Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 In a message dated 12/1/2002 5:30:20 AM Eastern Standard Time, victoria_dragon " <victoria_dragon writes: When I was on the B12 shots for the CFIDS, I also had to get my > folic acid > level checked regularly along with my B12 level. They > wanted to make sure that the B12 shots had not lower the folic acid > level. The folic acid level was always good in my case. Which may > have been because this was still in my craving leafy greens period. Could you please tell me how these levels (B-12, folic acid) are checked with tests? My allergist recently had me add B-12 shots because of my fatigue, but did no test first and did not mention that folic acid levels could go down as a result (when I was pregnant my folic acid levels always went down and I had to supplement. I am supplementing some folic acid by using a B-complex, but I am now wondering if this is enough (or too much). That is why I would like to know more about what types of tests can be done. Also have you ever had any trouble with sulfites on foods? I recently was eating some dried fruit and had some chest tightening. I have been having some of that previously, but attributed it to the high mold in our humid area (very allergic to mold). Anyway, I looked it up and found out that this time it might have been some reaction to the sulfur dioxide or sulfites on the dried fruits. Evidently there is also a sulfur oxide molecule in sulfa drugs (even thought they are not the same as sulfa in themselves) and there is some problem for some people with breaking down that in the liver (some sort of missing or low enzyme). I am very allergic to sulfa as well. Also at one time I tried MSM and found that instead of making my allergies better they made them worse and now I am starting to understand why. I think that in addition to staying away from gluten foods and dairy that watching out for added sulfites (and this seems to be pretty ubiquitous) in foods (sulfurs also occur naturally in foods) will have to be something else I am careful about. I am noticing now that I avoid dairy and wheat that if I inadvertently eat some I am getting diarrhea almost immediately whereas in the past I would be constipated from ingesting it. Perhaps the real culprits in some of my ill health are now being revealed. If only it were not so hard to just go to the store to buy wholesome food. Honestly, what are they doing to our foods? It is appalling when you think of it. No wonder so many of us have problems. Anyway, thanks for any insight you might give me. Sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 > Could you please tell me how these levels (B-12, folic acid) are checked with > tests? Blood test. I used to have to get several tests done at once, and the doctor just checked off everything he wanted checked. B12 and folic acid were two of the things. >My allergist recently had me add B-12 shots because of my fatigue, > but did no test first and did not mention that folic acid levels could go > down as a result (when I was pregnant my folic acid levels always went down > and I had to supplement. One thing to be careful about with B12 injections is to get a brand that does not use a mercury preservative. Also, be careful of the dose. If one gets too much over a long time period, one can develop elevated red blood cell counts and symptoms of polycythemia vera. I did, but in my case it's not certain if it came from the B12 shots or living at a high altitude. I was on 1 cc of B12 twice a week for a very long time. BTW, one can give B12 shots to oneself once the doctor's nurse shows you how to do it, and once you get the first one in the doctor's office to make sure you don't react negatively to it. Most people know about the role of B12 deficiency in certain neurological problems, but B12 also plays a role in circulation of blood. Without enough B12, high percentages of nondiscocytes are produced. These are misshapen, inflexible red blood cells that have trouble making it through the smallest capillaries. (See work of L.O. Simpson, MD.) Part of the reason B12 relieves fatigue is it improves circulation. BTW, Simpson found the highest percentages of nondiscocytes in people with CFIDS. The B12 helped my fatigue a lot, but the magnesium injections helped even more. Are you noticing any relief of the fatigue? > Also have you ever had any trouble with sulfites on foods? I've never had problems with sulfites. > I am noticing now that I avoid dairy and wheat that if I inadvertently eat > some I am getting diarrhea almost immediately whereas in the past I would be > constipated from ingesting it. This sounds like Dampness problems, and a weak Spleen. >If only it were not so hard to just go to the > store to buy wholesome food. Honestly, what are they doing to our foods? It > is appalling when you think of it. No wonder so many of us have problems. It is appalling. My older relatives who followed more natural diets were a lot healthier than the younger generations are. Hope this helps. Victoria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 -- In Chinese Traditional Medicine , " victoria_dragon " <victoria_dragon@h...> wrote: > One thing to be careful about with B12 injections is to get a brand > that does not use a mercury preservative. Also, be careful of the > dose. If one gets too much over a long time period, one can develop > elevated red blood cell counts and symptoms of polycythemia vera. I > did, but in my case it's not certain if it came from the B12 shots or > living at a high altitude. I was on 1 cc of B12 twice a week for a > very long time. Thank you for this warning. My husband is very tired, so I asked if his B-12 injections could be raised to 2x per week (@1cc each). I can see this dose may be a problem over time, but we are at sea level so perhaps it will be less of a problem. I am wondering how long is too long? In other words how long before I need to press this doctor to do a blood test for B-12 levels (since he did not even do a baseline--this seems rather strange if it is so easy to do). > > BTW, one can give B12 shots to oneself once the doctor's nurse shows > you how to do it, and once you get the first one in the doctor's > office to make sure you don't react negatively to it. Yes, we do our B-12 shots at home as we live a three hour drive from this doctor, allergy injections for me also. I asked if there was any mercury as a perservativie and the office said no, so I hope they know what they are talking about. > The B12 helped my fatigue a lot, but the magnesium injections helped > even more. Are you noticing any relief of the fatigue? Well, somewhat I think. The doctor stressed that energy would improve from using methylcobalamin injections, not the more commonly used cyabocobalamin. The major thing I am noticing is that the incessant tingling I was experiencing in my feet and legs is going away. I also think that avoiding gluten is helping this sensation too--I started avoiding gluten first and the symptoms got better, then the B-12 has helped the rest disappear. Also my feet are staying warmer at the time of the pericardium (7-9pm) and triple warmer (9-11 p.m.). Maybe this is a result of the blood cells improving shape so circulation is better? About the dairy and wheat and weak spleen--I am sure this is part of my problem with these foods, but perhaps not all. Dampness has been a problem for a long time, and yet until I eliminated wheat and milk I did not have any diarrhea. Now if I eat them this symptom is more obvious, whereas before I had constipation (with dampness). Anyway, I am sorry it has taken me a while to get back to you. I thank you once again for your answers to me. The information about what to watch out for with B-12 shots is very informative. I am less than certain the doctor I am going to is aware of the possibility that there is such a thing as too much B-12. He is the one who suggested I take magnesium orally. He told me to take some magnesium made by Solgar, I think it was magnesium gluconate, but since I am never sure if tablets will digest, I got a powdered form of magnesium citrate which dissolves in water. Probably this is not the best idea from an allergy standpoint, but I seem to be tolerating it after working up to bowel tolerance. I now take two teaspoons per day. So far I have not noticed that it is giving me a lot more energy, though some of the edema in my legs has improved. Perhaps magnesium shots would be better?? (I do not think the doctor has a clue, really). Your forum is always very interesting. East or West side, I feel it is a real help to many to find relief of symptoms. I wish that it were always possible to approach all symptoms from just the Eastern TCM standpoint, but I was treated for a long time by a very old fashioned TCM practitioner who did not like any Western medicine or supplements. Still he did not totally cure my kidney yang deficiency (hypothyroidism/adrenal fatigue) or my spleen (too much dampness) or my edema. Even after taking many TCM formulas some symptoms from these areas remained. At such a crossroad I think many of us cannot continue to feel so terrible. Therefore we resort to at least partial Western treatments while continuing to learn more about how to eat Eastern style to relieve symptoms (such as I am learning here and from some TCM dietary books). I am grateful for your discussions of some of the Western protocols you have tried for your symptoms. Thanks again, Victoria. Sarah Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.