HIV kids in care may have had their rights violated in drug trials

[Guest guest]

Sat, 23 Apr 2005 22:03:55 +0200

 

" Sepp Hasslberger " <sepp

 

 

 

 

Fwd: HIV kids in care may have had their rights violated in

drug trials

 

Finally - some action,

 

they are having to defend now that what was done to the orphans in

New York was quite ok.

 

Kind regards

Sepp

 

 

 

http://www.news-medical.net/?id=9438

 

 

HIV kids in care may have had their rights violated in drug trials

 

Published: Saturday, 23-Apr-2005

 

 

 

Children's rights advocates are demanding an independent review of a

New York city agency's program which subjected more than 400

HIV-positive foster children to clinical trials for AIDS drugs after

children's rights advocates said it amounted to exploitation.

 

The commissioner of the Administration for Children's Services, John

Mattingly, says the inquiry will investigate whether the necessary

permission had been given from parents or guardians to include the

children in the research which went from the late 1980s to 2001.

 

The tests were conducted at some of the best-known hospitals in the

city with the approval of the National Institutes of Health.

 

The ACS said around 465 HIV-positive children were enrolled in drug

tests between 1988 and 2001, the majority before 1996. The tests were

conducted to help determine what kind of drugs would combat HIV and

AIDS in children.

 

The agency does not believe there was any unethical behaviour and

wants to ensure the program's policies were proper and had been

strictly followed.

 

Mattingly says that if the community feels they have done the things

some groups accuse them of, there will not be the trust to

investigate abuse and neglect. He does not believe any children died

from their participation in the research.

 

Vera Hassner Sharav, president of the Alliance for Human Research

Protection has accused the agency of exploiting the children and

subjecting them to medical harm and questioned whether any review

called for by the agency itself could be credible. Sharav wants a

federal investigation saying the children have already been devalued

and the city and state devalued them further.

 

The inquiry will be conducted by the Vera Institute of Justice, a

nonprofit organization in New York.

 

The review will examine whether the children fitted the medical

criteria to be included in the tests and if the enrolments were

appropriate given the medical knowledge of the time.

 

Investigators will attempt to trace as many of the participating

children as possible to assess their current medical condition, and

the agency will also review records to see if there were more

children who participated.

 

 

 

 

--

 

 

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