Guest guest Posted December 19, 2002 Report Share Posted December 19, 2002 I am so sorry it took me so long to get back to you. We are preparing for a 3 week trip back to our home in the States and there has been alot to do. I am very sorry. I dont know what your background is on fibromyalgia. I will just try to summarize my 20 year journey with it and what I have found to help. I was working in a Rehab hospital and had fibromyalgia patients when I noticed having the same symptoms as my patients. I became greatly interested and studied it intensly. The first thing I learned the importance of understanding that fibomyalgia is like a headache. There can be many causes or triggers that will all produce the same response- inflamation and tightening of the tissues surrounding the muscle fibers that will produce pain. Each individual suffering from fibromyalgia is prone to flare ups from a variety of causes. It is important to try to find what triggers your flare ups so then you can institute the proper remedy. Most people tend to have multiple causes and therefore it is important to institute multiple corrective actions. It is like a headache. People prone to headaches can get a flare from multiple factors- lack of sleep, stress, particular foods etc. So there is no one remedy for fibromyalgia. My work as a therapist focused on the role of posture and body mechanics and fibromyalgia. That is important to consider but I learned it is only a part of the picture. Starting with posture though is important. Most important is to consider your sleeping position. It is important to keep the spine alligned and shoulders from hunching when you sleep. I can write alot about that but I can tell this will be a long email so I will try to brief it up. Most fibro patients benefit from almost a propped up postion so if you can you may consider propping the head posts of your bed up to a comfortable degree. This naturally uses gravity to keep your shoulders from hunching. If you are a side sleeper it is very important to keep a pillow straight along your back to keep your spine alligned. Then optimal would be a pillow under your top knee and then another one to support your top arm. Next be sure you arent bending your neck!!!! Keep it nice and alligned with your spine. Are you sleeping a good 7 hours each night and going into REM. If you are " sleeping " 7 hours but waking alot you cannot get the REM your body despirately needs. Why does it need REM? Tons of reasons but the one that relates to fibro is that lactic acid is removed from your muscles during REM. If you dont get enough REM you wont get the physiolongical benefit of good removal of lactic acid. What does lactic acid build up feel like? Lactic acid is produced from using muscles. The more you use your muscles the more l acid is produced. It is like the feeling you get after exercising alot. If you dont get enough REM your muscles will feel that way. That is why they have documented a correlation between sleep disturbance and fibro. There isnt enough lactic acid removed as there isnt adequete quality of sleep. Then it becomes a vicious cycle. Too much lactic acid causing pain so cant sleep because of pain but then more lactic acid builds up. Ugh! No fun! If that is a trigger for you I recommend trying malic acid which has been found to decrease lactic acid naturally. I also recommend a mild sleep aid at least initially to establish a sleep habit. Long term use of sleep aides is not optimal but it is important to get into a habit of sleeping and get that REM sleep going. If sleep is your problem look into the cause of your sleep problem to help your fibro. Do you have the relatively common sleep apnea. Are you male with prostate issues and up for the bathroom? Once the cuase of your sleep issue is identified do all you can to treat that problem and you are likely to find an improvement of your fibro. Another issue for fibro is food allergies/ sensativities. Dont have them? Think again carefully. You may. They are more common than thought. If you often suffer from headaches, or stomach discomfort, or asthma it may be wise to consider food sensativities. The key is not if you suffer from these symptoms- the key is if you OFTEN have them. If it is infrequent then maybe not. If it is common then you may want to consider it. Foods with glueten seem to be particularly related to fibro. In the literature it doesnt make that link although it does link glueten with another connective tissue disease- arthritis. I think it is likely the reason is because of inflamation. You may want to do an experiement. It doesnt hurt anything to try this but maybe consider giving up all wheat, rye, barley ect for a couple of weeks. That means cakes breads, pastas, cookies, cereals, pretzels, gravies, and cream soups to name some of the most serious offenders. Ouch! That will be difficult! I can understand that thought but maybe it will produce interesting results. It certainly doesnt hurt to try! Its good for the diet anyway! Just get your greens (spinich, broccoli etc) and you will get the B vitamines during your experiment. Another thing to consider is Calcium and Manganese. It is involved in muscle contraction and has been found to be deficit in alot of fibro patients. A good source of calcium is a daily dose of almonds. A quality supplement is nice but an excellent food source is metabolized easier. You can take a supplement and have it pass right though you with out being metabolized by the body (especially tablets) but your cells will be more likely to metabolize a liquid or a food source. Also alot of supplements have nasty fillers. Supplements can be great and have their time and place but I would eat almonds before taking a calcium pill. Be careful too if you are depending soley on cows milk for calcium. That is problematic for some people including myself. The USDA has really ran a number on America with the " got milk " campaign! I am not speaking badly on milk- it does help some people but it may not be the best solution for many many others. Fibro is an inflamatory response in the muscles. Keep inflamation down and you will be helped. There are foods with antinflamatory actions and there are ones (like red meat) that can produce an inflamatory response. It is an interesting area of nutrition. It is amazing all the physical conditions that are affected by inflamation. What is a headache? Intestinal bloating, and much intestinal cramping? The list goes on but inflamation is a big issue for our bodies. We will do well to try to consume foods with an antinflamatory effect (especially veg and fruits) and significantly eliminate or limit those with inflamatory reactions (processed, refined, red meats, many grains). So there are many triggers to fibro and we all experience the condition a bit uniquely. An important point I didnt even touch on is the critical importance of stretching the contracted muscle. We tend to get fibro in the same places. We need to learn to balance the muscle tension between the muscle groups. One group of muscles will tend to be overstretched and the opposing muscle group will tend to be shortened or overtightened. So, it is important to learn exercises to get the muscles in better balance. That is soemthing that is done individually. I would recommend seeing a therapist who specializes or has advanced training in fibromyalgia or (myofascial syndrome) to get a personalized exercise routine that should be quick and user friendly. Many therapists want to give an elaborate routine that is time consuming- ask your therapist what is the three most critical stretches for your particular condition and leave it at that! If your insurance doesnt cover physical therapy you can email me and I will try to problem solve with you and figure out with the limitations of email what may best help you. I have to tell you though I will be away from my computer until mid January so I cant get back with you until then. I am happy to give you suggestions though on a few exercises when I get back to Japan. Dont hesitate to email if you would like to talk this through. Love in Christ, Cindy herbal remedies , alarofmu@m... wrote: > Dear Cindy, My name is June, and I'm interested in everything you've > found that helps with Fibromyalgia. > > ..........Every thing on Earth has a purpose, every disease has an herb > to cure it, and every person has a mission. This is the Indian theory of > existence. > > Morning Dove Salish > 1888-1936 Quote Link to comment Share on other sites More sharing options...
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