Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Debi, I have to second Frank's suggestion that you do look very seriously into Paxil and getting your daughter off. I put my child on Effexor and will regret it to the day I die. We are now two months off but not through healing. Withdrawal ended up taking 6 months. I had to take him out of school to get through it. Doing the two was totally incompatible. We're homeschooling on a program that allows him to do work when he feels up to it and created no conflict when he had to spend the day throwing up and was totally dysfunctional (withdrawal effects). The FDA, as bad as it is, has recently published a warning against giving Paxil to children following England doing the same. While the warning should say more, it does say at least " don't do it " . Everything I learned through our process is right in line with what Frank is saying. SSRIs alter normal functioning of the seratonin system so dietary supplements have to be put into that context if you are going to use them when on an SSRI. I wouldn't use 5-HTP while on those drugs from what I learned because of seratonin syndrome - getting too much seratonin trapped in cells can be very seriously bad. We did use glutathione up until he was completely off, then switched to Tyrosine. I'm going to change that to 5-HTP in a few more weeks but again, we are off the drugs which is very different than being on them. I'm not a doctor - just a mother like you but from what I have learned, the best natural source for trytophan and the other nutrients used in production of seratonin is meat - memory right now is telling me they are B-6, B-12 and magnesium (please anyone correct me). I don't think a gluten free diet will cause seratonin deficiencies. Wheat actually is not that nutrient dense if you remove the vitamins that are added to it. Wheat has carbohydrates which are necessary for the uptake of seratonin. As I understand it, too many carbs and not enough proteins is the more usual cause of seratonin deficiencies. SSRIs actually reverse the effect of carbohydrates and such a diet. Mary - califpacific Saturday, August 02, 2003 2:34 PM Re: 5-HTP? Dear Debi, I suggest that you really look into Paxil and the other SSRIs. These drugs are very destructive. They do suppress the symptoms, but they are addictive, have horrible withdrawal symtoms and damage the brain. Paxil is reputed to be the worst one of the bunch. They raise the leevl of seratonin in a very unnatural way that is not benefecial to the body. Since it cannot be taken forever, when someone comes off it ALL of the neorotransmitters go haywire. Then the problem is greatly magnified. Of course the choice is your's, but if you post here the choice to respond. You do not want to give 5-htp because it might cause too much seratonin, which can cause seratonin syndrome, but are giving tryptophan. Are you aware that 5-htp is the intermediate step between tryptophan and seratonin so you are giving her basically the same thing almost. Niacin will also affect the ratio in the body as the tryptophan (or 5-htp)is converted into niacin if the body needs it and if their is any left over it is then converted to seratonin and melatonin. She may have an unusual need for niacin, so think about reading up on niacin. Chelation therapy is going to be very hard when someone is taking paxil and any other drugs. I am not an expert of autism. I have only read about it but, as to the foods, A lot of the groups are using enzymes to digest foods to balance out the problems absorbing nutrients. Did she receive any medicine or chemical exposure at the 3 month mark when she spiraled and became worse. I would suspect that firstly or the builup in the diet of an imbalance due to not having the proper enzymes to take in a balance of nutrients and it eventually is way out of balance and causes more symptoms. You state that you are going to wean her when she goes back to school. When coming off Paxil or any SSRI expect severe changes in the withdrawal. It would seem to me to take her off when she is not in school would be more beneficial to her although maybe not for you, as it could cause difficulties if done during school time. There are many sources on the links page that describe SSRIs, seratonin, etc. and some on autism. I think that you are going to have to use either a natural means to help your daughter or a chemical means as the two are not compatable and do not work together. The chemo is almost assured to do additional damage and then you will have two problems to deal with instead of one. Frank , " Debi " <fightingautism> wrote: > I have considered this and given to my daughter for her autism, as > she is on Paxil and I want to wean her off. The con, as Dr. Andrew > Cutler (I think this is who I read it from), is a chance of too much > seratonin in the body tissues without adequate amounts reaching the > brain. Also, stomach irritation can occur. The plus side is obvious, > feeling better and not having to take an SSRI. > > There are a variety of foods which contain this naturally. Poultry, > grains, and dairy. Most of what I've read have come from people on > my autism boards, but here is one link to a description about it. > Allie was but on the gluten/casein free diet and began to talk for > the first time since she had regressed, along with wonderful other > positive behavioral changes. However, about 3 months into the diet > her behavior spiraled horribly. She didn't improve until we began > Paxil, about 5 months after her second regression. I believe that > she probably depleted her seratonin levels because of the > restrictive foods. She has MAJOR oral issues. > > BTW, I am not currently giving the tryptophan to Allie, as we are > going through too much with school being out, dietary issues and > chelation therapy. I have begun to wean her from the Paxil slightly > and will get more aggressive once her routine of school is > established. I'll be happy to report the affects, once it's done! > > http://www.biochemicals.com/ > > Debi > > , Zipamour@a... > wrote: > > Does anyone have experience with a supplement called 5-HTP? As an > > alternative to SSRIs, my doc recommended it as a method to boost > seratonin > > because my amino acids salivary test showed that I have almost no > tryptophan. > > Thanks for all ideas. Ziporah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 - " Debi " <fightingautism Sunday, August 03, 2003 1:29 AM Re: 5-HTP? > > I am not giving either 5-htp OR tryptophan, I cannot find plain > tryptophan at all, everything I've found that says " tryptophan " on > the label says " 5-htp " in the ingredients label. I just did a web search. Plain tryptophan is available, albeit at a much higher price than I remember paying prior to the FDA ban some years ago. Alobar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Oh Deb, Don't give her a choice. This is exactly what got me into trouble with my son. My dad breeds cattle and when they were young, it was a thing to take the little kids up to experience the ranch and feeding cows and all. My son put a psychological block to eating those sweet little creatures. I tried forcing him to eat meat until he threw it up at dinner one night - all across the table and everyone else's food. I even took him to the family doctor thinking this was bad and I should at least supplement with vitamins. Well good old allopathic medicine said I was being an overly fanatic mother and he would be just fine eating whatever. So I let him win and gave up - emotional and behavorial problems got really bad and we ended up on Effexor and Trazadone as the doctor diagnosed a sleep problem - genetic. Yea right. They seemed to help for the short term but then we had even more problems. Came a point our doctor said " I don't know " . I was having troubles myself, had gotten on Remeron and Xanax and finally called an old childhood friend that is a research scientist. He strongly advised against the drugs and directed me to purchase Atkins book and take my son back to the doctor and quote him as saying that the boy was hypoglycemic. The doctor then asked my son what he ate and I will never ever forget the expression on that doctors face. Yea he goofed big time. Chips, potatoes, fruit juices are now major NOs in my house. They are all way too high in carbohydrates, bad fats, preservatives - everything you want to avoid in even the healthiest of kids. Juices are so loaded with sugar, you just as well drink coke and take vitamin C. They will not only satiate her appetite, what they do to insulin levels make her crave them even more. If she doesn't have them, she'll get hungary enough to the point she WILL eat anything. Without them, she'll lose the cravings for them pretty quick. It was when I put my foot down and said NO that mine started eating meat because I just didn't give him a choice. Once he started it and had no junk available, he started feeling so much better - he now pours it and vegatables down. If he eats junk (he's gotten with buddies and tried), it makes him feel bad and he has lost desire for it. This really is an issue for all kids today - junk predominates their diet. ADD, violence, depression, propensities to drug use, bipolar problems, suicides, emotional problems, use of Ritalin and SSRIs, etc. have been increasing, right in line with the occurences of diabetes type II and cancer in kids. They eat what they shouldn't and don't eat what they should. I don't know how much of it is related to autism but I know such a diet is bad and will cause problems in and of itself. Mary - Debi Sunday, August 03, 2003 1:34 AM Re: 5-HTP? She won't eat meat. She will essentially only eat potato chips, french fries, and fruit juice. Occasionally she'll bite something different, but few and far between. Debi > > I'm not a doctor - just a mother like you but from what I have learned, the best natural source for trytophan and the other nutrients used in production of seratonin is meat - memory right now is telling me they are B-6, B-12 and magnesium (please anyone correct me). I don't think a gluten free diet will cause seratonin deficiencies. Wheat actually is not that nutrient dense if you remove the vitamins that are added to it. Wheat has carbohydrates which are necessary for the uptake of seratonin. As I understand it, too many carbs and not enough proteins is the more usual cause of seratonin deficiencies. SSRIs actually reverse the effect of carbohydrates and such a diet. > > Mary > > - > califpacific > > Saturday, August 02, 2003 2:34 PM > Re: 5-HTP? > > > Dear Debi, > > I suggest that you really look into Paxil and the other SSRIs. These > drugs are very destructive. They do suppress the symptoms, but they > are addictive, have horrible withdrawal symtoms and damage the brain. > Paxil is reputed to be the worst one of the bunch. They raise the > leevl of seratonin in a very unnatural way that is not benefecial to > the body. Since it cannot be taken forever, when someone comes off it > ALL of the neorotransmitters go haywire. Then the problem is greatly > magnified. > > Of course the choice is your's, but if you post here the choice to > respond. > > You do not want to give 5-htp because it might cause too much > seratonin, which can cause seratonin syndrome, but are giving > tryptophan. Are you aware that 5-htp is the intermediate step between > tryptophan and seratonin so you are giving her basically the same > thing almost. Niacin will also affect the ratio in the body as the > tryptophan (or 5-htp)is converted into niacin if the body needs it > and if their is any left over it is then converted to seratonin and > melatonin. She may have an unusual need for niacin, so think about > reading up on niacin. > > Chelation therapy is going to be very hard when someone is taking > paxil and any other drugs. > > I am not an expert of autism. I have only read about it but, > as to the foods, A lot of the groups are using enzymes to digest > foods to balance out the problems absorbing nutrients. Did she > receive any medicine or chemical exposure at the 3 month mark when > she spiraled and became worse. I would suspect that firstly or the > builup in the diet of an imbalance due to not having the proper > enzymes to take in a balance of nutrients and it eventually is way > out of balance and causes more symptoms. > > You state that you are going to wean her when she goes back to > school. When coming off Paxil or any SSRI expect severe changes in > the withdrawal. It would seem to me to take her off when she is not > in school would be more beneficial to her although maybe not for you, > as it could cause difficulties if done during school time. > > There are many sources on the links page that describe SSRIs, > seratonin, etc. and some on autism. > > I think that you are going to have to use either a natural means to > help your daughter or a chemical means as the two are not compatable > and do not work together. The chemo is almost assured to do > additional damage and then you will have two problems to deal with > instead of one. > > Frank > > > > > , " Debi " > <fightingautism> wrote: > > I have considered this and given to my daughter for her autism, as > > she is on Paxil and I want to wean her off. The con, as Dr. Andrew > > Cutler (I think this is who I read it from), is a chance of too > much > > seratonin in the body tissues without adequate amounts reaching the > > brain. Also, stomach irritation can occur. The plus side is > obvious, > > feeling better and not having to take an SSRI. > > > > There are a variety of foods which contain this naturally. Poultry, > > grains, and dairy. Most of what I've read have come from people on > > my autism boards, but here is one link to a description about it. > > Allie was but on the gluten/casein free diet and began to talk for > > the first time since she had regressed, along with wonderful other > > positive behavioral changes. However, about 3 months into the diet > > her behavior spiraled horribly. She didn't improve until we began > > Paxil, about 5 months after her second regression. I believe that > > she probably depleted her seratonin levels because of the > > restrictive foods. She has MAJOR oral issues. > > > > BTW, I am not currently giving the tryptophan to Allie, as we are > > going through too much with school being out, dietary issues and > > chelation therapy. I have begun to wean her from the Paxil slightly > > and will get more aggressive once her routine of school is > > established. I'll be happy to report the affects, once it's done! > > > > http://www.biochemicals.com/ > > > > Debi > > > > , Zipamour@a... > > wrote: > > > Does anyone have experience with a supplement called 5-HTP? As > an > > > alternative to SSRIs, my doc recommended it as a method to boost > > seratonin > > > because my amino acids salivary test showed that I have almost no > > tryptophan. > > > Thanks for all ideas. Ziporah > > > Quote Link to comment Share on other sites More sharing options...
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