What they think of us ROFL

[Guest guest]

> As for your Porphyria Cutena Tarda? Funny. I had PCT. The only time it

> > ever went away was on Interferon and Ribavirin- and has not returned.

> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

I did question her on this remark, stating that the

American Porphyria Foundation stated that the PCT should be dealt with

first. porphyriafoundation.com

And asked if she was calling them quacks as well.

No reply, but a post on her forum,

,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

[HepatitisC- Objectives] New Members-All Please read:

 

> Curezone and other suggestive sites on curealls are not allowed in the

> group, nor those sites trying to sell you beachfront property in

> Arizona.

>

> It's for the safety of those who not just have HCV, but other secondary

> diseases as well. What is good for one disease, may be dangerous for

> another.

>

> I would speak highly of curezone, but unfortunately, if their speels

> were true, we'd all be cured already.

>

> grrrrrrrrrrrrr. ....

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

And get this,is she implying that diseases Can't be cured?

 

> " Not only are they, (curezone), suggesting that HCV can be cured,

but other diseases as well. "

ROFL, Kygos

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

oleander soup , " May " <luellamay129

wrote:

>

> Oh heavens. This is actually quite unsettling. I do believe this

> moderator is way out of line and maybe you should bring this to the

> attention of the owner himself.

[Guest guest]

One thing I have noticed in my life, Kygos, including myself, sometimes, is people get invested in their disease. It is mine. It is me. It now describes me as separate from you...unique. Sad, but, something to cling to in an unsteady world. I hope I have begun to move away from this mentality!

Nonie

And get this,is she implying that diseases Can't be cured?> "Not only are they, (curezone), suggesting that HCV can be cured,but other diseases as well." ROFL, Kygos

[Guest guest]

Oh my heavens!

 

My first question..... How did she ever become a moderator?

 

Second question...... What is she doing in Curezone to begin with?

 

Hugs,

 

 

oleander soup , " kygos5 " <kygos5 wrote:

>

> > As for your Porphyria Cutena Tarda? Funny. I had PCT. The only

time it

> > > ever went away was on Interferon and Ribavirin- and has not

returned.

> > >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

> I did question her on this remark, stating that the

> American Porphyria Foundation stated that the PCT should be dealt

with

> first. porphyriafoundation.com

> And asked if she was calling them quacks as well.

> No reply, but a post on her forum,

> ,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

> [HepatitisC- Objectives] New Members-All Please read:

>

> > Curezone and other suggestive sites on curealls are not allowed

in the

> > group, nor those sites trying to sell you beachfront property in

> > Arizona.

> >

> > It's for the safety of those who not just have HCV, but other

secondary

> > diseases as well. What is good for one disease, may be dangerous

for

> > another.

> >

> > I would speak highly of curezone, but unfortunately, if their

speels

> > were true, we'd all be cured already.

> >

> > grrrrrrrrrrrrr. ....

> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

> And get this,is she implying that diseases Can't be cured?

>

> > " Not only are they, (curezone), suggesting that HCV can be cured,

> but other diseases as well. "

> ROFL, Kygos

> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

> oleander soup , " May " <luellamay129@>

> wrote:

> >

> > Oh heavens. This is actually quite unsettling. I do believe this

> > moderator is way out of line and maybe you should bring this to

the

> > attention of the owner himself.

>