the method. Anyway, they created a special room for him of his own, and they took away all of the normal things that might distract him and only put his bed, bureau and all of his favorite things. For instance, he enjoyed taking a certain item and waving it in circles, so that was in his room. And he liked taking a blanket and hiding under it. Anyway, the father, the mother, and a therapist all took turns with him and worked with him 7 and 8 hours a day combined. They sat one on one with him and copied him doing all of his favorite things. All of this took about a year before he responded. Anyway, it was tiny baby steps, but eventually he made eye contact with them as they interacted with him doing his favorite things. He never had to leave the room. They brought his food in and let him stay in his safe place, the key was copying him and playing in that manner. Eventually his eye contact with them became more and more. With the eye contact, they responded with a smile and would point at him and show him even more that they were enjoying taking part in his type of play. After one year, he spoke a word to them in an interacting way. At his own request, he left the room to begin doing other things. He is a normal boy today. The key was starting while he was young, he was about 4 years old maybe??? when they began and he did have a normal intelligence level. Just wanted to share.... Marsha and the Yorkies http://www.miracleyorkies.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Nicole There are all kinds of people in the world, and just because someone makes a comment on something doesn't mean it is true. I monitor 4 and it is up to the group owner to remain partial and try not to say things in a critical way. Anyone can open a group, they don't have to have special qualifications. Take it for what it is worth. And don't let it upset you. It is unlikely that it is true. I am not a doctor nor am I a specialist, but that just seemed to be a rude thing to say in my opinion. Marsha <<<which is the owner). Here's the strange part, the owner complained about what she called my " long soliloquies " and said that my writing style (which she apparently doesn't like) was due to my kidney disease. Have any of you been faced with such an odd accusation regarding your condition before?>>> Marsha and the Yorkies http://www.miracleyorkies.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Not exactly, but I was raked through the coals for even suggesting that vaccines COULD be A possible reason for food allergies. 9 years ago my daughter had her routine 15month vaccines and two weeks later had an allergic reaction after eating peanutbutter. I PERSONALLY think the vaccines had something to do with it, At least in her case.I asked for other people's experiences and suggested that they do vaccine research before they have any more done to their kids. I was treated like a criminal. People on line don't seem to care who they offend. Everything needs to be worded " just so " or people take it completely out of context. I was just trying to look for answers for an evolving trend. It would be nice if there was a reason for food allergies or better yet a cure. I am no longer a member of that group. To my reccollection they didn't even post my appology to any of those whom I may have offended. They only posted what they wanted to. As in your case, some people appear to be very closed-minded. Just thought I'd share. I hope I didn't offend anyone in this group by anything I said. I am trying to be more politically correct and more sensitive in my wording. Alison Nicole Muench Seidel <nikasmomma2001 wrote: Hi everybody, I know I don't post often about my renal condition, since I'm quite occupied with my daughter's Autism, but I would like some input on a strange experience that I just had where someone commented on my renal disease. I posted to a group called openblooms http://health.openblooms/ where the description says, " A place for digestive, mental, soul wellness. " Since it is commonly accepted that stress can worsen health conditions, I attempted to start a discussion about happiness and " how we can choose the most optimal life for ourselves and maybe even help others in the process? " This apparently ruffled the feathers of two members (one of which is the owner). Here's the strange part, the owner complained about what she called my " long soliloquies " and said that my writing style (which she apparently doesn't like) was due to my kidney disease. Have any of you been faced with such an odd accusation regarding your condition before? Just wondering. Peace be with you!---Nicole Building a website is a piece of cake. Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Lindy I have found immense therapy in writing as well. You know the crazy thing about it? These are groups! They are for all of us to participate in! We all have a " delete " button. If someone doesn't want to read it, just hit " delete " . So silly... I thought your written words were very well expressed. Marsha and the Yorkies http://www.miracleyorkies.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 I don't know if you are talking about the method developed by Barry somebody Can't think of his last name right now. Their son was determined to be very autistic. They did just as you mentioned and they have written a book called Son Rise. It was when autism first was recognized as a disease, so the boy is grown now and perfectly normal. Samala, Renee ---- I just saw a tv presentation last night on a couple who worked with their autistic child daily with a technique that brought him out of his autism. It was incredible. I wish I could remember the method. Anyway, they created a special room for him of his own, and they took away all of the normal things that might distract him and only put his bed, bureau and all of his favorite things. For instance, he enjoyed taking a certain item and waving it in circles, so that was in his room. And he liked taking a blanket and hiding under it. Anyway, the father, the mother, and a therapist all took turns with him and worked with him 7 and 8 hours a day combined. They sat one on one with him and copied him doing all of his favorite things. All of this took about a year before he responded. Anyway, it was tiny baby steps, but eventually he made eye contact with them as they interacted with him doing his favorite things. He never had to leave the room. They brought his food in and let him stay in his safe place, the key was copying him and playing in that manner. Eventually his eye contact with them became more and more. With the eye contact, they responded with a smile and would point at him and show him even more that they were enjoying taking part in his type of play. After one year, he spoke a word to them in an interacting way. At his own request, he left the room to begin doing other things. He is a normal boy today. The key was starting while he was young, he was about 4 years old maybe??? when they began and he did have a normal intelligence level. Just wanted to share.... Quote Link to comment Share on other sites More sharing options...
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