Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Sun, 1 Feb 2004 05:00:26 -0800 Cancer Decisions THE MOSS REPORTS Newsletter (02/01/04) ---------------------- Ralph W. Moss, Ph.D. Weekly CancerDecisions.com Newsletter #118 02/01/04 ---------------------- ARE CLINICAL TRIALS FOR YOU? There are currently over 2,300 clinical trials for cancer in the US and abroad. The clinical trials industry, powerfully connected, aggressively recruits patients to join these studies. It often explicitly promotes the idea that clinical trials will benefit those who participate in them. However, a new study shows that in reality cancer patients rarely benefit from participation in such trials. Scientists from Boston's Dana Farber Cancer Institute report that " Despite widespread belief that enrolment in clinical trials leads to improved outcomes in patients with cancer, there are insufficient data to conclude that such a trial effect exists. " Writing in this week's Lancet, they explain that participating in a clinical trial is mainly an altruistic act, something a cancer patient does " for improving treatment of future patients, " not for enhancing his or her own chances of survival. I'm sure that this will come as a shock to many patients who have been urged to take part in clinical trials. Personally, I believe that every cancer patient should take his or her best shot at surviving, even when the disease is very advanced. Can clinical trials contribute to that goal? Rarely. But it is necessary to take a balanced view of such trials. One should not reject them entirely, since there are a few kernels of value hidden amidst the dross. How can you distinguish a trial that may be of therapeutic benefit to you from the many that will not help you at all? What exactly should you look for in a potential clinical trial? What are the perils and pitfalls of entering the various phases of a trial? Or should you be thinking instead of going to a complementary and alternative (CAM) clinic in the USA or abroad? What is the best way to approach and evaluate the many options available today? In our frequently updated Moss Reports, we have a full discussion of these issues, as well as many other topics of urgent importance to cancer patients. I have spent three decades investigating the very complex field of cancer treatment. This knowledge, carefully organized and clearly presented in our reports, can jump-start your own investigation and give you the benefit of my years of work and insight. I also offer phone consultations and research services. In other words, I want to make available to you my experience and study in this field so that you can make the most effective treatment decisions possible. The cost of a Moss Report is $297. Many clients have told us that they not only saved money in the long run by ordering a report but also saved something even more precious - time. To order a report on almost any kind of cancer please visit our website at www.cancerdecisons.com or call Anne or Diane toll-free at 800-980-1234. (Use 814-238-3367 when calling from abroad.) Let us know how we can help you. FRAUDS AND FAKES IN MEDICINE (A continuation of last week's discussion of two fascinating books on quackery) Quackery remains a problem all over the world, but it is unusual these days to find what might be called a " classic quack " , i.e., a brazen fraud who claims to have a medical degree that in reality he does not have. Generally speaking, medical boards guard their prerogatives quite well. A few years ago the BBC identified a " fake doctor factory " calling itself the Metropolitan Collegiate Institute, operating in the heart of London. The BBC reporter visited the Institute's " hospital " and found a " narrow door with peeling paint sandwiched in between a hairdresser's and a café…. " Yet this organization's " graduates " were using their phony degrees to set up shop in poor countries, giving substandard care to the hapless local population. One of these so-called graduates operated an offshore clinic catering to Americans. While frightening in its implications, such a situation is relatively rare; indeed, in this case it was the very novelty of the problem that brought it to the headlines. Nor is it correct to associate such impostors with alternative medicine, as some quackbusters are determined to do. Most phony doctors of today practice perfectly orthodox medicine in order to stay " below the radar " of legal scrutiny. They are happy if they can pass as typical allopathic doctors. So, what about unconventional practitioners who spout strange theories and sport obscure degrees? There are certainly some of those, and part of the reason for their continued existence is that there is little or no organized credentialing apparatus in place for many kinds of complementary and alternative medicine. On the one hand, there are genuine schools of naturopathy, homeopathy, hypnosis, acupuncture, etc., which require long, rigorous and expensive courses of study before they will grant a well earned degree. These schools turn out skilled practitioners who offer valuable services to the community, usually at reasonable prices. (An increasing number of such services are paid for by health insurance.) At the other extreme, though, there are the phony diploma mills, creating " doctorates " as fast as their printers can spit them out. Sometimes it is hard even for knowledgeable people to tell the difference. One problem is that in our society we make little serious effort to control the use of honorific titles other than that of medical doctor. Today, one can purchase all sorts of phony degrees over the Internet. Such degrees come complete with a crisp, authentic-looking diploma and a transcript (of non-existent courses) for a few hundred dollars. I pity the inexperienced patient who is thrown into this snake pit of so-called doctors, with their various arcane titles and opaque credentials. Just the other day I got an email from a woman who was contemplating treatment at a cancer center near her home. According to the center's website, one of its directors was an " internationally renowned researcher " who had developed " an exciting new approach to Mind, Spirit, and Body wellness. " Describing this man's education, the website stated quite frankly that he had a doctorate from the American College of Metaphysical Theology, a virtual college (in the most literal sense) offering degrees for sale through its website. A bachelor's degree could be bought for $149.00, a master's for $209.00, and a doctorate (Ph.D.) for just $249.00! (By contrast, a bona fide Ph.D. generally requires residency at an accredited university, a minimum of three years of study, arduous oral examinations and a scholarly dissertation. The financial cost of a genuine Ph.D. has been estimated between $63,000 and $112,000.) Lest anyone miss the potential value of their online diploma, the " Metaphysical Theology " website points out that their doctoral degree brings " [h]eightened credibility in any practice of spiritual healing in which you may become engaged. Psychologically, " the website adds in confidential tones, " the title 'Doctor' and the word 'healing' have a natural affinity in one's mind. " In other words, there are still a few people out there who might confuse a mail order " doctorate " in Metaphysical Theology with a medical degree. I think I succeeded in persuading the woman who wrote to me that putting her health in the hands of a person who had purchased a mail-order degree on the Internet and had no valid medical training would be ill-advised, to say the least. But what worries me most is the disservice that this sort of diploma mill does to the credibility of complementary and alternative medicine as a whole. I repeat that a majority of practitioners working in CAM today are well trained, dedicated, and highly skilled. However, the unscrupulous exceptions are a gift to the self-styled quackbusters who are eager to discredit alternative medicine in its entirety. Unconventional Practices These self-proclaimed quackbusters hold up as examples the worst abuses perpetrated by the dishonest few on the fringes, using them to attack the many valid and well-intentioned practitioners in the field of CAM. In their respective books, Profs. Roy Porter and Piero Gambaccini have done a wonderful job of exposing the unfairness of this kind of generalization (see references below). Without moralizing over the behavior of the quacks, Prof. Porter even questions the value judgments implicit in the term 'quack'. " I disclaim any absolute, Platonic meaning for my application of the term, " he writes. " I shall take as quacks the broad spectrum of those operators who were typically pilloried as such. " Quack was often a convenient term to attack one's ideological opponents. The essence of the quack, however, was that he " transgressed what those in the saddle defined as true, orthodox, regular, 'good' medicine " (Porter, p. 11). " Father of Scientific Surgery " In addition, the distinction between quack and qualified doctor was not always clear-cut. For instance, there were some apparent quacks who did indeed have university degrees. In 18th century London, for example, Dr. John Pechey advertised cures via handbills and offered medical services at cut-rate prices. Yet he was a graduate of Oxford University and after his medical apprenticeship he was licensed by the Royal College of Physicians. On the other hand, Dr. John Hunter (1728-1793) dropped out of grammar school at the age of 13 and entered the field of medicine by preparing cadavers for dissection! Yet he became an extremely famous physician - indeed, " the father of scientific surgery " - whose influence, according to historian Michael Shimkin, MD, permeated all of medicine (Contrary to Nature, p. 86). Perhaps above all else, what distinguished quacks was the fact that they advertised their wares and services. In this, they could be viewed as innovators. They were among the first merchants to give out printed handbills, which most recipients first read carefully and then used for less dignified purposes. In time, the quacks learned to paste these bills on walls and later still to have them printed in newspapers and magazines. One could argue that this was the very beginning of the advertising industry. Indeed, a fascinating topic explored in Prof. Porter's book is the intimate connection between quackery and the media. These two " industries " grew up together, as many newspapers profited from quack medicine advertisements and often themselves became distributors of the medicines. At this time, regular doctors were forbidden to advertise, advertising being considered unseemly and too closely associated with the disreputable quacks. This ban continued until the financial exigencies of the 1970s and 1980s led the medical profession to reconsider its resolutely anti-advertising position. (Today, of course, medical practitioners advertise relentlessly. A ride on the New York subway system, or even a glance through the physician listings in the classified Yellow Pages, is a graphic reminder of how far the pendulum has swung in the opposite direction.) Quacks typically sold secret proprietary remedies (which later came to be known as 'patent medicines'). This secrecy not only discouraged competition, but also added an aura of mystery to the product. Perhaps realizing how lucrative such remedies had become, many regular doctors also got into that same business. For example, Dr. Edward Jenner, who today is revered as the father of vaccination, was famous in his own day for his patented indigestion lozenge. The celebrated orthodox physician Dr. Richard Mead had his name attached to a rabies powder, and Paul Chamberlain, FRCP, marketed his own brand of teething necklaces for babies. Dr. Hans Sloane (1660-1753), physician to King George I, had visited Jamaica, where he tasted a newfangled substance called " cocoa, " which he found nauseating. By adding milk he managed to make it more palatable and thereby invented milk chocolate (centuries before Monsieur Nestle). His recipe was later adopted by the British firm, Cadbury Brothers, and achieved ubiquitous popularity and acceptance, even though in essence milk chocolate was originally a kind of quack remedy. To view Cadbury's original milk chocolate label, click or go to: http://www.cancerdecisions.com/images/choc.jpg Even some of those who did not make nostrums themselves had no qualms about promoting the remedies of others. The aforementioned Dr. Hunter wrote enthusiastically to Edward Jenner, " Dear Jenner, I am puffing of your tartar as the tartar of all tartars, and have given it to several physicians to make trial…. " (A tartar was a drug to make people vomit…which, along with bleeding by lancet or leeches, was one of the favorite treatment strategies of regular doctors in the 18th and 19th centuries.) (TO BE COMPLETED NEXT WEEK) My first book, " The Cancer Industry, " discusses in some detail the historical development of cancer treatment and the role of some so-called " quack " remedies in that process: http://www.amazon.com/exec/obidos/ASIN/1881025098/cancerdecisio-20/103-4018872-4\ 386244 To purchase a copy of Prof. Roy Porter's excellent book Quackery: Fakers & Charlatans in English Medicine, please click or go to: http://www.amazon.com/exec/obidos/ASIN/0752417762/cancerdecisio-20/103-4018872-4\ 386244 To purchase a copy of Piero Gambaccini's equally fascinating history of Italian charlatanism: http://www.amazon.com/exec/obidos/ASIN/0786416068/cancerdecisio-20/103-4018872-4\ 386244 --Ralph W. Moss, PhD ======================= References Peppercorn JM, Weeks JC, Cook EF, Joffe S. Comparison of outcomes in cancer patients treated within and outside clinical trials: conceptual framework and structured review. Lancet 2004;363:263-70. BBC News, 'Fake doctor factory' awards degrees, November 26, 2000. Accessed on Jan. 29, 2004 at: http://news.bbc.co.uk/2/hi/uk_news/education/1039562.htm On the cost of a doctorate: Hungary: Higher Education Reform Project (1998): http://www.worldbank.org/education/economicsed/project/projwork/good/New%2098/co\ st16536.html --------------- IMPORTANT DISCLAIMER The news and other items in this newsletter are intended for informational purposes only. Nothing in this newsletter is intended to be a substitute for professional medical advice. -------------- To SUBSCRIBE TO OUR FREE NEWSLETTER: Please go to http://www.cancerdecisions.com/subscr.html and follow the instructions to be automatically added to this list. Thank you. ===== SiteBuilder - Free web site building tool. Try it! 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