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New Canadian Law on Medications

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My son is severely disabled with life threatning seizures, He was put

on a expiremental drug years ago, The medication is the SAFEST seizure

medication he has ever been on!!! Well, Big Pharma cancelled the study

a few years ago. I have been having to get the medication from Canada,

because it is not available in the US. The last two years it has been

hell getting the medication from Canada. I had to go to Toronto and

meet with the head of Pedicatic Neurology at sick kids hospital (the

largest childrens hospital in North America) He agreed to help us get

the medicine, we can only have three months at a time shipped across

the border. Last Aug. Fed Ex called me and told me the FDA is holding

my sons medicine. Fed Ex told me that the FDA was trying something

new, and was holding everyones medicine, I got in touch with the FDA

agent and after 5 phone calls she informed me that we had all the

legal papers in order and she would put a green flag in the computer

so it would not happen again. My sons neuro in the states has to write

out a perscription and fax it to the Dr in Toronto and this Dr writes

in detail what the medicine is for, The medicine is shipped right from

the Childrens hospital pharmacy. There is NO other drug that is

comparable in the US. I called last week to get a refill sent, After

the DRs assistant got everything in order she went to the pharmacy,

The pharmacy tells her they can not ship it anylonger, she tells the

Dr. He tells her that My son NEEDS this medicine and its very

impoirtant that he gets it! She went back to the Pharmacy and told

them what the DR said, They agreed to ship it this last time. A new

Canadian law!

 

How many people are on illegal drugs, and the damn government goes

after a sick childs medicine! I am so disgusted!

 

 

Donna

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