New here-Sjogren's Syndrome

September 14, 2007

Hello,

I joined here and have just been reading the responces and hoping

maybe someone would have answers to my issues. I currently dont have

health insurance so getting meds is an issue for me. Back in August

of 2003 I was diagnoised with Sjogren's Syndrome as well as Iron

deficency. Sjogrens is an auto immune disease that attacks the wet

cells of the body. Currently I have only one really sever issues and

that is the eyes. They have gotten worse and feel like someone has

thrown sand in them everyday. The sjogren's can be an pre indicator

of rhumatoid arthritis as well as " lupus " and some forms of

slerodrema. In sjogrens the immune system lacks the usual controls

causing the white cells to invade glands in the body that produce

moisture. They can destroy the glands and cause them to stop

producing moisture. It can also affect the joints as well as other

organs of the body. Then I have the iron deficency which I have been

unable to use iron supplements as they make me sick. My questions

here are other then supplements and medicine from the doctors which I

dont really want to add more meds to my already numerous ones I take,

does anyone know of natural alternatives to help with some of theses

symtoms.

Thanks

Jen

September 14, 2007

The key words in what you write are " the additional meds you already take " .

Now .. I have first hand experience with Sjogrens with my partner.

Her condition was brought about by meds in the first place due to the

miss-diagnosis of the symptoms that were underlying it. She was prescribed

Plaquenil which resulted in a massive MS attack.

Her Sjogrens was brought about by the use of SSRI's as antidepressants when she

actually had an issue with her nervous system. The condition that was not

diagnosed is now known as vasal vagal syndrome .. essentially, the sympathetic

and parasympathetic nervous systems were not talking to each other .. and the

vagus nerve was not talking properly to the heart, lungs, stomach ..

it is known that, when taking certain antidepressants when you have this

condition, the result is Sjogren's symptoms.

So .. based on this, I may be able to offer you some suggestions .. but first ..

what are the other meds you are on and what symptoms (conditions) are you on

them for?

Lets start there .. if you will .. ?

I know Sjogren's is not pleasant .. but I also know that what it can lead to if

it is a miss diagnosis can be even worse; I spent 18 months kicking the MD's

around before I finally got an MS Specialist, Neurologist and Cardiologist to

agree that it was a combination of wrong diagnosis and wrong medication that led

to my partner's present condition ...

and that all resulted from the original doctors not looking at her complete past

medical condition from birth.

Christopher Wynter

> Hello,

> I joined here and have just been reading the responces and hoping

> maybe someone would have answers to my issues. I currently dont have

> health insurance so getting meds is an issue for me. Back in August

> of 2003 I was diagnoised with Sjogren's Syndrome as well as Iron

> deficency. Sjogrens is an auto immune disease that attacks the wet

> cells of the body. Currently I have only one really sever issues and

> that is the eyes. They have gotten worse and feel like someone has

> thrown sand in them everyday. The sjogren's can be an pre indicator

> of rhumatoid arthritis as well as " lupus " and some forms of

> slerodrema. In sjogrens the immune system lacks the usual controls

> causing the white cells to invade glands in the body that produce

> moisture. They can destroy the glands and cause them to stop

> producing moisture. It can also affect the joints as well as other

> organs of the body. Then I have the iron deficency which I have been

> unable to use iron supplements as they make me sick. My questions

> here are other then supplements and medicine from the doctors which

> I

> dont really want to add more meds to my already numerous ones I

> take,

> does anyone know of natural alternatives to help with some of theses

> symtoms.

> Thanks

> Jen

>

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September 15, 2007

From a dietary perspective....

eating a lot of broccoli, and dark leafy greens, spinach, kale, beet

greens, turnip greens, collard greens.. etc are great iron sources

outside of red meats. Vit C is required in addition to the iron-rich

foods in order to enhance absorption. Therefore, have with a glass of

100% vitamin C juice or other good source (broccoli has both). Use

cast iron cookware, some iron is imparted into the foods. Stay away

from traditional coffee and tea, as this blocks absorption. I worked

with a gal who had Sjogren's. She constantly had a half gallon

drinking glass. Good question about the eyes. Hopefully someone else

will respond.

Warm Regards,

Linda

September 15, 2007

Re: New here-Sjogren's Syndrome

Hi Jen,

1)I used to work for Head Start. When families were in need of

iron and could not afford the pills or were having negative effects

from them, I would recommend that they go back to using cast iron

cookware.

You will get more than enough iron this way and the body will

pick up about 10% of it to use. Iron levels fell in the USA after WWII

when people stopped using cast iron cookware.

2) Keep your eyes moist at all times. Even raise the humidity in

your home if you need to.

3) Problems with the fluids of the body come from the 2nd

chakra of the 7 centers of energy. Esp. true of arthritis. Hatha yoga

may be helpful, or swimming. And yoga breathing and meditation.

Also see an acupuncturist and/or a chi kung healer from China.

Rife treatments may help or a MWO. If you do not have a Rife machine

and cannot afford one, send me an e-mail and I will send you my paper

on using your computer as a Rife type frequency generator.

For MWO, check at vibemachine.com to see who has one near you that

you can use.

Other things that you can try are veg. juicing and other greens.

Check in a health food store for Greens+, Greens 7 or similar

products. Try Cell Food drops.

Try Miracle II products, see e-bay.

Namaste,

David

In , " horsemans_angel "

<horsemans_angel wrote: