Seizures

[Guest guest]

Thank you for responding to my request for alternative solutions for

seizures. I found the responses helpful but I did want to comment as

a person (who is a doctor) with seizures; on the, " what to do if

someone has a seizure. " I have frequent and various forms of

seizures predominantly a blank stare, with involuntary body twitches

accompanied by confusion, imbalance, speech difficulty and memory

loss. I also have grand mal seizures where I just loose all control.

 

It is my preference that people leave me alone...period. Unless I am

going to whack my head on something on the way out, I just want to

be left alone. Its embarassing enough and the fact that you have

absolutely no control over it, makes it worse. But when people are

making an ordeal about something you have to live with on a daily

basis, it makes me feel as though I am a freak and don't want to

take the risk of being in public.

 

If you are someone who has seizures, I have learned the cues and

sometimes I can win over them and other times I can't. First, I get

an auro, it feels like a high..I begin to go into a trancelike state

for a brief moment. It feels good at that point, so I sometimes fade

into it, my fiance has learned the cues as well and he will tap me

or clap to get my attention and break the trance and I can come

back. Flourescent lights, strobes, camera flashes and the sun

strobbing through a car window all trigger my seizures. So, I stay

away from places that have strobes,avoid camera's with flash, etc.

But you can get caught off gaurd.

 

The second cue for me is black spots. The 3rd is a headache with a

nausau, the 4th is involuntary twitches.

 

Can you site the web links for me in the previous responses, there

was one that was repeatedly mentioned but no website link.

Thanks