FML

[Guest guest]

Penny,

First I am giving the group a bit of knowledge on what FML is... my thoughts on it are listed below. Suzi

 

This is a condition in which groups of fat cells in the subcutaneous tissues begin to grow spontaneously and produce multiple fatty lumps underneath the skin. These are benign fatty tumors or lipomas. This condition is quite common and is frequently genetic in origin, due to a mutation of the mitochondrial DNA. The presentation of this disease is variable. Most patients have multiple small fatty subcutaneous nodules that are painless. The number of nodules may vary from very few to many. They are mostly located on the arms, forearms, legs and trunk but they can occur in the neck, face and buttocks. In some patients, if neglected, these fatty lumps can grow to a large size and can make the patient appear grotesque. While these lumps are

usually painless, in some patients they are painful and if large, they are subcategorized into an entity called Dercum’s Disease. This disease was first described by Dr. F. X. Dercum in 1888, when he found a patient with large painful subcutaneous tumors. The correct medical term is called Adiposis Dolorosa. In this aspect of familial multiple lipomatosis, the fatty lumps are painful. The degree of pain varies from being mild to severe. The cause of the pain is unknown.

 

Some physicians believe that patients with these diseases have an increased incidence of cancer. There have been no large studies done to prove this but patients with cancer seem to have an increased incidence of these subcutaneous nodules.

 

A review of the literature reveals that familial multiple lipomatosis is often confused with multiple symmetric lipomatosis, which is also thought to be familial. Familial multiple lipomatosis is a clinical syndrome of multiple encapsulated lipomas with a strong familial component. They are inherited in an autosomal dominant way and often appear during the third decade of life.2 Multiple symmetric lipomatosis is a condition of diffuse fatty infiltration primarily in the neck and shoulder area. Both of these syndromes are distinct from the solitary lipomas that occur sporadically in the population. The major differences between familial multiple lipomatosis and multiple symmetric lipomatosis are outlined in table I. In case of familial multiple lipomatosis the most prominent

distinction is the sparing of the neck and shoulders and the presence of discrete, encapsulated lipomas. On the contrary, in multiple symmetric lipomatosis there is diffuse lipomatous infiltration of underlying tissue.

My thoughts would be to first do a total body cleanse... my thoughts then go to DMSO... but I would give Doc a call as to what he thinks.. And given the fact that these are tumors of sorts, I would probably try Essiac both internally and externally....and probably would try hot/cold therapy and see what it would do.... I am not familiar with the disease itself, only what I've read...

vincent5180 <vincent5180 wrote:

Hello,Can anyone offer any advice in relation to a natural/herbal remedy for or to help with FML - Family Multiple Lipomatosis (hope the spelling is correct). Any advice would be appreciated. Thanks in advance. You all always come through for me...Penny Vincent