Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi, I'm usually a lurker just soaking in the good advice. But I have experience with this. My husband has hemochromatosis. They told us that his blood has too much iron. He is supposed to be careful about the amount of iron he gets in his diet. He has also given blood several times to lessen the amount of iron in his blood. They have always thrown it away. They told us they could not use it for a transfusion. Hope this helped. Susan Personals Skip the bars and set-ups and start using Personals for free Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 If I may ask what is it? Pat --- yramirez47 <yramirez47 wrote: > I have recently been diagnosed with Hemochromatosis. > I am not big on > prescription medication and, therefore, was advised > to donate blood > twice a week. This sounds strange to me. Has > anyone heard of this? > Thanks for help. y > > > > > > > " Do not be afraid of enemies; the worst they can do is to kill you. Do not be afraid of friends; the worst they can do is betray you. Be afraid of the indifferent; they do not kill or betray. But only because of their silent agreement, betrayal and murder exist on earth. " - - -- Bruno Yasienski - " The Plot of the Indifferent " (1937) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 My friend and just about her entire family are carriers (she's not sure yet whether her son will develop the disease since he has two genes and everyone else in the family has one) and her mother died of the long term effects of undiagnosed hemochromatosis (ideopathic liver disease). My cousin's husband also has it plus he is a carrier for thalassemia so he has a double whammy. The best course of action is to donate blood until you get your iron levels down to a safe level and then you still have to give blood but at a decreased rate. While there is an oral chelation method, my friend found, in doing her research, that giving blood is the most effective way to handle the condition. You also want to limit red meat and alcohol. If taking vitamin C make sure you do not take it with or near anything that contains iron because it aids in iron absorption. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I forgot to mention that Hemochromatosis is a genetic condition which causes the body to hold onto iron so you have iron overload. This can lead to heart and liver problems, among others. When you give blood, you are getting rid of the excess iron. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I was told that I have too much iron in my blood."Pat M." <bogduck wrote: If I may ask what is it?Pat--- yramirez47 <yramirez47 wrote:> I have recently been diagnosed with Hemochromatosis.> I am not big on > prescription medication and, therefore, was advised> to donate blood > twice a week. This sounds strange to me. Has> anyone heard of this?> Thanks for help. y > > > > > > > "Do not be afraid of enemies; the worst they can do is to kill you. Do not be afraid of friends; the worst they can do is betray you. Be afraid of the indifferent; they do not kill or betray. But only because of their silent agreement, betrayal and murder exist on earth."- - -- Bruno Yasienski - "The Plot of the Indifferent" (1937) Personals Single? There's someone we'd like you to meet. Lots of someones, actually. Personals Shopping Find Great Deals on Gifts at Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Thank you very much. This is very helpful as I do not like taking prescription medication. Susan Ward <pward87518 wrote: Hi, I'm usually a lurker just soaking in the good advice. But I have experience with this. My husband has hemochromatosis. They told us that his blood has too much iron. He is supposed to be careful about the amount of iron he gets in his diet. He has also given blood several times to lessen the amount of iron in his blood. They have always thrown it away. They told us they could not use it for a transfusion. Hope this helped. Susan PersonalsSkip the bars and set-ups and start using Personals for free DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I would strongly suggest looking into a Total Body Cleanse - see files for details. This would help your body heal itself Yvonne, rather than working out how you can manage the symptoms. love Lisa - J. Sweigart herbal remedies Friday, December 02, 2005 1:16 PM Herbal Remedies - Re: Hemochromatosis The best course of action is to donate blood until you get your ironlevels down to a safe level and then you still have to give blood butat a decreased rate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 Within the last 5 or so yrs I have been diagnosed w/ Hemochromatosis. I'm a 33 yr white male. Although, it hasn't overtly affected me too much, other than fatigue, I still want more information on the disease. My general practitioner doesn't know too much. I've been " giving " blood every 3 or so months and watching my red meat intake but other than than that not much else. Are there any other things I should watch out for or avoid or look into. Really, I would be open to any and all suggestions, comments, advice, etc...Haven't been to a hemotologist and don't intend to unless it's imperative. Was given the DNA test initially so I know it's there. Thanks in advance Quote Link to comment Share on other sites More sharing options...
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