EB, the boy who's skin fell off

[Guest guest]

I was just watching a show on TLC, an adult male has

78% burns, and scars and needs bandages everyday

because he has no skin, and it won't stay on his body,

it's something they believe he was born with called

EB.

But another source of info. on that is www.debra6.org

if I remember correctly, but when his mother took off

the old bandages he shook like a leaf because it hurt

too much, and sometimes his head sticks to the bed

even.

And for the life of me, I cannot figure out why the

hyperbaric oxygen chamber maybe hasn't been used for

this person, but it was mind-boggling.

 

Janice.