Any Info on Hughe's Syndrome?

[Guest guest]

Hi I'm not sure if it's a syndrome or not. I just know it as Hughe's from two

friends who have it. It's extra thick blood that can cause many clots blocking

arteries and strokes etc. They are both on warfarin but it's not very well

regulated. They have a machine to monitor their blood and have to medicate

themselves daily to try and keep from having TIA's or worse. One of the ladies

has Crests, Lupus, Sgogren's, Crohn's, many autoimmune diseases. The doctor's

have passed them from one to another and nothing has been done for years despite

promises. They get their hopes built up only to run into yet another brick wall

or garden path that goes nowhere. All a web of lies, coverups etc. The

enormity of this is only just coming to the surface in the last year or so.

Chronic Fatigue and Fibromyalgia figure too I think. Same as me. At least two

of us have had blood transfusions in the past and that could have been when we

contracted the beginnings of this mycoplasma nightmare.