Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 sanjiv jindal <sjindal7 wrote: Fri, 14 Oct 2005 11:20:25 +0100 (BST) sanjiv jindal <sjindal7 Duchene Muscular Dystrophy (DMD) Atma Namaste Marilette, My patient Rohit Kapur living near Detroit (USA) is having the following ailment. Born on May 19,92. was about 3 weeks early. Appeared to be a healthy normal baby. he talked early, walked a little late by 18 months, had a very pleasant disposition. at age six, during normal school physical was discovered that he could hop on two feet but could not hop on one foot - a sign of some muscle weakness. We pursued with some further testing of CPK counts and finally thru DNA testing at Mayo Clinic he was diaganosed to have Duchene Muscular Dystrophy (DMD) as a result of a copying error in his DNA. There was no family history. This was a new mutation. Happens all around the world with 1 in 5000 children. Due to the deletion in his DNA his body does not have the recipe to produce dystrophin an essential protein required for building healthy muscles. He has been progressively weakening ever since - he started to have trouble climbing stairs by age 8 or 9 ut could walk up with railing support or on all fours. At 10 he was getting tired at school and when he had to walk long distances in malls etc. So we got him a manual wheelchair for walking longer distances. he rarely used it. Earlier this year he was having a lot of difficulty walking and in march at around age 13 he stopped walking and is confined to wheelchair. He needs help with transfers from bed to wheel-chair to bathroom etc. both at school and home. Will be grateful if you could guide me on the healing protocol. With thanks. Sanjiv Jindal Quote Link to comment Share on other sites More sharing options...
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